new to the group

[Guest guest]

Thanks, Arlene. I'll take your advice.

Actually some of the women in my office say I look cute with a cane :-).

Des Tuck

[Guest guest]

Hi and welcome aboard!

>Hi,I am from india and new to the group and atlast realised the true

>potential of the internet though i am a software engineer by

>profession ( sometimes i wondered whether i had opted for a freak

>procdure)Now after becoming a member of this group iam resting easy.I

>had a resurfacing done on one side about 6 months ago in chennai,

>india by Dr. Vijay Bose. I understand he has put in a BHR devise in

>me.

>I am just 28 years old and extremely happy with the result.I suffer

>from anklosig spondilitis(do not know whether it makes sense in other

>parts of the world but supposed to be common here).I am able to do a

>lot of activities now and do swimming regularly.I am planning to get

>married soon and no prizes for guessing who is going to be a very

>special invitee.

>It has been about 10 days since i came across this group and i have

>practically read every mail.I hope i will be able to contribute

>constructively to this group.I was shocked about the reference made

>to some special socks that one wears postop. I was given no such

>thing and i immediately rang my surgeon on his moblie phone( all

>resurfacing patients have access to him all the time- can you beat

>that!) He told me that asian patients do not have the problem in the

>veins and he does not recommend the socks routinely. I would be

>grateful if someone could give me more information on the socks so

>that i can purchase them.

Don't bother. These are compression stockings (very tight elastic) and are

worn from 2 - 6 weeks after surgery, no longer.

>I have only very good things to say about my surgeon and his team. He

> certainly seemed to know what he is doing which instilled much

>needed confidence in me.He told me he was

>trained in the U.K by derek & tracy( sounds like comic book

>characters). THe

>attention he gave me and the other resurfacing patients post-op was

>remarkable. My own family could not match that. He was with me during

>the intial days when the physios were working on me.All things were

>explained to me in great detail and he encouraged me to make a list

>of questions that i should ask him on the next day ward

>rounds.Bascically i am so happy to be born again as resurfer from a

>depressed painful(hip) soul. I have no activity restriction now and

>enjoying everyminute of it) Correct me if i am wrong but from what i

>understood from my surgeon, the more the activity the better the

>resurfacing will behave.

Yes, that is my understanding too and am doing lots of sports now, at just

barely 5 months post-op. Swimming is really good as is some weightlifting

to build up the muscles in the legs. Don't lift a lot or weight, just use

full range of motion and try to get things to work. A lot of things

haven't been used, so be nice to them!

> I want to share my positive experience so

>that other active peaple can take advantage of resurfacing in all

>parts of the world. Why is this not availble in the USA . I was under

>the impression that they are in the forefront of technology.

Hah! Typical: we were the first country to adopt decimal money, well over

200 years ago, but can't quite seem to use the metric system. Americans

tend to be conservative generally, so as we say, " if it isn't broken, don't

fix it. "

> Is it

>something to do with insurance.? I do not have insurance nor am i

>very rich.I paid from my pocket with a little help from my parents

>the entire amount of 160,000 rupees which i consider to be pretty

>reasonable.

In the US, healthcare costs are stagerringly high and that limits what some

people are able to get for treatment. No, most of us don't like it, but it

is a very long story.

>wihing the growing fraternity of present & future resurfacers years

>and years of painfree , restriction-free activity that will help the

>metal inside.

>PS

>

>

>

>

[Guest guest]

Hi Premindy, what a nice story and its nice to meet you. I'm 52 from Uk and

probably going to pay £6000 to have my left hip resurfaced in Belgium. Good

luck to you... i'm now going to work out the rupee/pound exchange rate.

Which part of India are you from.?.. I have visited Goa which was lovely for

a holiday.

TonyM

new to the group

> Hi,I am from india and new to the group and atlast realised the true

> potential of the internet though i am a software engineer by

> profession ( sometimes i wondered whether i had opted for a freak

> procdure)Now after becoming a member of this group iam resting easy.I

> had a resurfacing done on one side about 6 months ago in chennai,

> india by Dr. Vijay Bose. I understand he has put in a BHR devise in

> me.

