Re: VENT ~ quite long

[Guest guest]

Georga, sounds like a long and stressful series of events, which are

not things that you really have any direct control over. Seems

pretty reasonable to me to be frustrated, angry and all the other

feelings that go with those.

I am presuming that since the disablity pay has ceased that your dh

was considered temorarily medically retired? Or is he regular

retired with disability? ( we are retired military)

I have no idea if this is an usable idea or not due to logistics,

but would it be possible for you to have a table in the mall

(donated by the mall of course for TFT) for days your dh could be

available and set up the TFT book sale there? You could also

possibly accept new toys and $$ donations for TFT. Just a thought.

As far as services while homeschooling: Your children are still

eligible for services. When we homeschooled the autism specialist

just came to the house and for OT and ST we took to either the

ESD building or the closest school. The special ed teacher also

helped me with some areas of learning difficulty for him.

So, vent away as much and as often as you need!!

[Guest guest]

Answers/comments in email where I don't start babbling.

Re: VENT ~ quite long

Georga, sounds like a long and stressful series of events, which are

not things that you really have any direct control over. Seems

pretty reasonable to me to be frustrated, angry and all the other

feelings that go with those.

I am presuming that since the disablity pay has ceased that your dh

was considered temorarily medically retired? Or is he regular

retired with disability? ( we are retired military)

Ok, you will follow this. He was on TDRL for five years.

Last year they did his final medical eval...in the middle of winter no less (I

think we got scrwed on this) and they told him he was no longer disabled. He

has allergy related asthma...and 98% of everything that he is allergic to is

outside during the spring and fall. All I can say is, you know the military.

I have no idea if this is an usable idea or not due to logistics,

but would it be possible for you to have a table in the mall

(donated by the mall of course for TFT) for days your dh could be

available and set up the TFT book sale there? You could also

possibly accept new toys and $$ donations for TFT. Just a thought.

Because of what Usborne has set up with TFT we can not accept toys.

As far as the mall thing...I would really like to do that only we don't have a

" real " mall close. Most of what is in this area is what they call " outside

shopping towns " . In Ohio we would have called these fancy strip malls. Our

local mall mall is really pathetic. LOL! Most of what people go to it for is

in the strip mall bits outside. I don't really know how to explain it. It

isn't really a mall...more of a fancy shopping center. Did that make any sence?

The mgt. there doesn't make it easy to get in touch with them either.

As far as the " real " malls around here, they are all 25 to 30 mins away, which

is really no big deal, BUT they are in areas that are being serviced by other

consultants.

The idea isn't impossible, just very difficult.

This was supposed to be calling businesses for donations. And I am supposed

to be in charge of it. Sigh. Remind me not to do this again next year.

As far as services while homeschooling: Your children are still

eligible for services. When we homeschooled the autism specialist

just came to the house and for OT and ST we took to either the

ESD building or the closest school. The special ed teacher also

helped me with some areas of learning difficulty for him.

LMAO!!! This is funny!

I'm sorry...but you obviously don't live in this state to know exactally how

funny this is.

Ok, here is the story with this in the Washington DC area.

This information has been provided to me via several newspapers, parents of

other autistic children in this area and my own personal experience.

By state law, the state/county is required to provide services to all

qualifying children.

However, they claim that there isn't any money for services and that there is

a two year waiting list because there are so many children tha need help.

The IEP that I went to when we were working on the DX part of Savannah (I

should have never done this part) I was told that because I was homeschooling I

would have to enroll her in school because that was the only way that they would

have the funds to give services. I am not kidding. This was said to my face.

This freaking elm school didn't even have a sped classroom!! All the classes

are mainstream.

There is a little boy who lives not to far from me, his mom has 4 kids, all of

them somewhere on the spectrum. Her youngest was dx'd very low functioning with

classic Kanners Syndrome. She was doing fundraisers and stuff to get the

$40,000 for in home ABA because the state would not fund it. According to the

state county, based on his disablity, he was only entitled to 1 fucking hour of

services a week. I am not kidding. This kid is going to need someone to take

care of him the rest of his life and he is only entitled, according to the

state/county, one hour of services a week. Doesn't matter that there is a drs.

letter stating that he *NEEDS* extensive and aggressive ABA. And her insurance

co. won't pay for the ABA because it is supposed to be covered by the

state/county.

So my question is, where does that leave 4 kids who are, to the outside world,

pretty normal? What do you think we would get if we applied for services.

First of all, nothing for Savannah because her report from the dr. states " most

likely Aspergers Syndrome " which is not recognized as being " autistic " for

state/county services.

At any rate, you see where I am with it all.

It really sucks that this is how autism is treated, but I don't need to tell

anyone here that.

So, vent away as much and as often as you need!!

[Guest guest]

He was on TDRL for five years.

> Last year they did his final medical eval...in the middle of

winter no less (I think we got scrwed on this) and they told him he

was no longer disabled. He has allergy related asthma...and 98% of

everything that he is allergic to is outside during the spring and

fall. All I can say is, you know the military.

Yes, I do. You should be able to request a reevaluation, but the

exact procedures I am not sure of for your situation. A DAV or VFW

or maybe even a VA hosp in your region should have someone there that

can assist with navigating the paperwork. If you have supporting

documentation from the last year particularly for treatment related

to his disability in the spring and summer that would be helpful.

>

Most of what people go to it for is in the strip mall bits

outside. I don't really know how to explain it. It isn't really a

mall...more of a fancy shopping center. Did that make any sence?

The mgt. there doesn't make it easy to get in touch with them either.

Yep, gotcha. We had some of those in Sacramento.

>

> As far as the " real " malls around here, they are all 25 to 30

mins away, which is really no big deal, BUT they are in areas that

are being serviced by other consultants.

>

> The idea isn't impossible, just very difficult.

Well...perhaps see if you could collaborate with the other

consultants to have a table manned at one of the real malls for more

time???

>

> This was supposed to be calling businesses for donations. And I

am supposed to be in charge of it. Sigh. Remind me not to do this

again next year.

Sure thing!

>> I'm sorry...but you obviously don't live in this state to know

exactally how funny this is.

> Ok, here is the story with this in the Washington DC area.

