Re: urgent question

[Guest guest]

In a message dated 7/14/00 1:13:57 AM !!!First Boot!!!, cracker@...

writes:

<< I have had replies telling me not to get the ERCP. I am scheduled

tomorrow and fear that if i don't have it done that i will lose the backing

of my doctor. >>

Hi Lacey, and others,

I am not sure if the hospital where you are at has the capabilities of doing

an MRCP. It is normal to have fear about any surgery the night before. I have

had two ERCP's by Dr. Sherman in Indianapolis. I had trouble with having

adequate sedation the first time, but the next time, the doctor knew this and

I was adequately sedated.

To have an ERCP or not is your own personal decision. I think that it is

important to get going on your situation one way or another. The ERCP will

identify numerous factors that can direct the course of treatment for your

particular case. The one advantage to having the ERCP tomorrow is that if

there are any stones in the duct, an occluded duct opening, or Sphincter of

Oddi problems, the GI can usually treat those on the spot. Afterwards, you

can pursue the MRCP availability.

I had a similar incident last Monday. It was the night before I was supposed

to have a Hickman IV placed. I had people telling not to do it, get a

Groshong (SP?), get a port a cath, Whoa, ti was too much overload. The

decision was in front of me. I went a head and kept with my original plans.

There were so many people from my healthcare team that would have been

affected. The bottom line was that the Hickman was the only permanent IV

inserted at IU hospital. I needed IV access, it would not have been a good

decision for me to change my plans a few hours before surgery.

I will hold you in my prayers tonight and especially in the morning.

Karyn

[Guest guest]

hi lacey, it is the other way around. you have a 95% chance of another attack

following an ercp. this past week since i was having another attack when my

pancreatic specialist told me he would like an ercp i immediately asked for

an mrcp instead and he quickly agreed since i was having an attack. please

remember the gi doctors get paid for having an ercp done. if an mrcp is done

it is non invasive and the gi cant charge for this proceedure.i hope this

helps

[Guest guest]

The evil Chronic Panc. patient forces their doctor to assume new names.....

Use the first letter of your Doctors first name to determine their NEW first

name:

a = stinky

b = lumpy

c = buttercup

d = gidget

e = crusty

f = greasy

g = fluffy

h = cheeseball

i = chim-chim

j = poopsie

k = flunky

l = booger

m = pinky

n = zippy

o = goober

p = doofus

q = slimy

r = loopy

s = snotty

t = falafel

u = dorkey

v = squeezit

w = oprah

x = skipper

y = dinky

z = zsa-zsa

Use the first letter of your Doctors last name to determine the first half

of their NEW last name:

a = diaper

b = toilet

c = giggle

d = bubble

e = girdle

f = barf

g = lizard

h = waffle

i = cootie

j = monkey

k = potty

l = liver

m = banana

n = rhino

o = burger

p = hamster

q = toad

r = gizzard

s = pizza

t = gerbil

u = chicken

v = pickle

w = chuckle

x = tofu

y = gorilla

z = stinker

Use the last letter of your Doctors last name to determine the second half

of their NEW last name:

a = head

b = mouth

c = face

d = nose

e = tush

f = breath

g = pants

h = shorts

i = lips

j = honker

k = butt

l = brain

m = tushie

n = chunks

o = hiney

p = biscuits

q = toes

r = buns

s = fanny

t = sniffer

u = sprinkles

v = kisser

w = squirt

x = humperdinck

y = brains

z = juice

Thus, for example, Bush's new name is Fluffy Toiletshorts.

And Doctor Evan Fogel becomes Dr. Crusty Barfbrain.

[Guest guest]

In a message dated 7/14/00 4:36:29 PM Eastern Daylight Time,

poncho9191@... writes:

<<

z = juice

Thus, for example, Bush's new name is Fluffy Toiletshorts.

And Doctor Evan Fogel becomes Dr. Crusty Barfbrain.

------------------------------- >>

Poncho, FUNNY

[Guest guest]

Lacey,

i want to encourage you to go through the ercp the complications are few

and you will be out of it when they do the procedure. good luck with making

your choice because only you can do that. email me privately if you would

like: Dsimmtaz@...

