Re: brain damage chelation age 3

[Guest guest]

,

I started chelating my son at age 4. We are have been chelating for

2 years. He also had two brain surgeries due to a brain tumor and

is missing part of his left temporal lobe. He is still apraxic

verbally but is really beginning to sign. He does say some words.

He can do a 125 piece puzzle in record time and he understands most

of what is said to him: put it in your room, get your clothes on

ect. He is still hyper and has many issues but I am confident one

day he will be just fine. He is also very loving, fun and smart.

He also participates in the other childrens play, swimming, jumping

on the trampoline and digging holes.

Good Luck,

nne

--- In , " tbuccelli " <jbuccelli@c...>

wrote:

> Our son had just turned 3 years when we started chelation. We are

> only starting our 2nd cycle. I am concerned about his ability to

play

> catch-up. If anyone has information,(firsthand or otherwise) about

> the longterm outcome of children who were chelated at around this

age

> please let me know.

>

> Thank you,

> lauren

> jbuccelli@c...

[Guest guest]

Hi ,

I really did not hear about many kids who started chelation earlier

than 3. Those are exceptions, lucky guys. Dr. Holmes reported that

best results happen with kids before age 5. I believe that later

chelation also should work, it just takes longer.

Margaret

--- In , " tbuccelli " <jbuccelli@c...>

wrote:

> Our son had just turned 3 years when we started chelation. We are

> only starting our 2nd cycle. I am concerned about his ability to

play

> catch-up. If anyone has information,(firsthand or otherwise) about

> the longterm outcome of children who were chelated at around this

age

> please let me know.

>

> Thank you,

> lauren

> jbuccelli@c...

[Guest guest]

I just wanted to write be careful before 3. We started at about 2 years 5

months and the dosing is way too high for them. My son got soooo sick. We had

to quit. That was October. We are just going to start again. Be sure to go

low and slow. And, don't listen to the DAN! doctors.

[ ] Re: brain damage chelation age 3

Hi ,

I really did not hear about many kids who started chelation earlier

than 3. Those are exceptions, lucky guys. Dr. Holmes reported that

best results happen with kids before age 5. I believe that later

chelation also should work, it just takes longer.

Margaret

> Our son had just turned 3 years when we started chelation. We are

> only starting our 2nd cycle. I am concerned about his ability to

play

> catch-up. If anyone has information,(firsthand or otherwise) about

> the longterm outcome of children who were chelated at around this

age

> please let me know.

>

> Thank you,

> lauren

> jbuccelli@c...

[Guest guest]

In what ways did he get sick? We just finished our first yesterday

and just seems " out of it " . He word pronunciation is also not as

clear as it was.

We did the 10mg of DMSA every 4 hours (he is about 40lbs).

Thanks,

TB

> > Our son had just turned 3 years when we started chelation. We

are

> > only starting our 2nd cycle. I am concerned about his ability

to

> play

> > catch-up. If anyone has information,(firsthand or otherwise)

about

> > the longterm outcome of children who were chelated at around

this

> age

> > please let me know.

> >

> > Thank you,

> > lauren

> > jbuccelli@c...

>

>

>

[Guest guest]

> Our son had just turned 3 years when we started chelation. We are

> only starting our 2nd cycle. I am concerned about his ability to play

> catch-up. If anyone has information,(firsthand or otherwise) about

> the longterm outcome of children who were chelated at around this age

> please let me know.

Hi ,

Most opinions I've read say that earlier is better.

Young kids seem to respond to chelate faster than grown-ups, for

example.

In this file:

/files/LOVE_LETTERS

the following entries are for kids age 2 or age 3

Amy [AFawell not Amy Holmes], Barbara, Beverly, Charlie,

Cheryl, Hamilton, Diane, Elsie, Lund, Holly, Kathi....

okay, I'll stop there--- there are lots.

