DMSA concerns

[Guest guest]

I am new to this group and wanted to get feedback about DMSA. I have

a 2 1/2 year old. We did (on advisement of a local DAN! doctor) 2

rounds of DMSA 3 days on every 8 hours and 11 days apart. We did the

first round with 50mg/8hr and 50mg ALA. He did great and spoke his

first sentence. 2nd round the dose of DMSA was increased to 100mg.

He fell apart. He was white as a ghost and his liver enzymes shot

up. He was seeming to have headaches (based on him pushing playdo

against his head) and I think his feet were numb. He wouldn't walk on

his feet for a whole day and actually wanted me to squeeze them and

put rubber bands on them. His yeast came back terribly and he is

less verbal than he was previous to the DMSA. We have struggled to

get him back to his starting point. I know he needs to detox and

want to because I heard him say a sentence. He is 26lbs. We are

scared we did some permanent damage. Does anyone have experience

with this type of situation??????

Thanks

Jen (Woodbury, MN)

[Guest guest]

Hi Jen!

You're going to get the same answer a bunch of times to your question,

so let me be the first ;-). 8 hour dosing is a problem for all but a

minority of these kids. You don't state what your kiddo weighs, but my

guess is that the 50 mg mark is way too much for a 2.5 year old. If

you are reading on the website, click on the files section and read

about Andy Cutler's protocol for lower doses, administered more

frequently. At 2.5 years, I also wonder if he is not far enuf away

from his exposures and needs DMSA alone for awhile. We added ALA

pretty quickly, but my younger one was 4 when we started and had not

had vaccines for many months. Hopefully someone else will chime in on

this point, (I still feel like a novice sometimes and we've been at

this a year).

I would be very interested in which DAN doctor did this, (e- me off

list if you are willing). We have been to all of them in the Twin

Cities area, so nothing would surprise me. We are currently clients

of the 4th one contacted, and he has two outs and a 3/2 count----prior

to our second meeting!!!!!

Lissy (Lino Lakes, MN)

-- In , " cdjlarson <cdjlarson@a...> "

<cdjlarson@a...> wrote:

> I am new to this group and wanted to get feedback about DMSA. I

have

> a 2 1/2 year old. We did (on advisement of a local DAN! doctor) 2

> rounds of DMSA 3 days on every 8 hours and 11 days apart. We did

the

> first round with 50mg/8hr and 50mg ALA. He did great and spoke his

> first sentence. 2nd round the dose of DMSA was increased to 100mg.

> He fell apart. He was white as a ghost and his liver enzymes shot

> up. He was seeming to have headaches (based on him pushing playdo

> against his head) and I think his feet were numb. He wouldn't walk

on

> his feet for a whole day and actually wanted me to squeeze them and

> put rubber bands on them. His yeast came back terribly and he is

> less verbal than he was previous to the DMSA. We have struggled to

> get him back to his starting point. I know he needs to detox and

> want to because I heard him say a sentence. He is 26lbs. We are

> scared we did some permanent damage. Does anyone have experience

> with this type of situation??????

> Thanks

> Jen (Woodbury, MN)

[Guest guest]

In a message dated 23/2/03 12:20:18 am, cdjlarson@... writes:

> He was white as a ghost and his liver enzymes shot

> up. 

>

That's a lot of DMSA. Liver damage was one of the reasons we aren't using

DMSA. Also, the neutrophils, of course. And there was some research that

chelating agents such as DMSA can increase the entry of mercury into motor

axons (neurons)as a result of chelator-induced

elevated circulating Hg (Ewan K. and Pamphlett, R Neurotoxicology

17:2:-50, 199). It was used for lead toxicity on short term basis with

safety but really this is new territory. Here's my .02: take lots of

advice and don't be cowed into doing anything you don't feel comfortable

with. He's a little boy and you have time. Anyway, that seems a lot of

DMSA. If i were to use DMSA I'd do lower dosages, much lower, and more

frequently based on what I've read here on this board.

You could also try something else.

Marti

marti

[Guest guest]

My son is also very small, 25 pounds, and Andy recommended 5-10mg of

DMSA. The dose seems really high. Kim

> > I am new to this group and wanted to get feedback about DMSA. I

> have

> > a 2 1/2 year old. We did (on advisement of a local DAN! doctor)

2

> > rounds of DMSA 3 days on every 8 hours and 11 days apart. We

did

> the

> > first round with 50mg/8hr and 50mg ALA. He did great and spoke

his

> > first sentence. 2nd round the dose of DMSA was increased to

100mg.

>

> > He fell apart. He was white as a ghost and his liver enzymes

shot

> > up. He was seeming to have headaches (based on him pushing

playdo

> > against his head) and I think his feet were numb. He wouldn't

walk

> on

> > his feet for a whole day and actually wanted me to squeeze them

and

> > put rubber bands on them. His yeast came back terribly and he

is

> > less verbal than he was previous to the DMSA. We have struggled

to

> > get him back to his starting point. I know he needs to detox

and

> > want to because I heard him say a sentence. He is 26lbs. We are

> > scared we did some permanent damage. Does anyone have

experience

> > with this type of situation??????

> > Thanks

> > Jen (Woodbury, MN)

[Guest guest]

> This is what my 28# daughter started on and she did pretty well. The DMSA we

used originally had fillers in it that she didn't react well with.

Karyn

> From: " henrysmom22002 <henrys.mom2@...> " <henrys.mom2@...>

> Date: 2003/02/23 Sun AM 01:51:39 EST

>

> Subject: [ ] Re: DMSA concerns

>

>