Re: GLAD I FOUND YOU - Carol

[Guest guest]

Hi Carol,

Welcome to the group. Well be glad to have the additional transplant

experience that you can offer and to give you the experience and

support that this group has in abundance.

Like you I have recurring PSC. I had my transplant in April 1998, and

over 2 years ago started having signs that PSC was affecting my new

liver too. For the past year I have had a PTC tube to keep bile

draining well. Over the past 2 months bilirubin has gone from 1.0 to

4.6, which my doctors think indicates problem with the tube more than

the liver. I go for another tube change & cholangiogram tomorrow to

see if a problem area can be pinpointed for correction. The last new

tube a month ago didn't cause any change so I'm not optimistic that

tomorrow will make a big difference either.

Tim R

> Hi, my name is Carol. I had a liver tx in April 1996 due to PSC. I

> was doing great; the last 2 months my numbers started elevating; I

> just had a liver biopsy and was told the disease is recurring.