Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 Hi , What I meant was that I refuse to be her nurse if she moves in. I agree with everything you have said in this post. I'm calling her insurance today and Hospice to get more info. I am grappling right now with doing what is " right " . I still have some soul searching to do. > > > > I went to the wolf's den (nada's house) this weekend to drop off her living trust and get some of my things. I was going to get all of my things but my T said not to do that unless I am going NC because that would set nada off big time. It was an OK weekend because every time she tried to bait me I didn't take it- it was hard. At one point I caught her staring at me with such hostility that it took everything I had not to ask her what her problem is. Talking to her is so frustrating because for every " problem " she presents I offer a simple solution that she won't take. If there's isn't a problem you bet she'll make one up. I am so sick of her feeling victimized, so sick of her crying. The crying! Non stop crying! Every little thing is the end of the world. > > She made a scrapbook about herself and gave it to me this weekend. I didn't ask her to do this. On the 1st page it says, > > " To my daughter, > > Words are easy. Only the heart can convey the love, joy, happiness and pride I have for you. You will always be able to talk to me, Honey. Just feel me in your heart answering. Mommy " > > Excuse my language but WTF???? I felt sick and fuming mad after reading that. > > I have never been able to talk to her about anything! Every time I try she ignores me, gets defensive or hangs up on me. Even if it's not even about her she acts like I am accusing her of some shortcoming because *I* have a problem. I flipped through that scrapbook which contains pictures of her, letters she has written, a ticket for running a red light, report cards of hers- I mean why would I want that stuff? The pictures I can understand but a ticket? Anyway I flipped through that and felt nothing but ambivalence. At this point in time I feel no love towards her whatsoever. When I am at her house she wants me to lay down with her and read to her and I can barely do it. When she hugs me she won't let go until I detach myself. When she hugs me I go stiff- I can't help it. It's like my body is revolted by her touch. I cringe inwardly until I can get away from her. > > This bothers me, but I can't help it. > > I KNOW she's going to eventually ask me if she can move in. I am just waiting for it. Someone told me she said she wants to, but wants me to ask her. I practically BEGGED her to a few months ago. Then, recently I told her she could again and she reacted by cutting me out of her will because I will not move in with her. Shes now says she never said that, which is total BS. I don't know if she believes her own lie or is outright lying. Anyway there's no way I'm asking her to move in with me again. > > But I am pretty sure the request coming. Ugh. My husband and I have been talking about this nonstop, and we both feel like we'll probably say yes. I know this is crazy. I really feel like she can not be alone and although I pretty much hate her I don't want her to spend her final days alone except for some hired help. I am hoping to get more info today because Hospice is paying her a visit. I plan on getting the nurse's name from nada and talking to them directly so I can get the " real " information. > > My worst fear is that she will suck so much energy from me I won't have enough for my daughter. I must choose my baby 1st and foremost, I know that. I'm not sure how this is going to go down. I know I don't owe nada anything, but I do honestly feel like if I tell her no I will feel pretty bad about it later. I can just see her rotting away in the house all by herself. I feel sorry for her because she's so pathetic. After I talk to Hospice I will call her insurance and see how much they cover for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 Just a thought - is there an inpatient hospice facility closeby to you? That maybe only for end-stage care, but if so perhaps they could give you some suggestions of things that are available in your area about which you are not yet aware. Take care, > > I wish I could set her up in an apt close by. The problem is 1) she won't do it 2) the cost of living where I live is unreal, so probably couldn't do it anyway. (I checked into this briefly) I'm calling her insurance company to see about a nurse coming to the house. Also about an inpatient care facility. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Is this faulty thinking? What if nada moves in and like Annie and suggested, I have both hospice and a care-taker come almost every day. They do all the nursing stuff. I don't mind cooking for nada or cleaning her room since I would be doing that anyway. Maybe nada will be in better spirits being around her granddaughter. That seems to put her in a better frame of mind when I visit. Is this a pipe dream? Maybe it wouldn't be so bad?? I have fallen in this trap of thinking before. It's just that yesterday I had a little softening of my heart for nada. I don't want her to die alone. She's incredibly scared. I don't think she has longer than 6 months, but who knows. Could I put up with it for that long? It's not very long in reality, but it could feel like 30 years with nada. > > I went to the wolf's den (nada's house) this weekend to drop off her living trust and get some of my things. I was going to get all of my things but my T said not to do that unless I am going NC because that would set nada off big time. It was an OK weekend because every time she tried to bait me I didn't take it- it was hard. At one point I caught her staring at me with such hostility that it took everything I had not to ask her what her problem is. Talking to her is so frustrating because for every " problem " she presents I offer a simple solution that she won't take. If there's isn't a problem you bet she'll make one up. I am so sick of her feeling victimized, so sick of her crying. The crying! Non stop crying! Every little thing is the end of the world. > She made a scrapbook about herself and gave it to me this weekend. I didn't ask her to do this. On the 1st page it says, > " To my daughter, > Words are easy. Only the heart can convey the love, joy, happiness and pride I have for you. You will always be able to talk to me, Honey. Just feel me in your heart answering. Mommy " > Excuse my language but WTF???? I felt sick and fuming mad after reading that. > I have never been able to talk to her about anything! Every time I try she ignores me, gets defensive or hangs up on me. Even if it's not even about her she acts like I am accusing her of some shortcoming because *I* have a problem. I flipped through that scrapbook which contains pictures of her, letters she has written, a ticket for running a red light, report cards of hers- I mean why would I want that stuff? The pictures I can understand but a ticket? Anyway I flipped through that and felt nothing but ambivalence. At this point in time I feel no love towards her whatsoever. When I am at her house she wants me to lay down with her and read to her and I can barely do it. When she hugs me she won't let go until I detach myself. When she hugs me I go stiff- I can't help it. It's like my body is revolted by her touch. I cringe inwardly until I can get away from her. > This bothers me, but I can't help it. > I KNOW she's going to eventually ask me if she can move in. I am just waiting for it. Someone told me she said she wants to, but wants me to ask her. I practically BEGGED her to a few months ago. Then, recently I told her she could again and she reacted by cutting me out of her will because I will not move in with her. Shes now says she never said that, which is total BS. I don't know if she believes her own lie or is outright lying. Anyway there's no way I'm asking her to move in with me again. > But I am pretty sure the request coming. Ugh. My husband and I have been talking about this nonstop, and we both feel like we'll probably say yes. I know this is crazy. I really feel like she can not be alone and although I pretty much hate her I don't want her to spend her final days alone except for some hired help. I am hoping to get more info today because Hospice is paying her a visit. I plan on getting the nurse's name from nada and talking to them directly so I can get the " real " information. > My worst fear is that she will suck so much energy from me I won't have enough for my daughter. I must choose my baby 1st and foremost, I know that. I'm not sure how this is going to go down. I know I don't owe nada anything, but I do honestly feel like if I tell her no I will feel pretty bad about it later. I can just see her rotting away in the house all by herself. I feel sorry for her because she's so pathetic. After I talk to Hospice I will call her insurance and see how much they cover for in-home care. Either way I REFUSE to be her caretaker. I refuse. