Re: Feel like I have Alzheimer's..

[Guest guest]

Low low low thyroid hormone. Waaaaaayyyy too much stimulation from the pituitary (TSH). You are hypo hypo hypo. Even a 5.5 TSH is way too high for most people. That's where I was kept for almost 10 long yrs, and I was sick sick sick ALL the time.

Re: Feel like I have Alzheimer's..

I agree....I don't mean to sound like a *spaz*....just that an extra month wasted is something I dont' take lightly anymore! If they can test me at 4-6 weeks and make whatever adjustments they need to that may leave me feeling at all better by the time that 8 week mark rolls around, then that's what I want to do.

Besides, if i'm going to call and piss off the doc Tuesday morning I may as well go all the way.

Thank you for telling me about NOT taking the meds the day of a blood draw. I had no idea.

You know, when I first got my numers from the initial blood test, I think I posted them, but if I got replies, I missed them or something. I was just curious, if I were to post them again, with your experience can you offer some insight as to how long you think this mnay have been going on for me, how BAD it really is, and in comparison to others numbers what can I expect from them? And anything else you think I should know but can't think to ask right now?

I have here.....

Free t4= 0.79 theres a reference number next to that of 0.8-1.8

then my TSH serum was 17.33. there's nothing written on this sheet as to the range but I remember the nurse who called me said the high should have been 5.5.

That's all that I have in that certain column. Anything else I need to look out for?

Thanks for listening, I hope i'm making some small amount of sense!

Ayla (who does an awful LOT of posting of things as they fall out of her brain as well!!)

[Guest guest]

You remind me of one of my docs.... I have such excruciating pain in my foot that I've been limping for weeks and finally collapse at work when my good leg gives out from muscle failure....

He has me take off my shoes.. pokes the bottom of my foot, pulls it this way and that way to see how loud I can scream and then gives me this little plastic cup to put in my shoe 'to protect my heel', a note to give to my boss so that I don't have to walk at work for two weeks and tells me to take an Ibuprophen every four hours so it won't hurt so bad.

I spent the next three years needing crutches to walk, bought special padded shoes AND put three paded inserts in those shoes AND took Ibuprophen by the handfuls to dull the pain, not only in my heel, but from the awkward way I had to walk with the crutches and the stress that it put on my good leg, tendons in both legs, back and hips. And I won't even talk about my arm pits... or the shit I got on the bus going to and from work from the guy that said I was only bringing crutches along so that someone would give me their seat... One day everyone decided he was right and no one gave me a seat... I tried to make it the 30 minutes to down town... trying to balance on the crutches and hang on at the same time.... I didn't make it.. the good leg gave out when we hit a bump and down I went...

Another time a bus driver asked me to get off the bus cuz I had stumbled so badly trying to climb up the stairs that he thought I was drunk... when he found out it was because of my foot and that I was all worn out from trying to walk he apologized and we ended up gabbing until I had to transfer...

.... and remember... all this foot trouble went away in just a few months after starting on an OTC grade of natural thyroid....

Some docs should be ....

..... treated by themselves!!!!!

Topper ()

On Mon, 30 May 2005 20:30:51 -0500 " " writes:

Good gosh, I would NOT want to be treated by this doc in an ER! Can you see it? Scenario: Patient is in respiratory distress and is turning blue on lips and fingers. Doc says "Cut a hole in her trach and that'll solve the problem." Better yet: Patient may have a broken bone because leg is shaped funny. Doc says "No xray, straighten out leg and send home with narcotic pain killer." Sheesh!!!

[Guest guest]

Take a notebook to the doc... we all should.... on it have your questions all written out, with spaces between to write the answers.... Write down everything he says... or bring a tape recorder.... don't worry about spelling.. just scribble it all down as best you can.. we'll help you de cypher later....

That way you won't miss things, or forget what he says... And it helps you keep better control of your thoughts and less easily intimidated when he takes out the chart and starts writing down things that YOU say....

.... and I just love how intimidated they look when you open up your notebook and then read off the first question......

I've seen a couple go white. They don't like being tested any more than the rest of us.....