> > By state law, the state/county is required to provide

services to all qualifying children.

> However, they claim that there isn't any money for services and

that there is a two year waiting list because there are so many

children tha need help.

>

Okay, understand that all to well. Not that they are in compliance

with the law, but you can't get blood out of a turnip either. So

your choices are to provide your own services and/or move. We have

that to a lesser degree here with a reasonably decent (comapred to

some places) severe program but hardly anything else available at all

unless you get the right teacher and really know your ropes with the

IEP and laws.

[Guest guest]

poor georga!! you have more to deal with than any one person should. do you

qualify for any respite programs? it sounds like you could really use a break!

you have a challenging and busy bunch there is no doubt about that. but the

fact that you homeschool them as well - SHEESH - you deserve a medal!

can you not negotiate a payment schedule for your water bill??

vent away my dear!

michelle

VENT ~ quite long

I am just so sick of people. I have had a very rough week (last week). I had

this huge email typed up to send to the list then I lost the email before it was

sent.

The highlights of the week included:

Sierra (5 ~ this is one of them that I think is ASD) holding down her 4 year

old sister and peeing on her. The following day she dumps a bottle of BBQ sauce

on her head.

Atlanta (9 NT) I think she is dyslexic. Now I have to find out how to go

about getting testing done for that. She has also just been the typical 9 year

old brat that most people of 9 year olds see in their kids every so often and I

just don't have the patience for it.

Dalton (almost 2 and I think ASD) just totally stressed me out one day by

banging his head, face first, on the floor for a half hour. Sigh. Not the

first headbanging thing that I have seen. He normally sits in the hall and

rocks and bangs.

The interesting thing is Savannah never sleeps. We are lucky if she is asleep

by 1130. Sierra and Dalton are just as bad. Dalton is worse than Sierra about

it though. Is there some rule that ASD kids don't need sleep?

Savannah is showing some regressions. Nothing serious but if that child does

not stop sharpening pencils I will go mad. When we go shopping this weekend I

need to buy another gross of pencils. And no, it isn't an electric pencil

sharpener.

There was some other stuff, I am just so ticked off at the moment that I can't

think straight.

Here is the latest thing (this just damn near has me in tears because it is

just one more thing on top of everything else), and I don't think I did anything

wrong. (LOL! Mel Gibson is on Sesame Street. It's an old one.) I don't know

how many people here know that I sell Usborne books. I haven't been really

obnoxious about it, not even sure I said anything about it here beyond my

signature line. Anyway, I don't have as much time as I would like to put into

it, but I am doing ok. Would like to do better because we do need the money so

I have actually done something different and listened to my supervisor. I tend

to do things my own way reguardless of what I am told.

Anyway, Usborne is supposed to be working with the Marine Corp Toys for Tots

program. For this state I went to the Marines and pitched what we were going to

do and sold them on it based on what has been done in the past in other states.

Well, the entire thing isn't going well and I am going to look real bad when it

is all over. Businesses are not donating because they have nothing to donate

(can we say " sniper fund " ?). Well, I decided to do an Open House benifit for

the entire thing. Spent two days cleaning my house, put off school for the kids,

had people say they were going to come, spent an hour setting up books and NO

ONE showed up! One person said she had an order for me, which I did not get. I

basically told this person that I don't want her business now.

Ok, so here I am, three weeks before this TFT thing is supposed to be over and

nothing to show for it. I send out an email to above person about how if she

wanted her order to count for the FTF thing (which she led me to believe that it

was for) that I must have it by Wed. because that is when this event has to be

closed out. She sends back an email asking what she *must* do and just goes off

on me about how I have been harassing her and everything.

I emailed her back telling her that she was the one that brought it on,

leading me on, and if she didn't want to do a homeshow like she said she was

going to (she cancelled the day of it claiming she had a sick child, maybe she

did, maybe she didn't ~ said that she would reschedual then told me that she

couldn't do one and I don't know how many emails and phone calls I had to make

to get that out of her), that she shouldn't have implied that the order was

going to count for TFT when she wasn't going to be making it right away, etc.

She claims that she did nothing wrong because saying " no " to someone makes her

feel like shit. Is it my freaking fault that she doesn't have the balls to say

" No, can't do it, won't do it " or whatever? By being vague like that isn't that

just going to make someone in sales more persistant? Especially if you are

trained that if someone has to cancle a homeshow to get it reschedualed ASAP

before they just keep putting it off and putting it off?

After her second email I just totaly went off about how she should have said

no in the begining, that if she wanted to place an order she knew where my web

page was and if she ever decided that she wanted to do a homeshow I know five

other people that I could send to her. Told her I wasn't going to contact her

again. I told her that I didn't appreciate her being vague and putting me off

instead of being up front (she claims she gave me a good reason for not being up

front ~ WTF is that reasoning I wonder) and wasting my time since I had very

little time to put into my business between homeschooling, caring for three

autistic kids, one child that doesn't talk at 4 and providing the therapy and

everything that they need since we don't have the kind of money private therapy

costs that insurance doesn't provide and that the state/county will not provide

because I am homeschooling. I hope she gets the message and understands but I

doubt it. She doesn't realize that my time is important and that I am there to

server her and I should just put up with it. BULLSHIT!!! I don't play games

like that, never had.

I am just so stressed out here. I hope I didn't just kill my business by

telling her that since she is on the same homeschool lists that I am on and a

large % of my business comes from homeschool people. I mean, no telling how

many people she might complain to about this that won't give me business now.

This is one of those days that I have no idea why I got into this. All I know

is that we have an $800 waterbill due before Christmas....and the money for that

is our Christmas money. Then there is the entire TFT thing. I just feel like a

total failure on that and I feel like I lied to people (The Marines) about it.

I am in tears about that. I really feel like I shouldn't be doing this business

but I don't know what else to do. My husband doesn't work a fixed shift where I

can work while he is home to watch the kids. We lost $580 a month last year

from his military disablity when they took that away and we have been struggling

ever since.

I could go on for a bit but I won't. I think I have bored everyone out of

their minds as it is and I sound like a whiner.

Thanks for listening.

Georga

Your purchase of Usborne Books will help the Marine Corps and Toys for Tots.

