Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 i got Nicky a hair test, but don't have the results back. You mean me? Obviously it would not be good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 Rhonda, I didn't. I'm sorry. Perhaps I deleted by accident? sometimes I miss stuff....sorry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 you think everyone is on spectrum so I guess Marti is in good company (Oprah comes to mind...) I think Marti is just plugging away the same as the rest of us. Doctors can in fact be helpful if only as back up. (wondering what you think of ) --- In , " andrew <alevin@i...> " <alevin@i...> wrote: > > > spectrum is wearying........ > > you have some attention deficit issues that are worrying, if you had > any family history of dementia or alzheimers ..... > > in your shoes i would be looking at non selenite selenium, zinc etc, > thats you not your son...... > > removing any amalgams > > rather than run over a lot of things its best just to focus on a few > and work the detail through until you reasoanably happy that they > sufficently right > > doctors have thier uses but spectrum which you are on is > extrodinarily intolerant of intermediaries and the necessity seems to > be to work things out yourself to survive........ the issues never > seems to move away from survival and this is something that you are > also faced with. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2003 Report Share Posted March 1, 2003 http://www.biolab.co.uk/ they might know you might benefit from it more than your son >> ALA. That's why I'm on about this IV glutathione fast push. I think we'll > see a trend away from DMSA/ALA over long periods in years to come. I'm > trying to find doctors in UK who use the IV GSH fast push, anyone know of > one? > > marti > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 --- Eileen <e.coleman@j...> wrote: > Hi Marti, << Did you first get the joint problems, then the skin problems? Did the skin problems become worse with time? I am much older than most of this group. I'm 56, so I have been attributing so many things to aging. But, gee, I feel like 110 years old. Eileen in Texas>> Hi Eileen, First I got a small patch of dry scaly skin on my scalp. No one thought too much about it and my pediatrician gave me this bad smelling ointment in a little jar that did not clear it up. Then, I got Red dry skin on my eyelids and everyone told me I should wash my face more. My pediatrician sent me to Iowa City (about 1oo miles away) to see a dermatologist who hemmed and hawed and looked at my firngernails(no pitting ) and called in a bunch of students to see the difference between Seborrheic Dermatitis and psoriasis. I was diagnosed with the former and given a tube of mercury(They actually used that back then). Later one big toe swelled a little and really.really hurt bad.I couldn't put any weight on it and I was laughing about it with my friends because we didn't know any better. Everyone kept telling me I must have stubbed my toe. I got in an argument with my brother and told him I think I would remember if I stubbed it. My mother called the pediatrician quite perplexed and said I appeared to be in pain but no one could fiqure out why. He said He was afraid he knew why but would like a specialist to confirm his suspisions. Back to Iowa City where I saw a rheumatologist this time. The Rheumatolgist diagnosed Pa and pointed out small changes in my feet that didn't even hurt yet. He said he was sorry but it looked like I my might have a severe case. I think he felt worse than I did because I didn't have an inkling about how it would change my life. Rheumatolgy sent me over to Dermatology where they changed my diagnosis to Psoriasis,still fretting because there was no nail involvement(Yet) And yes,in my case, unfortunately the skin got much much worse and there was no longer even a question about what it was. My current Dermie told me about a lady who had only a small patch of psoriasis on her scalp but had such severe Pa that she sometimes used a wheelchair. She was put on Enbrel and it was like a miracle for her joints but that small patch of psoriasis that alerted the Docs to her problem is still there. This can be a puzzling disease and " present " itself differently in different people. Sorry my answer got so long. I hope my story can help other people. Best Wishes, Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 In a message dated 4/28/2003 11:33:19 AM Eastern Daylight Time, pookiegut@... writes: > I know many people (including myself) who have P with NO nail involvement. I > am amazed that a Derm would think nail involvement is a decided factor on P > or dermatitis? Interesting... I have been misdiagnosed for years and finally I was diagnosed after they realized I was having nail involvement as well. It's a shame they can't diagnose PA sooner before it really is full blown. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 -> > I know many people (including myself) who have P with NO nail involvement. I am amazed that a Derm would think nail involvement is a decided factor on P or dermatitis? Interesting... > > Hi , I think I was unusual in that Rheum helped me more at the beginning. I have a very good dermie now. I really miss that Rheumatologist from years ago. He was one in a million but they didn't even use Mtx back then so there was a limited amount he could do for me. These are better times for us! Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 > I am so sorry about your lost. When I joined you were on the list > and then I didn't see your messages and wondered what happen. I > really missed your posts. My prayers are with you. > > God Bless, Sue. > thanks, Sue, that means a lot to me. When is your hip surgery scheduled for? Best, Marti > In , " snowbound22003 " <mlw402@a...> > wrote: > > > > > > > > > > Hi, Marti. It's wonderful to see you around these parts again. > > You were > > > missed and you are loved. > > > Kathy F. > > > > > > Hi Kathy, > > > > Thanks so much. It is good to be back and to see so many sensitive > > caring people posting. Some of you may remember me mentioning my > > long time friend and fiancee. He passed away on Oct.31. He had > been > > sick a long time and we had finally relented and moved him to an > > assisted living facility where he lived 6 days. I wanted my good > > friends to know. I am doing pretty well considering everything but > > am flared which the doc told me was stress related. (hard to deny > > that one lol!) Sorry to be a bummer to the newcomers. I am still > > able to be thankful on this thanksgiving Day. > > > > Love, > > Marti > > > > [Editor' Note: When I said to you offlist that everyone will be > here for you 24/7, I hope you know I meant it. You are one of the > most caring and special people I've met online, Marti. We're here > for you. Love, Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 In a message dated 11/29/2004 1:34:24 PM Eastern Standard Time, susieesue@... writes: Hi Marti, My hip surgery is scheduled for Dec. 6th. It seem like it is coming up soon!! God Bless, Sue. Good luck Sue. I wish you a speedy recovery and if you can't post maybe someone can let us know how you are doing. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 --- Hi Marti, My hip surgery is scheduled for Dec. 6th. It seem like it is coming up soon!! God Bless, Sue. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.