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 I suspect it is faulty thinking. The problem with nadas is that no matter what you give them, it isn't enough and they want more. They want to be the center of your life and they don't like it when you have a life of your own or any priorities that are higher than their wants. They often want to turn your children away from you and towards them too. Think about the fact that if she's in your house you're not going to be able to escape from her other than by staying away from home. Think about what will happen when the initial joy of being near her granddaughter wears off, which it will, and she starts making demands of your daughter as well. How will your daughter handle it if her grandnada starts saying bad things about you or doing the same things to her that she did to you? You're the one who knows her and knows what kind of behavior she engages in, but from what you've said, I don't think it is realistic to think that it wouldn't be so bad. Even if she only lives six months, that is long enough to do a lot of damage to you and your daughter and husband. Marriages can be broken by that type of stress. The possible costs seem too high to me. Not living with you doesn't mean she has to die alone. Having some sympathy for her doesn't mean you have to let her cause further damage. At 12:07 PM 07/29/2009 mozzarella27 wrote: >Is this faulty thinking? >What if nada moves in and like Annie and suggested, I >have both hospice and a care-taker come almost every day. They >do all the nursing stuff. I don't mind cooking for nada or >cleaning her room since I would be doing that anyway. Maybe >nada will be in better spirits being around her granddaughter. >That seems to put her in a better frame of mind when I visit. >Is this a pipe dream? Maybe it wouldn't be so bad?? I have >fallen in this trap of thinking before. It's just that >yesterday I had a little softening of my heart for nada. I >don't want her to die alone. She's incredibly scared. I don't >think she has longer than 6 months, but who knows. Could I put >up with it for that long? It's not very long in reality, but it >could feel like 30 years with nada. -- Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Only you can decide what you can live with. You cannot personally spend every waking moment with your terminally ill nada, whether she is living in your home or not. That's just not realistic, and it would hurt you and your family. If it were me, I'd choose for her to stay in a nearby hospice facility so you could visit her there. She would *not* be alone in hospice, its just that *you* wouldn't be there 24/7. But if you feel compelled to have her stay in your home, then yes, having a visiting hospice worker *and* a elder-care provider in the daytime would be your only salvation, IMHO. Its kind of a no-win situation for you; either choice has negative aspects for you. I'm sorry you're in that position. It sucks. -Annie > > > > I went to the wolf's den (nada's house) this weekend to drop off her living trust and get some of my things. I was going to get all of my things but my T said not to do that unless I am going NC because that would set nada off big time. It was an OK weekend because every time she tried to bait me I didn't take it- it was hard. At one point I caught her staring at me with such hostility that it took everything I had not to ask her what her problem is. Talking to her is so frustrating because for every " problem " she presents I offer a simple solution that she won't take. If there's isn't a problem you bet she'll make one up. I am so sick of her feeling victimized, so sick of her crying. The crying! Non stop crying! Every little thing is the end of the world. > > She made a scrapbook about herself and gave it to me this weekend. I didn't ask her to do this. On the 1st page it says, > > " To my daughter, > > Words are easy. Only the heart can convey the love, joy, happiness and pride I have for you. You will always be able to talk to me, Honey. Just feel me in your heart answering. Mommy " > > Excuse my language but WTF???? I felt sick and fuming mad after reading that. > > I have never been able to talk to her about anything! Every time I try she ignores me, gets defensive or hangs up on me. Even if it's not even about her she acts like I am accusing her of some shortcoming because *I* have a problem. I flipped through that scrapbook which contains pictures of her, letters she has written, a ticket for running a red light, report cards of hers- I mean why would I want that stuff? The pictures I can understand but a ticket? Anyway I flipped through that and felt nothing but ambivalence. At this point in time I feel no love towards her whatsoever. When I am at her house she wants me to lay down with her and read to her and I can barely do it. When she hugs me she won't let go until I detach myself. When she hugs me I go stiff- I can't help it. It's like my body is revolted by her touch. I cringe inwardly until I can get away from her. > > This bothers me, but I can't help it. > > I KNOW she's going to eventually ask me if she can move in. I am just waiting for it. Someone told me she said she wants to, but wants me to ask her. I practically BEGGED her to a few months ago. Then, recently I told her she could again and she reacted by cutting me out of her will because I will not move in with her. Shes now says she never said that, which is total BS. I don't know if she believes her own lie or is outright lying. Anyway there's no way I'm asking her to move in with me again. > > But I am pretty sure the request coming. Ugh. My husband and I have been talking about this nonstop, and we both feel like we'll probably say yes. I know this is crazy. I really feel like she can not be alone and although I pretty much hate her I don't want her to spend her final days alone except for some hired help. I am hoping to get more info today because Hospice is paying her a visit. I plan on getting the nurse's name from nada and talking to them directly so I can get the " real " information. > > My worst fear is that she will suck so much energy from me I won't have enough for my daughter. I must choose my baby 1st and foremost, I know that. I'm not sure how this is going to go down. I know I don't owe nada anything, but I do honestly feel like if I tell her no I will feel pretty bad about it later. I can just see her rotting away in the house all by herself. I feel sorry for her because she's so pathetic. After I talk to Hospice I will call her insurance and see how much they cover for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 couldn't the nursing stuff all be done at nadas house with you coming to cook/clean ?? and have hospice/some type of help stay with her 24/7 if need be ?? I certainly wouldn't want my nada to move in with me under any circumstance...I know how it would be...I was at nadas house during her cancer treatments several years ago, and she was still a very nasty person towards me...when my hose had bladder cancer, the U of I too a biopsy, and said the horse had 6 weeks tops...she lived 1 year and 2 months!! Jackie Is this faulty thinking? What if nada moves in and like Annie and suggested, I have both hospice and a care-taker come almost every day. They do all the nursing stuff. I don't mind cooking for nada or cleaning her room since I would be doing that anyway. Maybe nada will be in better spirits being around her granddaughter. That seems to put her in a better frame of mind when I visit. Is this a pipe dream? Maybe it wouldn't be so bad?? I have fallen in this trap of thinking before. It's just that yesterday I had a little softening of my heart for nada. I don't want her to die alone. She's incredibly scared. I don't think she has longer than 6 months, but who knows. Could I put up with it for that long? It's not very long in reality, but it could feel like 30 years with nada. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 very good points !!! Jackie I suspect it is faulty thinking. The problem with nadas is that no matter what you give them, it isn't enough and they want more. They want to be the center of your life and they don't like it when you have a life of your own or any priorities that are higher than their wants. They often want to turn your children away from you and towards them too. Think about the fact that if she's in your house you're not going to be able to escape from her other than by staying away from home. Think about what will happen when the initial joy of being near her granddaughter wears off, which it will, and she starts making demands of your daughter as well. How will your daughter handle it if her grandnada starts saying bad things about you or doing the same things to her that she did to you? You're the one who knows her and knows what kind of behavior she engages in, but from what you've said, I don't think it is realistic to think that it wouldn't be so bad. Even if she only lives six months, that is long enough to do a lot of damage to you and your daughter and husband. Marriages can be broken by that type of stress. The possible costs seem too high to me. Not living with you doesn't mean she has to die alone. Having some sympathy for her doesn't mean you have to let her cause further damage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Mozz - Sigh... It's a pipe dream. It's sweet, but as you say, " faulty " thinking. You want her to turn into the nice mom you wanted, as she lives her last days. You feel that having that extra help will make her satisfied, and that having her granddaughter will make her behave. Not gonna happen. My mom was