On Mon, 30 May 2005 20:52:01 -0700 (PDT) ayla allan writes:

, thank you! I have made a special folder to save all of this groups emails to. I don't know what it is, I used to be such a great 'debater' when it came to know it all doctors! LOL It was almost a sport for me to catch them at their own stupidity. But lately, when i'm thinking about all the things I want to say to them, or am quietly discussing them online, I am clearheaded and on top of things. The minute that doctor opens his mouth and starts babbling away, I can just *feel* my brain start to swim and I cant think of a single intelligent thing to say. It's terrible. I feel so stupid sometimes... BUT I'm finding keeping notes and talking it over is helping me alot even so far, so I thank you all, who have taken time to repsond to me! I truly appreciate it!!Thanks!Ayla

[Guest guest]

the new meaning of Dr heal thyself...or I was thinking less kind words!

Re: Feel like I have Alzheimer's..

You remind me of one of my docs.... I have such excruciating pain in my foot that I've been limping for weeks and finally collapse at work when my good leg gives out from muscle failure....

He has me take off my shoes.. pokes the bottom of my foot, pulls it this way and that way to see how loud I can scream and then gives me this little plastic cup to put in my shoe 'to protect my heel', a note to give to my boss so that I don't have to walk at work for two weeks and tells me to take an Ibuprophen every four hours so it won't hurt so bad.

I spent the next three years needing crutches to walk, bought special padded shoes AND put three paded inserts in those shoes AND took Ibuprophen by the handfuls to dull the pain, not only in my heel, but from the awkward way I had to walk with the crutches and the stress that it put on my good leg, tendons in both legs, back and hips. And I won't even talk about my arm pits... or the shit I got on the bus going to and from work from the guy that said I was only bringing crutches along so that someone would give me their seat... One day everyone decided he was right and no one gave me a seat... I tried to make it the 30 minutes to down town... trying to balance on the crutches and hang on at the same time.... I didn't make it.. the good leg gave out when we hit a bump and down I went...

Another time a bus driver asked me to get off the bus cuz I had stumbled so badly trying to climb up the stairs that he thought I was drunk... when he found out it was because of my foot and that I was all worn out from trying to walk he apologized and we ended up gabbing until I had to transfer...

.... and remember... all this foot trouble went away in just a few months after starting on an OTC grade of natural thyroid....

Some docs should be ....

..... treated by themselves!!!!!

Topper ()

On Mon, 30 May 2005 20:30:51 -0500 " " writes:

Good gosh, I would NOT want to be treated by this doc in an ER! Can you see it? Scenario: Patient is in respiratory distress and is turning blue on lips and fingers. Doc says "Cut a hole in her trach and that'll solve the problem." Better yet: Patient may have a broken bone because leg is shaped funny. Doc says "No xray, straighten out leg and send home with narcotic pain killer." Sheesh!!!

[Guest guest]

Wow, . 10 years.......that's a long time to feel this way. I really think mine may have started *around* 5-6-7 years ago something around there. I know I had my first two children so easily. Actually got pregnant on the pill with the first (oopsie hehe) the second baby, we talked about it in January and were preggo by Feb. When the time came that we decided to try for #3 I went of the pill then found out I had "unexplained infertility" for the next 5 years. No one knows how or why but my miracle baby made his appearance Feb 2004 after alllll that time trying. (pictures can be found in the photo section ) He's our little angel.

Can I ask what you all do for general *pain*? At this point and for the past year or so, I find myself hoarding up the tylenol 3's the doctor gives me for migraines and I use them on days when I know I will need to be on my feet for a long time, and need my feet and back to hold up for me. I feel like too big if a baby going to the doc and saying "my feet huuuuuurt can I have pain pills?" But they DO hurt they really do!!

Ayla wrote:

Low low low thyroid hormone. Waaaaaayyyy too much stimulation from the pituitary (TSH). You are hypo hypo hypo. Even a 5.5 TSH is way too high for most people. That's where I was kept for almost 10 long yrs, and I was sick sick sick ALL the time.

Re: Feel like I have Alzheimer's..

