Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Lojack, Remember a month or so ago when i e-mailed my Dr about coughing up junk???? Well she said when we don't have a cough and start that it is nothing to play with. She wanted me to come to Gainesville and be admitted.. I said No but agreed to prednisone for a week. TAKE CARE OF YOU...CALL YOUR DR AND AT LEAST GET AN ANTIBIOTIC... PLEASE Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Brett, Thanks for asking, man. My chest is still feeling sore and I still have a sore throat. Still coughing up junk which is unusual but other than that can't complain. I am at work. Gonna try and walk at lunch altho it's pretty cold here - 10 degrees. Believe it or not, I usually do better when it's really cold vs. when it warms up to the 30's. Take care. Leanne brett bowser wrote: Hey leanne: you said yesterday that you might be coming down with something how are you feeling today? brett bowser brett@... Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 Hi Lojack, How was your support meeting? How are you feeling? REALLY feeling? Boy being sick is really the pits. I am worried about you. I wish you would just go to bed for a couple days and let your body catch up to your running around self.. You know you have to fly soon. Oh goodie, goodie.. now how old is that sounding..lol I don't care, Just get well. Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Jane, I'm going to be sittin on Peggy's porch very soon! I can't wait. Please get better quick, I'm worried about you!! Love, Beth in NC age 48 Fibrotic NSIP 06/06 " For as long as I shall live, I will testify to Love. " Sher > > > > > > > > Hi Sher! > > > > I am glad your O2 is halping you. I am doing a little better today. My > sats stay up when I am sitting or lying down at 5 liters. When I move > around, down they go! So I am not moving around too much. As long as the > diarhea stays away, I'll be O.K. > > > > toodles > > > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Hey Ms. Peggy, Support group meeting went very well. We had 20 people and we changed our meeting place - we meet in a medical center now and everyone really enjoyed it. Prior to that we were meeting in a restaurant and you would only be able to talk to your small group. Now everyone can hear and see everyone else. They are such a nice group of people. We learn so much from each other. You are with the people of your tribe. They get it. I get it. Support groups are important. The newsletter that is just coming out has our Chattanooga picture in it and I talk about the importance of support groups. Of course, I mentioned this group too. I don't know where I'd be without y'all. I'm still sick but much better. If I could just get this gorilla from off my chest I would be a happy camper. My saturation has also decreased. Hoping it will go back up after this is over. Two more days of levaquin. February can be over all ready. Come hell or high water I am flying to Florida on March 7. NO GETTING SICK! NO GETTING SICK! Love to you all. LeannePeggy wrote: Hi Lojack, How was your support meeting? How are you feeling? REALLY feeling? Boy being sick is really the pits.I am worried about you. I wish you would just go to bed for a couple days and let your body catch up to your running around self.. You know you have to fly soon. Oh goodie, goodie.. now how old is that sounding..lol I don't care, Just get well.Love and Prayers, PeggyFlorida, ipf 6/04Worry looks around.Sorry looks back,Faith looks up.Jane,I'm going to be sittin on Peggy's porch very soon! I can't wait. Please get better quick, I'm worried about you!!Love,Beth in NC age 48 Fibrotic NSIP 06/06"For as long as I shall live, I will testify to Love." Sher> >> >> >> > Hi Sher!> >> > I am glad your O2 is halping you. I am doing a little better today. My> sats stay up when I am sitting or lying down at 5 liters. When I move> around, down they go! So I am not moving around too much. As long as the> diarhea stays away, I'll be O.K.> >> > toodles> >> > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> >> Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Ah....I hadn't read far enough. Make sure if you're not completely well you get a renewal of the levaquin or something. Otherwise the minute you're off it, the illness will try to sneak back in. I think we're all finding that certainly with colds and flu our saturation levels drop. Mine do a bit based just on ordinary congestion. But flu certainly adds an obstructive illness on top of our restrictive disease. I am congested often enough that I had to switch types of cannulas on my Helios. The normal one has intake on one nostril and measures exhale on the other for the pulse. The one I'm using now is designed for " sinus sufferers " and has both intake and exhale on both nostrils. Out of curiosity, who do you call or see when sick like this? Your primary care physician or your pulmonologist? I ask because it seems to me primary physicians would tend to treat you like any flu or cold patient and not adequately consider the risks with our diseases. I'm guessing by the prescription of Levaquin it was your pulmonologist. I don't think the weaker antibiotics are generally