Guest guest Report post Posted August 24, 2003 Hi, I know we don't know each other at all, since we're so new to the group, but I am keeping your son in my prayers. Your heart must be so heavy right now...our kids are so precious to us. I can't recall which hospital your son is in, but it might be worth asking if they have any pain specialists on staff. I'm a nurse working on an oncology floor, and we sometimes consult our pain management team for help with intractible pain. I don't know much (yet) about transplant medicine, but it might be worth checking out. Blessings and healing, Pam Still in the Hospital Hi all,Todd is still in the hospital with no change in the pain. They feel the pain is coming from his spleen being so enlarged and also the pancreas and liver being inflamed. He has been in so much pain and we have had a few really bad nights. Fortunately the past 2 nights they have given him muscle relaxers, and sleeping pills in addition to the demeral and benydryl and it has helped him sleep. I am not looking forward to today though, they are trying to do away with the pain meds during the day. Their fear is him getting addicted to them. I don't know how he will do it though. It is torture for him and also for me to see him in so much pain. Tomorrow we are hoping to talk to the transplant surgeon about living donor transplant. Fortunately his dad, myself and brother are all the same blood type as Todd, so we will see where that leads us. His itching is literally the "suicide itch". We have to change his sheets a lot because of the bleeding from the itching. I am so physically and emotionally exhausted, but I am hanging in there. I will try to sleep at home tonight and have his dad stay here, but all I want to do is be by his side. But I know to keep strong, I need to get a good nights sleep.Thank you all for your continuing prayers. I think of you all often, I can't tell how comforting it is to know I can always turn on the computer and the support is there. My prayers are with you.Joanne (mom of Todd, 17, psc 12/01, crohns 1/02, listed 7/03) Quote Share this post Link to post Share on other sites
