Re: Re: Temperature Changes

[Guest guest]

thanks, Leah. Please do let me know.

Virginia, Emma's Mom

[Guest guest]

Dear Virginia:

Boy we are dealing with that with Leah right now. She has had

a cough and slightly runny nose. But her temp went from 99 to 103

the other day. Now today it is 97 degrees. We are taking Leah

to the doctor because she has not eaten for three days. But she does

take a bottle but even with pushing fluids her diaper this morning was

just slightly wet. Like she had a couple of pees in it. Will

let you know what is going on with Leah. But we pushed to have her

seen by a ped because her ped is on vacation. But our city nurse

encouraged us to see a doctor because of Leah not eating and her diaper

situation; otherwise the nurse said if the fever continues for today, then

they would see Leah tomorrow. Wrong. She is being seen today.

Will let you know what happens.

lisa mom to Leah

Ginny581@... wrote:

I have read

many of the mails about children having temperature variation.

My Emma has had temperature

changes from 104.6 to 97.4 this weekend. Is

there that much variance in

anyone else? How can you tell when they are

truly sick versus when their

bodies can't regulate the temperature? She

responds to motrin, and the

temperature stabilizes. Thanks!

Virginia, Emma's Mom

Virginia

M. Buchanan

http://www.umdf.org/support/listpolicy.html

- please contact mito-owner with any problems or questions.

[Guest guest]

Ginny,

It wasn't odd for me to see Matty's temps change that much in just a

few hours. He didn't even have to be infection sick to have that

fluctuation. His metabolic fevers also responded well to tylenol, but

for reasons specific to Matty we chose to not medicate him until the

fever got high enough to affect his breathing (usually around 102-103).

And usually it only took one dose of tylenol, and then his temp was

right back to *normal*....about 96.7 or so.

H.

Ginny581@... wrote:

> I have read many of the mails about children having temperature

> variation.

> My Emma has had temperature changes from 104.6 to 97.4 this weekend.

> Is

> there that much variance in anyone else? How can you tell when they

> are

> truly sick versus when their bodies can't regulate the temperature?

> She

> responds to motrin, and the temperature stabilizes. Thanks!

>

> Virginia, Emma's Mom

>

> Virginia M. Buchanan

>

[Guest guest]

Dear Virginia:

Just got back from the doctor's office. They took blood, a strep

test, and two chest xrays. He will have a radiologist look at her

films, but to him they look normal. Her rapid strep test came back

normal but they are doing a culture on it and her blood workup came back

normal but are doing further testing on her blood. So he believes

it to be viral. Which I guess is good news in how we treat her.

But will have to syring liquids in to her mouth because she does not want

to drink even apple juice right now and I'm afraid of her being dyhydrated.

But I like how concern this ped was and that he came in from looking at

her tests and said I don't know if this is good news or bad news.

Meaning because nothing was coming up with something that is making Leah

ill. But he said he was on call all day today and call with any concerns

or questions or if she gets worse. So will keep an eye on her.

But her temp in the office was still 97.5 degrees. So I believe when

it gets to just a mere 99 degrees she has a fever and is sick. A

cold seems to wipe out Leah. How is Emma doing? Does she take

food or liquids and is she cranky or such? Does she get wiped out

from a mere cold, too? Leah may have complex I, too. We are

still awaiting the test results from Europe. Good luck with Emma.

mom to Leah

Ginny581@... wrote:

thanks,

Leah. Please do let me know.

Virginia, Emma's Mom

http://www.umdf.org/support/listpolicy.html

- please contact mito-owner with any problems or questions.

[Guest guest]

Thanks, . This is helpful.

Virginia

Virginia M. Buchanan

[Guest guest]

, your visit with Leah's doctor sounds just like Emma's visit with her doctor today. He said and did virtually the same things. We are just giving Emma motrin every 4 hours. He thinks this will only last a couple more days if we are dealing with the virus that he suspects is causing the problem.

Emma is drinking but not eating. Thank goodness for Gatorade. We can at least keep her supplements and vitamins going with all that she has been drinking, and we can prevent the dehydration risk.

I hope the other strep test comes back normal, too.

Good luck, and I hope both our girls are better tomorrow.

Hope you get some rest, too. I know I sure need it.

Virginia

[Guest guest]

Bless you, Hope. That is what we are doing, and our pediatrician yesterday told us that as well. Emma's temperature went very, very low when she was a few days old - like to 80 something. We had to keep her under lamps for hours to get it back up. I did not know anything that was to come in the future as far as diagnosing her metabolic problem. Now I am learning so much more.

Thanks again.

Virginia

Virginia M. Buchanan

[Guest guest]

Dear Virginia:

Well a change for us. Leah stopped drinking on Monday. She

seemed happy but started to throw up and we admitted her to the hospital

to be put on an IV. She must have been a little dry because when

they tried several times to get the iv in her, she was crying but only

one tear emerged. Still not wet diapers and a couple of loose bowels,

but nothing much. The doctor feels she may have (I hope I spell it

right) rotavirus. But I must tell the group that this ped only saw

Leah one other time and said to call if there are any changes that he is

on call. Well I called to let the nurse give him the message that

Leah was throwing up and we may have to admit her. I called after

8 p.m. and left a message to have him call. He did and all I said

was Leah has been throwing up almost every 1/2 hour we need to direct admit

her. He said fine I will call the hospital right now. You can

go. No questions, no let's see how this pans out, nothing.

He trusted my instinct and we admitted her. My husband and I find

that we don't always give the doctors a chance to question us and to let

them make the decision. If we feel she needs to be in on an IV we

explain her situation about mito and say that if we call back and say she

is still throwing up you need to direct admit our daughter. They

do. So may be we as parents need to just be more direct in saying

my child needs to be admitted and this is why. I know that won't

work with all doctors, but we know our children best.

I am getting alittle rest. I'm glad I'm small and I can fit in

a twin bed with Leah to sleep. The pillows aren't the greatest, but

a few hours of sleep, solid, is what I need and I can for now survive on

that. And with that I must end this message and go back to the hospital

so my husband can do his stuff. Let me know how Emma is doing.

Keep pushing the fluids.

Ginny581@... wrote:

, your

visit with Leah's doctor sounds just like Emma's visit with her

doctor today. He said

and did virtually the same things. We are just giving

Emma motrin every 4 hours.

He thinks this will only last a couple more days

if we are dealing with the virus

that he suspects is causing the problem.

Emma is drinking but not eating.

Thank goodness for Gatorade. We can at

least keep her supplements and

vitamins going with all that she has been

drinking, and we can prevent

the dehydration risk.

I hope the other strep test comes

back normal, too.

Good luck, and I hope both our

girls are better tomorrow.

Hope you get some rest, too.

I know I sure need it.

Virginia

http://www.umdf.org/support/listpolicy.html

- please contact mito-owner with any problems or questions.

[Guest guest]

Ginny,

Interesting. Low temp was also our first indication that Matty was

ill, although we didn't know it then. He spent his first 2 days of life

under the heat lamps, and it still didn't help much. We never were able

to get his temp over 98.6. lol

*hugs*

H.

Ginny581@... wrote:

> Bless you, Hope. That is what we are doing, and our pediatrician

> yesterday

> told us that as well. Emma's temperature went very, very low when she

> was a

> few days old - like to 80 something. We had to keep her under lamps

> for hours

> to get it back up. I did not know anything that was to come in the

> future as

> far as diagnosing her metabolic problem. Now I am learning so much

> more.

>

> Thanks again.

>

> Virginia

>

> Virginia M. Buchanan

>