I'm Home from the Hospital

[Guest guest]

Hello Everyone....

I just got home from the hospital this afternoon. I was in for three weeks

this time. I had a complication though. My Infuse A Port became infected

(staph), so the port had to come out. The Dr. tried to place a groshong on

the opposite side, but he couldn't. The point where the vessels connect was

completed occluded. He placed an EJ IV, and took me back into the OR on

Wednesday of this past week. He wanted to make sure the cultures were

negative, and they were Wednesday Morning....it was after the Groshong was

finally placed that they found the staph. So, I was on a week of IV

Vancomycin, and am home on Doxyciclene and Rifampin.

I am feeling a bit better, just exhausted. I am sure that will go away in

time.

I'd like to thank B. for updating y'all for me. I really appreciate it

;o).

I hope everyone is feeling well. I am trying to catch up on the digests, but

that is a full time job!! ;o) I will try and get caught up as best as I can

though ;o).

Hugs,

Robin

[Guest guest]

Hi ...

Thank you very much!!! In time, this will pass.

Robin

> Welcome Back Robin,

>

> Sorry to hear you had complications while in the hospital. We have

> all been there and it's not a nice place to visit. I hope get get

> your strenght back soon! The saying is that it takes 2 days for

> every 1 day to recoop.

[Guest guest]

> Hello Everyone....

>

> I just got home from the hospital this afternoon. I was in for

three weeks

> this time. I had a complication though. My Infuse A Port became

infected

> (staph), so the port had to come out. The Dr. tried to place a

groshong on

> the opposite side, but he couldn't. The point where the vessels

connect was

> completed occluded. He placed an EJ IV, and took me back into the

OR on

> Wednesday of this past week. He wanted to make sure the cultures

were

> negative, and they were Wednesday Morning....it was after the

Groshong was

> finally placed that they found the staph. So, I was on a week of

IV

> Vancomycin, and am home on Doxyciclene and Rifampin.

>

> I am feeling a bit better, just exhausted. I am sure that will go

away in

> time.

>

> I'd like to thank B. for updating y'all for me. I really

appreciate it

> ;o).

>

> I hope everyone is feeling well. I am trying to catch up on the

digests, but

> that is a full time job!! ;o) I will try and get caught up as best

as I can

> though ;o).

>

> Hugs,

> Robin

Welcome Back Robin,

Sorry to hear you had complications while in the hospital. We have

all been there and it's not a nice place to visit. I hope get get

your strenght back soon! The saying is that it takes 2 days for

every 1 day to recoop.

[Guest guest]

In a message dated 7/25/00 9:04:55 PM Central Daylight Time,

VLGreenhill@... writes:

<< Hello Everyone....

>

> I just got home from the hospital this afternoon. I was in for

three weeks this time. I had a complication though. My Infuse A

Port became infected (staph), so the port had to come out.

> Hugs,

> Robin >>

Robin, i know you are glad to be back home! hope all goes well with you now.

debbie

[Guest guest]

In a message dated 7/25/00 10:12:45 PM Eastern Daylight Time,

djssekis@... writes:

<< I just got home from the hospital this afternoon. >>

Tag ending on this one. Welcome back Robin

[Guest guest]

> Hello Everyone....

>

> I just got home from the hospital this afternoon. I was in for

three weeks this time. I had a complication though. My Infuse A

Port became infected (staph), so the port had to come out.

> Hugs,

> Robin

Hello Robin,

I am so glad that you are home from the hospital and I am happy to

see you posting, again. I am sorry that you had complications during

your stay in the hospital. Do you know why your port became

infected? has had a port for over a year now and sometimes I

worry that it may become infected especially right after it has been

flushed. In fact, she will have it flushed tomorrow. So for the

next few days, I will be a little uneasy. But so far, we have not

had any trouble with it at all.

I have been so worried about you. I hope you will be able to stay

out of the hospital for a while. I know that you feel the same way.

If there is anything I can do for you, please let me know. You know

that you can e-mail me at anytime.

I will close for now and head back to bed. The last two days have

been horrendous. The pain will not go away. Oh well, maybe tomorrow

I will feel better.

Vickie

[Guest guest]

--

>Hello Everyone....

>

>I just got home from the hospital this afternoon. I was in for three weeks

>this time.

>I am feeling a bit better, just exhausted. I am sure that will go away in

time.

>Robin

Welcome back home Robin. Hope you continue to feel better & stronger.

jang

--== Sent via Deja.com http://www.deja.com/ ==--

Before you buy.

[Guest guest]

In a message dated 7/25/00 8:49:09 PM !!!First Boot!!!, robinmk02@...

writes:

<< I just got home from the hospital this afternoon. I was in for three

weeks

this time. My Infuse A. Port became infected (Staph), so the port had to

come out. The Dr. tried to place a Groshong on the opposite side, but he

couldn't. He placed an EJ IV, He wanted to make sure the cultures were

negative, and they were Wednesday Morning....it was after the Groshong. I am

home on Doxyciclene and Rifampin. I am feeling a bit better, just exhausted.

