- Re:

[Guest guest]

Lets just skip the BS and go straight to the scource, e-mail me, The

endo in Chicago is my families doctor, my family has RTH, I will tell

you how to get in contact with them. Just real quick I am curious if

they ever ran a TT4 on him with those TSH's? His TSH might not be

inapporiate at all, I was just reading yesterday, I will see if I can

find it again, that premeies will develop binding protein problems

right around 's age. When babies are born, not premies, they

have very high thyroid hormone binding proteins, premies do not and

this stage happens later in their life and usually causes problems.

I will put you in touch with Chicago endo's, they are very good and

usully only see the rareist of the rare thyroid problems, I bet they

would love to see him.

> HAHAHAHAHA - okay - sorry - short but full case report on .

>

> 7 years old - born 15 weeks premature in Feb 98 weighing 1 pound 6

ounces

> (650 grams) - 81 days NICU - hernia surgery at 6 weeks - 1 year on

home

> oxygen - multiple pneumonias - dx'd with Bronchopulmonary

Dysplasia /

> Chronic Lung Disease & pinhole sized Atrial Septal Defect (hole in

heart) &

> grade 3 Retinopathy of Prematurity (reached grade 4 then self-

resolved)

>

> early 2001 - Sept 2004 was pretty good - basic colds, occasional

ear

> infection, cold sores, etc - dx'd with ADHD in early 2004 (after

more than a

> year of crying over being unable to deal with his bouncing off the

walls) &

> started on Adderall XR

>

> Sept 04 - rt lung collapsed - 4 days in hospital w/ chest tube &

water seal

>

> Oct 04 - rt lung collapsed - 16 days in w/ chest tube & water seal -

> required Pleurodesis to repair (surgery to make lung stick to chest

wall) -

> echo done prior to surgery revealed " pinhole " ASD was now 6mm X 8mm.

>

> Dec 04 - visit to pediatric cardiologist to discuss repair of ASD -

> cardiologists noticed 's thyroid was " fairly prominent " and

sent us to

> lab - called next day with news that he's hypoT - TSH 9.79 - fT4

1.33

>

> Subsequent labs have been as follows:

>

> 1/20 - TSH 63.4 . . . fT4 0.94 (first endo appt on 1/27 - began

50mcg

> levothyroxine on 1/28)

> 2/16 - TSH 16.4 . . . fT4 1.13

> 3/02 - TSH 9.08 . . . fT4 1.84

> 4/13 - TSH 9.50 . . . fT4 1.86 . . . fT3 3.3 (second endo appt on

4/20 -

> upped to 75mcg)

>

> Endo said at first appointment he possibly has Hashi's (antibodies

test was

> <1.5, but doc said that doesn't necessarily mean it's NOT - we have

to watch

> HIM, not just the numbers).

>

> Second appointment he also said he may have Thyroid Hormone

resistance, due

> to the odd lab numbers. He had 3 patients (a father and his 2

sons) who had

> the same type of odd numbers (high TSH & high fT4) and he called in

another

> endo from Chicago to help him w/ it and it turned out to be hormone

> resistance. Ended up that in order to get their TSH's down to

decent levels

> AND clear up their symptoms, their fT4's had to be much higher

than " normal

> range " .

>

> He's still tired, has very dry hair, runs a fever the next day if

he puts in

> a full day of school, has constipation, abdominal pain (past 2

months or

> so), lower extremity muscle & joint pain, definite cold

intolerance, low

> body temp, irritability, goiter. (The doc yesterday noticed that

there was

> mention made in his record about his having narrowing of the

trachea. I

> want to mention this to his endo, as the only thing that makes ANY

sense

> there is the goiter, and gives credence to his complaining about

his

> Adderall getting stuck in his throat so he won't take it unless I

force him

> to.)

>

> Meds: Adderall XR 10mg, Levothyroxine 75mcg, Advair 100/50 (twice

daily),

> Nasonex (once daily), Glycolax, Albuterol (as needed), Acyclovir

(as

> needed), Ex-Lax (as needed), Carnation Instant Breakfast daily,

multivitamin

> daily

>

> DX's: Chronic Lung Disease/Asthma, ADHD, Recurrent Spontaneous

> Pneumothorax, Atrial Septal Defect, Hypothyroidism with Goiter

>

> And that's pretty close to as short as I can make it - LoL. I

don't know if

> I left anything out or not. If you have questions about anything,

let me

> know. I'll answer whatever.

>

> Ami