Re: Preliminary Irene Update

[Guest guest]

Yikes another 2 1/2 weeks What are they doing ?

IPF 2/07 IL

--- Bruce Moreland wrote:

> I've received very limited information so far on her

> GI visit this

> morning, but it appears they are going to have her

> stay on clear

> liquids until March 3 and do a colonoscopy then. If

> the colonoscopy

> shows her colon to be free of Crohn's at that time,

> then they would

> perform surgery to remove the blockage.

>

> I just can't imagine her having to suffer that much

> longer and then

> what she faces from there. Last night she was in

> such pain she couldn't

> go to sleep but finally did sleep a little on the

> couch.

>

>

>

>

________________________________________________________________________________\

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[Guest guest]

Yes....2 1/2 weeks...scheduling....Dr.Vacation...oh don't get me

wound up. All I know is that if it were here with my doctors, whether

the specific GI was on vacation or not the Colonoscopy would be

within two days. Now, once its done, how long to the surgery? Who

knows. It's just not right.

It ain't Penguin.

>

> > I've received very limited information so far on her

> > GI visit this

> > morning, but it appears they are going to have her

> > stay on clear

> > liquids until March 3 and do a colonoscopy then. If

> > the colonoscopy

> > shows her colon to be free of Crohn's at that time,

> > then they would

> > perform surgery to remove the blockage.

> >

> > I just can't imagine her having to suffer that much

> > longer and then

> > what she faces from there. Last night she was in

> > such pain she couldn't

> > go to sleep but finally did sleep a little on the

> > couch.

> >

> >

> >

> >

>

>

>

>

______________________________________________________________________

______________

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> Find them fast with Yahoo! Search.

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>

[Guest guest]

I totally agree with you. The site I sent was just for information. I

truly did not want to upset you more that you are. We all are upset

over all that Irene is going through. Just thought you would find it

interesting.

Love and Prayers, Peggy

ipf 6/04

Worry looks around.

Sorry looks back,

Faith looks up.

Yes....2 1/2 weeks...scheduling....Dr.Vacation...oh don't get me

wound up. All I know is that if it were here with my doctors, whether

the specific GI was on vacation or not the Colonoscopy would be

within two days. Now, once its done, how long to the surgery? Who

knows. It's just not right.

It ain't Penguin.

>

> > I've received very limited information so far on her

> > GI visit this

> > morning, but it appears they are going to have her

> > stay on clear

> > liquids until March 3 and do a colonoscopy then. If

> > the colonoscopy

> > shows her colon to be free of Crohn's at that time,

> > then they would

> > perform surgery to remove the blockage.

> >

> > I just can't imagine her having to suffer that much

> > longer and then

> > what she faces from there. Last night she was in

> > such pain she couldn't

> > go to sleep but finally did sleep a little on the

> > couch.

> >

> >

> >

> >

>

>

>

>

__________________________________________________________

______________

> Looking for last minute shopping deals?

> Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

>

[Guest guest]

Oh I found it interesting and it didn't upset me more. Just allowed

me to rant a bit more over the unnecessary suffering that so many we

know go through. The diseases are enough. I can even deal with them.

I can accept, for instance, that Joyce is undergoing a very tough

treatment. I can't accept her oxygen or bed problems or what she went

through her first day at the hospital. I do laugh at just the way the

story lead is always " man in room and no panties " but the entire

experience was horrifying and idiotic.

But thanks for the article. I remain interested in those. I just

don't think our governments have any idea.

> >

> > > I've received very limited information so far on her

> > > GI visit this

> > > morning, but it appears they are going to have her

> > > stay on clear

> > > liquids until March 3 and do a colonoscopy then. If

> > > the colonoscopy

> > > shows her colon to be free of Crohn's at that time,

> > > then they would

> > > perform surgery to remove the blockage.

> > >

> > > I just can't imagine her having to suffer that much

> > > longer and then

> > > what she faces from there. Last night she was in

> > > such pain she couldn't

> > > go to sleep but finally did sleep a little on the

> > > couch.

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> __________________________________________________________

> ______________

> > Looking for last minute shopping deals?

> > Find them fast with Yahoo! Search.