Please visit www.ubah.com/HOS12159

Register to win $50 in free books. Visit www.ubah.com/F1549

Start your own Usborne Home Business in November for only $34.95! Ask me how!

--------------------------------------------------------------------------------

[Guest guest]

(((Georga))) I'm so sorry things are so rough for you right now.

Don't worry about that lady. Think positive and try your best that's

all you can do and that's what you've been doing. You are a

wonderful mother to your chilren and that's what really counts!!

Tina w.

[Guest guest]

> (((Georga))) I'm so sorry things are so rough for you right now.

> Don't worry about that lady. Think positive and try your best

that's

> all you can do and that's what you've been doing. You are a

> wonderful mother to your chilren and that's what really counts!!

> Tina w.

I second this statement!!

(((((((georga)))))))

nancy

[Guest guest]

All I can say is ~hugs~ I wish I could do more.

Jacquie H

> I am just so sick of people. I have had a very rough week (last

week). I had this huge email typed up to send to the list then I

lost the email before it was sent.

>

> The highlights of the week included:

> Sierra (5 ~ this is one of them that I think is ASD) holding down

her 4 year old sister and peeing on her. The following day she dumps

a bottle of BBQ sauce on her head.

>

> Atlanta (9 NT) I think she is dyslexic. Now I have to find out how

to go about getting testing done for that. She has also just been

the typical 9 year old brat that most people of 9 year olds see in

their kids every so often and I just don't have the patience for it.

>

> Dalton (almost 2 and I think ASD) just totally stressed me out one

day by banging his head, face first, on the floor for a half hour.

Sigh. Not the first headbanging thing that I have seen. He normally

sits in the hall and rocks and bangs.

>

> The interesting thing is Savannah never sleeps. We are lucky if

she is asleep by 1130. Sierra and Dalton are just as bad. Dalton is

worse than Sierra about it though. Is there some rule that ASD kids

don't need sleep?

>

> Savannah is showing some regressions. Nothing serious but if that

child does not stop sharpening pencils I will go mad. When we go

shopping this weekend I need to buy another gross of pencils. And

no, it isn't an electric pencil sharpener.

>

> There was some other stuff, I am just so ticked off at the moment

that I can't think straight.

>

> Here is the latest thing (this just damn near has me in tears

because it is just one more thing on top of everything else), and I

don't think I did anything wrong. (LOL! Mel Gibson is on Sesame

Street. It's an old one.) I don't know how many people here know

that I sell Usborne books. I haven't been really obnoxious about it,

not even sure I said anything about it here beyond my signature

line. Anyway, I don't have as much time as I would like to put into

it, but I am doing ok. Would like to do better because we do need

the money so I have actually done something different and listened to

my supervisor. I tend to do things my own way reguardless of what I

am told.

>

> Anyway, Usborne is supposed to be working with the Marine Corp Toys

for Tots program. For this state I went to the Marines and pitched

what we were going to do and sold them on it based on what has been

done in the past in other states. Well, the entire thing isn't going

well and I am going to look real bad when it is all over. Businesses

are not donating because they have nothing to donate (can we

say " sniper fund " ?). Well, I decided to do an Open House benifit for

the entire thing. Spent two days cleaning my house, put off school

for the kids, had people say they were going to come, spent an hour

setting up books and NO ONE showed up! One person said she had an

order for me, which I did not get. I basically told this person that

I don't want her business now.

>

> Ok, so here I am, three weeks before this TFT thing is supposed to

be over and nothing to show for it. I send out an email to above

person about how if she wanted her order to count for the FTF thing

(which she led me to believe that it was for) that I must have it by

Wed. because that is when this event has to be closed out. She sends

back an email asking what she *must* do and just goes off on me about

how I have been harassing her and everything.

>

> I emailed her back telling her that she was the one that brought it

on, leading me on, and if she didn't want to do a homeshow like she

said she was going to (she cancelled the day of it claiming she had a

sick child, maybe she did, maybe she didn't ~ said that she would

reschedual then told me that she couldn't do one and I don't know how

many emails and phone calls I had to make to get that out of her),

that she shouldn't have implied that the order was going to count for

TFT when she wasn't going to be making it right away, etc. She

claims that she did nothing wrong because saying " no " to someone

makes her feel like shit. Is it my freaking fault that she doesn't

have the balls to say " No, can't do it, won't do it " or whatever? By

being vague like that isn't that just going to make someone in sales

more persistant? Especially if you are trained that if someone has

to cancle a homeshow to get it reschedualed ASAP before they just

keep putting it off and putting it off?

>

> After her second email I just totaly went off about how she should

have said no in the begining, that if she wanted to place an order

she knew where my web page was and if she ever decided that she

wanted to do a homeshow I know five other people that I could send to

her. Told her I wasn't going to contact her again. I told her that

I didn't appreciate her being vague and putting me off instead of

being up front (she claims she gave me a good reason for not being up

front ~ WTF is that reasoning I wonder) and wasting my time since I

had very little time to put into my business between homeschooling,

caring for three autistic kids, one child that doesn't talk at 4 and

providing the therapy and everything that they need since we don't

have the kind of money private therapy costs that insurance doesn't

provide and that the state/county will not provide because I am

homeschooling. I hope she gets the message and understands but I

doubt it. She doesn't realize that my time is important and that I

am there to server her and I should just put up with it.

BULLSHIT!!! I don't play games like that, never had.

>

> I am just so stressed out here. I hope I didn't just kill my

business by telling her that since she is on the same homeschool

lists that I am on and a large % of my business comes from homeschool

people. I mean, no telling how many people she might complain to

about this that won't give me business now. This is one of those

days that I have no idea why I got into this. All I know is that we

have an $800 waterbill due before Christmas....and the money for that

is our Christmas money. Then there is the entire TFT thing. I just

feel like a total failure on that and I feel like I lied to people

(The Marines) about it. I am in tears about that. I really feel

like I shouldn't be doing this business but I don't know what else to

do. My husband doesn't work a fixed shift where I can work while he

is home to watch the kids. We lost $580 a month last year from his

military disablity when they took that away and we have been

struggling ever since.

>

> I could go on for a bit but I won't. I think I have bored everyone

out of their minds as it is and I sound like a whiner.

