Re: Digest Number 509

[Guest guest]

hi all .

government worker md forgot name has patent on mycoplasma and has

been

taught for years in us armed serves college... best experts till

recently.(making it part of the promblem in curing)

somish

***************

At 09:48 AM 12/20/1999 -0600, you wrote:

From: green1585@...

>>>Does anyone know, does Dr. Nicholson or any of the researchers on this

subject feel that the mycolplasmas were introduced with/at the time of

the

Gulf War, or has this been present in CFS before

>that time here in the US?

=========

i had mycoplasma pneumoniae as part of my onset in 1987,

before we decided we hated saddam hussein. if you read

the literature, it was already suspected by thomas brown md,

and other visionaries, as causing systemic illness. i

was denied a cfids diagnosis because we found definite

mycoplasma pneumoniae- remember in the beginning, if you

had positive tests for anything else, it could not be cfids.

then later i got the chlamydia pneumoniae too, just like

nicholson says, you can pick up additional things as time

goes on.

my whole family at one point had mycoplasma, so did my

dog, and we were all on abx. together. everyone else

got over the worst of it, but i stayed sick, because

my immune system was already shot. (since i picked

up myco while pregnant, which is a th2 state, it

makes total sense that it was embedded in my body.)

can't blame myco totally on gulf, sorry!

nancy mcfadden

>

>Do they feel that this is contagious and likely to infect those

close or living in the same household? Or only those with already

>weakened/disordered immune systems?

>>Marcia

>

Everything you want to know about mycoplasma fermentans incognito which

was derived from AIDS patients in the 80s be found at www.gulfwarvets

they do a pretty good job of explaining everything they even have a link

to the patent for it which a doc that works for the DOD holds.

www.shasta.com has some pretty good information, but none of it really

pertains to myco pneumoniae just myco fermentans which can only be

detected by a PCR blood test not your normal anti-bodies blood test

[Guest guest]

Re: " New Drug " for BVT

Steve,

Yes, it is available in an injectable form. It is made from dried bee venom

and it really isn't new. It is only approved in the USA for desensitization

of persons allegic to bee stings. Purists believe that some volatile

substances may be lost in the drying process.

--- Original Message -----

From: <onelist>

<onelist>

Sent: Monday, December 20, 1999 7:27 PM

Subject: Digest Number 509

>

> > This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

> ------------------------------------------------------------------------

>

> There are 25 messages in this issue.

>

> Topics in today's digest:

>

> 1. b-12 hydroxy

> From: Martha Pfeiffer <kmpfeiffer@...>

> 2. whey protein info

> From: Martha Pfeiffer <kmpfeiffer@...>

> 3. Re: the neuro approach

> From: " Dr. Steve " <moores@...>

> 4. Re: Wellbutron

> From: " Dr. Steve " <moores@...>

> 5. Dr. on my address

> From: " Dr. Steve " <moores@...>

> 6. lemon drink

> From: Martha Pfeiffer <kmpfeiffer@...>

> 7. Dr. Koop's site

> From: " Dr. Steve " <moores@...>

> 8. Re: [CFS] Dr. Nicholson

> From: green1585@...

> 9. Re: Dr. Koop's site

> From: " G. McFadden " <nmcfadden@...>

> 10. myco before gw

> From: " G. McFadden " <nmcfadden@...>

> 11. Re: Re: [CFS] Dr. Nicholson

> From: " Lassesen " <KenL@...>

> 12. Re: Free internet

> From: KB46@...

> 13. Re: Magnets (for Christie in MI)/LONG

> From: Philip L Comer <philcome@...>

> 14. Hot Peppers

> From: Philip L Comer <philcome@...>

> 15. Re: Magnets (for Christie in MI)

> From: " Theresa Romani " <tromani@...>

> 16. EPO -- red blood cells

> From: " Dr. Steve " <moores@...>

> 17. Apitherapy and bee venom therapy

> From: " Rauhofer " <donnie11@...>

> 18. crohn's and mycobacterium

> From: " G. McFadden " <nmcfadden@...>

> 19. Re: Apitherapy and bee venom therapy

> From: " Lassesen " <KenL@...>

> 20. pregabalin helps pain

> From: " G. McFadden " <nmcfadden@...>

> 21. Interesting news from CoCure

> From: " Lassesen " <KenL@...>

> 22. LUAT versus CFSUM testing -- differences???

> From: " Lassesen " <KenL@...>

> 23. Re: Apitherapy and bee venom therapy

> From: " Dr. Steve " <moores@...>

> 24. Re: Magnets (for Christie in MI)

> From: " Dr. Steve " <moores@...>

> 25. Re: myco before gw

> From: SOMISH@...