living with us, supposed to be the " granny nanny " for my infant son, and we'd bought a new house with an in-law suite for her, paid for her move, put up with all kinds of stuff to move her in (because I could not afford to keep paying the rent on her place AND pay the new house bills) - She was then diagnosed with breast cancer. I took her to doctor's appointments. I worked all day, came home, cooked a meal for my husband and me, a separate bland meal for her, and then fed the baby. I dealt with the household chores. We hired a nanny to look after the baby. Nada had no household expenses, no difficulty getting to her appointments, no lack of contact with her baby grandson... And she said I didn't spend enough time just sitting with her. She said I was cold and callous. She said the " stress " of living with us was what caused her cancer. Leopards do not change their spots just because they're old and sick. In fact, being ill makes them feel even more waif-like, even better able to justify dishing out the abuse. And since they can't yell at the doctor, can't yell at the hospice worker, guess who's going to get the brunt of the vitriol? Yep. It's gonna fall right on your head. It sounds like you're almost trying to " make a deal " - " let me just move her in and work like a dog, and maybe she'll finally be nice, finally love me, finally think I'm OK " - but that's magical thinking. If you put her in a care facility, you can go visit every day and stay as long as you're able to take it - then go home to your sanctuary. If she's in your house, you will NOT be able to get away from her. The aides will not work to her satisfaction. No one will be able to do the work as well as you, and as you try and try to keep her happy, she will bleed you dry. And when she dies, she will find a way to say you didn't do enough. I believe you are a kind, loving daughter who wants the best for her mother. I commend you for having a caring heart. But I have done what you're about to do, and I am telling you that this part of your life with your young family should be filled with sweet memories for you - not a black, bleak period of misery filled with disassociative lapses because Nada is driving you insane. - > > > > I went to the wolf's den (nada's house) this weekend to drop off her living trust and get some of my things. I was going to get all of my things but my T said not to do that unless I am going NC because that would set nada off big time. It was an OK weekend because every time she tried to bait me I didn't take it- it was hard. At one point I caught her staring at me with such hostility that it took everything I had not to ask her what her problem is. Talking to her is so frustrating because for every " problem " she presents I offer a simple solution that she won't take. If there's isn't a problem you bet she'll make one up. I am so sick of her feeling victimized, so sick of her crying. The crying! Non stop crying! Every little thing is the end of the world. > > She made a scrapbook about herself and gave it to me this weekend. I didn't ask her to do this. On the 1st page it says, > > " To my daughter, > > Words are easy. Only the heart can convey the love, joy, happiness and pride I have for you. You will always be able to talk to me, Honey. Just feel me in your heart answering. Mommy " > > Excuse my language but WTF???? I felt sick and fuming mad after reading that. > > I have never been able to talk to her about anything! Every time I try she ignores me, gets defensive or hangs up on me. Even if it's not even about her she acts like I am accusing her of some shortcoming because *I* have a problem. I flipped through that scrapbook which contains pictures of her, letters she has written, a ticket for running a red light, report cards of hers- I mean why would I want that stuff? The pictures I can understand but a ticket? Anyway I flipped through that and felt nothing but ambivalence. At this point in time I feel no love towards her whatsoever. When I am at her house she wants me to lay down with her and read to her and I can barely do it. When she hugs me she won't let go until I detach myself. When she hugs me I go stiff- I can't help it. It's like my body is revolted by her touch. I cringe inwardly until I can get away from her. > > This bothers me, but I can't help it. > > I KNOW she's going to eventually ask me if she can move in. I am just waiting for it. Someone told me she said she wants to, but wants me to ask her. I practically BEGGED her to a few months ago. Then, recently I told her she could again and she reacted by cutting me out of her will because I will not move in with her. Shes now says she never said that, which is total BS. I don't know if she believes her own lie or is outright lying. Anyway there's no way I'm asking her to move in with me again. > > But I am pretty sure the request coming. Ugh. My husband and I have been talking about this nonstop, and we both feel like we'll probably say yes. I know this is crazy. I really feel like she can not be alone and although I pretty much hate her I don't want her to spend her final days alone except for some hired help. I am hoping to get more info today because Hospice is paying her a visit. I plan on getting the nurse's name from nada and talking to them directly so I can get the " real " information. > > My worst fear is that she will suck so much energy from me I won't have enough for my daughter. I must choose my baby 1st and foremost, I know that. I'm not sure how this is going to go down. I know I don't owe nada anything, but I do honestly feel like if I tell her no I will feel pretty bad about it later. I can just see her rotting away in the house all by herself. I feel sorry for her because she's so pathetic. After I talk to Hospice I will call her insurance and see how much they cover for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 , I have no wise words or experience to share with you. I just want you to know that my heart goes out to you. This is such a hard situation you have been put in. I think the one thing I would encourage you to think about is your child; do I recall correctly that she is still an infant? If not, I'd be concerned about nada's effect on her; if nada's passing is difficult, how would it affect your own child?; what has been the longest nada has been around her granddaughter - if she thinks she's cute for a few days or a couple of weeks, will that last as she get sicker and closer to death? if there is too much emotional stress for you, how does that translate to your own child and your ability to care for her? if this goes on much longer than you anticipate, what is your plan to deal with it? I'm not saying I feel either solution is right or wrong. I am saying that these are things it might be good to think through no matter what you decide. I don't envy your position, friend. I will support you in whatever you choose. My heart and thoughts are with you. Take care, ps - If I didn't come across clearly before, I was thinking that if you contact a local hospice, they may have an alternative to either them or you that's available. She may be too 'well' to be in hospice yet, but too ill to be in your home. Another thought is whether or not you want her to die in your home. Not to get too personal, but I believe it merits thinking through. > > Is this faulty thinking? > What if nada moves in and like Annie and suggested, I have both hospice and a care-taker come almost every day. They do all the nursing stuff. I don't mind cooking for nada or cleaning her room since I would be doing that anyway. Maybe nada will be in better spirits being around her granddaughter. That seems to put her in a better frame of mind when I visit. > Is this a pipe dream? Maybe it wouldn't be so bad?? I have fallen in this trap of thinking before. It's just that yesterday I had a little softening of my heart for nada. I don't want her to die alone. She's incredibly scared. I don't think she has longer than 6 months, but who knows. Could I put up with it for that long? It's not very long in reality, but it could feel like 30 years with nada. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 If this person wasn't your mother, you might wonder why she wasn't in jail or in a mental hospital. Here is an abridged story that I read on another list, where she attributed it to Aesop: Once there was a scorpian, who had received news of his mothers illness. He needed to make the long journey to see her, but a river stood in his way, and as you know, scopians cannot swim. He spotted a frog nearby and hoped to hitch a ride on the frogs back. The frog, when approached by the scorpian, quickly backed away, saying " Stay away! I know who you are and what you do " . The scorpian, begged the frog for a ride, promising not to sting him, " You see, I need to see my ailing mother, and without your help, I would not be able to help her, why would I sting you, since surely we both would drown and die? " . The nice frog, taking pity on the scorpian thought this made sense, and agreed to give the scorpian a ride. About half way across the river, the frog felt a searing pain in his side. He immediately knew what had happened and said to the scorpian in wonderment, as they both went to their mutual death, " but why did you sting me? " The scorpian pondered for a moment and answered. " I don't know, I guess that's just what I do " . But when I Googled it, I found this in Wikipedia: " The Scorpion and the Frog is a fable of unknown author, though often mis-attributed to Aesop.