> http://tools.search.yahoo.com/newsearch/category.php?

category=shopping

> >

>

[Guest guest]

Bruce, Peggy and

GI's office I was sitting on chair and practically falling over with pain. There's a partial obstruction, I'll explain what it is:

The small bowel (intestine) is blocked and it has narrowed itself, if I eat solid food, what happens is when it's going to be time for the food to pass through there, it has to squeeze its way through and the pain becomes more severe. If I drink liquids they go in and come out.

In the past 3 weeks since Jan 29th, we've tried antibiotics Cipro & Flagyl 500mg each x2 a day.

With combination of the antibiotic, I also took Budesonide 9mg once a day

On Wednesday had my treatment and pain meds before and after

with everything we tried it was supposed to work...

Prednisone is out of the question because of the Osteopenia

Pentasa another medication for Crohn's is out of the question too because I'm allergic to it

The things remain the same with No change

Only thing now is to do the colonoscopy and if the large bowel is free of Crohn's Disease, we'll proceed with surgery

So now until March 3rd strict liquid diet, which means more weight loss!

Irene

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

[Guest guest]

Irene... You've probably read the posts as we fume over you medical treatment...or lack of it seems. I'm just not understanding why you must 'wait'. You are a tough cookie Irene to bear up under all this. Especially pain. Pain is so disabling.

If any of us could 'do' anything we surely would!

Warm hugs to you.

Mama-Sher, 69, IPF 3-06, OR.Don't fret about tomorrow, God is already there!

[Guest guest]

thanks Sher!

I'll Hang In There. There are some things that I have stopped questionning....I know on the day of the colonoscopy I'm the first patient to go in as a priority. Does that make me feel any better answer is No!

Irene

---- Original Message ----

To: Breathe-Support

Sent: Fri, 15 Feb 2008 2:02 pm

Subject: Re: Re: Preliminary Irene Update

Irene... You've probably read the posts as we fume over you medical treatment...or lack of it seems. I'm just not understanding why you must 'wait'. You are a tough cookie Irene to bear up under all this. Especially pain. Pain is so disabling.

If any of us could 'do' anything we surely would!

Warm hugs to you.

Mama-Sher, 69, IPF 3-06, OR.

Don't fret about tomorrow, God is already there!

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

[Guest guest]

Irene... the fact that you're first makes ME feel better! Finally, YOU are first!!!

Prayers go with you.

Mama-Sher, 69, IPF 3-06, OR.Don't fret about tomorrow, God is already there!

[Guest guest]

thank you Sher!

---- Original Message ----

To: Breathe-Support

Sent: Fri, 15 Feb 2008 4:40 pm

Subject: Re: Re: Preliminary Irene Update

Irene... the fact that you're first makes ME feel better! Finally, YOU are first!!!

Prayers go with you.

Mama-Sher, 69, IPF 3-06, OR.

Don't fret about tomorrow, God is already there!

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

[Guest guest]

dear Irene,

you are very brave, keep it up, rmemeber you can fight

pain you feel it only if you want to, you have so many

praying for you our wishes and prayers are like a wall

against your pain , you will sail thru

lots of love

Geeta

________________________________________________________________________________\

____

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[Guest guest]

Geeta... please excuse my bluntness here....

You say, "you only feel it (pain) if you want to". I totally and respectfully disagree with this Geeta. That may be true for you but I don't think Irene "wants" to feel pain. I deal with chronic pain from legitimate Dx every day and I don't "want" to feel pain.

What do YOU do, not to feel pain?

Thanks.

Mama-Sher, 69, IPF 3-06, OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Sher , dear Sher,

Iam sorry , i seem to have hurt and angered you, my

intention was only to cheer Irene, i dont claim to

have coquered pain but ihave always treated it as an

adversary i must defeat, i dont mean to sound smug.

i want each one who is in pain to win, grab it with

both hands and push it into the far recesses of your

mind , make it insignicant, give it the least

priority, dont let it overwhem you,it is all easier

said than done.

iam once again thankful to bruce who seems to

explain my view even better than me , all i can say is

this is ,exactly what i meant though it was not yoga

on my mind but mind controll ,yes

we all know that the tresh hold for pain is different

in different people , one can gain controll over

anything by mind controll , it has great potential.

i will not say more because i may not suceed in

conveying myself correctly, i want all of to be

painfree and we are fighters we can handle it in

different ways

I hope Irene gets well fast

sorry if i angered you sher

Geeta

________________________________________________________________________________\

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[Guest guest]

Geeta, I understand what you are saying. I have had several surgeries

and have always pushed through the pain. This stinking disease just

doesn't give us a break from the emotional pain much less all the

things Irene is going through.

