Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 My 4 1/2 year old daughter Jenna (ASD) has been on Risperdal since 5/31/02. We gave her this drug as a last resort before sending her to live in what was basically an institution. Jenna started SIB on Valentines Day of this year. She woke up screaming like she was on fire at 2:00 a.m., scratching and clawing her legs hands and face bloody. Her father and I were both trying to restrain her and barely managed to do so until we could get her doctor to prescribe a tranquilizer several hours later. Let me add that my husband is 6'4 " and a competitive distance swimmer. I am 5'9 " and in reasonably good shape. Jenna weighs 35 lbs. We were both shocked at Jenna's strength. She bite me so hard it drew blood and left a welt for over a week. A couple of days later Jenna bit one of her teachers who then had to go to the emergency room. Jenna also became physically aggressive to her 2 younger sisters. At the time the baby wasn't walking, making her an easy target. Jenna also continued her night waking. Every night she would wake up around 11:00 p.m. and begin screaming the same desperate scream and SIB's, all the while looking right through anyone who tried to comfort or consol her. Around 6:00 a.m. she would drift off to sleep. The whole house was disrupted. My husband (sole income provider) was going to work w/ no sleep. My 2 younger children were afraid to go to sleep at night and they were more afraid of Jenna who was physically attacking them by biting, pushing, hitting and pulling out their hair. Jenna was recommended twice for Psychiatric Hospital admission because her behavior was so out of control. Once during a check-up visit for the baby Jenna had an " episode " in the doctors office. 3 office personnel could not restrain her and 2 of them were bitten. We worked with so many behaviorists that I cannot even remember how many. Jenna attends one of the most highly thought of ABV schools in the country and the staff was very dedicated to helping her. Nothing we tried worked until the Risperdal. Jenna takes 1.25 mg a day and is a totally different child. She sleeps through the night (and has every night since her first dose), has no more SIB's, is not physically aggressive to anyone, is happy and compliant and a joy to be around. Risperdal WAS and IS a miracle for OUR family. No matter what happens tomorrow or the next day, I got to keep my family together for at least a little while longer and that means the world to me. Jenna has not had any side effects. No weight gain, no extra sleep, no spacy-ness. Every child is different but Risperdal did the job for our family. Anyone who has questions can email me privately or on list. Thanks, Valeri, mom to: Jenna (4 1/2 ASD) (3 1/2 NT) LeeLee (1 1/2 NT) [ ] Tardive Dyskinesia on Risperdal - case report. sen sent me the following message privately and gave me permission to forward it to the list: Hello, my name is and I have a 5 year old son on this drug who has developed Tardive Dyskensia. We discovered it when we stopped the drug. He was on for a year and did have slight signs before the drug was stopped but I didn't of TD, just thought it was autism traits. I have had to put my son back on this drug and chances are he will be on a maintenance dose for life or another drug substituted. I am going to be weaning him off slowly to see if that helps any with the TD. I do not want my child to be on this med. This is a very serious side effect and has now robbed my sons ability with fine motor, like he didn't have trouble before. It is life long with no cure or treatment other then more drugs which will do more harm to the system. This is not the miracle it is said to be! Speak to a child psch and get a proper schedule for weaning, it is very important you do this correctly or you can cause the neurological system damage. Good luck to you and to your child. I hope you can avoid what my son is now going through. It has devastated u ======================================================= Quote Link to comment Share on other sites More sharing options...
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