Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Does anyone have any personal knowledge on the above drug? It is a drug which has been approved by the FDA for the treatment of rheumatoid arthritis. There is a clinical study at the University of Florida and Mayo, MN (one of the co investigators came from mayo) to test its effects on PSC. For my son to participate, he has to be off the ursadiol for three months before beginning on the trial. I am a bit hesistant to get him off the ursadiol for a bit but as has been pointed out to me, the ursadiol just helps in the bile flow and may change the liver enzyme levels but has not been found to have any effects of the duct now the liver itself. Any information from anyone will be great. Also, apart from the Worth boy who seemed to have recovered from the PSC, is there any knowledge of anyone else on the same regimen as the Worth boy who had the same response? thanks\ Rita Quote Link to comment Share on other sites More sharing options...
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