Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Helen, You are a very brave lady and I would say that that definately caused your cp.I just thooought I wouldd let you know that as we all know everything and every procedure is all differant and that is what makes this sickness so hard to fighjt because their is no one certain thing for us to go by.I am petrified of even going in the hospital after all I went through.I wanted to let you know that sometimes my bloodwork comes back ok. and I suffer very much with pain.I think that some of these docs forget and sometimes are to quick to act,but we all know how differant this cp can be. I hope that you have a restful day Your Friend B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Hi Everyone, It looks like i got away with the ERCP without an acute attack..of course in spite of them saying my pancreas is normal i feel that i had an acute attack before the tests and things were just back to normal. I still have a lot of pain but it is resolving..I have had months where i will just have a dull ache and feel as if i have a ball sitting where my pancreas sits....so who knows. They took about 35-40 minutes to scope me to look at my fundoplication and then do the ercp. I see the doc on thurs. and then we will schedule more tests. I know that the pain i have is the worse than labor pains and when it is going full blast there is not a second that it will let up. I dont think this doc will ever scope me unless he thinks i am going to die because i was ssoooooooooooooo badly behaved. I was so terrified of them putting that thing down my throat that i did not care who I told and I told everyone that would listen...with major tears. I don't regret the tears one bit because i think that the doc has to know that i had to be having awful pain to have allowed him to do the tests. I think that Versed must have been created in heaven because right before i lost consciousness i was joking with them...all of about 10 seconds probably. As a nurse i have seen to much and as a patient i have seen way more than i want. I have never been mean, short or less than loving to my patients..and I was soooooo glad of that when i was on the table...cause i sure tested the last nerve of them all. I don't think there is ANYTHING worse than fear cause i was ready for them to shoot me rather than scare me anymore. thanks to everyone that has listened to me and held my hand through this. I read your mail and think about you all everyday. hugs from maine, Lacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 B., Thanks for the kind thoughts and reinforcements. Came at the perfect moment. Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 In a message dated 7/17/00 4:32:13 PM Pacific Daylight Time, Helen4@... writes: << my sister said he stood at the nurses desk telling jokes for 20 minutes before he ordered stronger pain medication. A little frustrating. I didn't know this until much later as the pain was so great that I wasn't aware of anything but pain. Helen >> Tam called me from the hospital one day before I was able to get there, she said she had been waiting for 30 min from the time she asked the first time she asked for it. I got up there 45min later and they still didnt give her anything for pain. I went to the nurses station and askedwho was my wifes nurse. the nurse with her back turned to me said she was. I told her how long Tam had been waiting for something for pain and without turning around said " I will get to her when I get to her " I was so PISSED that I got one foot over the counter with my hand reaching for her throat. good thing there were 2 male nurses standing on the other side of the desk and stopped me. Needless to say they went rite down to her room with the pain shot and appologized. I just dont know why they have to make anybody lay in pain. Tam & Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 Hi Lady! Great! I am glad to hear that you are going to try to go to the dinner. I am really looking forward to seeing all of Timmy's friends. He cherished you all so much. I will try to figure out a day that we can meet for lunch but next week my husbands son is on vacation and I have to take him to a custody hearing for his daughter and some attorney appointments. He doesnt drive or have a car and has been staying with us. He is really down on his luck and we are trying to help him out as much as we can. So next week is kinda shot for me. If we don't get to do lunch before Timmy's dinner then maybe at that time we can put our heads together and set a date! Everything is always so day to day with us isn't it? I use to always be able to plan things so far in advance (I am kind of anal retentive that way LOL) but now it just depends on how I feel that day. If I plan too far in advance it seems like I can never follow through-I am sure you know how that is!!! I am sorry to hear that you are having a fight over disability I wish you all the luck in that. I hate that the ones who need it can't get it while all of the " yeahoos " out there abuse it. I know what you mean about not leaving sweetwater, I have a pool in my back yard and can't seem to pull myself away from that most days. Hey, if you would feel up to it you can always come over and go for a dip. Vickie is just around the corner so maybe we can plan a " girls day " at the pool. I saw her not too long ago at my garage sale-she is so sweet. I think Timmy was mad at himself when he found out that she was getting married. I kept telling him to pursue her harder-mostly for myself-what a great sister-in-law she would have been. ha ha ha I am glad she is happy though. Well, I hope that you have a good day today. Take Care! p.s. Is anyone going with you to your hearing? If you need some moral support I would gladly go with you! Just let me know okay? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 In a message dated 07/18/2000 11:14:53 PM Eastern Daylight Time, LenhartROCKO@... writes: << I just dont know why they have to make anybody lay in pain. Tam & Steve >> Steve, good for you! I'm glad they stopped you from doing any harm, but at least you got their attention. Hopefully, the next time they decide they can put off giving the pain medication, they'll remember you and take the time to give it when the patient needs it. Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 , I sure understand about not knowing if you can do something until the time comes. I'm meeting Vicky for lunch Friday at Arbys at Madison and Stop 11??? Can't remember which cross street. Know Arby's is on the East side of the street. Anyway, I'll be through with radiation by 11:20, so I'll be there early. She'll be there just after noon on her lunch hour. Then I have a meeting with the disability lawyer at 1:15. Anyway, if it's a good day, it would be great to see you. If not, hope to see you on the 28th! Helen PS If you can come and see some crazy lady sitting in her car in the parking lot while waiting for Vicky, listening to an audio book in a white convertible, that's me. Quote Link to comment Share on other sites More sharing options...
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