[1] The story is about a scorpion asking a frog to carry him across a river. The frog is afraid of being stung, but the scorpion reassures him that if it stung the frog, the frog would sink and the scorpion would drown as well. The frog then agrees; nevertheless, in mid-river, the scorpion stings him, dooming the two of them. When asked why, the scorpion explains, " I'm a scorpion; it's my nature. " Common variations include a turtle, fox, or farmer in place of the frog, or a snake in place of the scorpion. It is often quoted to illustrate the purportedly insuppressible nature of one's self at its base level. " Keep this in mind when you make your decision. Also, for the sake of your child, who is very young, I would think very hard about what it will do to her having at the very least, a super stressed and unhappy mommy. When they are so young, their whole being and who they think they are is reflected in their mother's face. This is very critical. I had a decision to make when nada was dying too and I chose to be with the living who were enriched and happy with my presence. Nada was full bore, sick and then and always Cluster B. Cluster B. Cluster B. A scorpion. Protect your family at all costs. Flowers in Oz ----- Original Message ----- Mozz - Sigh... It's a pipe dream. It's sweet, but as you say, " faulty " thinking. You want her to turn into the nice mom you wanted, as she lives her last days. You feel that having that extra help will make her satisfied, and that having her granddaughter will make her behave. Not gonna happen. Leopards do not change their spots just because they're old and sick. In fact, being ill makes them feel even more waif-like, even better able to justify dishing out the abuse. And since they can't yell at the doctor, can't yell at the hospice worker, guess who's going to get the brunt of the vitriol? - > > > > But I am pretty sure the request coming. Ugh. My husband and I have been > > talking about this nonstop, and we both feel like we'll probably say > > yes. I know this is crazy. I really feel like she can not be alone and > > although I pretty much hate her I don't want her to spend her final days > > alone except for some hired help. I am hoping to get more info today > > because Hospice is paying her a visit. I plan on getting the nurse's > > name from nada and talking to them directly so I can get the " real " > > information. > > My worst fear is that she will suck so much energy from me I won't have > > enough for my daughter. I must choose my baby 1st and foremost, I know > > that. I'm not sure how this is going to go down. I know I don't owe nada > > anything, but I do honestly feel like if I tell her no I will feel > > pretty bad about it later. I can just see her rotting away in the house > > all by herself. I feel sorry for her because she's so pathetic. After I > > talk to Hospice I will call her insurance and see how much they cover > > for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > ------------------------------------ Problems? Ask our friendly List Manager for help at @.... SEND HER ANY POSTS THAT CONCERN YOU; DO NOT Respond ON THE GROUP. To order the KO bible " Stop Walking on Eggshells, " call 888-35-SHELL () for your copy. We also refer to " Understanding the Borderline Mother " (Lawson) and " Surviving the Borderline Parent, " (Roth) which you can find at any bookstore. Welcome to the WTO community! From Randi Kreger, Owner BPDCentral, WTO Online Community and author SWOE and the SWOE Workbook. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Flowers: Another version of this cautionary tale is The Snake and The Maiden - the snake needs to be carried across the river, the maiden fears him but agrees out of sympathy, he bites her, and when she asks why he'd do that (when they are both going to drown) - he replies, " You knew what I was when you picked me up. " I always kept that line in mind when I was young and single, and trying to distinguish the good guys from the " snakes " ! (LOL - ah, those were the days...) > > > > > > > But I am pretty sure the request coming. Ugh. My husband and I have been > > > talking about this nonstop, and we both feel like we'll probably say > > > yes. I know this is crazy. I really feel like she can not be alone and > > > although I pretty much hate her I don't want her to spend her final days > > > alone except for some hired help. I am hoping to get more info today > > > because Hospice is paying her a visit. I plan on getting the nurse's > > > name from nada and talking to them directly so I can get the " real " > > > information. > > > My worst fear is that she will suck so much energy from me I won't have > > > enough for my daughter. I must choose my baby 1st and foremost, I know > > > that. I'm not sure how this is going to go down. I know I don't owe nada > > > anything, but I do honestly feel like if I tell her no I will feel > > > pretty bad about it later. I can just see her rotting away in the house > > > all by herself. I feel sorry for her because she's so pathetic. After I > > > talk to Hospice I will call her insurance and see how much they cover > > > for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > > > > > > > > ------------------------------------ > > Problems? Ask our friendly List Manager for help at > @... SEND HER ANY POSTS THAT CONCERN YOU; DO NOT Respond ON > THE GROUP. > > To order the KO bible " Stop Walking on Eggshells, " call 888-35-SHELL > () for your copy. We also refer to " Understanding the Borderline > Mother " (Lawson) and " Surviving the Borderline Parent, " (Roth) which you can > find at any bookstore. Welcome to the WTO community! > > From Randi Kreger, Owner BPDCentral, WTO Online Community and author SWOE > and the SWOE Workbook. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 We all have times that we think we can live under the same roof with our nadas. My husband and I recently looked at houses for sale. We saw a nice, big one (expensive) and I said... " maybe, my mother could live with us and we could afford it.. " . He looked at me funny but didn't respond. When we got to the car, I said " sometimes I have these fantasy ideas...when I mention the idea of my nada living with us, it is temporary insanity...just ignore it. " We both got a laugh. Bottom line: Don't do it!!! > > couldn't the nursing stuff all be done at nadas house with you coming to > cook/clean ?? and have hospice/some type of help stay with her 24/7 if need > be ?? I certainly wouldn't want my nada to move in with me under any > circumstance...I know how it would be...I was at nadas house during her > cancer treatments several years ago, and she was still a very nasty person > towards me...when my hose had bladder cancer, the U of I too a biopsy, and > said the horse had 6 weeks tops...she lived 1 year and 2 months!! > > > Jackie > > > > Is this faulty thinking? > What if nada moves in and like Annie and suggested, I have both > hospice and a care-taker come almost every day. They do all the nursing > stuff. I don't mind cooking for nada or cleaning her room since I would be > doing that anyway. Maybe nada will be in better spirits being around her > granddaughter. That seems to put her in a better frame of mind when I visit. > Is this a pipe dream? Maybe it wouldn't be so bad?? I have fallen in this > trap of thinking before. It's just that yesterday I had a little softening > of my heart for nada. I don't want her to die alone. She's incredibly > scared. I don't think she has longer than 6 months, but who knows. Could I > put up with it for that long? It's not very long in reality, but it could > feel like 30 years with nada. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 I would agree with others that you are falling into faulty thinking. Unless you have a caregiver in your house 24/7 the time will come, count on it, when you will have bathe her, empty her bedpans - can you face that? Think through what you'd really have to do with her in your house, what it would be like, especially if she lives longer than estimated as well - how your body feels as you think about it will tell you. That's a test I use sometimes to see my true feelings when the ideas of what I " should " do are so strong. That feeling like a black hole has begun to eat up my insides tells me it's a bad idea. You've got the option to set up some type of hospice arrangment so it'll be ready when the time comes and until that time let her stay in her city in her home with just part-time caregivers supporting her. There's more than one way to go about this...explore all your options. What you would have to give to meet her expectations, if even possible, would require sacrificing so much of your self and your ability to be fully present for you child and your husband - it just seems no win. In my own struggle with what to do with my nada as her health fails a few things guide me. One is I have to be able to live with myself, my decisions, after she's gone. The other is that I have to look at what I can realisticly do - not what she *wants*, not what others would approve of, but what I have the capacity to do without destroying myself and my