[Guest guest]

hi david. i dont want to start an argument here but the complication of an

ercp are not few. i am not sure of what your doctor has told you but 95%of

all cases end up with an acute attack. my first ercp and the complications

put me in the hospital for nearly three months. i hope you are one of the

lucky few who do not experience an attack afterwards. but for the rest of us

it can not be worth it. i know i sound like a broken record all i am saying

there are other ways to get the information instead of the ercp. this is what

we are all here for give other the information so they can talk with their

doctors and hopefully a painfree non invasive proceedure can be

performed.again i am not trying to start an argument i just hope this helps

others. i hope all of us are having a pain free day. jim s

[Guest guest]

> hi david. i dont want to start an argument here but the

complication of an

> ercp are not few. i am not sure of what your doctor has told you

but 95%of

> all cases end up with an acute attack. my first ercp and the

complications

> put me in the hospital for nearly three months. i hope you are one

of the

> lucky few who do not experience an attack afterwards. but for the

rest of us

> it can not be worth it. i know i sound like a broken record all i

am saying

> there are other ways to get the information instead of the ercp.

this is what

> we are all here for give other the information so they can talk

with their

> doctors and hopefully a painfree non invasive proceedure can be

> performed.again i am not trying to start an argument i just hope

this helps

Jim, I have had 3 ercp's done & had no problems afterwards. My GI

doc told me the risk involved before I had it done. He also

explained to me that it depends on the experience of the dr doing the

ercp. They can damage the pancreas if they don't have a lot of

experience using the probe. I have even heard of horro stories where

people have had there throat damaged & voice box. I would have

another one if I had to...

> others. i hope all of us are having a pain free day. jim s

[Guest guest]

hi,

my doctor told me there was between a 2 and 7 percent chance of an acute

attack after an ercp. So far I am not having any complications.

Lacey

At 01:03 PM 07/15/2000 EDT, you wrote:

>hi david. i dont want to start an argument here but the complication of an

>ercp are not few. i am not sure of what your doctor has told you but 95%of

>all cases end up with an acute attack. my first ercp and the complications

>put me in the hospital for nearly three months. i hope you are one of the

>lucky few who do not experience an attack afterwards. but for the rest of us

>it can not be worth it. i know i sound like a broken record all i am saying

>there are other ways to get the information instead of the ercp. this is

what

>we are all here for give other the information so they can talk with their

>doctors and hopefully a painfree non invasive proceedure can be

>performed.again i am not trying to start an argument i just hope this helps

>others. i hope all of us are having a pain free day. jim s

>

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[Guest guest]

In a message dated 7/15/00 1:19:26 PM Central Daylight Time, cracker@...

writes:

<< hi,

my doctor told me there was between a 2 and 7 percent chance of an acute

attack after an ercp. So far I am not having any complications.

Lacey

>>

that's great lacy

[Guest guest]

Hi Friends, I think that you should only have ercp if you absoloutly have't

to.I was one of those who got it the first time and almost died from it.I

spent 6 weeks in the hospital and for 6 months I could not eat any food at

all,and I had to drag a iv pole behind me.I do agree that with most docs you

might be ok.I think to this day that my doc was definatly incompenent.I asked

her from the start about getting P.from it and she said that she had never

had a patient get P from it.I beleive that because she did not even know how

to treat me for it,I had to be tranferred by ambulance to a hospital 3 hours

away but only after 10 days of her treatment.It was my husband who demanded I

be moved.Of course she did stay down there for 2 and half hours.I woke up and

for 3 weeks I could not speak above a whisper.I was probably the omnly one

she had done we won't know..I also know that it is not to be taken lightly as

you see what could happen. B.

[Guest guest]

In a message dated 7/15/00 10:04:35 AM Pacific Daylight Time,

rastif2020@... writes:

<< hi david. i dont want to start an argument here but the complication of an

ercp are not few. i am not sure of what your doctor has told you but 95%of

all cases end up with an acute attack. my first ercp and the complications

put me in the hospital for nearly three months. i hope you are one of the

lucky few who do not experience an attack afterwards. but for the rest of us

it can not be worth it. i know i sound like a broken record all i am saying

there are other ways to get the information instead of the ercp. this is

what

we are all here for give other the information so they can talk with their

doctors and hopefully a painfree non invasive proceedure can be

performed.again i am not trying to start an argument i just hope this helps

others. i hope all of us are having a pain free day. jim s >>

Jim: My wife Tammy has had about 15 ERCP's done and has never had an attack

after. So I dont know where you get 95% from but I have never heard of that

high of an occourance. Tam & Steve

[Guest guest]

dear tam and steve. back in feb, i had a surgical consent and the surgeon

himself asked if i had an ercp done initially when this all started and i

said yes. he told me and his exact words were i have never seen an ercp done

where it did not cause a flare up.i have a flare for each of the ercp's. if

you didn't have a flare more power to you. but there is still more of us

online here who experience more pain after the proceedure. i know when the

dr's tell us about the ercp the claim small percentage for flare up. many

have already talked here and we realized most of us experience more pain. any

more feedback. jim s

[Guest guest]

I've had an acute attack (4) following each ERCP. I've had two 4-hour and

one 3-hour ERCP. Became alert for the last 20 or 30 minutes of one of them -

seemed like forever. Doctor wasn't concerned, of course.