>

> Thanks for listening.

>

> Georga

> Your purchase of Usborne Books will help the Marine Corps and Toys

for Tots. Please visit www.ubah.com/HOS12159

> Register to win $50 in free books. Visit www.ubah.com/F1549

> Start your own Usborne Home Business in November for only $34.95!

Ask me how!

>

>

> --------------------------------------------------------------------

------------

>

>

>

[Guest guest]

I had this huge email typed up to send to the list then I

> lost the email before it was sent.

I hate that! There goes your motivation to write another and sometimes you

just NEED to vent. Sorry!

> >

> > The highlights of the week included:

> > Sierra (5 ~ this is one of them that I think is ASD) holding down

> her 4 year old sister and peeing on her. The following day she dumps

> a bottle of BBQ sauce on her head.

Lovely.

> >

> > Atlanta (9 NT) I think she is dyslexic. Now I have to find out how

> to go about getting testing done for that. She has also just been

> the typical 9 year old brat that most people of 9 year olds see in

> their kids every so often and I just don't have the patience for it.

Another worry.

> >

> > Dalton (almost 2 and I think ASD) just totally stressed me out one

> day by banging his head, face first, on the floor for a half hour.

> Sigh. Not the first headbanging thing that I have seen. He normally

> sits in the hall and rocks and bangs.

Yuck.

> >

> > The interesting thing is Savannah never sleeps. We are lucky if

> she is asleep by 1130. Sierra and Dalton are just as bad. Dalton is

> worse than Sierra about it though. Is there some rule that ASD kids

> don't need sleep?

Um, yes. Not all ASD kids follow this rule of course, but many do. That is

why so many are on some kind of night medication. I use melatonin which

Putter used to adore and then he figured out (I think) that it makes him go

to sleep. So sometimes he takes it and sometimes he doesn't and sometimes

we just shove it down his protesting little throat.

There are times when you just need your kids to sleep...

> >

> > Savannah is showing some regressions. Nothing serious but if that

> child does not stop sharpening pencils I will go mad. When we go

> shopping this weekend I need to buy another gross of pencils. And

> no, it isn't an electric pencil sharpener.

Oh, dear.

I don't know how many people here know

> that I sell Usborne books.

I used to sell Usborne books too!

I haven't been really obnoxious about it,

> not even sure I said anything about it here beyond my signature

> line. Anyway, I don't have as much time as I would like to put into

> it, but I am doing ok. Would like to do better because we do need

> the money so I have actually done something different and listened to

> my supervisor. I tend to do things my own way reguardless of what I

> am told.

Actually I never actively sold them; I just let people in my homeschooling

groups contact me if they wanted them...

> >

> > Anyway, Usborne is supposed to be working with the Marine Corp Toys

> for Tots program. For this state I went to the Marines and pitched

> what we were going to do and sold them on it based on what has been

> done in the past in other states. Well, the entire thing isn't going

> well and I am going to look real bad when it is all over. Businesses

> are not donating because they have nothing to donate (can we

> say " sniper fund " ?).

Evil marines. Evil businesses...

Well, I decided to do an Open House benifit for

> the entire thing. Spent two days cleaning my house, put off school

> for the kids, had people say they were going to come, spent an hour

> setting up books and NO ONE showed up!

\

Oh, dear, that happened to me once when I had an open house to benefit La

Leche League and another time when I had an open house to benefit my

homeschooling group...actually I think it was the same benefit; I was going

to split the returns depending on who came from each group. Since no one

came, there was no problem. But it is so aggravating. You go to all this

effort and you are supposedly benefiting some nice group or charity and no

one is interested enough to come. Sigh. And Usborne books are REALLY nice

books.

> > I emailed her back telling her that she was the one that brought it

> on, leading me on, and if she didn't want to do a homeshow like she

> said she was going to (she cancelled the day of it claiming she had a

> sick child, maybe she did, maybe she didn't ~ said that she would

> reschedual then told me that she couldn't do one and I don't know how

> many emails and phone calls I had to make to get that out of her),

> that she shouldn't have implied that the order was going to count for

> TFT when she wasn't going to be making it right away, etc. She

> claims that she did nothing wrong because saying " no " to someone

> makes her feel like shit. Is it my freaking fault that she doesn't

> have the balls to say " No, can't do it, won't do it " or whatever? By

> being vague like that isn't that just going to make someone in sales

> more persistant?

Yes. A simple no is much politer and more effective. Probably she knows

she wasn't too nice to you and so, in that irritating way that people have,

she is mad at you because she treated you badly.

Especially if you are trained that if someone has

> to cancle a homeshow to get it reschedualed ASAP before they just

> keep putting it off and putting it off?

Yup. So frustrating for you...

> > (she claims she gave me a good reason for not being up

> front ~ WTF is that reasoning I wonder)

She is just trying to come up with a good excuse and there really isn't one.

and wasting my time since I

> had very little time to put into my business between homeschooling,

> caring for three autistic kids, one child that doesn't talk at 4 and

> providing the therapy and everything that they need since we don't

> have the kind of money private therapy costs that insurance doesn't

> provide and that the state/county will not provide because I am

> homeschooling. I hope she gets the message and understands but I

> doubt it. She doesn't realize that my time is important and that I

> am there to server her and I should just put up with it.

> BULLSHIT!!! I don't play games like that, never had.

> >

> > I am just so stressed out here. I hope I didn't just kill my

> business by telling her that since she is on the same homeschool

> lists that I am on and a large % of my business comes from homeschool

> people. I mean, no telling how many people she might complain to

> about this that won't give me business now.

She might well complain to make herself feel better, but just keep being as

friendly as you can and many people will realize that it is just some

argument between you and probably will not pay much attention to it. I know

that I wouldn't under similar circumstances.

This is one of those

> days that I have no idea why I got into this. All I know is that we

> have an $800 waterbill due before Christmas....and the money for that

> is our Christmas money.

Have you joined our PA gift exchange? We had a lot of people exchanging and

even giving away stuff last year...then it lay dormant the rest of the year.

Of course, I should know since I own the list and subscribe everyone to it,

but I tend to do that kind of automatically, oh, dear, I shouldn't admit to

THAT!

