Re: Sibling with severe left frontal headache, vomiting

[Guest guest]

Dena, hope jonathon is better and you got some rest.

[Guest guest]

Dena, this mayk be of no help at all, however, my duaghter gets migraine

headaches, and have 2 other relatives that get them also. And I can tell you

from experience that

the only way to get the relief from a migraine is to vomit.Like when I give

her tylenol

for a headache she almost immediately vomits and now I say sometimes forget

it you just have to throw upl you asked for tylenol to late. This is my

typical child.Now reasons for migraines is another story. And how that might

fit in mito I do not know

just thought I 'd throw in my 2 cents. Hope all is g oing better for

your children. See my other child with suspected mito and autism could not

even commicate to me that he has a headache. Kathy Foley

[Guest guest]

In a message dated 4/13/01 7:09:42 PM Pacific Daylight Time, KAFoley2@...

writes:

<< my duaghter gets migraine

headaches, and have 2 other relatives that get them also. >>

Dear Kathy,

It's so interesting that you just wrote this email! I just got back from the

ER with (he passed out from bradycardia today at recess and got a

black eye) and when I got home, was having another major headache.

When we saw the doc this morning for , after the 2nd major headache,

nausea last night, he called the neuro. The neuro thought it was atypical

migraine, so he prescribed a new migraine drug, Maxalt, on a trial basis. I

gave him the medication tonight and it was like a miracle! It dissolved on

his tongue (so nothing to throw up) and within 3 minutes, literally, he was a

new child. Headache gone, nausea gone, appetite back, and went sound to

sleep after eating some dinner. Hooray! Finally, a solution for at least

one of my children!!! You might ask your doc about this medication Maxalt

for your daughter with migraines.

Dena

[Guest guest]

Dena,

Wow, that is really interesting. I'll have to remember that for her. Glad

you found something that is helping. I kinda remember seeing a migraine

diet with foods to avoid somewhere years ago. Like trying to keep her away

from choclate. Oh sure Kathy Foley

[Guest guest]

In a message dated 4/14/01 12:03:30 PM Pacific Daylight Time,

KAFoley2@... writes:

<< Glad

you found something that is helping. >>

Well, it helped last night and when the headache came back this morning, but

didn't touch it this afternoon. He finally fell asleep while I watched the

speeches from the Whidbey crew homecoming..what an emotional time!

Dena, --na's mom

on beautiful Whidbey Island

[Guest guest]

Anne,

Wow that sounds like an in surpassible headache!! Ohh those meds to just

control it. Can your kids verbalize the pain? Or do you have to try to

figure it out behaviorally? Kathy Foley

[Guest guest]

Sam and Zach have migraines too. Zachary's respond to Motrin - 's do

not. We have been able to finally alleviate them by basically putting him

to sleep with IV Dilaudid (a narcotic), Valium, Ketorolac, Hydroxyzine and J

tube chloral hydrate. It truly takes all of that to even dent the pain and

they typically last 24 to 72 hours during which time he is on Oxygen as

well. Iv Zofran helps the vomiting along with the Atarax (Hydroxyzine) and U

think you an get these both in an oral form.

I am surprised that your doctors allowed the Maxalt. Ours ruled it out as

well as many other drugs commonly used for migraines due to the dysautonomia

and risk for hemiplegic strokes. Sam has a history of strokes that have

followed the migraines and our best guess is that they are partly due to the

autonomic vascular issues.

For what it is worth - we were told by the dysautonomic specialist to try

either lamictal or high dose neurontin for the migraines. WE are currently

using the neurontin - not sure it is helping though.

Anne

Sibling with severe left frontal headache, vomiting

> 's younger brother, , (age 9) was in the ER tonight with

severe

> headache pressure right above his left eye, which would crescendo, then he

> would vomit profusely, get a bit of relief, and then the cycle would

repeat.

[Guest guest]

Kathy,

They can both verbalize pain. The little one - almost 4 - is quite

articulate about the pain when it occurs. I am very lucky that he can do so.

When he was younger and did not talk we had to figure it out behaviorally.

the headaches started when he was about 8-9 months old but we did not

recognize them as such at that point. Looking back I feel that I was quite

remiss. He would drag his head on the floor when he moved and scream. By

the time he was 18 months old I strongly suspected it and attempted to treat

with Tylenol and/or ibuprofen with little improvement.

At the age of 21 months he was hospitalized and had a status migraine

episode followed by a stroke. Although not verbal he held his head, gagged

and vomited, became distraught when the lights were on or the noise level

went up, had hypertension, was quite pale and blue around the mouth and

could not lift his head without vomiting. After 3 days he woke up weaker on

the left side and it was obvious he had suffered a stroke. We started him

on medication at that time. Since then the headaches have increased in

frequency and severity. Tx is a challenge because he has so many medical

issues that make most medications to prevent migraines contraindicated.

Thank God for a caring MD who treats his pain aggressively and supports my

doing that at home.

Fortunately today he is feeling very well and no talk of headaches.

Anne

Re: Sibling with severe left frontal headache, vomiting

> Anne,

> Wow that sounds like an in surpassible headache!! Ohh those meds to just

> control it. Can your kids verbalize the pain? Or do you have to try to

> figure it out behaviorally? Kathy Foley

>

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