I hope everyone is feeling well. I am trying to catch up on the digests, but

that is a full time job!! ;o) I will try and get caught up as best as I can

though ;o). Hugs, Robin >>

Robin,

We are so glad you made it home safely. I think that obtaining IV access is

the one thing that makes the maintenance of this disease so difficult. I

thought I might mention to folks who aren't sure that an EJIV is an external

jugular IV. It means the doc had to start an IV in that big vein that is on

the side of your neck. Not fun at all. I think that many people may get

somewhat complacent about sterile technique and the care of the IV's. I know

I probably did. I know that many of the nurses definitely do. I really

dislike it when a nurse sticks the IV tubing or needle in her mouth to take

off the cap before hooking you up. I have to keep telling my home care nurse

to please not to that. Having an infection in one of your direct access IV

lines is very serious, particularly staph infections. I am so happy, Robin

that your staph infection was sensitive to IV Vanc. It is difficult when you

have a vancomycin resistant IV Staph infection. Welcome home, Robin. You

input has been missed.

Karyn

[Guest guest]

Thank you Debbie.....

Yes, I am glad to be back home, but just wish I felt 100%!

Robin

> Robin, i know you are glad to be back home! hope all goes well with you

now.

>

> debbie

[Guest guest]

Hi Vickie,

I don't know how it became infected, although, being in the hospital is not

the cleanest place in the world! It was fine when I went in...it was while I

was there that it got infected. Best advice I can give you, and I know this

isn't easy is not to worry about 's port unless there is a reason to

worry. If it is looking okay, she isn't complaining about anything, then

chances are, things are okay. You really have to worry about infection when

it is accessed a good deal of time. Talk to the nurse that flushes the port,

and ask her to explain to you what specifics you need to look for. Hope this

helps.

I am exhausted to say the least. Another thing that happens to me from time

to time when I am sick is that I wake up in a cold sweat, and that happened

this morning. I sometimes feel like I am never going to get better. But I

know this will pass. I hope so anyway ;o).....

I hope you are doing okay and the pain that you are feeling passes soon. If

I can do anything, please let me know.

Hugs,

Robin

> Do you know why your port became

> infected? has had a port for over a year now and sometimes I

> worry that it may become infected especially right after it has been

> flushed. In fact, she will have it flushed tomorrow. So for the

> next few days, I will be a little uneasy. But so far, we have not

> had any trouble with it at all.

[Guest guest]

Thank you Poncho!

Robin

> Tag ending on this one. Welcome back Robin

[Guest guest]

Thank you Jang!!!! I hope so too!

> Welcome back home Robin. Hope you continue to feel better & stronger.

> jang

[Guest guest]

Hi Karyn,

You are so right...they are very serious, and scary for the person going

through it. Last year, I had one that the Dr. said if I did not respond to

the IV Vanco, I was in serious trouble!! Thankfully, I did then, and I did

this time. I was told that they type of staph I had, was an easily treatable

one this time.

I am having a hard time this morning. I don't know why for sure, but I am.

I think it is from being in the hospital for three weeks, and just being

sick. All I know is I want just one normal day in my life!!!!!!!!! I am

sure you and the others can relate to that.

Thank you again Karyn. I have missed being here.

Robin

> Having an infection in one of your direct access IV

> lines is very serious, particularly staph infections. I am so happy, Robin

> that your staph infection was sensitive to IV Vanc. It is difficult when

> you

> have a vancomycin resistant IV Staph infection. Welcome home, Robin. You

> input has been missed.

[Guest guest]

In a message dated 7/26/00 8:26:01 AM Eastern Daylight Time,

robinmk02@... writes:

<< Another thing that happens to me from time to time when I am sick is that

I wake up in a cold sweat, and that happened this morning. >>

I have this symptom also. It happens intermittently, it seems like there is

no direct cause-effect relationship. I can't imagine what might cause it

except something going on with body chemistry or hydration imbalance. It's

not anything but uncomfortable and a little surprising so I don't think it's

a big deal, anyone else had this symptom or have any idea as to cause or cure?

[Guest guest]

In a message dated 7/26/00 10:10:52 AM Eastern Daylight Time, melfire@...

writes:

<< I have had this happen several times but I've always thought it was

from the pain meds. I asked my doc about it and he said that was the

cause. >>

I have had this symptom at times when I have not had any meds for over a week

[Guest guest]

In a message dated 7/26/00 8:08:01 AM Central Daylight Time,

poncho9191@... writes:

<< << Another thing that happens to me from time to time when I am sick is

that

I wake up in a cold sweat, and that happened this morning. >>

I have this symptom also. It happens intermittently, it seems like there is

no direct cause-effect relationship. I can't imagine what might cause it

except something going on with body chemistry or hydration imbalance. It's

not anything but uncomfortable and a little surprising so I don't think it's

a big deal, anyone else had this symptom or have any idea as to cause or

cure?

