Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Hello Mrs. Bree and welcome to the group. What aspects of CHARGE does your son have? Dose he have vision and or hearing issues? when you say he gets into trouble, what do you mean? Anyways sorry for being nosy. Chantelle (CHARGE) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 Welcome to the group and I am glad you found us. Self-regulation, decision making, impulse control and all those things can be part of CHARGE Syndrome, as well as obsessive tendencies, self abusive and/or aggressive behaviors and large fluctuations in excessive energy and low energy - the behaviors seen with CHARGE are so widely reported now that an entire issue of the American Journal of Medical Genetics was published in March of 2003 in the beginnings of trying to understand the underlying causative factors- I think the CHARGE Foundation has some copies left. The other aspect is that sometimes the child was able to get enough information in through whatever vision and hearing they have to make it is elementary, but then in middle school the gaps in the information they receive is so wide that they either withdraw or act up. Please share a little more info of what the specific behavioral concerns are, and about your son, and maybe someone here will have some tips. Kim L > I can use any information regarding charge syndrome. My son was diagnosed > with this when he was a baby. Only physical aspects were seen at the time. > Now that he has started middle school things are a little different. He is > socially immature and gets into trouble. I have a hard time explaining to the > school why he needs special consideration when he gets into trouble. Anyway, > Im wanting to know if anyone has a similar problem. > > I am new to this group, any help would be appreciated. > > Thanks, > Mrs.Bree > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 There is information by Brown that talks about the nature of CHARGE that helps this make sense to people; I will attach it in a private post as a start. The second thing that is not specific to CHARGE is there is a test called the Vineland that measures a student's level of social functioning. It is used a lot with people with fetal alcohol effects, because the alcohol damages the thinking part of the brain, making it very difficult to do things like, plan, reason, use good judgment and so on. (Kids with CHARGE seem to have varying degrees of executive function problems, even though why is a very different reason) In all other ways they may be like a 16you, but functionally they may only be like a 6yo. They are still legally responsible for their actions, but having this information with school hearings to determine if this is related to his disability it matters and for a court to determine consequence and to determine how to figure out a plan on how to deal with it, it may help to make sure this test is done. Good luck to you! Kim > Welcome to the group and I am glad you found us. Self-regulation, decision > making, impulse control and all those things can be part of CHARGE Syndrome, > as well as obsessive tendencies, self abusive and/or aggressive behaviors > and large fluctuations in excessive energy and low energy - the behaviors > seen with CHARGE are so widely reported now that an entire issue of the > American Journal of Medical Genetics was published in March of 2003 in the > beginnings of trying to understand the underlying causative factors- I think > the CHARGE Foundation has some copies left. > > The other aspect is that sometimes the child was able to get enough > information in through whatever vision and hearing they have to make it is > elementary, but then in middle school the gaps in the information they > receive is so wide that they either withdraw or act up. > > Please share a little more info of what the specific behavioral concerns > are, and about your son, and maybe someone here will have some tips. > > Kim L > > > > > >> I can use any information regarding charge syndrome. My son was diagnosed >> with this when he was a baby. Only physical aspects were seen at the time. >> Now that he has started middle school things are a little different. He is >> socially immature and gets into trouble. I have a hard time explaining to the >> school why he needs special consideration when he gets into trouble. Anyway, >> Im wanting to know if anyone has a similar problem. >> >> I am new to this group, any help would be appreciated. >> >> Thanks, >> Mrs.Bree >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2005 Report Share Posted November 6, 2005 wow welcome and there are heaps of people with behavioral probs im not oen of them where are you aut there to answer this difficult question and luanc h us into thee world again lol well any way im a 20 year old charger soem of my friends say i act at least 8 but other than that im great as for the police well i go to school with heaps of people with disabilites not charge but stuff anyway the police never gets called on them hmmm theres this one kids that smokes and does all thsi stuff not once has the police come to him and they coem to yoru boy this is totaly wierd inm my view they should be seing the person at my schooll but thats another story where are you from im from sydney aus hugs ellen > > There is information by Brown that talks about the nature of CHARGE > that helps this make sense to people; I will attach it in a private post > as > a start. > > The second thing that is not specific to CHARGE is there is a test called > the Vineland that measures a student's level of social functioning. It is > used a lot with people with fetal alcohol effects, because the alcohol > damages the thinking part of the brain, making it very difficult to do > things like, plan, reason, use good judgment and so on. (Kids with CHARGE > seem to have varying degrees of executive function problems, even though > why > is a very different reason) In all other ways they may be like a 16you, > but > functionally they may only be like a 6yo. They are still legally > responsible for their actions, but having this information with school > hearings to determine if this is related to his disability it matters and > for a court to determine consequence and to determine how to figure out a > plan on how to deal with it, it may help to make sure this test is done. > > Good luck to you! > > Kim > > > > > > > Welcome to the group and I am glad you found us. Self-regulation, > decision > > making, impulse control and all those things can be part of CHARGE > Syndrome, > > as well as obsessive tendencies, self abusive and/or aggressive > behaviors > > and large fluctuations in excessive energy and low energy - the > behaviors > > seen with CHARGE are so widely reported now that an entire issue of the > > American Journal of Medical Genetics was published in March of 2003 in > the > > beginnings of trying to understand the underlying causative factors- I > think > > the CHARGE Foundation has some copies left. > > > > The other aspect is that sometimes the child was able to get enough > > information in through whatever vision and hearing they have to make it > is > > elementary, but then in middle school the gaps in the information they > > receive is so wide that they either withdraw or act up. > > > > Please share a little more info of what the specific behavioral concerns > > are, and about your son, and maybe someone here will have some tips. > > > > Kim L > > > > > > > > > > > >> I can use any information regarding charge syndrome. My son was > diagnosed > >> with this when he was a baby. Only physical aspects were seen at the > time. > >> Now that he has started middle school things are a little different. He > is > >> socially immature and gets into trouble. I have a hard time explaining > to the > >> school why he needs special consideration when he gets into trouble. > Anyway, > >> Im wanting to know if anyone has a similar problem. > >> > >> I am new to this group, any help would be appreciated. > >> > >> Thanks, > >> Mrs.Bree > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
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