We lost $580 a month last year from his

> military disablity when they took that away and we have been

> struggling ever since.

Do you get SSI? You sound as if you don't have official (can't think of a

better word and I must get kids ready for school soon) dx's for your kids.

That might help a lot. Also, once I was totally out of money with a huge

insurance bill to pay and my church just paid the whole thing for me. That

can be a good idea in an emergency.

> >

> > I could go on for a bit but I won't. I think I have bored everyone

> out of their minds as it is and I sound like a whiner.

>

You don't sound whiny and you definitely don't sound boring.

Hope something I or someone else said helps.

Salli

[Guest guest]

(((((((Georga)))))))

It sounds like you need a major break from everything!

You should put a block on that lady so she can't e-mail you any more. That

would get rid of one headache. Sorry I can't offer anything about the rest

of them.

I was wondering what types of things Atlanta is doing that make you suspect

Dyslexia?

Hang in there Hon, hopefully the ride is almost over.

Sue

[Guest guest]

Georga,

A lot of Dr.s understand that Aspergers is autism. If your district would

accept the medical dx, would your Dr. label as 'autistic spectrum disorder'?

Also, how far are you from Seattle? They have classrooms in several schools

for kids with aspergers and high funcitoning autism. I've even spoken to

the director of spec ed there to get info about the program to pass on to my

district here in Michigan! They have people come from around the world to

observe them. Maybe you could look them up and at least talk to the

director about what schools and if there are other areas in WA he's familiar

with that would offer something appropriate for your kids? Just a thought.

By the way, if you aren't adversive to meds, clonidine is wonderful for

helping kids go to sleep. Even 1/2 a tablet can have them down to bed an

hour later.

Sue

[Guest guest]

((((Georga))))

you sound like a candidate for a massage and pedicure. If you ask

for nothing else for xmas it would still be worth it !!! Hang in

there i hope all gets better soon

Amy mom to

Noah 6 Lucas 8 ASD's

[Guest guest]

I hate that! There goes your motivation to write another and sometimes you

just NEED to vent. Sorry!

I was ticked off to say the least. But then again, my computer is possessed.

I should be used to it by now.

> >

> > The highlights of the week included:

> > Sierra (5 ~ this is one of them that I think is ASD) holding down

> her 4 year old sister and peeing on her. The following day she dumps

> a bottle of BBQ sauce on her head.

Lovely.

That was my thought. I looked at and asked him if we had had problems

like this with Savannah (who really has become quite managable of late for the

most part) and he came up with a long list of related behaviours we had with

Savannah at this age. My have I not pulled all my hair out??

> >

> > Atlanta (9 NT) I think she is dyslexic. Now I have to find out how

> to go about getting testing done for that. She has also just been

> the typical 9 year old brat that most people of 9 year olds see in

> their kids every so often and I just don't have the patience for it.

Another worry.

Actually, after what I have read, I really shouldn't be surprised.

It is genetic (my cousin is dyslexic...never knew what side of the family he

got it from but I have a pretty good guess now) and it affects the same area of

the brain that autism does. Read something about how if there is one somewhere

in the family has one the other is bound to pop up somehwhere. There was

something else about lefthandedness. Well, the child is also lefthanded. I

really wish that I knew more about my fathers side of the family. I was told

that he had a set of twin brothers and that one of them was a genius and the

other one was stupid. Well, those are my moms words, and my mother is the most

without a clue person on the face of the planet. You know those stupid

cluessless people you see on Springer? That's my mom, only worse.

> >

> > Dalton (almost 2 and I think ASD) just totally stressed me out one

> day by banging his head, face first, on the floor for a half hour.

> Sigh. Not the first headbanging thing that I have seen. He normally

> sits in the hall and rocks and bangs.

Yuck.

It's just really disturbing. His other thing I find really strange.

He will jump and land on his butt on purpose. I do not understand this. He

will also jump off of tables and stuff to land on his butt. I guess it looks

fun because then Dakota starts and just giggles his butt off doing it. Now,

there is a weird child. LOL

Um, yes. Not all ASD kids follow this rule of course, but many do. That is

why so many are on some kind of night medication. I use melatonin which

Putter used to adore and then he figured out (I think) that it makes him go

to sleep. So sometimes he takes it and sometimes he doesn't and sometimes

we just shove it down his protesting little throat.

Everytime I think if Savannah and her not sleeping I am reminded of Jordon on

Real Genius.

" It's just something I do. I have a brother and I use him as a model. I'm

hyperkenetic and never sleep. I used to have a roommate but she went crazy and

had to transfer to an easier school but I don't know if I had anything to do

with that. "

There are times when you just need your kids to sleep...

Tell me about it.

> >

> > Savannah is showing some regressions. Nothing serious but if that

> child does not stop sharpening pencils I will go mad. When we go

> shopping this weekend I need to buy another gross of pencils. And

> no, it isn't an electric pencil sharpener.

Oh, dear.

I just find the pencil sharpening thing annoying. I always have.

It is one of those hand crank pencil sharpeners. Drives me nuts.

I don't know how many people here know

> that I sell Usborne books.

Actually I never actively sold them; I just let people in my homeschooling

groups contact me if they wanted them...

Well, I was shanghi'd. That is all I can say in my defence :0)

> >

> > Anyway, Usborne is supposed to be working with the Marine Corp Toys

> for Tots program. For this state I went to the Marines and pitched

> what we were going to do and sold them on it based on what has been

> done in the past in other states. Well, the entire thing isn't going

> well and I am going to look real bad when it is all over. Businesses

> are not donating because they have nothing to donate (can we

> say " sniper fund " ?).

Evil marines. Evil businesses...

Evil sniper. LOL! Isn't the Marines fault.

This entire area is a mess in general. Don't get me started on it. People

here are so strange. I hate living in a metro area...to many people.

Well, I decided to do an Open House benifit for

> the entire thing. Spent two days cleaning my house, put off school

> for the kids, had people say they were going to come, spent an hour

> setting up books and NO ONE showed up!

\

Oh, dear, that happened to me once when I had an open house to benefit La

Leche League and another time when I had an open house to benefit my

homeschooling group...actually I think it was the same benefit; I was going

to split the returns depending on who came from each group. Since no one

came, there was no problem. But it is so aggravating. You go to all this

effort and you are supposedly benefiting some nice group or charity and no

one is interested enough to come. Sigh. And Usborne books are REALLY nice

books.

