Also returning from the Dead!

[Guest guest]

Hello Everyone!

Sorry to be MIA but like everyone else things have been crazy to say

the least! I am really, really glad to have found this group and have been

reading with great interest everyone's posts. However not being used to this

volume of mail, it has been all I can to do read let alone reply.

Anyway regarding my little guy, I met with Riley's (age 2 1/2)

psychologist and psychiatrist on Wed. and the psych. finally (not that it

matters) gave me an official, unofficial dx of either HFA or Asperger's. She

said it was too early to tell! However she said his prognosis was really

good. I am still not sure fully what that means...compared to other autistic

kids or compared to NT kids or what?? They said it looks good for him

because he has excellent speech, (although very echolalic and repetitive) I

caught it so early, have him going with therapy so soon, (I meet with the

Early Intervention preschool, ST and OT all next week). and he has at least

average intelligence. So I think I am hopeful but I am so new to all of

this, and hearing about the trials you all go through, I am not going to get

too excited. I will just take it one day at a time!!

Krissy

Mom to Jessi 9 NT Zack 6 NT and Riley 2 we'll see

Currently looking into Marble Replacement Therapy for myself

because I have lost mine!! ;-)

[Guest guest]

hi krissy,

i am michelle married to paul, mum to sebastain (11) and rowan (6) ASD living in

northern ontario. i was just hoping to ask if you wouldn't mind keeping an eye

peeled for my marbles while you are at it. let me know if you find them ;o)

michelle

Also returning from the Dead!

Hello Everyone!

Sorry to be MIA but like everyone else things have been crazy to say

the least! I am really, really glad to have found this group and have been

reading with great interest everyone's posts. However not being used to this

volume of mail, it has been all I can to do read let alone reply.

Anyway regarding my little guy, I met with Riley's (age 2 1/2)

psychologist and psychiatrist on Wed. and the psych. finally (not that it

matters) gave me an official, unofficial dx of either HFA or Asperger's. She

said it was too early to tell! However she said his prognosis was really

good. I am still not sure fully what that means...compared to other autistic

kids or compared to NT kids or what?? They said it looks good for him

because he has excellent speech, (although very echolalic and repetitive) I

caught it so early, have him going with therapy so soon, (I meet with the

Early Intervention preschool, ST and OT all next week). and he has at least

average intelligence. So I think I am hopeful but I am so new to all of

this, and hearing about the trials you all go through, I am not going to get

too excited. I will just take it one day at a time!!

Krissy

Mom to Jessi 9 NT Zack 6 NT and Riley 2 we'll see

Currently looking into Marble Replacement Therapy for myself

because I have lost mine!! ;-)

[Guest guest]

Krissy,

If the marble therapy works out, let us know. I could use it too!

So far your information sounds good! I hope it continues when you meet with

the school!

Sue in MI

Mom to: 12 1/2, HFA

9, AS/ADD

IM smgaska1

[Guest guest]

Hi Krissy!

It's nice to have you here (back?) I'm not sure if I've " met " you on

this list or not, but I'm Karin with a 3 year old son Jake, dx with

Autism mild-to-moderate range or PDD with Autistic tendencies. take

your pick. :-)

It will be interesting to follow Riley's progress since he is so young

in starting out.

Take care, Karin

KBUtahDiver@... wrote:

> Hello Everyone!

> Sorry to be MIA but like everyone else things have been crazy to say

> the least! I am really, really glad to have found this group and have been

> reading with great interest everyone's posts. However not being used to

> this

> volume of mail, it has been all I can to do read let alone reply.

> Anyway regarding my little guy, I met with Riley's (age 2 1/2)

> psychologist and psychiatrist on Wed. and the psych. finally (not that it

> matters) gave me an official, unofficial dx of either HFA or

> Asperger's. She

> said it was too early to tell! However she said his prognosis was really

> good. I am still not sure fully what that means...compared to other

> autistic

> kids or compared to NT kids or what?? They said it looks good for him

> because he has excellent speech, (although very echolalic and repetitive) I

> caught it so early, have him going with therapy so soon, (I meet with the

> Early Intervention preschool, ST and OT all next week). and he has at least

> average intelligence. So I think I am hopeful but I am so new to all of

> this, and hearing about the trials you all go through, I am not going to

> get

> too excited. I will just take it one day at a time!!

> Krissy

> Mom to Jessi 9 NT Zack 6 NT and Riley 2 we'll see

> Currently looking into Marble Replacement Therapy for myself

> because I have lost mine!! ;-)

>

>

>

[Guest guest]

Hi Karin,

Thankyou for introducing yourself, I am trying to keep everyone

straight...I'll get it someday!