life. It's a hard situation - wishing you strength and wisdom. > > > > I went to the wolf's den (nada's house) this weekend to drop off her living trust and get some of my things. I was going to get all of my things but my T said not to do that unless I am going NC because that would set nada off big time. It was an OK weekend because every time she tried to bait me I didn't take it- it was hard. At one point I caught her staring at me with such hostility that it took everything I had not to ask her what her problem is. Talking to her is so frustrating because for every " problem " she presents I offer a simple solution that she won't take. If there's isn't a problem you bet she'll make one up. I am so sick of her feeling victimized, so sick of her crying. The crying! Non stop crying! Every little thing is the end of the world. > > She made a scrapbook about herself and gave it to me this weekend. I didn't ask her to do this. On the 1st page it says, > > " To my daughter, > > Words are easy. Only the heart can convey the love, joy, happiness and pride I have for you. You will always be able to talk to me, Honey. Just feel me in your heart answering. Mommy " > > Excuse my language but WTF???? I felt sick and fuming mad after reading that. > > I have never been able to talk to her about anything! Every time I try she ignores me, gets defensive or hangs up on me. Even if it's not even about her she acts like I am accusing her of some shortcoming because *I* have a problem. I flipped through that scrapbook which contains pictures of her, letters she has written, a ticket for running a red light, report cards of hers- I mean why would I want that stuff? The pictures I can understand but a ticket? Anyway I flipped through that and felt nothing but ambivalence. At this point in time I feel no love towards her whatsoever. When I am at her house she wants me to lay down with her and read to her and I can barely do it. When she hugs me she won't let go until I detach myself. When she hugs me I go stiff- I can't help it. It's like my body is revolted by her touch. I cringe inwardly until I can get away from her. > > This bothers me, but I can't help it. > > I KNOW she's going to eventually ask me if she can move in. I am just waiting for it. Someone told me she said she wants to, but wants me to ask her. I practically BEGGED her to a few months ago. Then, recently I told her she could again and she reacted by cutting me out of her will because I will not move in with her. Shes now says she never said that, which is total BS. I don't know if she believes her own lie or is outright lying. Anyway there's no way I'm asking her to move in with me again. > > But I am pretty sure the request coming. Ugh. My husband and I have been talking about this nonstop, and we both feel like we'll probably say yes. I know this is crazy. I really feel like she can not be alone and although I pretty much hate her I don't want her to spend her final days alone except for some hired help. I am hoping to get more info today because Hospice is paying her a visit. I plan on getting the nurse's name from nada and talking to them directly so I can get the " real " information. > > My worst fear is that she will suck so much energy from me I won't have enough for my daughter. I must choose my baby 1st and foremost, I know that. I'm not sure how this is going to go down. I know I don't owe nada anything, but I do honestly feel like if I tell her no I will feel pretty bad about it later. I can just see her rotting away in the house all by herself. I feel sorry for her because she's so pathetic. After I talk to Hospice I will call her insurance and see how much they cover for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 ; (Love your nickname, by the way!) Oh wow, that's great, I love the line " You knew what I was when you picked me up. " Those two stories together really make a very powerful point. It also reminds me of the NFL coach, who, after his team lost to another, said, " They were who we thought they were " or something like that. My new slogans: Never share the same roof as nada. Nada doesn't live here. Nada nada. This is a no nada zone. Nada, you've used up your minutes. If I never live with you again, I will recover about two months after I'm dead. I lived with you for my first 18 years and that's enough. Flowers in Oz ----- Original Message ----- Flowers: Another version of this cautionary tale is The Snake and The Maiden - the snake needs to be carried across the river, the maiden fears him but agrees out of sympathy, he bites her, and when she asks why he'd do that (when they are both going to drown) - he replies, " You knew what I was when you picked me up. " I always kept that line in mind when I was young and single, and trying to distinguish the good guys from the " snakes " ! (LOL - ah, those were the days...) > > > > > But when I Googled it, I found this in Wikipedia: > " The Scorpion and the Frog is a fable of unknown author, though often > mis-attributed to Aesop.[1] The story is about a scorpion asking a frog to > carry him across a river. The frog is afraid of being stung, but the > scorpion reassures him that if it stung the frog, the frog would sink and > the scorpion would drown as well. The frog then agrees; nevertheless, in > mid-river, the scorpion stings him, dooming the two of them. When asked > why, > the scorpion explains, " I'm a scorpion; it's my nature. " > > Common variations include a turtle, fox, or farmer in place of the frog, > or > a snake in place of the scorpion. > > It is often quoted to illustrate the purportedly insuppressible nature of > one's self at its base level. " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Flowers - Why, thank you - and as to the slogans, don't forget the essential, " Never ride with Nada, and NEVER let your car get blocked in Nada's driveway! " - > > > > > > > > > But when I Googled it, I found this in Wikipedia: > > " The Scorpion and the Frog is a fable of unknown author, though often > > mis-attributed to Aesop.[1] The story is about a scorpion asking a frog to > > carry him across a river. The frog is afraid of being stung, but the > > scorpion reassures him that if it stung the frog, the frog would sink and > > the scorpion would drown as well. The frog then agrees; nevertheless, in > > mid-river, the scorpion stings him, dooming the two of them. When asked > > why, > > the scorpion explains, " I'm a scorpion; it's my nature. " > > > > Common variations include a turtle, fox, or farmer in place of the frog, > > or > > a snake in place of the scorpion. > > > > It is often quoted to illustrate the purportedly insuppressible nature of > > one's self at its base level. " > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 LOL, wow, yeah, never ride with nada, how true, " weaponizing the car " is a phrase (from a past thread) I'll never forget. Ha ha ha, where else but here would such a phrase be born. Okay, more slogans KOs! Flowers in Oz ----- Original Message ----- Flowers - Why, thank you - and as to the slogans, don't forget the essential, " Never ride with Nada, and NEVER let your car get blocked in Nada's driveway! " - > > > My new slogans: > > Never share the same roof as nada. > Nada doesn't live here. > Nada nada. > This is a no nada zone. > Nada, you've used up your minutes. > If I never live with you again, I will recover about two months after I'm > dead. > I lived with you for my first 18 years and that's enough. > > Flowers in Oz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 I think I was the one who wrote " weaponizing the car " ... Nada is famous for " car conversations " ... and if they don't go her way, she'll run off the road and scare the #$%@#$% out of you just to make her point then play " waif " as if the car suddenly developed a persona and DID IT TO HER. I could spend hours talking about these 'trips'... but why bother? lol LYnnette > > > > > > My new slogans: > > > > Never share the same roof as nada. > > Nada doesn't live here. > > Nada nada. > > This is a no nada zone. > > Nada, you've used up your minutes. > > If I never live with you again, I will recover about two months after I'm > > dead. > > I lived with you for my first 18 years and that's enough. > > > > Flowers in Oz > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 " And she said I didn't spend enough time just sitting with her. She said I was cold and callous. She said the " stress " of living with us was what caused her cancer. " That's the kind of crap my nada says now. Your email sent a chill up my spine because you are right- I can just see nada acting that way. I am so stressed about this- I am wound up like a spring. I had another mind-numbing and infuriating conversation with nada yesterday. I told her that I would have to move twice if she moved in- once to a house we can all fit into, and then out of it when she dies because we can't afford the rent. She said that wouldn't be an issue b/c she's leaving me money. I told her that she had told me she cut me out, which were her EXACT WORDS. She even said, " Don't expect a thing from me. " She flew into a rage stating how could I accuse her of saying that, she said no such thing, she would never do that I am her child, why would I upset her by saying that, blah blah blah. I mean she was sobbing and denying up and down what