The kids love them. That is all I know. I have fights over books now. I see

this as a good thing.

Yes. A simple no is much politer and more effective. Probably she knows

she wasn't too nice to you and so, in that irritating way that people have,

she is mad at you because she treated you badly.

The thing that gets me is this is someone that knows me more or less. She

knows that I homeschool, that I have 7 kids and some of them are special needs.

She feels that she was in her right to do what she did because she is the

customer... I just want to smack her. I really hate people like this.

She is just trying to come up with a good excuse and there really isn't one.

Her excuse is some people are not comfortable saying " I can't afford it " and

saying no to people makes her feel like shit. Guess it doesn't matter that she

wasted me time then made me feel like shit saying I was harassing her and

everything by sending her so many emails, etc. ARGH! Don't tell me you are

going to do something that you never have any intent of doing.

This is one of those

> days that I have no idea why I got into this. All I know is that we

> have an $800 waterbill due before Christmas....and the money for that

> is our Christmas money.

Have you joined our PA gift exchange? We had a lot of people exchanging and

even giving away stuff last year...then it lay dormant the rest of the year.

Of course, I should know since I own the list and subscribe everyone to it,

but I tend to do that kind of automatically, oh, dear, I shouldn't admit to

THAT!

I haven't even heard about this.

We lost $580 a month last year from his

> military disablity when they took that away and we have been

> struggling ever since.

Do you get SSI?

Nope, and I don't think that we would qualify even with an offical dx.

Afterall, the dr. did put " most likely Aspergers Syndrome " on Savannahs report.

Sigh. Besides that, they aren't " disabled enough " that they can't get along in

society. I am considering going to the DAN doctor here where we live, and since

these drs seem to have enough balls since they deal with ASD every day and know

that things like diet and so forth work, that she might be willing to point a

finger and say " Yes, this was caused by lead poisoning " and we can sue our old

landlord since I will be able to prove damages. I just don't know if I want to

deal with that aggervation. It's a long story. The thing that baffles me there

is that he was never brought up on federal and state charges by the county and

all for blatent EPA violations and stuff.

You sound as if you don't have official (can't think of a

better word and I must get kids ready for school soon) dx's for your kids.

That might help a lot. Also, once I was totally out of money with a huge

insurance bill to pay and my church just paid the whole thing for me. That

can be a good idea in an emergency.

Here is the thing. My husband makes way to much money for anyone to help us.

Serious. Once people start looking at a budget and everything they feel that we

need councling more than actual help because of the amt. of money that my

husband brings in. Doesn't matter that our bills are behind because of

circumstances beyond our control (that is another long story) due to our last

landlord and his bitch wife. More her fault than his, but he is totaly

emasculated and doesn't have the balls to stand up to the woman. At any rate

part of that mess we settled in mediation, but the other part of it we just delt

with in the only manner we knew how. Our fiances have been screwed ever since.

Now is working all this overtime and has very little time at home.

Yesterday I had to call him at work and remind him to come home. ARGH!!! He

can be just as maddening as the kids.

> >

> > I could go on for a bit but I won't. I think I have bored everyone

> out of their minds as it is and I sound like a whiner.

>

You don't sound whiny and you definitely don't sound boring.

Everyone else thinks that my life is so interesting. LOL!

Well, it beats soap operas...at least this is real

Georga

[Guest guest]

I was wondering what types of things Atlanta is doing that make you suspect

Dyslexia?

Uh...everything. LOL!

Where to start.....she is 9 and can't really read yet. She can recognize a

handful of words, doesn't really want to read, makes stupid mistakes...well,

things that seem so obvious to me that I dont understand how anyone could make

them. I was reading some stuff on it, you know, those checklist sort of things,

and she shows between 90 and 95% of everything on the lists.

Hang in there Hon, hopefully the ride is almost over.

Sue

[Guest guest]

Georga,

A lot of Dr.s understand that Aspergers is autism.

Dr. Fry gets it. Then again, he is the only person I could find that would

work with a child of almost 6 and knew anything about ASD or Aspergers Syndrome.

I live in a vaccuum here I swear.

If your district

I really do not want anything to do with the districts here. I really don't

want any state/county help, even if I were forced to take it at gunpoint. This

is not a good thing. LOL!

Readers digest version:

I had this friend who works in special ed more or less. I have known this

person since third grade, she was supposed to be my best friend, she words with

handicapped adults in a daycare sort of enviroment. She felt that because I was

homeschooling that I was neglecting Savannah, because in her warped mind all

autistic kids need to be instutionalized, blah blah blah, she had a bug up her

ass about me being pregnant with number 7 at the time (she isn't married, is 33

years old, her only boyfriend raped her, all of her friends are either gay or

hate their husbands so according to her my husband abuses and represses me

becuase I have been pregnant so many times and he *makes* me have sex with him)

and some other stupid shit. At any rate, she decided to call child protective

services. We were harassed by them for over two years. I had the social worker

stand in my house and tell me that I had to many children and couldn't possibly

take care of them all and make other harrassing and discrimitory comments.

Homeschooling, the fucking county decided, since they are so against

homeschooling it isn't funny, that this would be a good time, since CPS was

involved and they could force the issue, to make us put the kids in school. The

field officer (who is the person through the county that does the homeschool

reviews) was going on and on about how Savannah needed forced socialization to

get better and all this other stupid shit.

Any wondering I don't want anything to do with these people?

Its a bigger headache than it is worth.

would

accept the medical dx, would your Dr. label as 'autistic spectrum disorder'?

Also, how far are you from Seattle?

Uh...Washington DC Metro area. I think that is too far. :0)

They have classrooms in several schools

for kids with aspergers and high funcitoning autism.

This is good. The ASA or someone here has a socilizaiton class for kids with

ASD. Guess what, Savannah doesn't fit into the age group it is for. ARGH!

I've even spoken to

the director of spec ed there to get info about the program to pass on to my

district here in Michigan! They have people come from around the world to

observe them. Maybe you could look them up and at least talk to the

director about what schools and if there are other areas in WA he's familiar

with that would offer something appropriate for your kids? Just a thought.