Anyway Jake isn't much older than Riley, it sounds like, so I am

wondering how old was he when you had him dx? Was it you that suspected

something or did a Dr. catch it? It took me a lot of Dr. visits for them to

refer me to mental health. I kept telling them, even over a year ago, that

something wasn't right. They told me to read, " Parenting with Love and

Logic. " So in my love and logic way I try to get Riley to go to bed, (we

have huge sleep issues) it talks about just making them stay in their room,

don't worry about " making " them sleep. The Dr. said he wouldn't really " hurt "

himself, so let him bang and don't give in. Well needless to say, I " gave

in " and he came out of his room with his face looking like hamburger from

him hitting hit so many times on the floor and door. Won't " hurt himself " my

ass! I sat there holding him and crying about what a terrible mommy I am,

" letting " him hurt himself so badly. That is when I really knew I needed to

get forceful about getting help. I never suspected Autism but, then again, I

didn't know a thing about it, except for " Rainman " (Now I am

LEARNING...learning everything I can and getting a ton of knowledge just from

this list!) He really fits a lot of the criteria, but some of it he doesn't

fit at all or it is very subtle. The Psy. says some of the autistic traits

may become more apparent as he gets older. I am curious to see what he does

also!

Krissy

Currently looking for a lost sense of humor. If anyone finds one,

please contact me privately so I can identify it.

[Guest guest]

Well needless to say, I " gave

> in " and he came out of his room with his face looking like hamburger from

> him hitting hit so many times on the floor and door.

Wow. Last time you take that doctor's advice on a non-medical matter, huh?

He really fits a lot of the criteria, but some of it he doesn't

> fit at all or it is very subtle. The Psy. says some of the autistic

traits

> may become more apparent as he gets older.

How old is he? I am old myself and forgetful...But it is true that autism

becomes more apparent. It is very subtle (but definitely noticeable to

those with educated eyes) under two years of age. It tends to come on

strong around two, three, even four.

> Currently looking for a lost sense of humor.

I have one, but I am keeping it. I need it! Good luck finding yours.

Salli

[Guest guest]

From: KBUtahDiver@...

>He really fits a lot of the criteria, but some of it he doesn't fit at all or

it is very subtle. The Psy. says some of the autistic traits may become more

apparent as he gets older<

this is certainly true with rowan. all though he has made tremendous progress

since diagnosis (feb 99 2yrs 3 mos) he is " more autistic " now then at that time.

he is a definite classic finger flicker but that is only in the past year and a

half or so. he never lined anything up until nearly two years after diagnosis.

echolalia and pronoun reversal obviously wasn't present at diagnosis when he was

non verbal but it certainly is now. don't get me wrong - i don't think this is

regression - just typical autie development! alongside these definite autistic

traits, rowan has made some fantastic gains.

michelle

[Guest guest]

Hi Krissy! ny has started hitting himself

when he gets mad or frustrated. It is difficult

to watch them do that.

jen

>Hi Karin,

> Thankyou for introducing yourself, I am trying to keep everyone

>straight...I'll get it someday!

> Anyway Jake isn't much older than Riley, it sounds like, so I am

>wondering how old was he when you had him dx? Was it you that suspected

>something or did a Dr. catch it? It took me a lot of Dr. visits for them to

>refer me to mental health. I kept telling them, even over a year ago, that

>something wasn't right. They told me to read, " Parenting with Love and

>Logic. " So in my love and logic way I try to get Riley to go to bed, (we

>have huge sleep issues) it talks about just making them stay in their room,

>don't worry about " making " them sleep. The Dr. said he wouldn't really " hurt "

>himself, so let him bang and don't give in. Well needless to say, I " gave

>in " and he came out of his room with his face looking like hamburger from

>him hitting hit so many times on the floor and door. Won't " hurt himself " my

>ass! I sat there holding him and crying about what a terrible mommy I am,

> " letting " him hurt himself so badly. That is when I really knew I needed to

>get forceful about getting help. I never suspected Autism but, then again, I

>didn't know a thing about it, except for " Rainman " (Now I am

>LEARNING...learning everything I can and getting a ton of knowledge just from

>this list!) He really fits a lot of the criteria, but some of it he doesn't

>fit at all or it is very subtle. The Psy. says some of the autistic traits

>may become more apparent as he gets older. I am curious to see what he does

>also!

>Krissy

>Currently looking for a lost sense of humor. If anyone finds one,

>please contact me privately so I can identify it.

>

>

>

[Guest guest]

> Hi Krissy! ny has started hitting himself

> when he gets mad or frustrated. It is difficult

> to watch them do that.

>

>

> jen

>

Noah chokes himself when he gets frustrated. Its horrible I have to

stop him at least 2 x's a day. He's also taken to having

panic/anxiety attacks over small things. I am taking both boys to the

dr today because they are sick , and I am going to talk to him about

these things. I hope he has some suggestions.

Amy mom to

Noah 6 Lucas 8 ASD's