Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 , There are definitely some folks from Australia here on the listserv; I'm sure they'll pop in when they see your message. Regarding finding time: it is difficult, particularly in the early times. I found I had to find the trust to let others help me so I could spend time with my other two boys and my husband. Is there any type of respite care available where you are? Maybe you could look into it and plan something for you, your hubby & your boys while your daughter is with the respite care worker/nurse/trusted family member or friend/etc. It is definitely an effort, but hopefully things will improve and you will have more time together as Ashleigh gets older. Hugs from Canada, Weir Mom to Kennedy, 7 yr old with CHARGE, 15, 13, and wife to Graeme. New Brunswick, CANADA Visit us online – http://ca.geocities.com/weirfamilyrogers lisaweir@... Tebble wrote: Hi all, I am new to this group. I have a daughter who is one year of age and was diagnosed with CHARGE at birth. She is a beautiful treasure that I love very much. She takes up24/7 of my time, doesnt leave me much time for myself and the rest of my family. I have a two older boys 15 and 12 yrs old, ooo and yes and my husband. Is there anyone that can advise me on how they made time for there other famiy members Also, I was just wondering if there was anyone else that come to this group that is from Australia?? Kind regards, Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada information and membership, please visit http://www.chargesyndrome.ca, or email info@.... 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
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