>

>

>

____________________________________________________________________________

___

>

____________________________________________________________________________

___

>

> Message: 1

> Date: Mon, 20 Dec 1999 05:38:45 -0800 (PST)

> From: Martha Pfeiffer <kmpfeiffer@...>

> Subject: b-12 hydroxy

>

>

> I inject the B-12 hydroxy and it is more painful than

> the cycobal (sp.), but not as bad as

> experienced. However, if I give it in the thigh, ouch

> and soreness for at least a day or two. So, I give it

> high up on my hip. I scrub the skin with an alcohol

> Pad first, then inject. Sometimes I slap the area

> after the alcohol rub, then inject. This seems to

> work fine with very little stinging and no soreness.

> Hope this helps. I use sub-cue needles, not IM.

>

> Martha

> __________________________________________________

>

[Guest guest]

Can someone explain to me what PANDAS is and strep titors?Thanks!

of Illinois

[Guest guest]

Theresa,

PANDAS is an acronym for Pediatric autoimmune disorders associates with

strep. This disorder which affects children is caused by a certain strain

of strep virus.. Only children who have the gene d817 in their family can get

PANDAS from strep. It causes obsessive compulsive disorder and tics. Your

body mistakenly produces antibodies to fight the strep but they attack the

basal ganglia of the brain instead. Their is research going on at the

National Inst. Of Mental Health to do plasma exchange to cleanse the body of

the antibodies and then put the children on medication to keep them from

getting more strep exacerbations. It is still considered experimental and

very expensive. The first step in trying to find out if the child has PANDAS

is by getting their physician to do their strep titers if you suspect this is

where their ocd came from. My son's strep titers were over 1000 last year

without him showing physical signs (sore throat etc) of strep, . hope this

helps, I am no expert but I have tried desperately to find help for my son.

Thanks

[Guest guest]

Becky:

Did you read half of my post? I NEVER accused you or anyone else of

sitting on their butt!! And it certainly sounds like you get enough exercise

with all you have going on. And I never clearly advocated or did not

advocate exercise... I just reveiwed some possible pros and cons and I do

believe I acknowledged many of the cons you mentioned. Clearly, you can

not bring back something which has atrophied and I NEVER insinuated that you

could.... I guess there is no point in trying to post if people get offended

no matter what or how you say things.....

Please tell me what specifically I said that insinuated YOU or anyone else

with CMT was lazy or not trying to do the best they can....

[Guest guest]

-----Original Message-----

From: mmc3737@... <mmc3737@...>

egroups <egroups>

Date: Wednesday, September 27, 2000 5:58 AM

Subject: Re: [] Digest Number 509

>Becky:

> Did you read half of my post? I NEVER accused you or anyone else of

>sitting on their butt!! And it certainly sounds like you get enough

exercise

>with all you have going on. And I never clearly advocated or did not

>advocate exercise... I just reveiwed some possible pros and cons and I do

>believe I acknowledged many of the cons you mentioned. Clearly, you can

>not bring back something which has atrophied and I NEVER insinuated that

you

>could.... I guess there is no point in trying to post if people get

offended

>no matter what or how you say things.....

>Please tell me what specifically I said that insinuated YOU or anyone else

>with CMT was lazy or not trying to do the best they can....

>

>

>>>>I know you didn't accuse me or anyone! And I wasn't offended by your

post, I simply gave an answer to as it relates to me. You talked of

atrophy/disuse, I answered as it relates to me. You talked of muscles and

nerves, that brought up nerves being damaged and not being able to build up

a muscle. Just because you know that doens't mean others reading it do, so

it was a good place to interject it in. And had you fully read MY post, you

would of seen that I again mentioned using CMT as a cop out, I think that is

just so unfair to say, that I mentioned it again in my post to you. So now

in some way I have offened you, and I'm not sure where or how! ~>Becky M.

[Guest guest]

Everyone needs to lighten up. We are all entightled to our own opinions and

should be able to say ANYTHING good or bad this is for all of us to vent! I

personally got a big laugh out of your comment and wasn't offended in

anyway. joi

[Guest guest]

In a message dated 11/7/00 6:07:33 PM Pacific Standard Time,

egroups writes:

> Todays communication was

> that he would rather hit and throw, but added he had great eye contact

> while

> doing so, lol.

>

LOLOL, Jeannie! When I complain about driving me crazy running all

around, both Leah and my Dad agreed that " thank God they have the feet to run

around in " ......we can always find the good even in the bad!

