Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 About ten days ago, Dr Cohen was the guest speaker at a function hosted by the Ohio chapter of the United Mitochondrial Disease Foundation. Prior to this function, one of the adults with Mito asked if it would be possible for Dr. Cohen's lecture to be videocast on the National Institute of Health's website. Thanks to the cooperation of Dr Cohen and the Cleveland Clinic, the Ohio chapter of UMDF, Drs Zullo, Gersche and Mirakho of NIH and two enthusiatic Mitoldies members, (who did phoning) and Connie (who did the videotaping) ..... the Mitoldies group is proud to bring all of you the world over, who were unable to attend the Ohio chapter's presentation, the lecture by Dr Cohen entitled " Mitochondrial Disease: Past, Present and Future " . It is my understanding that the Ohio chapter presented Dr Cohen as a free service to their members .... but they did have a collection for donations to UMDF. UMDF has embarked upon a very important and ambitious project in which they are going to fund mitochondrial research over a 5 year time span at an estimated cost of $500,000.00. You can find out all about the Five Year Plan at <umdf.org> and then " Research " in the green area on the right. It is a very exciting project including establishing Mitocondrial Research Centres (basic, diagnostic, and clinical research), Mitochondrial Research Units (collaborative, multi-centre clinical trials) and an Office of Mitochondrial Medicine at NIH! Dr Cohen's presentation was one of Ohio chapter's ways of raising money! SOOOOOOO .... after you have viewed the videocast, why not send a cheque payable to UMDF (and make sure you put Ohio chapter's presentation of Dr Cohen on the Re: line)!!!! Mail your cheque to: United Mitochondrial Disease Foundation P.O. Box 1151 Monroeville, PA 15146-1151 Or you can use your credit card by calling: Phone: FAX: OK .... you have had the pitch <GRIN> .... now here's how you can watch the videocast. You will need the latest free version of " Real Player " , which is available at the NIH Videocast site <http://videocast.nih.gov/>, in order to view the videocast. The videocast is located at <http://videocast.nih.gov/PastEvents.asp?c=6> and then scroll down until you find the videocast. Click on the Real Player icon .... and happy viewing. Please ..... don't forget to let the UMDF know that you are behind them in this project by sending in a donation, large or small! This is OUR CHANCE as patients and parents to let UMDF know we want to help " Redefine Hope " ! Shepherd, adult patient Canada Quote Link to comment Share on other sites More sharing options...
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