Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 hello folks, Patti here, writing from work... Mike experienced severe itching for the past couple of nights, something he has not really been troubled with before...ironic that you've all been discussing it lately. I've looked up rifampin today in the drug books here at the hospital, it concerns me because of the toxicity to the liver and the kidneys...not to mention the long list of other side efffects...I'm reluctant to ask the Dr. to prescribe it for him should the itching continue. , I do remember you having problems with that, did you not find increasing water and a couple of trips to the tanning bed to alleviate that? After some interrogation it appears my man has NOT been drinking alot of water lately...... Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Patti, Rifampin was the only thing that was effective, long term, against itching for me, although I did find that drinking lots of water, and spending as much time as I could out in the sun, helped a little. I wouldn't hesitate to ask the Doc to prescribe it. He will most likely order frequent blood tests (like weekly) for the first couple of months, to monitor the effect on the liver. Some people have trouble with it, most are able to tolerate without experiencing the side effects. I was in Stage 4 when they started me on it, and there was no bump at all in my LFT's. Good Luck, Steve itching!! and rifampinhello folks,Patti here, writing from work...Mike experienced severe itching for the past couple of nights, something hehas not really been troubled with before...ironic that you've all beendiscussing it lately. I've looked up rifampin today in the drug books hereat the hospital, it concerns me because of the toxicity to the liver and thekidneys...not to mention the long list of other side efffects...I'mreluctant to ask the Dr. to prescribe it for him should the itchingcontinue., I do remember you having problems with that, did you not findincreasing water and a couple of trips to the tanning bed to alleviate that?After some interrogation it appears my man h as NOT been drinking alot ofwater lately......Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Hi steve (or others). i often read about different stages of psc. Cd u tell me waht are the different stages & how do u know what stage u r at? Thanks Tim (UK) gall bladder out 99, psc 01 uc 03 > Quote Link to comment Share on other sites More sharing options...
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