Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 thanks, everybody for your suggestions about what to include in Sam's IEP. I do strongly feel he's doing well because of the services he's receiving - we'll see how it goes. In my gut, I feel he'll still get good services from our district even if he's on a 504 plan but also realize there's more protections for him under an IEP. I've lost the post from the person who gave the information about the genetic deafness study being done at Medical College of Virginia and Galludet. Whoever posted it - thanks! I wrote to them - boy, are they interested in us! You know, I've always thought our family followed a compelling x-linked recessive pattern (so the girls are the carriers and only their sons show up having hearing loss) but then someone at rockefeller University (who was doing a connexin study) told me there were no x-linked recessive forms of deafness. Dr. Nance, who's the principal investigator of this (MCI/Galludet study) begs to differ. In fact, there's a form of genetic deafness that's x-linked recessive that is a mixed sensorineural/conductive loss. And it's predominantly in Appalachia (and guess where my whole family is - West virginia!). So I have tons of homework to do finding out about great-grandparents and if they had hearing loss. It should be an interesting journey. Given that my two boys, my brother, my nephew and my uncle on my mom's side all have a similar hearing loss, I think there's something going on. I'll keep you posted. My life would be *so* boring if my kids could hear! :>) Have a nice weekend everybody. Barbara Quote Link to comment Share on other sites More sharing options...
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