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Re: Digest Number 2379

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Pam,

Sorry you (and Ron) have to be here but as others have stated, you've come

to the right place. We have a " resident " dr, one that was pre-med and

several others that are more knowledgeable than most drs. with regards to

PSC. And of course, with so many members, which is a shame in itself, you

have a wealth of " been there, done that " support.

and Steve listed the most effective treatments for itching. But as

you will come to find out, successful treatments are different and may not

work for everyone. The only treatment I found to work was Rifampin. If

not explained before, it is used for TB and is none to overtax the liver so

it is usually tried as a last resort and comes with even closer monitoring.

Milk Thistle is by and large safe (taken as directed) and most tx centers

will " allow " you to take it. I took it late in the game so didn't find

any real difference, but others who take it swear by it. I still take it

now as part of my post-tx multi-vitamin care.

Your background as a nurse and extended resources no doubt will be of great

assistance when caring for Ron. I imagine insurance is not a problem due

to your profession but several here have had a hard time

finding/maintaining/dealing with health insurance.

Again welcome to the group.

Darin

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