If you want you can read these entries--- look for the

ages of the kids. Actually, these probably do not qualify

as " long term outcome " , but hope it is some help anyhow.

best,

Moria

[Guest guest]

I'm unsure of long term simply because my daughter just turned 3 in Dec. 2002. I

started chelating her in Dec as well. I can olny say that for those who knew her

then and those who know her now, there is a huge difference, let me rephrase

that HHHUUUUUUGGGGGEEEEE difference. I'm friends with her former daycare teacher

in her 1yr old class, she can't beleive the difference in her. My husband can

actually bathe her without getting so frustrated that he gives up and goes out

of sight for the night. Long term, I've no idea, I can honestly say that she is

much better than she was then and if she never improved anymore, she's made

progress that I could never have imagined possible. Tonight she hugged me said "

I tire, sleep " and went to bed. She didn't have any language until we started to

chelate, I couldn't be happier with each and every day that passes and watching

her blossom all over again. In other words, yes to be able to say that she's

" recovered " would be undeniably wonderful, but at this point I'm thankful for

each and everyday with her. I remind myself constantly this is a marathon not a

sprint, she didn't get this way over night. My daughter has still not caught up

to alot of kids, but she has surpassed same age children in other things. I feel

that eventually she'll balance it all out.

Karyn

[ ] brain damage chelation age 3

Our son had just turned 3 years when we started chelation. We are

only starting our 2nd cycle. I am concerned about his ability to play

catch-up. If anyone has information,(firsthand or otherwise) about

the longterm outcome of children who were chelated at around this age

please let me know.

Thank you,

lauren

jbucc

[Guest guest]

> Our son had just turned 3 years when we started chelation.

> If anyone has information,(firsthand or otherwise) about

> the longterm outcome of children who were chelated at around this age

> please let me know.

I started to chelate my son when he was 3y. 3m. old.

He was nonverbal, and very low functioning.

We chelated for a year and today (he is 4.5 yo) my son is speaking almost in

sentences (*almost* because he is trying, but not always succeeding, but he

always manages to tell me what he needs, if he likes something, if something

hurts, etc. His words sound weird, but I can understand him), he can eat

well, play with other kids (it's actually very sociable), he is really smart,

proving it every day. He can learn really fast and apply the knowledge also.

Also, he can read and write.

I am still amazed looking at him. During this past year we had many miracles.

Nothing came over night, but I still consider a miracle the fact that my son

can do the things he does today. Especially knowing how low functioning he

was. I don't think I will ever get over how wonderful chelation is and what

miracles it brought to us.

My son is not autistic anymore.

We chelated with ALA and DMSA.

Valentina

[Guest guest]

We first started chelating the month our son turned three. That was

6 months ago. At that time, he couldn't point to a single body part

and his verbal language was non-existent. His receptive language was

nil, aside from occasionally turning when we'd call his name or

having a tantrum when he heard " no " . Up until then, we had managed

to teach him about 2 signs.

Since then, the change has been tremendous. He is now constantly

attempting to verbalize (we are up to +40 words and signs). He

began preschool the same month (Sept.) and by December, the

preschool instructional assistant said that " in 22 years of

preschool, I've never seen anything like the change in him " . He is

reading sight words and his receptive language is incredible. We

chelated just last weekend and almost immediately afterwards, he was

even more verbal. We have a long way to go with his communication

skills and his social skills are still behind. Just this past week,

his teacher sent me digital pictures she took of him in class

tickling his classmates and then being tickled. It was amazing. He

also began trying to " pretend play " (pretend eating food, pretend

talking on the phone), something we had never seen up to this

point.

I simply didn't dream we would have made this kind of progress in

this short of time. It gives me a lot of hope because, I too, was

very concerned that he would never be able to make up for all the

lost ground while he was so very sick. One parent said, " this isn't

a sprint, it is a marathon " and I know we still have a long road

ahead of us. Chelation has really really really (and I mean REALLY)

made all the difference for him.

Good luck,

Marla

> [ ] brain damage chelation age 3

>

>

> Our son had just turned 3 years when we started chelation. We

are

> only starting our 2nd cycle. I am concerned about his ability to

play

> catch-up. If anyone has information,(firsthand or otherwise)

about

> the longterm outcome of children who were chelated at around

this age

> please let me know.

>

> Thank you,

> lauren

> jbuccelli@c...

>

>

>

[Guest guest]

Marla--

How often do you chelate your son and what are you using?

[ ] brain damage chelation age 3

>

>

> Our son had just turned 3 years when we started chelation. We

are

> only starting our 2nd cycle. I am concerned about his ability to

play

> catch-up. If anyone has information,(firsthand or otherwise)

about

> the longterm outcome of children who were chelated at around

this age

> please let me know.