>>

I do this also sometimes. I always feel like i might have had some fever

during the night. Debbie

[Guest guest]

In a message dated 7/25/00 9:12:39 PM Central Daylight Time, djssekis@...

writes:

<< I just got home from the hospital this afternoon. I was in for

three weeks this time. I had a complication though. My Infuse A

Port became infected (staph), so the port had to come out.

> Hugs,

> Robin >>

>>

Welcome home Robin....hope you get all your strength back and that " good

days " come along.

Terri L.

[Guest guest]

> In a message dated 7/26/00 8:26:01 AM Eastern Daylight Time,

> robinmk02@a... writes:

>

> << Another thing that happens to me from time to time when I am

sick is that

> I wake up in a cold sweat, and that happened this morning. >>

>

> I have this symptom also. It happens intermittently, it seems like

there is

> no direct cause-effect relationship. I can't imagine what might

cause it

> except something going on with body chemistry or hydration

imbalance. It's

> not anything but uncomfortable and a little surprising so I don't

think it's

> a big deal, anyone else had this symptom or have any idea as to

cause or cure?

I have had this happen several times but I've always thought it was

from the pain meds. I asked my doc about it and he said that was the

cause.

[Guest guest]

Thank you very much Terri!

Robin

> Date: Wed, 26 Jul 2000 13:20:12 EDT

> From: Tll619@...

> Subject: Re: Re: I'm Home from the Hospital

>

> In a message dated 7/25/00 9:12:39 PM Central Daylight Time, djssekisaol (DOT)

> com

> writes:

>

> << I just got home from the hospital this afternoon. I was in for

> three weeks this time. I had a complication though. My Infuse A

> Port became infected (staph), so the port had to come out.

> > Hugs,

> > Robin >>

> >>

> Welcome home Robin....hope you get all your strength back and that " good

> days " come along.

> Terri L

[Guest guest]

In a message dated 7/26/00 3:28:17 AM Eastern Daylight Time, KarynWms@...

writes:

<< I really

dislike it when a nurse sticks the IV tubing or needle in her mouth to take

off the cap before hooking you up. I have to keep telling my home care nurse

to please not to that. Having an infection in one of your direct access IV

lines is very serious, particularly staph infections. I am so happy, Robin

>>

Thank you Karyn, I now know that I am not the only one who knows that putting

the iv tubing or needle in her mouth to take the cap off before hooking you

up is sooooooooooooooo wrong. Thanks for letting me know that I am not

abnormal about this dangerous practice for making the patients very ill.

[Guest guest]

In a message dated 7/26/00 8:25:58 AM Eastern Daylight Time,

robinmk02@... writes:

<< I sometimes feel like I am never going to get better. But I

know this will pass. I hope so anyway ;o)..... >>

Hi Robin, I hope you feel better real soon. I know how you feel and I wish I

could help everyone in this group alleviate this terrible disease. It takes

so much from us emotionally, mentally and physically. Our families suffer

with us also and I am so sorry for that. It's hard to have a normal life.

Those who are well don't have a clue what this disease is really like and

what it takes from our lives. This was meant to be an upper not a downer.

So feel better real soon Robin. We are thinking about you and we are glad

that you are back. Shirley

[Guest guest]

Hey Robin!!!

Welcome back to the real world! Feel better!

*hugs* Becky

[Guest guest]

Thank you Shirley. This means a lot to me!!

Robin

> Hi Robin, I hope you feel better real soon. I know how you feel and I wish

I

>

> could help everyone in this group alleviate this terrible disease. It

takes

>

> so much from us emotionally, mentally and physically. Our families suffer

> with us also and I am so sorry for that. It's hard to have a normal life.

> Those who are well don't have a clue what this disease is really like and

> what it takes from our lives. This was meant to be an upper not a downer.

> So feel better real soon Robin. We are thinking about you and we are glad

> that you are back. Shirley

[Guest guest]

Thank you Becky!! I only wish this was the real world for me!! I am glad

that at least I have IV access with the Groshong, BUT, I have to go to the

hospital every three days for a dressing change, which is the pits! I

sometimes wonder if I will ever have a normal life!

Sorry, I am feeling very sorry for myself, and I need to snap out of it soon.

I am just having a hard time of it though. I know I have only been home for

two days, and spent three weeks in, but I am just having a hard time coping.

Y'all are wonderful people.

Robin

> Date: Wed, 26 Jul 2000 22:05:02 -0500

>

> Subject: Re: Re: I'm Home from the Hospital

>

> Hey Robin!!!

>

> Welcome back to the real world! Feel better!

>

>

> *hugs* Becky

[Guest guest]

Hi Robin, I hope that you have a better day tomorrow.Things will get

better, you just have't to take it slower.You have been through a lot and

it is going to take time.Remember day by day. or hour by hour or minute by

minute.I am thinking of you and I hope that you will feel better soon.Just

try and get some rest and hang in there .If you need someone to talk to I am

here for you. Your Friend B.