she said. Turning it around on me like I was the one who said something cruel. I am so sick of her turning stuff around on me. Anyway, I actually believe that she truly thinks she never said that because her usual M.O. is to change the subject or hang up when I confront her. I mean how sick is it that she believes her own lie? I got sucked into another talking in circles to a brick wall conversation. When I hung up I was so mad and frustrated. > > > > > > I went to the wolf's den (nada's house) this weekend to drop off her living trust and get some of my things. I was going to get all of my things but my T said not to do that unless I am going NC because that would set nada off big time. It was an OK weekend because every time she tried to bait me I didn't take it- it was hard. At one point I caught her staring at me with such hostility that it took everything I had not to ask her what her problem is. Talking to her is so frustrating because for every " problem " she presents I offer a simple solution that she won't take. If there's isn't a problem you bet she'll make one up. I am so sick of her feeling victimized, so sick of her crying. The crying! Non stop crying! Every little thing is the end of the world. > > > She made a scrapbook about herself and gave it to me this weekend. I didn't ask her to do this. On the 1st page it says, > > > " To my daughter, > > > Words are easy. Only the heart can convey the love, joy, happiness and pride I have for you. You will always be able to talk to me, Honey. Just feel me in your heart answering. Mommy " > > > Excuse my language but WTF???? I felt sick and fuming mad after reading that. > > > I have never been able to talk to her about anything! Every time I try she ignores me, gets defensive or hangs up on me. Even if it's not even about her she acts like I am accusing her of some shortcoming because *I* have a problem. I flipped through that scrapbook which contains pictures of her, letters she has written, a ticket for running a red light, report cards of hers- I mean why would I want that stuff? The pictures I can understand but a ticket? Anyway I flipped through that and felt nothing but ambivalence. At this point in time I feel no love towards her whatsoever. When I am at her house she wants me to lay down with her and read to her and I can barely do it. When she hugs me she won't let go until I detach myself. When she hugs me I go stiff- I can't help it. It's like my body is revolted by her touch. I cringe inwardly until I can get away from her. > > > This bothers me, but I can't help it. > > > I KNOW she's going to eventually ask me if she can move in. I am just waiting for it. Someone told me she said she wants to, but wants me to ask her. I practically BEGGED her to a few months ago. Then, recently I told her she could again and she reacted by cutting me out of her will because I will not move in with her. Shes now says she never said that, which is total BS. I don't know if she believes her own lie or is outright lying. Anyway there's no way I'm asking her to move in with me again. > > > But I am pretty sure the request coming. Ugh. My husband and I have been talking about this nonstop, and we both feel like we'll probably say yes. I know this is crazy. I really feel like she can not be alone and although I pretty much hate her I don't want her to spend her final days alone except for some hired help. I am hoping to get more info today because Hospice is paying her a visit. I plan on getting the nurse's name from nada and talking to them directly so I can get the " real " information. > > > My worst fear is that she will suck so much energy from me I won't have enough for my daughter. I must choose my baby 1st and foremost, I know that. I'm not sure how this is going to go down. I know I don't owe nada anything, but I do honestly feel like if I tell her no I will feel pretty bad about it later. I can just see her rotting away in the house all by herself. I feel sorry for her because she's so pathetic. After I talk to Hospice I will call her insurance and see how much they cover for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 I know you are right, but how am I going to face the onslaught I am going to get from other people, esp. nada about this? I know I sound weak saying that, but I am really worried about this. Nobody (other than the people on this site, my T and my husband) understands! I feel like I am backed into a corner and trying to fight my way out. Nada needs me so much I am suffocating. If she tells me one more time she needs me to be encouraging or nurturing or loving and nice to her I just might snap. No person should depend on their kid for their entire emotional support. It's just not fair, and I am sick of the burden. Her neediness disgusts me. It's so bad that when I look in the mirror and see some of her features in my face it makes me sick. The worst part is that she thinks she is the best mother that ever lived and can not see even one tiny fault. She's not sick enough to be put in a facility, but she's not well enough to live alone. What am I going to do? Her insurance pays for 100 home visits a year- that's only 3 months. Her insurance does not cover a skilled nursing facility. I am not sure if she has medicare- they might. I have to find out. I am almost in a panic about this. I just feel so tense. > > > > > > > But I am pretty sure the request coming. Ugh. My husband and I have been > > > talking about this nonstop, and we both feel like we'll probably say > > > yes. I know this is crazy. I really feel like she can not be alone and > > > although I pretty much hate her I don't want her to spend her final days > > > alone except for some hired help. I am hoping to get more info today > > > because Hospice is paying her a visit. I plan on getting the nurse's > > > name from nada and talking to them directly so I can get the " real " > > > information. > > > My worst fear is that she will suck so much energy from me I won't have > > > enough for my daughter. I must choose my baby 1st and foremost, I know > > > that. I'm not sure how this is going to go down. I know I don't owe nada > > > anything, but I do honestly feel like if I tell her no I will feel > > > pretty bad about it later. I can just see her rotting away in the house > > > all by herself. I feel sorry for her because she's so pathetic. After I > > > talk to Hospice I will call her insurance and see how much they cover > > > for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > > > > > > > > ------------------------------------ > > Problems? Ask our friendly List Manager for help at > @... SEND HER ANY POSTS THAT CONCERN YOU; DO NOT Respond ON > THE GROUP. > > To order the KO bible " Stop Walking on Eggshells, " call 888-35-SHELL > () for your copy. We also refer to " Understanding the Borderline > Mother " (Lawson) and " Surviving the Borderline Parent, " (Roth) which you can > find at any bookstore. Welcome to the WTO community! > > From Randi Kreger, Owner BPDCentral, WTO Online Community and author SWOE > and the SWOE Workbook. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 Its a no-win situation. Nada says something hateful (or weird, confusing or illogical.) You challenge her, telling her that what she said hurt your feelings (or contradicts something she said earlier, etc.) Nada denies having said such a thing at all and accuses *you* of lying, twisting her words, being hateful and vicious, etc. You can't have a rational conversation with someone who is irrational, its just not possible. If the person you're having a conversation with will not even admit that they said XYZ, then, you're basically checkmated. All the rules are thrown out the window. There is no basis on which to have a conversation. Its the very definition of mental illness, and yes, it does make you feel like banging your head against a wall. (I know; my nada's weapons of choice are denial and blame also.) My advice would be to do what works best *for you and your husband and your child* and just let nada deal with it. You already know that your nada will not be happy with *any* care-giving arrangement and will blame you for her unhappiness under any and all circumstances. Checkmate. -Annie > > > > > > > > I went to the wolf's den (nada's house) this weekend to drop off her living trust and get some of my things. I was going to get all of my things but my T said not to do that unless I am going NC because that would set nada off big time. It was an OK weekend because every time she tried to bait me I didn't take it- it was hard. At one point I caught her staring at me with such hostility that it took everything I had not to ask her what her problem is. Talking to her is so frustrating because for every " problem " she presents I offer a simple solution that she won't take. If there's isn't a problem you bet she'll make one up. I am so sick of her feeling victimized, so sick of her crying. The crying! Non stop crying! Every little thing is the end of the world. > > > > She made a scrapbook about herself and gave it to me this weekend. I didn't ask her to do this. On the 1st page it says, > > > > " To my daughter, > > > > Words are easy. Only the heart can convey the love, joy, happiness and pride I have for you. You will always be able to talk to me, Honey. Just feel me in your heart answering. Mommy " > > > > Excuse my language but WTF???? I felt sick and fuming mad after reading that. > > > > I have never been able to talk to her about anything! Every time I try she ignores me, gets defensive or hangs up on me. Even if it's not even about her she acts like I am accusing her of some shortcoming because *I* have a problem. I flipped through that scrapbook which contains pictures of her, letters she has written, a ticket for running a red light, report cards of hers- I mean why would I want that stuff? The pictures I can understand but a ticket? Anyway I flipped through that and felt nothing but ambivalence. At this point in time I feel no love towards her whatsoever. When I am at her house she wants me to lay down with her and read to her and I can barely do it. When she hugs me she won't let go until I detach myself. When she hugs me I go stiff- I can't help it. It's like my body is revolted by her touch. I cringe inwardly until I can get away from her. > > > > This bothers me, but I can't help it. > > > > I KNOW she's going to eventually ask me if she can move in. I am just waiting for it. Someone told me she said she wants to, but wants me to ask her. I practically BEGGED her to a few months ago. Then, recently I told her she could again and she reacted by cutting me out of her will because I will not move in with her. Shes now says she never said that, which is total BS. I don't know if she believes her own lie or is outright lying. Anyway there's no way I'm asking her to move in with me again. > > > > But I am pretty sure the request coming. Ugh. My husband and I have been talking about this nonstop, and we both feel like we'll probably say yes. I know this is crazy. I really feel like she can not be alone and although I pretty much hate her I don't want her to spend her final days alone except for some hired help. I am hoping to get more info today because Hospice is paying her a visit. I plan on getting the nurse's name from nada and talking to them directly so I can get the " real " information. > > > > My worst fear is that she will suck so much energy from me I won't have enough for my daughter. I must choose my baby 1st and foremost, I know that. I'm not sure how this is going to go down. I know I don't owe nada anything, but I do honestly feel like if I tell her no I will feel pretty bad about it later. I can just see her rotting away in the house all by herself. I feel sorry for her because she's so pathetic. After I talk to Hospice I will call her insurance and see how much they cover for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 I've gone through investigating this stuff in the last few years, so for what it's worth... You are most likely going to go through a lot of her savings on care costs - it's important to bite that bullet early. That means her cash savings, then a reverse mortgage on her house, after all her assets are gone the nursing home she's in will switch her over to Medicaid. It's important to get her into a good nursing home that will support the switch to Medicaid when the time comes. This is how it goes down financially with end of life care for many people in this country unfortunately leaving the descendents with no inheritance at all. Still going about it that way she could pay out of pocket to stay in her home as long as possible with you doing visits to support her, in person and by phone. Then if she gets worse off to the nursing home she goes. That's just one scenario - please know I'm not saying this is what you should do, just painting out one option. It doesn't answer the gut wrenching part of how to deal with the backlash you'll get if you did this. I'm always amazed at the strength of so many on this board to take the steps that will destroy the last bit of normal relationship they've got. Usually it seems there's not much to lose at that point, but maybe you feel you do have a lot to lose still? What would your nada do if you refused to care for her in house? What do you believe the imapact on you would be? Hugs, J > > > > > > > > > > But I am pretty sure the request coming. Ugh. My husband and I have been > > > > talking about this nonstop, and we both feel like we'll probably say > > > > yes. I know this is crazy. I really feel like she can not be alone and > > > > although I pretty much hate her I don't want her to spend her final days > > > > alone except for some hired help. I am hoping to get more info today > > > > because Hospice is paying her a visit. I plan on getting the nurse's > > > > name from nada and talking to them directly so I can get the " real " > > > > information. > > > > My worst fear is that she will suck so much energy from me I won't have > > > > enough for my daughter. I must choose my baby 1st and foremost, I know > > > > that. I'm not sure how this is going to go down. I know I don't owe nada > > > > anything, but I do honestly feel like if I tell her no I will feel > > > > pretty bad about it later. I can just see her rotting away in the house > > > > all by herself. I feel sorry for her because she's so pathetic. After I > > > > talk to Hospice I will call her insurance and see how much they cover > > > > for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Problems? Ask our friendly List Manager for help at > > @ SEND HER ANY POSTS THAT CONCERN YOU; DO NOT Respond ON > > THE GROUP. > > > > To order the KO bible " Stop Walking on Eggshells, " call 888-35-SHELL > > () for your copy. We also refer to " Understanding the Borderline > > Mother " (Lawson) and " Surviving the Borderline Parent, " (Roth) which you can > > find at any bookstore. Welcome to the WTO community! > > > > From Randi Kreger, Owner BPDCentral, WTO Online Community and author SWOE > > and the SWOE Workbook. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 Mozz,I'm really sorry you're in such a tight spot with your nada.It sounds incredibly stress making.It's that much harder to make decisions when someone (esp a parent) is battering you with their neediness,not to mention having mental illness in the mix that thwarts any real communication. I don't know what state you live and what your state's medicare protocol is.Is your nada above the age of 65? I believe that is the age from which medicare will cover the expense of skilled nursing home care if the person's insurance doesn't cover it--something that happens more often than people realize until they actually need care.Having said that,if you haven't done so already,I would suggest contacting your county's relevant office of senior services to see if they can provide you with a list of facilities that accept medicare coverage for those who are eligible and to also inquire about any facilities that offer terminal hospice care for those who may not qualify for full medicare coverage because some do.You will need to have nada placed on a waiting list or have her on record as having applied for a bed but this doesn't oblige you to actually place her there if you choose not to--what that does is ensure that her case is in the facility's system so that when the time comes you don't have to start from scratch and wait for a place to take her.I'd recommend placing her on the waiting lists of several facilities. If her insurance does cover three months of in home care that gives you time to make decisions. Does anyone have any kind of living will authority over nada's medical care? As in a notarized document that you have yourself in your possesion,not a copy? That authorizes decisions to be made on her behalf when she is unable to do so,that she signed? I think that you need to consult with an elder law attorney if you haven't done so already.It's clear that your nada is not capable of making reasonable and responsible choices about her own care.An attorney could guide you through what would need to be done to have her declared indigent,which would involve selling all of her assets,and would immediately qualify her (once the process is complete) for an emergency (and if necessary longer term rather than acute care) placement in practically any skilled care facility.The other route would be to have her declared mentally incompetent,as I'm sure you know.I'd bet that any of the nurses or home health aides that come into her home will see for themselves that she is indeed imcompetent.An attorney (read: an objective third party who won't fight with you or mess with your head) could be appointed guardian of her estate and attend to the details of how her assets could be best used (or liquidated and transferred elsewhere out of her name) to pay for her care.You would probably have to have her declared incompetent before she can be declared indigent unless your state has some power of attorney law that can be passed to the nearest living relative (you) in the absence of the individual still having a living spouse,but an attorney could tell you.Are you mentioned as the executor of her will in any legal document and do you have a copy? You still have time to put in place some alternatives to having her live with you.Maybe finding out more about what your options are will help you to make a decision. Take care, > > > > > > > > > > But I am pretty sure the request coming. Ugh. My husband and I have been > > > > talking about this nonstop, and we both feel like we'll probably say > > > > yes. I know this is crazy. I really feel like she