Prior to the 5th procedure (I forget what they called it, but they enlarged

the sphinter muscle and put in a stint at IU), they gave me an experimental

drug to keep me from going into an acute attack. They said you can only take

this drug once. It worked - till the next day, then I was not in a full

blown attack, but in extreme pain for the next week or so.

Helen

[Guest guest]

helen,I hope that you have a peaceful nite.Iif you had 3 ercp and the

doc stayed down there that long you need to find aanother doc??/Of course

that is my opinion.My 1st the doc stayed 3 hours and was vety incompetant.I

have did a lot of research and I cannot find one thing to justify a doc that

long in procedure.What were they doing??Don't you think that is a long time.

B.

[Guest guest]

In a message dated 7/16/00 5:16:02 PM Pacific Daylight Time,

rastif2020@... writes:

<< dear tam and steve. back in feb, i had a surgical consent and the surgeon

himself asked if i had an ercp done initially when this all started and i

said yes. he told me and his exact words were i have never seen an ercp done

where it did not cause a flare up.i have a flare for each of the ercp's. if

you didn't have a flare more power to you. but there is still more of us

online here who experience more pain after the proceedure. i know when the

dr's tell us about the ercp the claim small percentage for flare up. many

have already talked here and we realized most of us experience more pain.

any >>

Jim: When we were at U of M hospital where tam had her ERCP's done there were

about 15 to 20 people each time that had the same thing done by the same doc

and none had a flare up. Maybe we all need to do a little background checking

to see the track record of the doc's doing the procedures. I have read a lot

of people on the group posting that they havent had a flare up after after

their ERCP's either. I also read that it depends on the expierence of the

doctor. I dont think that just because someone had a bad expierence that

someone else should be persuaded not to have it done. I could tell by your

sarcasm in your post that you dont agree with what I wrot but I dont care.

everybody should hear different expierences

Tam & Steve

[Guest guest]

In a message dated 7/16/00 5:56:51 PM Pacific Daylight Time,

Helen4@... writes:

<< I've had an acute attack (4) following each ERCP. I've had two 4-hour and

one 3-hour ERCP. Became alert for the last 20 or 30 minutes of one of them

-

seemed like forever. Doctor wasn't concerned, of course.

Prior to the 5th procedure (I forget what they called it, but they enlarged

the sphinter muscle and put in a stint at IU), they gave me an experimental

drug to keep me from going into an acute attack. They said you can only

take

this drug once. It worked - till the next day, then I was not in a full

blown attack, but in extreme pain for the next week or so.

Helen >>

A 3 and 4 hour ERCP, wow that is a long time. Did your doctor say there was a

problem ? I think that might why you had an attack. Did any other docs say

that might be why ? Tam & Steve

[Guest guest]

steve please believe me there was no saracasm in my letter.i know you are

relatively new here. most of us online here have discussed ercp's in the past

and a majority have experienced more pain after the proceedure was

finished.we are all here to help each other out and i would never try to be

saracastic. it was not meant that way. trust me if you guys did not

ewxperience any pain afterward i am truly happy for you. i just wish i could

be so happy. everyone here is in the same boat. we need the support of

others. sorry if you took offense to it. jim s

[Guest guest]

In a message dated 7/17/00 12:06:58 AM Eastern Daylight Time,

LenhartROCKO@... writes:

<< everybody should hear different expierences >>

Dear Tammy, Steve, Jim and all, I have had 13 ercp's and have gotten

pancreatitis from them all. Maybe it depends if the doctor puts dye in the

duct or how invasive he is during the procedure. Maybe some people have

different illnesses with their pancreas and that might make a difference. I

don't know the reason for my pancreatitis, I only know that I get it every

time.

