Re: degeneration of tooth roots...

[Guest guest]

In a message dated 02/01/2001 1:42:08 AM Eastern Standard Time,

ivpusher@... writes:

<< I have a question for all of you mito parents...has anyone had any

problems with their mito kids' teeth? Specifically, " pathologic

degeneration of the roots >>

Laurie:

I find this rather interesting as my children's teeth issues are odd. My 6

year old (limited verbal) son's teeth have shrunk in size from grinding so

much. His gums bleed easily now but his teeth are not loose. My 5 year old

who is verbal tells me now that her teeth are tired when she is tired. I am

still trying to figure that one out. I know my son's mouth is showing

myopathy and I am wondering if my daughter's will as well.

Michele

[Guest guest]

Well,

I am not a Mito parent, but an 'oldie' with mito.

Ever since I was little, the dentists (we moved about, hence the plural)

said that something was wrong with my teeth, that the pores in them was too

large, and that I probably had not gotten enough vitamin D as a foetus or as

a baby (racitis symptoms). This could not be, as I was born during the war,

when milk and such things were rationed in Norway, and my mother used all

her coupons to get the neccessary milk for herself and then for me, as well

as the cod liver oil, that was easy to get.

A few years ago, about the same time as my mito symptoms begqn to get

severe, one of my teeth losend, and then two others. The roots just were

resorbed, the dentist said, puzzeled.

I've always had many cavities, due to the large pores in the teeth.

I don't know if this is a well known problem,

Ingvild

>

>Reply-To: Mito

>To: Mito

>Subject: degeneration of tooth roots...

>Date: Thu, 01 Feb 2001 05:44:42 -0000

>

>Hi!

>

>I have a question for all of you mito parents...has anyone had any

>problems with their mito kids' teeth? Specifically, " pathologic

>degeneration of the roots " ...my son received this diagnosis today,

>and his front teeth are falling out from this. He is only 3 years

>old (undiagnosed mito disorder...complex I deficiency) and his

>permanent teeth will not come in until permanent front teeth normally

>come in, at about 6 or 7 years old. I am hoping someone has

>experienced something similar. The dentist (who is outstanding, by

>the way:)) said it could be due to trauma to the front teeth, but

>I'm just curious if this is a common finding with our kids. Any

>advice, ideas, questions are welcome! Thanks!

>Laurie son

>Mom to Mason, 3, (novel mitochondrial disorder) and

>Riley, 6 1/2 (healthy as far as we know...)

>

>

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[Guest guest]

I too find this quite interesting. My daughter has the strangest teeth I

have ever seen. They seem almost transparent and look very weak. In fact,

she has already chipped one of her front teeth and it looks like another one

is getting ready to break off. She has a big white spot on the end of the

tooth. And she too grinds her teeth terribly. The teeth grinding concerns

me most because it is like she has no control over it. I try to get her to

stop and she won't or can't. She mostly does it when she is very tired and

of course, sleeping.

cathy b

[Guest guest]

Hi Laurie :-)

We don't have the same issues, but have had problems to one extent or

another with both of mine that are suspected of mito. Chance's (7

1/2) teeth decayed when he was younger and we had to remove the top four

front teeth entirely and crown almost all of the molars when he was just

shy of 4....one of his main front teeth are actually coming in already,

earlier than the dentists had expected it. Madison(4) has not had

problems with decay, but did have two of her teeth that took a very long

time to come in (two little teeth on either side of the main front teeth)....we

knew they were there from xrays, and that there was a space for them to

come in, but they did not till long after they were supposed to have.

I personally have always had major problems with my teeth, since I was

a child.

BIG hugs,

Kass

Laurie Getskow wrote:

Hi!

I have a question for all of you mito parents...has anyone had any

problems with their mito kids' teeth? Specifically, "pathologic

degeneration of the roots"...my son received this diagnosis today,

and his front teeth are falling out from this. He is only

3 years

old (undiagnosed mito disorder...complex I deficiency) and his

permanent teeth will not come in until permanent front teeth normally

come in, at about 6 or 7 years old. I am hoping someone has

experienced something similar. The dentist (who is outstanding,

by

the way:)) said it could be due to trauma to the front teeth,

but

I'm just curious if this is a common finding with our kids.

Any

advice, ideas, questions are welcome! Thanks!

Laurie son

Mom to Mason, 3, (novel mitochondrial disorder) and

Riley, 6 1/2 (healthy as far as we know...)

[Guest guest]

All of my kids do grind their teeth to some extent, but none have ever

had a cavity or loss. (9) is most affected by the mito (complex

III) and has great teeth. The permanent ones do not seem to be wearing

down the way the baby teeth did, thank goodness! I think the only reason

she didn't grind the baby teeth into total oblivion is that she slept

with a pacifier until age 7 plus. Way cheaper than a bite plate, and

more child friendly. <g>

Judith

[Guest guest]

This is interesting about the teeth. Leah has just started to grind her teeth.

She was doing it a lot,

but now has stopped doing it as often. I notice she does it when she is working

hard at something or may

be something to do with sensory stuff. When she was early childhood play group

she had not been grinding

her teeth until we were singing and a little boy was crying and carrying on and

instead of crying (like

Leah use to do with stuff like that) she started to grind her teeth. Her

dentist isn't worried right now

and won't see her for it because her mouth is too small for a guard and he says

she will outgrow it, even

though I mentioned she is special needs and I've heard from other parents of her

disability has done this

too. Leah doesn't grind her teeth at night. So I'm also associating this with

getting new teeth in as I

believe she is getting her two year old molars. I know this topic has been

discussed before. But it is

interesting to read and learn.

mom to Leah 2 1/2

gbrody96@... wrote:

> I too find this quite interesting. My daughter has the strangest teeth I

> have ever seen. They seem almost transparent and look very weak. In fact,

> she has already chipped one of her front teeth and it looks like another one

> is getting ready to break off. She has a big white spot on the end of the

> tooth. And she too grinds her teeth terribly. The teeth grinding concerns

> me most because it is like she has no control over it. I try to get her to

> stop and she won't or can't. She mostly does it when she is very tired and

> of course, sleeping.

>

> cathy b

>

>

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