[Guest guest]

dear jon ong,the stuff you are referrring to is called Saventaro,made by phytopharica.It is cat's claw.I have used it for immune stimulation for flu and colds with great success but I don't think it is a rarer form of Cat's Claw.I believe trhat Cat's Claw was one of the rainforest hopefuls for curing cancer and brought out for public use by a man who patented it as well as its name.So a rival product must have a d9ifferent name even if it is the saME.harvey

Re: Leonard's website & emailable info

> In a message dated 06/26/2001 11:26:15 PM Eastern Daylight Time,

> appbug@... writes:

>

> > LENOARD DO YOU HAVE A WEBSITE? WHAT IS IT?

> The info on the following webpages was written by me:

> http://rockydeb.tripod.com/stageIVa.html

> http://cancer-survivor.org/alternative/supplements.html

> http://cancer-survivor.org/alternative/therapy.html

>

> However, I update my personal files daily, whereas the above webpages

haven't

> been updated in months, and the webpages contain only a small minority of

> what I have in my files. If you'd like a copy of the info I've compiled in

my

> files (on diet & natural supplements for cancer patients, alt. cancer

> treatments, alt. cancer treatment centers, or alt. cancer practitioners in

a

> particular geographic area), I'd be glad to email any of my info to you.

>

> Best,

> Leonard

>

> Get HUGE info at http://www.cures for cancer.ws, and post your own links there.

Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by

visiting http://www.bobhurt.com/subunsub.mv

>

>

[Guest guest]

sorry i ment hypothyroidism not hyperthyroidism.

~~

__________________________________________________

[Guest guest]

I have had a very strange complication from two different acid reflux

meds...but no others gave me this problem. I had HORRIBLE mood swings

from Prevacod and Protonix. I mean awful. No one guessed that was the

reason for two months until one day I just stopped taking it because it

wasn't helping my esophagus. And POOF...No more mood swings. I thought

I had gone around the large bend. Terrifying. WHen it happened with

Protonix, I knew what it was. THis is a rare side effect, but I hae

seen it discussed before in a site about bizarre reactions from

Prevacid. Funny, but with Nexium I had NO side effects. THey are all

different.

[Guest guest]

Hello--

One consideration might be, " whose problem is it? " If he wanted to play

ball over parental resistance, and then doesn't do well in some aspect, is

it reasonable for the parents to decide they should solve his problem for

him? Or would it be better to take a position of, " I have confidence in

you. "

Thanks,

Gene

From: " mtlindsey2002 " <mtlindsey@...>

Subject: Re: 9 year old and " fear and sports "

Hi Fred,

I understand what you are saying -- in this case, though the

parents are not pushing anything -- if anything they resisted this

little guy playing football. This little guy has wanted to play

football for several years. It was really big deal to this little guy

(who actually isn't so little -- 4'2'' and 82 lbs. ) to finally get to play

this year -- after a lot of family discussion opposing his playing.

The one thing about this little guy is that he tends to be irritable

and easily frustrated -- but when he has rigorous exercise his

self control is better and he has some patience. Anyway, thanks

for your input, but in this case -- the parents would be absolultely

fine if he didn't play football.

Thanks again,

[Guest guest]

Hi,

I lurk more than I write but I need some information from the group and

possibly some suggestions.

I had a laminectimy and fusion of c5-6 c6-7 with plating and donor disc's this

Aug. 12. After the surgery, I have had more pain than I had prior to it. The

neuro agreed with my local doc that I needed continued pain mgmt. (and this doc

does not even believe in pain meds after surgery... in general.)

I have taken increasing doses of Dilaudid since the surgery and am now on the

Duragesic patch and break through Dilaudid at hand.

I had an MRI 2 weeks ago and X-Ray's 3 days ago. The radiology report from

the MRI states, " There is some increased T2 signal and enhancement in the marrow

of the c5, c6 & C7 vertebral bodies. This may be non-specific but is also seen

in the setting of vertebral body infection. "

My question is, could I be rejecting the donor disc's? Has anyone else had

this type of infection and what was the outcome?

Hugs & Warm Fuzzies,

Deborah aka Tenacity

[Guest guest]

We are also interested in water filtration systems. Reverse osmosis is

pretty inexpensive to set up, slow, and removes the good minerals along with

the not so good contaminants. Pi-water systems sound amazing, are much more

expensive, and make claims to replace and enhance valuable minerals, ionic

content, etc, while removing contaminants. Anyone familiar with this, and

other systems?

Mac & Marcy Graham

400 Hill Ave

Star Prairie, WI 54026

(715) 248-3633

> Message: 9

> Date: Mon, 13 Jun 2005 01:45:45 -0000

> From: " toffeejacket " <toffeejacket@...>

> Subject: water filtration

>

> I'd be interesting in knowing what water filters people are using for

> their drinking water. ----Judy

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.323 / Virus Database: 267.6.8 - Release Date: 6/11/2005