can not be alone and > > > > although I pretty much hate her I don't want her to spend her final days > > > > alone except for some hired help. I am hoping to get more info today > > > > because Hospice is paying her a visit. I plan on getting the nurse's > > > > name from nada and talking to them directly so I can get the " real " > > > > information. > > > > My worst fear is that she will suck so much energy from me I won't have > > > > enough for my daughter. I must choose my baby 1st and foremost, I know > > > > that. I'm not sure how this is going to go down. I know I don't owe nada > > > > anything, but I do honestly feel like if I tell her no I will feel > > > > pretty bad about it later. I can just see her rotting away in the house > > > > all by herself. I feel sorry for her because she's so pathetic. After I > > > > talk to Hospice I will call her insurance and see how much they cover > > > > for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Problems? Ask our friendly List Manager for help at > > @ SEND HER ANY POSTS THAT CONCERN YOU; DO NOT Respond ON > > THE GROUP. > > > > To order the KO bible " Stop Walking on Eggshells, " call 888-35-SHELL > > () for your copy. We also refer to " Understanding the Borderline > > Mother " (Lawson) and " Surviving the Borderline Parent, " (Roth) which you can > > find at any bookstore. Welcome to the WTO community! > > > > From Randi Kreger, Owner BPDCentral, WTO Online Community and author SWOE > > and the SWOE Workbook. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 You tell that onslaught that you have a family that needs you and you can't do it, period. You don't need to defend yourself beyond that. You and your husband decided you couldn't do it - and if they continue, tell them you schedule time to defend yourself on Saturday nights at 10:30 and they can call you then. Then turn off the phone. You have to consider your children. Your nada is really a terrorist digging in for the last big bomb blast of her life. Think about it, your husband, T and this site's members understand. No one else could unless they were in this situation. You can't sacrifice your child because of what other people are thinking or might think. You also have PTSD and even before she's even in your home you're being taken apart and weakened beyone the pale. You should not to be expected to do this, nada is not your child. And you owe her nothing. You have living, loving, needy family who critically need you. Don't let nada take you away from them. What kind of mother was she to you as a child? (No need to answer, we all know.) I rest my case. Flowers in Oz Re: Back from hades I know you are right, but how am I going to face the onslaught I am going to get from other people, esp. nada about this? I know I sound weak saying that, but I am really worried about this. Nobody (other than the people on this site, my T and my husband) understands! I feel like I am backed into a corner and trying to fight my way out. Nada needs me so much I am suffocating. If she tells me one more time she needs me to be encouraging or nurturing or loving and nice to her I just might snap. No person should depend on their kid for their entire emotional support. It's just not fair, and I am sick of the burden. Her neediness disgusts me. It's so bad that when I look in the mirror and see some of her features in my face it makes me sick. The worst part is that she thinks she is the best mother that ever lived and can not see even one tiny fault. She's not sick enough to be put in a facility, but she's not well enough to live alone. What am I going to do? Her insurance pays for 100 home visits a year- that's only 3 months. Her insurance does not cover a skilled nursing facility. I am not sure if she has medicare- they might. I have to find out. I am almost in a panic about this. I just feel so tense. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 Hi Flowers, Thank you for the advice- much appreciated. I don't need to defend myself, you are right. I need to get over feeling like I need to. I am curious about you mentioning PTSD. Do you think I have that? I was taught that PTSD involved flashbacks, which I don't have. But I wanted to ask why you mentioned that in case I am missing something... > > > > You tell that onslaught that you have a family that needs you and you can't > do it, period. You don't need to defend yourself beyond that. You and your > husband decided you couldn't do it - and if they continue, tell them you > schedule time to defend yourself on Saturday nights at 10:30 and they can > call you then. Then turn off the phone. You have to consider your children. > Your nada is really a terrorist digging in for the last big bomb blast of > her life. > > Think about it, your husband, T and this site's members understand. No one > else could unless they were in this situation. You can't sacrifice your > child because of what other people are thinking or might think. You also > have PTSD and even before she's even in your home you're being taken apart > and weakened beyone the pale. You should not to be expected to do this, nada > is not your child. And you owe her nothing. You have living, loving, needy > family who critically need you. Don't let nada take you away from them. What > kind of mother was she to you as a child? (No need to answer, we all know.) > I rest my case. > > Flowers in Oz > > > Re: Back from hades > > > I know you are right, but how am I going to face the onslaught I am going to > get from other people, esp. nada about this? I know I sound weak saying > that, but I am really worried about this. Nobody (other than the people on > this site, my T and my husband) understands! I feel like I am backed into a > corner and trying to fight my way out. Nada needs me so much I am > suffocating. If she tells me one more time she needs me to be encouraging or > nurturing or loving and nice to her I just might snap. No person should > depend on their kid for their entire emotional support. It's just not fair, > and I am sick of the burden. Her neediness disgusts me. It's so bad that > when I look in the mirror and see some of her features in my face it makes > me sick. The worst part is that she thinks she is the best mother that ever > lived and can not see even one tiny fault. > She's not sick enough to be put in a facility, but she's not well enough to > live alone. What am I going to do? Her insurance pays for 100 home visits a > year- that's only 3 months. Her insurance does not cover a skilled nursing > facility. I am not sure if she has medicare- they might. I have to find out. > I am almost in a panic about this. I just feel so tense. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 One of the things I am concerned about too is nada's neighbors. They have been taking my mom to her appointments and helping out. If I don't let nada move in they will continue to do this and they are both elderly. I know it's not my problem, but I feel bad for them taking on some of nada's burden. She doesn't make it easy on them either. They are both really nice ladies. Should I not even worry about them? They are grown women and if it's too much for them let it be up to them to stop helping? I feel like once nada is gone I will have basically no contact with her friends so I guess it's not a big deal if they think poorly of me. I guess I really don't have much to lose. > > > > > > > > > > > > > But I am pretty sure the request coming. Ugh. My husband and I have been > > > > > talking about this nonstop, and we both feel like we'll probably say > > > > > yes. I know this is crazy. I really feel like she can not be alone and > > > > > although I pretty much hate her I don't want her to spend her final days > > > > > alone except for some hired help. I am hoping to get more info today > > > > > because Hospice is paying her a visit. I plan on getting the nurse's > > > > > name from nada and talking to them directly so I can get the " real " > > > > > information. > > > > > My worst fear is that she will suck so much energy from me I won't have > > > > > enough for my daughter. I must choose my baby 1st and foremost, I know > > > > > that. I'm not sure how this is going to go down. I know I don't owe nada > > > > > anything, but I do honestly feel like if I tell her no I will feel > > > > > pretty bad about it later. I can just see her rotting away in the house > > > > > all by herself. I feel sorry for her because she's so pathetic. After I > > > > > talk to Hospice I will call her insurance and see how much they cover > > > > > for in-home care. Either way I REFUSE to be her caretaker. I refuse. > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > Problems? Ask our friendly List Manager for help at > > > @ SEND HER ANY POSTS THAT CONCERN YOU; DO NOT Respond ON > > > THE GROUP. > > > > > > To order the KO bible " Stop Walking on Eggshells, " call 888-35-SHELL > > > () for your copy. We also refer to " Understanding the Borderline > > > Mother " (Lawson) and " Surviving the Borderline Parent, " (Roth) which you can > > > find at any bookstore. Welcome to the WTO community! > > > > > > From Randi Kreger, Owner BPDCentral, WTO Online Community and author SWOE > > > and the SWOE Workbook. Quote Link to comment Share on other sites More sharing options...
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