By the way, if you aren't adversive to meds, clonidine is wonderful for

helping kids go to sleep. Even 1/2 a tablet can have them down to bed an

hour later.

Wonder if Dr. Fry would give me a rx for it. LOL! He told me that he really

didn't think that meds would help her.

Georga

Sue

[Guest guest]

Yeah, it sure sounds like testing is in order. :-/

Sue

[Guest guest]

> Uh...Washington DC Metro area. I think that is too far. :0)

Yeah, I guess it would be a hell of a commute! :-O

> This is good. The ASA or someone here has a socilizaiton class for kids

with ASD. Guess what, Savannah doesn't fit into the age group it is for.

ARGH!

We had this problem for last year with the psychiatrists social group.

This year they have another for the younger kids though!

> Wonder if Dr. Fry would give me a rx for it. LOL! He told me that he

really didn't think that meds would help her.

Trust me, it works! Once 's sleep issues started a year ago, this

stuff did the trick. Then I found out accidentally that if he didn't take

it, he'd still be awake at 2:30 a.m....

By the way, there are a lot of different medications that can help our kids

with their worst symptoms. I've found both the kids and I benefit. It can

calm anxiety and fixations, good for the kids, and it can tone down

frustration, anger, and tantrums, good for both of us, and it helps

alleviate aggression, good for me! This last one also helps insure that the

child lives longer too, LOL!

Sue

[Guest guest]

>>>>>>>>>>>>>>

The highlights of the week included:

Sierra (5 ~ this is one of them that I think is ASD) holding down her 4 year

old sister and peeing on her. The following day she dumps a bottle of BBQ

sauce on her head.

<<<<<<<<<<<<<<

erg. *sigh*

>>>>>>>>>>

Atlanta (9 NT) I think she is dyslexic. Now I have to find out how to go

about getting testing done for that. She has also just been the typical 9

year old brat that most people of 9 year olds see in their kids every so

often and I just don't have the patience for it.

<<<<<<<<<

Well, if she IS dyslexic, she'll get services, right?

>>>>>>>>>

Dalton (almost 2 and I think ASD) just totally stressed me out one day by

banging his head, face first, on the floor for a half hour. Sigh. Not the

first headbanging thing that I have seen. He normally sits in the hall and

rocks and bangs.

<<<<<<<<<

Double-erg....double-*sigh*

>>>>>>>>>>>>

The interesting thing is Savannah never sleeps. We are lucky if she is

asleep by 1130. Sierra and Dalton are just as bad. Dalton is worse than

Sierra about it though. Is there some rule that ASD kids don't need sleep?

<<<<<<<<<<<<<

I have one of those. She goes to sleep VERY late. Luckily, if she doesn't

have school, she'll sleep in. She's definitely a night owl.

>>>>>>>>

I could go on for a bit but I won't. I think I have bored everyone out of

their minds as it is and I sound like a whiner.

Thanks for listening.

<<<<<<<<<<

I read every word. That was quite a vent!!! I at least hope you feel better

after writing everything down. I know it really sucks when you are counting

on someone doing something and they let you down. I totally agree with

you. If her answer was no, then she should have told you UPFRONT, " no " and

not waste your time.

Sorry things look so shitty right now.....keep venting...we'll listen.

Penny

[Guest guest]

Oh, today was a good day to. NOT!

The issue of the day was the boys getting into my bedroom. One of them was

playing with dh's razor and cut up one of his fingers. The other one tried to

get the lid off the flea dip to drink it. I am so glad that put saftey

caps on that no one can get off!! Called at work to tell him to bring

home bandaids and was so stressed out trying to keep Dalton from ripping of a

thumbnail that was falling off (he had his thumb slammed in a door and it was

messed up pretty bad and we knew he was going to loose the nail) that we got

disconnected. I got pissed and took the privacy lock off the front door to put

on our bedroom door where they couldn't get in there anymore. Sigh. At least I

don't have to worry about that anymore but I still have to clean a tube of

toothpaste off my toliet lid.

Georga

Your purchase of Usborne Books will help the Marine Corps and Toys for Tots.

Please visit www.ubah.com/HOS12159

Register to win $50 in free books. Visit www.ubah.com/F1549

Start your own Usborne Home Business in November for only $34.95! Ask me how!

RE: VENT ~ quite long

>>>>>>>>>>>>>>

The highlights of the week included:

Sierra (5 ~ this is one of them that I think is ASD) holding down her 4 year

old sister and peeing on her. The following day she dumps a bottle of BBQ

sauce on her head.

<<<<<<<<<<<<<<

erg. *sigh*

>>>>>>>>>>

Atlanta (9 NT) I think she is dyslexic. Now I have to find out how to go

about getting testing done for that. She has also just been the typical 9

year old brat that most people of 9 year olds see in their kids every so

often and I just don't have the patience for it.

<<<<<<<<<

Well, if she IS dyslexic, she'll get services, right?

>>>>>>>>>

Dalton (almost 2 and I think ASD) just totally stressed me out one day by

banging his head, face first, on the floor for a half hour. Sigh. Not the

first headbanging thing that I have seen. He normally sits in the hall and

rocks and bangs.

<<<<<<<<<

Double-erg....double-*sigh*

>>>>>>>>>>>>

The interesting thing is Savannah never sleeps. We are lucky if she is

asleep by 1130. Sierra and Dalton are just as bad. Dalton is worse than

Sierra about it though. Is there some rule that ASD kids don't need sleep?

<<<<<<<<<<<<<

I have one of those. She goes to sleep VERY late. Luckily, if she doesn't

have school, she'll sleep in. She's definitely a night owl.

>>>>>>>>

I could go on for a bit but I won't. I think I have bored everyone out of

their minds as it is and I sound like a whiner.

Thanks for listening.

<<<<<<<<<<

I read every word. That was quite a vent!!! I at least hope you feel better

after writing everything down. I know it really sucks when you are counting

on someone doing something and they let you down. I totally agree with

you. If her answer was no, then she should have told you UPFRONT, " no " and

not waste your time.

Sorry things look so shitty right now.....keep venting...we'll listen.