> I am just 28 years old and extremely happy with the result.I suffer

> from anklosig spondilitis(do not know whether it makes sense in other

> parts of the world but supposed to be common here).I am able to do a

> lot of activities now and do swimming regularly.I am planning to get

> married soon and no prizes for guessing who is going to be a very

> special invitee.

> It has been about 10 days since i came across this group and i have

> practically read every mail.I hope i will be able to contribute

> constructively to this group.I was shocked about the reference made

> to some special socks that one wears postop. I was given no such

> thing and i immediately rang my surgeon on his moblie phone( all

> resurfacing patients have access to him all the time- can you beat

> that!) He told me that asian patients do not have the problem in the

> veins and he does not recommend the socks routinely. I would be

> grateful if someone could give me more information on the socks so

> that i can purchase them.

> I have only very good things to say about my surgeon and his team. He

> certainly seemed to know what he is doing which instilled much

> needed confidence in me.He told me he was

> trained in the U.K by derek & tracy( sounds like comic book

> characters). THe

> attention he gave me and the other resurfacing patients post-op was

> remarkable. My own family could not match that. He was with me during

> the intial days when the physios were working on me.All things were

> explained to me in great detail and he encouraged me to make a list

> of questions that i should ask him on the next day ward

> rounds.Bascically i am so happy to be born again as resurfer from a

> depressed painful(hip) soul. I have no activity restriction now and

> enjoying everyminute of it) Correct me if i am wrong but from what i

> understood from my surgeon, the more the activity the better the

> resurfacing will behave.I want to share my positive experience so

> that other active peaple can take advantage of resurfacing in all

> parts of the world. Why is this not availble in the USA . I was under

> the impression that they are in the forefront of technology.Is it

> something to do with insurance.? I do not have insurance nor am i

> very rich.I paid from my pocket with a little help from my parents

> the entire amount of 160,000 rupees which i consider to be pretty

> reasonable.

> wihing the growing fraternity of present & future resurfacers years

> and years of painfree , restriction-free activity that will help the

> metal inside.

> PS

>

>

>

>

[Guest guest]

premindy wrote:

.....I was shocked about the reference made

to some special socks that one wears postop. I was given no such

thing and i immediately rang my surgeon on his moblie phone( all

resurfacing patients have access to him all the time- can you beat

that!) He told me that asian patients do not have the problem in the

veins and he does not recommend the socks routinely. I would be

grateful if someone could give me more information on the socks so

that i can purchase them....

Hi Premindy,

welcome, and nice to hear something from India.

Those socks, or TEDS as we call them, are mainly required for the first 5-6

weeks post-op. So if you are at 6 month now, you are way beyond the critical

period.

I had my both hips done by De Smet in Belgium (bilateral BHR), and I am also

a Ankylosing Spondylitis patient, so it seems we have some bad thing in

common...

take care,

[Guest guest]

Welcome to the group, Premindy-

I am just at 4 weeks post op and still am required by Dr Mont to wear

TEDS--I hate em, but will wear them for another 2 wks until Dr Mont

lets me put some weight on my operated leg.

Captain Amaze_O left C+ Dec 17,2001 OA

[Guest guest]

Hi Premindy, and welcome,

I believe you are the first visitor from the sub-continent. Glad to

hear that your operation was a success and that you intend to stay on

here.

I have read some stuff about hip operations on your own BHR

resurfacing site: http://www.hipresurfacingindia.com. It makes the

point that osteo arthritis of the hip is a disease of the young in

your country, whereas in the west it is (mainly) a problem for older

people - present company excepted!

Guess you know about one of the alternatives that a lot of your

countrymen end up with - a " fused " hip: and we surfers worry about

getting a Total Hip Replacement! The BHR must be a God-send there.

And what a bargain by western standards - I reckon 160,000 rupees is

equivalent to GB£2,300 or US$3,300 - a discount of 60% off a Belgian

BHR, 75% off a British one and 90% of a U.S. equivalent.

I have one co-director and two friends with Ankolosing Spondilitis,

so I guess the name is universal. One guy, who is my age (55) had

his first THR at the age of 29. Pity BHR wasn't around than.

Great to hear from you

Terry - BHR RH (11 months - London)

> Hi,I am from india and new to the group and atlast realised the

true

> potential of the internet though i am a software engineer by

> profession ( sometimes i wondered whether i had opted for a freak

> procdure)Now after becoming a member of this group iam resting easy.