She is so young to have such a load.

Take care of you.

Love and Prayers, Peggy

Florida, ipf 6/04

Worry looks around.

Sorry looks back,

Faith looks up.

Sher , dear Sher,

Iam sorry , i seem to have hurt and angered you, my

intention was only to cheer Irene, i dont claim to

have coquered pain but ihave always treated it as an

adversary i must defeat, i dont mean to sound smug.

i want each one who is in pain to win, grab it with

both hands and push it into the far recesses of your

mind , make it insignicant, give it the least

priority, dont let it overwhem you,it is all easier

said than done.

iam once again thankful to bruce who seems to

explain my view even better than me , all i can say is

this is ,exactly what i meant though it was not yoga

on my mind but mind controll ,yes

we all know that the tresh hold for pain is different

in different people , one can gain controll over

anything by mind controll , it has great potential.

i will not say more because i may not suceed in

conveying myself correctly, i want all of to be

painfree and we are fighters we can handle it in

different ways

I hope Irene gets well fast

sorry if i angered you sher

Geeta

__________________________________________________________

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[Guest guest]

I don't know what Irene has, if it's mind control, stubborness,

courage, insanity or all the above. I do know I could never forge

ahead so strongly with her current pain and total lack of food. She

somehow worked an entire day today, taking bus and train each way,

rain and ice on the way home on top of the snow, and still was able

to laugh on the bus ride home.

Through it all she now has her cell phone set on countdown to the

hours, minutes and seconds to San (finally we do agree on the

days although I'd yield to her number even if it was wrong).

Certainly your wishes for us to push pain to the recesses is far

easier said than done. But, if there's a group of persons anywhere

that does an incredible job to deal with both physical pain and the

emotional pain of knowing what they face, its this group.

Now in the middle of the esophagus motility study had I heard you

talk about grabbing the pain with both hands I probably would have

used less than desirable language (of course I know Kerry never would

have when she went through it) because I couldn't find any mental

strength to fight it, except tears and saying just try it again

because I couldn't imagine coming back and going through it again.

But other days I'm much better at battling smaller pains. I think

ultimately we face the times where we have to surrender to it much of

the time but even if we can grab hold and tell it we're not being

stopped for an hour or two at a time, we're still better off.

I have a high physical pain tolerance but know its going to have to

be stronger still in the future. Its my emotional pain tolerance that

I know I'm going to have to fight to keep strong. Irene's pain

sometimes overwhelms me, but then her strength keeps me strong.

Sometimes the only way I can deal with pain is letting my emotions

rise, whether its anger or tears. Sometimes I can compensate with

laughter.

There are moments posts on this board cause me severe pain, but then

there is the relief. I read about Kerry's two days and feel pain,

then realize she made it through, now can both get angry about some

of it and laugh, and she's home and doing ok. I read about Joyce's

hospital stay and feel pain especially at the first day, but then she

is home and thinking of others and still filled with her faith and my

pain is lessened. I know what pain Irene is in as she's on her way

home from work, but somehow hearing her voice and even her laughter

(even when she tells me not to make her laugh), I am comforted. I

think about Gwynne hoping for a transplant on oxygen flows I can't

imagine and feel pain but I sit with her over a long lunch and leave

smiling and happier.

>

> Sher , dear Sher,

> Iam sorry , i seem to have hurt and angered you, my

> intention was only to cheer Irene, i dont claim to

> have coquered pain but ihave always treated it as an

> adversary i must defeat, i dont mean to sound smug.

> i want each one who is in pain to win, grab it with

> both hands and push it into the far recesses of your

> mind , make it insignicant, give it the least

> priority, dont let it overwhem you,it is all easier

> said than done.

> iam once again thankful to bruce who seems to

> explain my view even better than me , all i can say is

> this is ,exactly what i meant though it was not yoga

> on my mind but mind controll ,yes

> we all know that the tresh hold for pain is different

> in different people , one can gain controll over

> anything by mind controll , it has great potential.