Penny

[Guest guest]

Well, if she IS dyslexic, she'll get services, right?

I wouldn't count on it. Chances are I am going to get the same bullshit that I

got with Savannah... " She must be in school to get services " I really hate this

state. The education system sucks on so many levels.

Georga

[Guest guest]

georga - you need a break woman!! i asked before but don't know if you replied

- are you eligible for any kind of respite? you have such a large and

challenging family and you don't even get a break when they are at school

because they home school!! surely you must be eligible for some kind of a

respite program.

michelle

RE: VENT ~ quite long

>>>>>>>>>>>>>>

The highlights of the week included:

Sierra (5 ~ this is one of them that I think is ASD) holding down her 4 year

old sister and peeing on her. The following day she dumps a bottle of BBQ

sauce on her head.

<<<<<<<<<<<<<<

erg. *sigh*

>>>>>>>>>>

Atlanta (9 NT) I think she is dyslexic. Now I have to find out how to go

about getting testing done for that. She has also just been the typical 9

year old brat that most people of 9 year olds see in their kids every so

often and I just don't have the patience for it.

<<<<<<<<<

Well, if she IS dyslexic, she'll get services, right?

>>>>>>>>>

Dalton (almost 2 and I think ASD) just totally stressed me out one day by

banging his head, face first, on the floor for a half hour. Sigh. Not the

first headbanging thing that I have seen. He normally sits in the hall and

rocks and bangs.

<<<<<<<<<

Double-erg....double-*sigh*

>>>>>>>>>>>>

The interesting thing is Savannah never sleeps. We are lucky if she is

asleep by 1130. Sierra and Dalton are just as bad. Dalton is worse than

Sierra about it though. Is there some rule that ASD kids don't need sleep?

<<<<<<<<<<<<<

I have one of those. She goes to sleep VERY late. Luckily, if she doesn't

have school, she'll sleep in. She's definitely a night owl.

>>>>>>>>

I could go on for a bit but I won't. I think I have bored everyone out of

their minds as it is and I sound like a whiner.

Thanks for listening.

<<<<<<<<<<

I read every word. That was quite a vent!!! I at least hope you feel better

after writing everything down. I know it really sucks when you are counting

on someone doing something and they let you down. I totally agree with

you. If her answer was no, then she should have told you UPFRONT, " no " and

not waste your time.

Sorry things look so shitty right now.....keep venting...we'll listen.

Penny

[Guest guest]

When we had our go arounds with CPS this socail worker was convinced that we

were able to qualify for everything under the sun and she tried to get us this

that and the other and failed miserably. My husband makes to much money. The

schools are insulted that we chose to homeschool and they are so freaking anal

that they don't want to help anyone that homeschools.

Georga

Your purchase of Usborne Books will help the Marine Corps and Toys for Tots.

Please visit www.ubah.com/HOS12159

Register to win $50 in free books. Visit www.ubah.com/F1549

Start your own Usborne Home Business in November for only $34.95! Ask me how!

RE: VENT ~ quite long

>>>>>>>>>>>>>>

The highlights of the week included:

Sierra (5 ~ this is one of them that I think is ASD) holding down her 4

year

old sister and peeing on her. The following day she dumps a bottle of BBQ

sauce on her head.

<<<<<<<<<<<<<<

erg. *sigh*

>>>>>>>>>>

Atlanta (9 NT) I think she is dyslexic. Now I have to find out how to go

about getting testing done for that. She has also just been the typical 9

year old brat that most people of 9 year olds see in their kids every so

often and I just don't have the patience for it.

<<<<<<<<<

Well, if she IS dyslexic, she'll get services, right?

>>>>>>>>>

Dalton (almost 2 and I think ASD) just totally stressed me out one day by

banging his head, face first, on the floor for a half hour. Sigh. Not

the

first headbanging thing that I have seen. He normally sits in the hall

and

rocks and bangs.

<<<<<<<<<

Double-erg....double-*sigh*

>>>>>>>>>>>>

The interesting thing is Savannah never sleeps. We are lucky if she is

asleep by 1130. Sierra and Dalton are just as bad. Dalton is worse than

Sierra about it though. Is there some rule that ASD kids don't need

sleep?

<<<<<<<<<<<<<

I have one of those. She goes to sleep VERY late. Luckily, if she doesn't

have school, she'll sleep in. She's definitely a night owl.

>>>>>>>>

I could go on for a bit but I won't. I think I have bored everyone out of

their minds as it is and I sound like a whiner.

Thanks for listening.

<<<<<<<<<<

I read every word. That was quite a vent!!! I at least hope you feel

better

after writing everything down. I know it really sucks when you are

counting

on someone doing something and they let you down. I totally agree with

you. If her answer was no, then she should have told you UPFRONT, " no " and

not waste your time.

Sorry things look so shitty right now.....keep venting...we'll listen.

Penny

[Guest guest]

> Well, if she IS dyslexic, she'll get services, right?

>

> I wouldn't count on it. Chances are I am going to get the same bullshit

that I got with Savannah... " She must be in school to get services " I really

hate this state. The education system sucks on so many levels.

Have you checked to see if that's true? I'm not so sure about that.

Sissi

[Guest guest]

land is so screwed up if you don't want your kids in public school.

They want kids in school where they don't have to put out the money for services

that they can provide through the school.

Trying to find out where we would go to get her elvaluated for it since she is

being homeschooled and I have the feeling that this is going to be something

that our insurance isn't going to cover. Sigh.

This is one of those times that I wished that my family wasn't so...well...my

family because I have an aunt that went to school to work specifically with

dyslexia kids.

Georga

Your purchase of Usborne Books will help the Marine Corps and Toys for Tots.

Please visit www.ubah.com/HOS12159

Register to win $50 in free books. Visit www.ubah.com/F1549

Start your own Usborne Home Business in November for only $34.95! Ask me how!

Re: VENT ~ quite long

> Well, if she IS dyslexic, she'll get services, right?

>

> I wouldn't count on it. Chances are I am going to get the same bullshit

that I got with Savannah... " She must be in school to get services " I really

hate this state. The education system sucks on so many levels.

Have you checked to see if that's true? I'm not so sure about that.

Sissi