I agree....I don't mean to sound like a *spaz*....just that an extra month wasted is something I dont' take lightly anymore! If they can test me at 4-6 weeks and make whatever adjustments they need to that may leave me feeling at all better by the time that 8 week mark rolls around, then that's what I want to do.

Besides, if i'm going to call and piss off the doc Tuesday morning I may as well go all the way.

Thank you for telling me about NOT taking the meds the day of a blood draw. I had no idea.

You know, when I first got my numers from the initial blood test, I think I posted them, but if I got replies, I missed them or something. I was just curious, if I were to post them again, with your experience can you offer some insight as to how long you think this mnay have been going on for me, how BAD it really is, and in comparison to others numbers what can I expect from them? And anything else you think I should know but can't think to ask right now?

I have here.....

Free t4= 0.79 theres a reference number next to that of 0.8-1.8

then my TSH serum was 17.33. there's nothing written on this sheet as to the range but I remember the nurse who called me said the high should have been 5.5.

That's all that I have in that certain column. Anything else I need to look out for?

Thanks for listening, I hope i'm making some small amount of sense!

Ayla (who does an awful LOT of posting of things as they fall out of her brain as well!!)__________________________________________________

[Guest guest]

replying to my own posts again....in case that whole thing seemed entirely out of thin air, LOL The reason I brought ALL that up was that in retrospect I believe that's when the thyroid problems started for me. I got so lost in chattering that I forgot I was trying to make a point hehe. That's also around the time my weight started creeping up too.

ayla allan wrote:

Wow, . 10 years.......that's a long time to feel this way. I really think mine may have started *around* 5-6-7 years ago something around there. I know I had my first two children so easily. Actually got pregnant on the pill with the first (oopsie hehe) the second baby, we talked about it in January and were preggo by Feb. When the time came that we decided to try for #3 I went of the pill then found out I had "unexplained infertility" for the next 5 years. No one knows how or why but my miracle baby made his appearance Feb 2004 after alllll that time trying. (pictures can be found in the photo section ) He's our little angel.

Can I ask what you all do for general *pain*? At this point and for the past year or so, I find myself hoarding up the tylenol 3's the doctor gives me for migraines and I use them on days when I know I will need to be on my feet for a long time, and need my feet and back to hold up for me. I feel like too big if a baby going to the doc and saying "my feet huuuuuurt can I have pain pills?" But they DO hurt they really do!!

Ayla wrote:

Low low low thyroid hormone. Waaaaaayyyy too much stimulation from the pituitary (TSH). You are hypo hypo hypo. Even a 5.5 TSH is way too high for most people. That's where I was kept for almost 10 long yrs, and I was sick sick sick ALL the time.

Re: Feel like I have Alzheimer's..

I agree....I don't mean to sound like a *spaz*....just that an extra month wasted is something I dont' take lightly anymore! If they can test me at 4-6 weeks and make whatever adjustments they need to that may leave me feeling at all better by the time that 8 week mark rolls around, then that's what I want to do.

Besides, if i'm going to call and piss off the doc Tuesday morning I may as well go all the way.

Thank you for telling me about NOT taking the meds the day of a blood draw. I had no idea.

You know, when I first got my numers from the initial blood test, I think I posted them, but if I got replies, I missed them or something. I was just curious, if I were to post them again, with your experience can you offer some insight as to how long you think this mnay have been going on for me, how BAD it really is, and in comparison to others numbers what can I expect from them? And anything else you think I should know but can't think to ask right now?

I have here.....

Free t4= 0.79 theres a reference number next to that of 0.8-1.8

then my TSH serum was 17.33. there's nothing written on this sheet as to the range but I remember the nurse who called me said the high should have been 5.5.

That's all that I have in that certain column. Anything else I need to look out for?

Thanks for listening, I hope i'm making some small amount of sense!

Ayla (who does an awful LOT of posting of things as they fall out of her brain as well!!)

__________________________________________________

[Guest guest]

I understood your point Ayla!!!

