Guest guest Posted April 10, 2000 Report Share Posted April 10, 2000 hi rechelle, i am curious why are they going to perform an exploratory surgery. from the information that you gave us earlier . i dont understand why.cat scan is good, this will show any inflammation of the pancreas and it will tell if pseudocysts are forming.when pseudocysts form you can become very nauseated with tremendous pain. your earlier letter did not mention pain.tpn is an artificial feeding in which a tube goes into your body into the great vessels and during the day or night you are hooked up to a pump which forces your nutritional support into your body. a pharmacist will prepare this and it contains all you daily requirements of minerals and vitamins and fats. you asked about a diet. normally you need to stay away from fats and absolutely no alcohol.you will find your diet may be different than mine or anyone else. when i was having my pancreatic attacks i could not process proteins. now i am fine. your letter did concern me for one reason and that was about the exploratory surgery. your bloodwork is not even back, no cat scan results and your doctor wants to cut you open. this does not make any logical sense to me.even during my last hospitalization this past january and i had 2 pseudocysts my drs always talked about surgery as a last precaution. i never did need surgery. talk this over again with your dr and if need be get a second opinion before you let them cut you. please write back Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 She's going to wait for the results to get in, but there's a strong history also of pancreatic cancer in my family. I don't think it's a for sure thing, but the referral is in my file at the doctor so if it's necessary, they can get me in quicker. She's pretty much confident that it's going to show a few cysts or tumors. She didn't explain the why too well, so I can't really answer this, but I think she's waiting until after all the results come back. I'm calling her today, so I'll find out more then. Rechelle ----Original Message Follows---- From: rastif2020@... Reply-To: pancreatitisegroups To: pancreatitisegroups Subject: Re: New Member Date: Mon, 10 Apr 2000 22:59:42 EDT hi rechelle, i am curious why are they going to perform an exploratory surgery. from the information that you gave us earlier . i dont understand why.cat scan is good, this will show any inflammation of the pancreas and it will tell if pseudocysts are forming.when pseudocysts form you can become very nauseated with tremendous pain. your earlier letter did not mention pain.tpn is an artificial feeding in which a tube goes into your body into the great vessels and during the day or night you are hooked up to a pump which forces your nutritional support into your body. a pharmacist will prepare this and it contains all you daily requirements of minerals and vitamins and fats. you asked about a diet. normally you need to stay away from fats and absolutely no alcohol.you will find your diet may be different than mine or anyone else. when i was having my pancreatic attacks i could not process proteins. now i am fine. your letter did concern me for one reason and that was about the exploratory surgery. your bloodwork is not even back, no cat scan results and your doctor wants to cut you open. this does not make any logical sense to me.even during my last hospitalization this past january and i had 2 pseudocysts my drs always talked about surgery as a last precaution. i never did need surgery. talk this over again with your dr and if need be get a second opinion before you let them cut you. please write back ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2000 Report Share Posted June 6, 2000 In a message dated 6/6/00 5:40:30 AM Pacific Daylight Time, MyMeg@... writes: << Just decided to join this group - out of frustration!!! Hopefully, I will find some help from the help of other sufferers. >> you've come to the right place laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2000 Report Share Posted June 6, 2000 In a message dated 6/6/00 7:40:14 AM Central Daylight Time, MyMeg@... writes: << Just decided to join this group - out of frustration!!! Hopefully, I will find some help from the help of other sufferers. Have a nice day! >> email is screwing up again! i was going to ask you what type of pancreatitis you have. debbie (ark) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2000 Report Share Posted June 6, 2000 In a message dated 6/6/00 7:40:14 AM Central Daylight Time, MyMeg@... writes: << Just decided to join this group - out of frustration!!! Hopefully, I will find some help from the help of other sufferers. Have a nice day! >> welcome! you will find a lot of information here and support. how long have you had pancreatitis - and what t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2000 Report Share Posted June 29, 2000 In a message dated 06/06/2000 7:40:16 AM Central Daylight Time, MyMeg@... writes: << Just decided to join this group - out of frustration!!! Hopefully, I will find some help from the help of other sufferers. Have a nice day! >> Welcome! I've only been in the group for about 2 months and I've learned a lot and felt a great deal of support from fellow sufferers and caregivers. Hope you have the same experience. Sandy (Arlington, TX) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Dear , Thanks for the info. It's very comforting and reassuring to know about other people's experiences. Part of the reason for my nervousness is that this will be my first stay in hospital, apart from having my two daughters. Apart from my hip, I am generally a fit and healthy person. I received details of my operation today - it will take place on March 21, so not too long to wait. I hope you are continuing to make good progress. Best wishes Dot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2001 Report Share Posted June 7, 2001 At 05:14 PM 6/7/2001 -0000, you wrote: i am naturally a bit skeptical of all the good things that i have been >reading over the net... Richdad, My mother was also VERY skeptical at first. She had THR 3 years ago, and has been caring for me since my first resurfacing 13 days ago. She is now a true believer. I can do some things after 13 days that her ortho tells her to NEVER AGAIN do. My recovery has been very quick, and she is quite impressed with the lack of restrictions, unlike what she had with her THR. She even asked my surgeon if he would resurface her other hip when the time came! I was walking day 2 post-op and they had me climbing stairs on day 3 since I have to climb a few to get into and out of my house. I pulled a 35 gal. barrel of weeds yesterday! THR is better than the pain and immobility that many of us have faced, but the resurfacing is far superior in my opinion. 