enough for us. > > > > > > Jane.... I'm glad you are staying 'down' and not trying to 'be up' > > regardless of how you feel or how the sats are. > > > Oh, Yeah...let's hope that 'scoot to poop' stays away. > > > Do you read your mail on the web or your inbox? If you read on > the web > > you won't see the little icon I sent you. > > > > > > I'm going to watch a movie. Found a marvelous series, " The House of > > Eliott " . I've seen the 4-disks of series one and will now start 1 > of 4 > > disks on series 2. Then 3. I get movies through NetFlix / Do you > know of > > them? > > > > > > Jane!...I just noticed you were Dx nearly 10 years ago! I don't > think > > this registered with me until right now. 10 years is something! > That's > > hopeful for the rest of us. > > > > > > If I was there I'd mother you and bring you tea and crumpets, > lol and > > tuck a warm blanket around you. Heck I'd even read to you. lol. > > > > > > Stay warm. > > > Mama-Sher, 69, IPF 3-06, OR. > > > Don't fret about tomorrow, God is already there! > > > > > > Sher > > > > > > > > > > > > Hi Sher! > > > > > > I am glad your O2 is halping you. I am doing a little better > today. My > > sats stay up when I am sitting or lying down at 5 liters. When I move > > around, down they go! So I am not moving around too much. As long > as the > > diarhea stays away, I'll be O.K. > > > > > > toodles > > > > > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Everytime I hear people referred to as " Fluffy " I think of the comedian who was booted from Last Comic Standing, Iglesias. We actually saw him perform long prior to the show here locally as a warm up act for someone. He was as funny or funnier than the star act. And he does make it clear he isn't fat but is " fluffy " . What a nice word. Now a little weight gain doesn't sound nearly so bad. > > > > > > MB... I haven't been " out " yet with my compressed cyl...m6? is that > > right?...The cyl. won't fit in my BOA unless it's left open and I > > don't want to do that. The conserver makes it too tall so I may have > > to buy a bigger BOA. There is a size bigger (taller). Don't want to > > buy more until I know what I'll use. > > > I'm not impressed with what I've heard about liquid so didn't take > > it when suggested. > > > I'll see if what I have works ok. Apria had Home Fill which I just > > loved but Lincare doesn't have them. Home Fill is not worth going > > back to Apria!! > > > I go tomorrow for a 6mw with O2. Then the testing is complete and I > > will know my needs day and night. Oximeter was done last night. > > > Yes, I'm anxious to get the final numbers. I'm surely more sob > > rather suddenly. > > > Thanks for sharing w/ me. > > > Love, > > > Mama-Sher, age 69. UIP (IPF?) 3-06, OR. > > > Don't fret about tomorrow, God is already there! > > > > > > Bruce from Kerry > > > > > > > > > As I mentioned to Joyce, trying to catch up on posts. Wanted to > > > mention thanks to you for posts on conservers. I'm still trying > > to > > > work out my best suit for O2. My POC did not keep up w/ me and > > I just > > > refuse to deal w/ liquid (don't bother people... I'm not going > > there, > > > not now, just my gut and I'm stickin' w/ it). I'm now trying to > > > juggle the compressed tanks, find my level, figure how much I > > need, > > > what flow w/ what activities, how long tanks will last etc. New > > to > > > all issues w/ the compressed and conservers so your post and > > link to > > > Chad products came at right time. Thanks. > > > > > > Kerry > > > IPF '01 > > > S. IN > > > > > > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Me too. I guess when I ask my Dr. about taking it she made a face and said " NO It's not approved or has it been proven to help. " Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. CPF was also pushing the drug Actimmune. That is a big problem for me. Leanne Bruce Moreland wrote: You are correct there too, Brett....the vast majority of funds in the history of CPF have come from Intermune. I find that disturbing. However, then I see and hear of their seminars and it appears they are doing some good work in educating. But its like the politician who, before laws limiting, too enormous amounts from one benefactor. Regardless of how well he served, you never were comfortable with that. From 2001-2004, Intermune contributed $2.7 million to CPF which was 85% of all their funding. I don't have more recent numbers. I'm not offering this in any way as a statement regarding the work of CPF or their use of the funds. Their means of funding as well as their use is very different than that of PFF but its to each to judge the effectiveness prior to donating to either. > > > > > Interesting.. > > > > http://www.stockhouse.ca/news/news.asp?newsid=6810274 > > > > > > Leanne Storch > > Executive Assistant & Patient Advocate > > Pulmonary Fibrosis Foundation > > 1332 N. Halsted, Suite 201 > > Chicago, IL 60622 > > www.pulmonaryfibrosis.org > > P > > F > > > > It takes your breath away > > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. > > Try it now. > > > > > > brett bowser > brett@... > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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