*smile*

Topper ()

On Tue, 31 May 2005 08:47:30 -0700 (PDT) ayla allan writes:

replying to my own posts again....in case that whole thing seemed entirely out of thin air, LOL The reason I brought ALL that up was that in retrospect I believe that's when the thyroid problems started for me. I got so lost in chattering that I forgot I was trying to make a point hehe. That's also around the time my weight started creeping up too.

[Guest guest]

I, too, had Plantar Fasciitis for several yrs. Within months of going on ANY thyroid med (synthetic at the time), this began to resolve over several yrs period of time. I also had heel spurs as a result of this because, when the arch of the foot has stretched out and collapsed, the foot is striking the ground in places where it never hit before. This is where the bone spurs come from. It is excruciatingly painful. Had orthotics fitted by a podiatrist, and, at that time, this was the only thing that helped to correct my stance. Bad feet affect the spine, hips, and legs. Hypo causes damage to muscles, including in the feet, and the plantar is a tough muscle that connects the front of the foot to the back of it. After walking abnormally for awhile, the achilles tendon gets involved, and so on up the ladder of the body. I couldn't even walk barefooted at all, it felt like I was walking on steel spikes, when I did. Today, there is still a LITTLE damage, but nothing to compare to that, and no pain most times.

Re: Feel like I have Alzheimer's..

Wow, . 10 years.......that's a long time to feel this way. I really think mine may have started *around* 5-6-7 years ago something around there. I know I had my first two children so easily. Actually got pregnant on the pill with the first (oopsie hehe) the second baby, we talked about it in January and were preggo by Feb. When the time came that we decided to try for #3 I went of the pill then found out I had "unexplained infertility" for the next 5 years. No one knows how or why but my miracle baby made his appearance Feb 2004 after alllll that time trying. (pictures can be found in the photo section ) He's our little angel.

Can I ask what you all do for general *pain*? At this point and for the past year or so, I find myself hoarding up the tylenol 3's the doctor gives me for migraines and I use them on days when I know I will need to be on my feet for a long time, and need my feet and back to hold up for me. I feel like too big if a baby going to the doc and saying "my feet huuuuuurt can I have pain pills?" But they DO hurt they really do!!

Ayla

[Guest guest]

Same thing for me, as the hypo appeared. Before that, I was hyper Hashi's. As the feet collapsed, I had begun to gain weight, but I still only weighed in at 140, so the foot problems really have nothing to do with the weight, it's the hypo. I am 5'6" tall, so 140 was about nothing for me.

Re: Feel like I have Alzheimer's..

replying to my own posts again....in case that whole thing seemed entirely out of thin air, LOL The reason I brought ALL that up was that in retrospect I believe that's when the thyroid problems started for me. I got so lost in chattering that I forgot I was trying to make a point hehe. That's also around the time my weight started creeping up too.

[Guest guest]

--- Barry wrote:

>

> Hello all,

>

> I just joined this group..hoping to get some info..

> Like I stated in

> the subject heading I feel like I have

> alzheimer's..poor mental focus

> and horrible short-term memory. I was having these

> symptoms along

> with overall sluggishness for the last couple

> months..went to the

> doc's and was diagnosed with this hypothyroidism. I

> was put on 12.5

> mcg levothroid a day..breaking a .025mg pill in

> half..to start out

> with, but decided to take twice that since it

> doesn't seem to be doing

> much of anything..(and .025 mg is the lowest dose

> of the pill to

> begin with) ..been taking it for two weeks and no

> improvement

> mentally, although I understand it supposedly takes

> about a month

> before any real improvement. Anybody else experience

> like there losing

> their mental faculties from this? ..and if so, had

> any improvement

> from taking any supplement?

>

> P.S. Am I the only guy in this group?..I understand

> this condition is

> more common with women then men. Oh lucky me.

>

> Barry

Hi Barry, and welcome to the place where you are going

to learn more about your thyroid than your doctor

knows. ) I'm sure lots of the folks here have

answered your questions already since I am so far

behind on email yet again. I just can't seem to keep

up anymore, but I refuse to delete any messages from

this group if I don't absolutely have to.

And no, you aren't the only guy on the group, but you

are in the minority. )

Kathy >^,,^<

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__________________________________________________