Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Joanne, My heart is filled with joy to hear you so upbeat. This will truely be one holiday season we will all remember...so bittersweet it's been. You have been thru the "valley of the shadow of death", but the sun is beginning to break thru the clouds. You have not been out of my thoughts for weeks. I even have friends going to your updates daily, or calling me about Todd's progress. There are more people than you'll ever know involved in your ordeal. Good times ahead, and hopefully Todd will start the new year in his own bed at home! Love you girl, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 I have missed you all. I haven't been keeping up with the posts since finding computer access has been very difficult. Now that Todd is back in a regular room on the transplant floor it will be much easier. I have just been beaming these past 2 days. Todd is doing fantastic. He hasn't complained of pain since he had the seizure. I haven't seen him this comfortable for a long time. It is so great to hear the word GOOD when I ask him how he is feeling. My emotions are running wild from this rollercoaster ride the past 3 weeks. I am just so grateful. I expected it wouldn't be an easy ride, but I never in my wildest dreams thought Todd would have to be transplanted again. I can't begin to tell you how awful it was last Thursday night when the critical care doctor came out to the ICU waiting room and sat down and said, " we have done all we can do for Todd, he needs a new liver ASAP, he has a 50/50 chance of making it through the night. " I just sat there in shock, no tears, and no words. After he left we all just broke down. I have never cried so hard in my life. We all stood by his bedside (myself, his dad, stepdad, our pastor, and my dear friend)and begged him to fight. Although he was sedated, I know he could hear us somehow...someway. Well he is a fighter and by the grace of God they found him a new liver from Seattle, Washington the next day. So with the new liver and new recontstructed hepatic artery he is a new guy. Praise the Lord! At times I feel so lost with all the transplant meds, antibiotics, and all the new information. I was so up to date on PSC, but this is a whole new world. So I am sure I will be asking a lot of questions to all of you who have been there done that in the next few weeks. Well it is early and I am going to try to order some Christmas presents online while all is still quiet. Happy Hannukkah to all of those that celebrate the miracle of light. Love you all, Joanne (mom of 2 amazing sons and one loving daughter) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Joanne, That’s the best news of all. I know all too well what a struggle this has been, and I can’t tell you how happy it makes me to hear that Todd is doing so well now. Any questions you have about the post-Tx routine, just ask away. Steve Rahn L Tx 9/6 & 9/8 '85. (Wash. U-STL) (re) Born on the 4th of July, 2003 (U of Iowa) www.presumedconsent.org " Face the Worst, Expect the Best, Do the Most, Forget the Rest " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 ....I am sure I will be asking a lot of questions to all of you who have been there done that in the next few weeks. Such wonderful news that Todd is doing so well, and that the rest of you can finally take a deep breath (and maybe a decent night's sleep). As one of those " been there done that " folks, I add my voice to Steve's: Ask away. Rich in KC Crohn's, cryptogenic cirrhosis, liver txs 5/23 & 26/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Wow, what an incredible story! I'm so sorry you and your family have had to go through this. I am relatively well-informed about PSC, but have no idea about transplants. Well, I wish you lots of continuous luck to get through this rough time. Jarad > I have missed you all. I haven't been keeping up with the posts > since finding computer access has been very difficult. Now that Todd > is back in a regular room on the transplant floor it will be much > easier. I have just been beaming these past 2 days. Todd is doing > fantastic. He hasn't complained of pain since he had the seizure. I > haven't seen him this comfortable for a long time. It is so great to > hear the word GOOD when I ask him how he is feeling. My emotions are > running wild from this rollercoaster ride the past 3 weeks. I am > just so grateful. I expected it wouldn't be an easy ride, but I > never in my wildest dreams thought Todd would have to be transplanted > again. I can't begin to tell you how awful it was last Thursday > night when the critical care doctor came out to the ICU waiting room > and sat down and said, " we have done all we can do for Todd, he needs > a new liver ASAP, he has a 50/50 chance of making it through the > night. " I just sat there in shock, no tears, and no words. After he > left we all just broke down. I have never cried so hard in my life. > We all stood by his bedside (myself, his dad, stepdad, our pastor, > and my dear friend)and begged him to fight. Although he was sedated, > I know he could hear us somehow...someway. Well he is a fighter and > by the grace of God they found him a new liver from Seattle, > Washington the next day. So with the new liver and new > recontstructed hepatic artery he is a new guy. Praise the Lord! > > At times I feel so lost with all the transplant meds, antibiotics, > and all the new information. I was so up to date on PSC, but this is > a whole new world. So I am sure I will be asking a lot of questions > to all of you who have been there done that in the next few weeks. > > Well it is early and I am going to try to order some Christmas > presents online while all is still quiet. Happy Hannukkah to all of > those that celebrate the miracle of light. > > Love you all, > > Joanne (mom of 2 amazing sons and one loving daughter) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Hi I am so happy to hear todd is doing well. My prayers are with you! Terri(14) South Africa RE: Todd is Recovering Joanne, That’s the best news of all. I know all too well what a struggle this has been, and I can’t tell you how happy it makes me to hear that Todd is doing so well now. Any questions you have about the post-Tx routine, just ask away. Steve Rahn L Tx 9/6 & 9/8 '85. (Wash. U-STL) (re) Born on the 4th of July, 2003 (U of Iowa) www.presumedconsent.org "Face the Worst, Expect the Best, Do the Most, Forget the Rest" Quote Link to comment Share on other sites More sharing options...
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