> i will not say more because i may not suceed in

> conveying myself correctly, i want all of to be

> painfree and we are fighters we can handle it in

> different ways

> I hope Irene gets well fast

> sorry if i angered you sher

> Geeta

>

>

>

______________________________________________________________________

______________

> Looking for last minute shopping deals?

> Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

>

[Guest guest]

Dear Geeta,

I just wanted to add that I too know that it IS possible to use 'mind control' for pain BUT one has to be properly TRAINED to do so. My second child was born using this method & I could not believe how different it was to my first birth experience. I had a good teacher & my hubby helped me practise consistently for months before the birth. The midwifes were astonished & brought lots of nurses in to observe me...i felt like a blinkin' prize cow or summat!

The great thing is I've never forgotten how to do it....that's not to say I never feel pain but if I concentrate really hard I can get myself into a differant 'space' & send the sensation of 'Pain' somewhere else! What is really important is to realise early, that Pain has set in & to start the changed breathing patterns straight away. There are different breathing patterns for different types & levels of 'Pain'. I use it all the time at the Dentist, also before painful Blood letting sessions where I know they'll have trouble finding veins etc etc.

It also works for muscle cramps in the middle of the night..once I've woken up enough to get it together.

For Irene & for others the BIG question is how do they find someone to train them?

in Oz>> Sher , dear Sher,> Iam sorry , i seem to have hurt and angered you, my> intention was only to cheer Irene, i dont claim to> have coquered pain but ihave always treated it as an> adversary i must defeat, i dont mean to sound smug. > i want each one who is in pain to win, grab it with> both hands and push it into the far recesses of your> mind , make it insignicant, give it the least> priority, dont let it overwhem you,it is all easier> said than done.> iam once again thankful to bruce who seems to> explain my view even better than me , all i can say is> this is ,exactly what i meant though it was not yoga> on my mind but mind controll ,yes > we all know that the tresh hold for pain is different> in different people , one can gain controll over> anything by mind controll , it has great potential.> i will not say more because i may not suceed in> conveying myself correctly, i want all of to be> painfree and we are fighters we can handle it in> different ways> I hope Irene gets well fast> sorry if i angered you sher> Geeta> > > ____________________________________________________________________________________> Looking for last minute shopping deals? > Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping>

[Guest guest]

Geeta,

I had a neighbor girl when I was young who used mind control when giving birth to her three children. No medication. Now, if one can overcome that kind of pain with mind control, I am impressed. My fears overwhelm my mind when it comes to pain. How do you minimize your fear so that you can minimize the pain?

Does it work on emotional pain?

Very Curious.

Hugs, Joyce D.

Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

I will not forget you...Behold, I have engraved you on the palms of my hands. Isaiah 49:15-16

>> Sher , dear Sher,> Iam sorry , i seem to have hurt and angered you, my> intention was only to cheer Irene, i dont claim to> have coquered pain but ihave always treated it as an> adversary i must defeat, i dont mean to sound smug. > i want each one who is in pain to win, grab it with> both hands and push it into the far recesses of your> mind , make it insignicant, give it the least> priority, dont let it overwhem you,it is all easier> said than done.> iam once again thankful to bruce who seems to> explain my view even better than me , all i can say is> this is ,exactly what i meant though it was not yoga> on my mind but mind controll ,yes > we all know that the tresh hold for pain is different> in different people , one can gain controll over> anything by mind controll , it has great potential.> i will not say more because i may not suceed in> conveying myself correctly, i want all of to be> painfree and we are fighters we can handle it in> different ways> I hope Irene gets well fast> sorry if i angered you sher> Geeta> > > ____________________________________________________________________________________> Looking for last minute shopping deals? > Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping>

[Guest guest]

thanks Geeta for the Well Wishes! at the moment I just want to get through the colonoscopy....

---- Original Message ----

To: Breathe-Support

Sent: Sun, 17 Feb 2008 10:31 pm

Subject: Re: Preliminary Irene Update

Sher , dear Sher,

Iam sorry , i seem to have hurt and angered you, my

intention was only to cheer Irene, i dont claim to

have coquered pain but ihave always treated it as an

adversary i must defeat, i dont mean to sound smug.

i want each one who is in pain to win, grab it with

both hands and push it into the far recesses of your

mind , make it insignicant, give it the least

priority, dont let it overwhem you,it is all easier

said than done.

iam once again thankful to bruce who seems to

explain my view even better than me , all i can say is

this is ,exactly what i meant though it was not yoga

on my mind but mind controll ,yes

we all know that the tresh hold for pain is different

in different people , one can gain controll over

anything by mind controll , it has great potential.

i will not say more because i may not suceed in

conveying myself correctly, i want all of to be

painfree and we are fighters we can handle it in

different ways

I hope Irene gets well fast

sorry if i angered you sher

Geeta

__________________________________________________________

Looking for last minute shopping deals?

Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

[Guest guest]

Geeta... thank you for replying and no, I wasn't angered, although I may have written as though I were. I tend to be very direct, right to the point and say what I mean in few words. I read someplace...."Lord, make my words tender for tomorrow I may have to eat them.".....

I get protective about our group and your wording did sound a bit judgmental, however,I apologize to you for making a point out of what you wrote about pain. I understand better when you now write about "mind control" to free oneself. I'm sure it's the same as "positive thinking" for me.

I did not take into consideration that you are from a different culture and perhaps Yoga and mind control are something you learn from an early age. You wrote,

i want each one who is in pain to win, grab it withboth hands and push it into the far recesses of yourmind , make it insignicant, give it the leastpriority, dont let it overwhem you,it is all easiersaid than done.

Written this way, I do understand and it sounds caring and appealing.

I'm glad you wrote back Geeta and didn't get mad and leave the board! I know neither of us would hurt a single soul on this board.

I will take this as an opportunity to soften my words.

In love and appreciation for who you are,

Mama-Sher 69, IPF 3-06, OR.

Don't fret about tomorrow, God is already there!

[Guest guest]

Irene... when I 'get' a colonoscopy I'm out. I wish the same for you!

Mama-Sher, 69, IPF 3-06, OR.Don't fret about tomorrow, God is already there!

[Guest guest]

thank you Sher! I was out the door outside walked towards the market, I got this severe pain and feeling of hot...just came back home and started puking. I couldn't even make it to the bus stop.

Irene

---- Original Message ----

To: Breathe-Support

Sent: Mon, 18 Feb 2008 11:05 am

Subject: Re: Re: Preliminary Irene Update

Irene... when I 'get' a colonoscopy I'm out. I wish the same for you!

Mama-Sher, 69, IPF 3-06, OR.

Don't fret about tomorrow, God is already there!

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

[Guest guest]

I know this is a foolish question girl friend....but....have you tried stopping for awhile? Just going to bed for awhile? If doing nothing for awhile will give you some relief wouldn't it be worth it?

I can't remember....are you married? Who helps you?

Mama-Sher, 69, IPF 3-06, OR.Don't fret about tomorrow, God is already there!

[Guest guest]

loll! no I'm not married. I thought about it, in the last 3 weeks of slowing down, the answer is No! My mind is all over the place...My sister and mom help me.

Irene

---- Original Message ----

To: Breathe-Support

Sent: Mon, 18 Feb 2008 12:32 pm

Subject: Re: Re: Preliminary Irene Update

I know this is a foolish question girl friend....but....have you tried stopping for awhile? Just going to bed for awhile? If doing nothing for awhile will give you some relief wouldn't it be worth it?

I can't remember....are you married? Who helps you?

Mama-Sher, 69, IPF 3-06, OR.

Don't fret about tomorrow, God is already there!

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

[Guest guest]

... I can't imagine anyone not wanting to know how to lessen pain....using any method!

You're right...how does one learn these techniques?

Mama-Sher, 69, IPF 3-06, OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Irene... I'm grinning here...I can't help but wonder how they help you if they can't catch you?? lol

Mama-Sher, 69, IPF 3-06, OR.Don't fret about tomorrow, God is already there!

[Guest guest]

lol! my sister visits twice a week and I see her on the weekends too. If need to go to hospital she or my brother-in-law take me.

Or I just call an ambulance and they meet me there.

Irene

---- Original Message ----

To: Breathe-Support

Sent: Mon, 18 Feb 2008 12:59 pm

Subject: Re: Re: Preliminary Irene Update

Irene... I'm grinning here...I can't help but wonder how they help you if they can't catch you?? lol

Mama-Sher, 69, IPF 3-06, OR.

Don't fret about tomorrow, God is already there!

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.