>

> Thank you,

> lauren

> jbuccelli@c...

>

>

>

[Guest guest]

Thank you to everyone for sharing their experiences. It gives me hope

for the future. We are going through the hardest part of it now,

(round two with some regression) - I someday hope to update you on

's remarkable progress.

-- In , " dhooten " <dhooten@a...> wrote:

> Marla--

> How often do you chelate your son and what are you using?

>

>

> [ ] brain damage chelation age 3

> >

> >

> > Our son had just turned 3 years when we started chelation. We

> are

> > only starting our 2nd cycle. I am concerned about his ability

to

> play

> > catch-up. If anyone has information,(firsthand or otherwise)

> about

> > the longterm outcome of children who were chelated at around

> this age

> > please let me know.

> >

> > Thank you,

> > lauren

> > jbuccelli@c...

> >

> >

> >

[Guest guest]

Dear Valentina/Andy

Thank you for your advice, I always look forward to your posts.

ph has completed the first three rounds of chelation on DMSA

alone. I have been giving him all the dietary supplements that have

been recomended A,E,C, Milk thistle,GSE, zink, manganese, magnesium,

taurine,and glycine with the DMSA. I added the vinpocetine on your

recomendations the other day. Since you have seen such great results,

(and we are in a very similar situation)I was wondering what else am

I missing?

I keep trying to adhere to the GF/CF diet, but it's so hard. I belive

that from what I have been able to gleen from the posts, that you

can't add digestive enzymes until the diet is firmly in place?

My Dr. says cranio sacral therapy would be helpful- do you have any

thoughts on this?

Have you used other chelaters (besides DMSA and ALA)? Have you tried

any drugs?

Once again any advice- what to do, or what not to do, is greatly

appreciated.

--- In , Valentina Scharpf <val@t...>

wrote:

> > Our son had just turned 3 years when we started chelation.

>

> > If anyone has information,(firsthand or otherwise) about

> > the longterm outcome of children who were chelated at around this

age

> > please let me know.

>

> I started to chelate my son when he was 3y. 3m. old.

> He was nonverbal, and very low functioning.

> We chelated for a year and today (he is 4.5 yo) my son is speaking

almost in

> sentences (*almost* because he is trying, but not always

succeeding, but he

> always manages to tell me what he needs, if he likes something, if

something

> hurts, etc. His words sound weird, but I can understand him), he

can eat

> well, play with other kids (it's actually very sociable), he is

really smart,

> proving it every day. He can learn really fast and apply the

knowledge also.

> Also, he can read and write.

> I am still amazed looking at him. During this past year we had many

miracles.

> Nothing came over night, but I still consider a miracle the fact

that my son

> can do the things he does today. Especially knowing how low

functioning he

> was. I don't think I will ever get over how wonderful chelation is

and what

> miracles it brought to us.

> My son is not autistic anymore.

> We chelated with ALA and DMSA.

>

>

> Valentina

[Guest guest]

> I have been giving him all the dietary supplements that have

> been recomended A,E,C, Milk thistle,GSE, zink, manganese,

Why do you give manganese? Is he low in? Do you see any improvements from it?

I am curious because I was thinking to giving manganese to my son (his hair test

showed low

levels) but I am not sure if manganese is good for mercury toxic people...

> I added the vinpocetine on your

> recomendations the other day.

Do you see anything.....?

Be careful. Apparently a lot more kids react badly to this supplement than get

better.

> I keep trying to adhere to the GF/CF diet, but it's so hard. I belive

> that from what I have been able to gleen from the posts, that you

> can't add digestive enzymes until the diet is firmly in place?

That's not true. At least I don't think it is.

I think you can add digestive enzymes anytime you want.

> My Dr. says cranio sacral therapy would be helpful- do you have any

> thoughts on this?

I am sorry, no. Never used it.

But I know there are many people who had really nice results with it.

> Have you used other chelaters (besides DMSA and ALA)?

No.

> Have you tried any drugs?

No.

> Once again any advice- what to do, or what not to do, is greatly

> appreciated.

My advice - chelate. I believe it's the only really successful intervention for

our kids.

Try to give the necessary supplements, low doses of chelators, and try to

chelate every

week if possible and if your kid is ok.

Valentina