2nd resurfacing coming up on June 25th. I can't wait for the matched set!! Best to you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 The only thing I can say is that if I had known about the diet before we started any meds (Mike was only on meds for a a month before starting the diet but once you get that ball rolling it is very hard to stop!) I would've done it right then and there. Every day I wish we had gone meds free before starting the diet. We will get there eventually but it is taking far longer than I would like it to. The diet is strict - and can be hard when other children are around who can eat normally but if this is really something you want to try then it can work! My son is 4 and on the diet almost 9 months - adn I have two older girls 9, and 7 and a baby almost 1 - Mike is really good about not eating things he shouldnt have - altho if something is left out I am sure he would try to get it if no one was there (he is after all only 4 1/2) but the girls are very good at cleaning up after themselves. Good luck - and welcome to the list. Jenn umbasheer@... wrote: Hello I am the mother of two boys. The youngest of whom has been recently (last summer) diagnosed wth epilepsy. I have many questions as I am very ingnorant about the disease and it's affects. Let me tell you a bit about my boy. He is five and was five when he had his first seizure. (Last summer) His first seizure was very scary for me. We (he, my older son, who is going to be 7 in march, and myself) laid down for an afternoon nap. We had been sleep for about an hour, when in my sleep it seemed as though I could hear my son making a gurgling sound. I woke up and I saw that my son was vomited in his sleep. I was alarmed and wondered how long he could have been this way. I looked to make sure that he was still breathing, and he was. My next thought was to get him to the bathroom and put his head forward to the toilet, to try to get him to expel any vomit that might still be in his throat or mouth. Oh, I forgot to mention when I woke up, his eyes were going up and down, over and over again, but he did not respond to me. To make a long story short he vomited more in the toilet, and I called 911. We spent a lot of time in the emergency room, and he received a cat scan. They then could only tell me that the symptoms seemed to be pointing to a seizure. But they could not be sure until they did an EEG. He got one done about a month later and it showed abnormal brain patterns especially but not exclusively, when he is sleep or and on the verge of sleep. He has only had four seizures so far, including the first one that he had. They come on the average every three months, though the last one was a lot closer than they were coming. The third one was in the last week of December, and the last one was on this past thursday. They usually last from about two to five minutes. They have all occured while he was sleeping, with the exception of one where I know he was sleepy, and probably would have been sleep if I had not told him to sit up properly and listen to his social studies lesson. ( We homeschool) I think in most of the situations it was a little warm. The last one he had he was in front of the fire place when he fell asleep. The first one the weather was hot, and so was our room. He always vomits either right after or later on after he has had a seizure. A couple of times he has complained of a headache after waking up. He is not on any meds and has never taken any, and I would love to keep it that way. I think this is about all. The lady that was giving him Sacro-cranial therapy is hard to keep up with. Plus paying is a bit difficult at times. But I will try to start this back up. I think that she works at the center that you are speaking of, but I usually have it done at her home. She does a good job. I have a few questions that I would like to pose. I my son would be considered by many to be a little slow but by no means handicapped, could this be from his neurological disorder? Since his seizures are so mild, and are not frequent, should I put him on a diet or just use supplements. If diet which one. If Supplements which ones. I really want to keep him drug free. Is common for epileptics to be tired natured? He is often tired. Are there any further tests that I need to do on him at home? If so which ones? I am really confused as to which form of action I should take next, as I have only recently been informed that if no action is taken his condition will more than likely worsen. All help will be greatly appreciated. Thank you, Kareemah Proud mother of Musa, age 5 Kindergarten. Homeschooler and SAM (Stay at home mom. "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Does insurance pay for plastic surgery? Has anyone had any luck with United Health Care? SOMEBODY HELP ME!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 I haven't had the plastic surgery... but I do have United Healthcare.. they have given me zero problems! Feel free to email me privately if you would like to!!! Trish > Does insurance pay for plastic surgery? > > Has anyone had any luck with United Health Care? > > SOMEBODY HELP ME!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 SORRY TO HERE SHANNON, BUT MAYBE THIS WAS A SIGN FOR YOU TO STICK TO A DIET FOR THE TIME BEING I KNOW ITS HARD TO WAIT, BUT WAIT AND SEE AND THAT TIME WILL BE HERE FOR YOUR SURGERY, AND WHEN SURGERY IS HERE ALL THE OTHER EMOTIONS WILL BE HERE THEN, LIKE AM I SURE IM DOING THE RIGHT THING OR AM I GOING TO WAKE UP, AND MUCH MUCH MORE. SO GIVE IT TIME AND JUST PUT EVERYTHING INTO PERSPECTIVE RIGHT NOW. WHERE ALL HERE FOR YOU SO KEEP WRITING TO ALL OF US, WHERE HERE TO HELP YOUR FRIEND IN SURGERY CHRISTOPHER CARROLL MICCO FLORIDA Quote Link to comment Share on other sites More sharing options...
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