[Guest guest]

In a message dated 7/16/00 9:35:49 PM Pacific Daylight Time,

shirlf3542@... writes:

<< Dear Tammy, Steve, Jim and all, I have had 13 ercp's and have gotten

pancreatitis from them all. Maybe it depends if the doctor puts dye in the

duct or how invasive he is during the procedure. Maybe some people have

different illnesses with their pancreas and that might make a difference. I

don't know the reason for my pancreatitis, I only know that I get it every

time. >>

Tam has had dye put in her panc and duct that is how they found that she has

panc divisim. I dont know why she has been so fortunate but I am glad that it

has not caused any more pain for her. Jim I am not trying to be nasty I just

think she needs to here everybodys expierences on their procedures. Tam &

Steve

[Guest guest]

In a message dated 7/16/00 9:18:13 PM Pacific Daylight Time,

rastif2020@... writes:

<< steve please believe me there was no saracasm in my letter.i know you are

relatively new here. most of us online here have discussed ercp's in the

past

and a majority have experienced more pain after the proceedure was

finished.we are all here to help each other out and i would never try to be

saracastic. it was not meant that way. trust me if you guys did not

ewxperience any pain afterward i am truly happy for you. i just wish i could

be so happy. everyone here is in the same boat. we need the support of

others. sorry if you took offense to it. jim s >>

Jim I am also sorry. Bad day. Tam is the one with panc. I have had 3 back

surgeries in the past 4 years and I wish I had someone to talk to before each

one. I am in a lot of pain and I need to take care of Tam because I know

although I am in a great deal of pain it is not near the pain you all suffer.

I also have to take care of my 2 year old son and my 5 year old daughter.

needless to say I have my hands full. I am sorry for beeing obrupt ( sorry

also for my spelling ) Tam & Steve

P.S we have been on this board for 5 months

[Guest guest]

Hi Helen

Haven't heard from you much-just wondering if you are doing okay. I hope you

will be well enough to attend the dinner in behalf of Timmy-I would love to

meet you.

Write when you have time.

Hugs

[Guest guest]

In a message dated 07/16/2000 11:06:07 PM Eastern Daylight Time,

Lmaeb1@... writes:

<< if you had 3 ercp and the doc stayed down there that long you need to

find aanother doc??/Of course that is my opinion.My 1st the doc stayed 3

hours and was vety incompetant.I have did a lot of research and I cannot

find one thing to justify a doc that long in procedure.What were they

doing??Don't you think that is a long time.

Yes. I didn't realize that until later, when I talked to another GI (in the

same practice as this one, so he couldn't say much). All he said was, " Oh,

you're the one. You're the mystery woman - the famous one who had a 4 hour

ERCP. All the nurses were telling me about you " . Then he told me that if he

couldn't get a stone out in an hour, he would stop and get out of there. Of

course no one will ever say if that caused my CP or not. They've done a

total of 13 hours of ERCPs. I'm pretty brave for most things, but sure get

queazy when I think about having another one - what this GI wants to do since

he can't believe I'm having all this pain when my blood levels are ok.

When they took out my gall bladder, it was full of stones, plus my ducts had

stones in them. They kept doing ERCPs until they finally (I hope) got them

all.

Helen

[Guest guest]

A 3 and 4 hour ERCP, wow that is a long time. Did your doctor say there was a

problem ? I think that might why you had an attack. Did any other docs say

that might be why ? Tam & Steve

Two 4-hour and one 3-hour ERCPs, plus 2 more " normal ones " . They had a

problem getting the last gall stones out of my ducts.

One of the longer ERCPs was for nothing - didn't get any stone out. Came out

of them in unbelievable pain and the doctor was in no hurry to up my pain

meds - my sister said he stood at the nurses desk telling jokes for 20

minutes before he ordered stronger pain medication. A little frustrating. I

didn't know this until much later as the pain was so great that I wasn't

aware of anything but pain.

Helen

[Guest guest]

In a message dated 07/17/2000 10:00:11 AM Eastern Daylight Time,

spets@... writes:

<< Hi Helen

Haven't heard from you much-just wondering if you are doing okay. I hope

you

will be well enough to attend the dinner in behalf of Timmy-I would love to

meet you.

Write when you have time.

Hugs

>>

, I just sent in my reservation check last Friday. Hope I can make it.

I know all the " girls " are coming - Vicky Leck, Carson, O'Connor,

Jordon, etc. Don't know yet about Donna Shea or Sharon Hartman.

This is my last 2 weeks of getting daily radiation, so I'm still driving into

town each day. If I don't have a doctor's appointment, etc., you can't

hardly blast me out of Sweetwater. If you are having a good day and want to

meet for lunch in the next 2 weeks, please let me know. I check my emails

before I take off around 10 each morning - my appointments are at 11. The

next 2 Fridays are the only days I can't meet you - lawyer this Friday and

the Disability hearing the next Friday (I already have jelly knees over that

one).

Helen

[Guest guest]

Lacey, I'm so glad you have that over with!!!! And that it didn't throw you

into an acute attack. Celebrate!

Helen