[Guest guest]

Welcome to the group - great to hear from India.

> I

> had a resurfacing done on one side about 6 months ago in chennai,

> india by Dr. Vijay Bose. I understand he has put in a BHR devise in

> me.

> He told me he was

> trained in the U.K by derek & tracy( sounds like comic book

> characters).

When Mr McMinn did mine (over two years ago), he was assisted

by two surgeons in training, one from India and the other from

Germany. Sadly, I cannot remember the name of either - maybe that was

your surgeon.

Do you know how many doctors in India are using the BHR?

Regards,

Vale

[Guest guest]

HELLO MY NAME IS GINA. I HAVE A 6 YEAR OLD SON WHO HAS LENNOX GASTAUT SYNDROME.

HE HAD HIS FIRST SIEZURE SHORTLY AFTER HIS 4TH BIRTHDAY. FOUND NO REASON WHY HE

DEVELOPED THIS. ALL HIS MEDICINES HAS FAILED TO HELP. HE IS NOW ON

LAMICTAL,100MG,TOPAMAX ,75MG. HE ALSO TAKES A SMALL AMOUNT OF CLONIDINE TO HELP

HIM SLEEP AT NIGHT. HE HAD THE VNS IMPLANT IN FEB2001 THAT HAS ALSO FAILLED TO

HELP CONTROL THE SIEZURES. WE ARE NOW ON THE VERGE OF STARTING THE KETO DIET.

ANY INPUT OR INFORMATION YOU HAVE WOULD BE APPRECIATED

THANKS GINA

[Guest guest]

:

I'm sure that you are ready and willing to start the diet. It enables you to

help your son-I really like being in control for once.

Stay with this list-their are so many wonderful Moms and Dad's (BILL) to help

you on your new path.

Diane

new to the group

HELLO MY NAME IS GINA. I HAVE A 6 YEAR OLD SON WHO HAS LENNOX GASTAUT

SYNDROME. HE HAD HIS FIRST SIEZURE SHORTLY AFTER HIS 4TH BIRTHDAY. FOUND NO

REASON WHY HE DEVELOPED THIS. ALL HIS MEDICINES HAS FAILED TO HELP. HE IS NOW ON

LAMICTAL,100MG,TOPAMAX ,75MG. HE ALSO TAKES A SMALL AMOUNT OF CLONIDINE TO HELP

HIM SLEEP AT NIGHT. HE HAD THE VNS IMPLANT IN FEB2001 THAT HAS ALSO FAILLED TO

HELP CONTROL THE SIEZURES. WE ARE NOW ON THE VERGE OF STARTING THE KETO DIET.

ANY INPUT OR INFORMATION YOU HAVE WOULD BE APPRECIATED

THANKS GINA

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Hello ,

I haven't ever replied before. Our daughter is four and has had seizures

since 5 1/2 months old. No other problems though, thank God. We have been

on the diet since August and didn't get seizure control until Dec. 2nd. We

have complete control and our daughter is seizure-med. free. The biggest

joy we have is watching her learn more and more every day. She was taking

lamictal, topamax, and pheno. Wow! This diet has brought us hope for her

future and a new little girl. I know everyone is different, but so far for

us, it truly has been a miracle diet. If you ever need help or advise,

don't hesitate to ask. My husband and I almost gave up several times, but

we hung in there.

new to the group

HELLO MY NAME IS GINA. I HAVE A 6 YEAR OLD SON WHO HAS LENNOX GASTAUT

SYNDROME. HE HAD HIS FIRST SIEZURE SHORTLY AFTER HIS 4TH BIRTHDAY. FOUND NO

REASON WHY HE DEVELOPED THIS. ALL HIS MEDICINES HAS FAILED TO HELP. HE IS

NOW ON LAMICTAL,100MG,TOPAMAX ,75MG. HE ALSO TAKES A SMALL AMOUNT OF

CLONIDINE TO HELP HIM SLEEP AT NIGHT. HE HAD THE VNS IMPLANT IN FEB2001 THAT

HAS ALSO FAILLED TO HELP CONTROL THE SIEZURES. WE ARE NOW ON THE VERGE OF

STARTING THE KETO DIET. ANY INPUT OR INFORMATION YOU HAVE WOULD BE

APPRECIATED

THANKS GINA

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe