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Re: 2007 Conference

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Ohhh i know exactly what is talking about, its FUN!!!!! You

guys dont know what your missing. Ive done a smaller scale of what

is going to be doing, but still, suspended on a wire

zipping past the trees... OMG! now thats fun!

Chantelle

>

>

> Kim,

> me, too!! I am nauseous just reading 's descriptions!! I

think that you, me, and Flo will be " holding the coats and bags " for

the crazies on the rides!!

>

> pam

>

>

> ,

>

> Enjoy your ride. I'll pass for sure. I wonder if it would be

scarier to

> just feel the fall or to see and feel the fall; I can feel my

stomach drop

> out just thinking about it.

>

> Kim

>

>

>

>

>

>

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So... aside from taking the time to back track on previous posts and

read the entire charge newsletter (im sick with a cold and cant be

botherd to look it up... lol) What city is the next conference going to

be in? Was it actualy IN anihime? I might try to drag some family with

me but i have to think about it.

Chantelle

>

> Cole,

> you can join Kim and Flo and I in the " chicken coop " .

> pam

>

>

>

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My family can not understand how I can be having fun simply watching them

have fun, but I do. Rides are not for me. Kim

>

> Kim,

> me, too!! I am nauseous just reading 's descriptions!! I think that

> you, me, and Flo will be " holding the coats and bags " for the crazies on the

> rides!!

>

> pam

>

>

> ,

>

> Enjoy your ride. I'll pass for sure. I wonder if it would be scarier to

> just feel the fall or to see and feel the fall; I can feel my stomach drop

> out just thinking about it.

>

> Kim

>

>

>

>

>

>

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my friends say the same thing when we go to a party... how can you have fun

just watching us?

>

> My family can not understand how I can be having fun simply watching them

> have fun, but I do. Rides are not for me. Kim

>

>

>

> >

> > Kim,

> > me, too!! I am nauseous just reading 's descriptions!! I think

> that

> > you, me, and Flo will be " holding the coats and bags " for the crazies on

> the

> > rides!!

> >

> > pam

> >

> >

> > ,

> >

> > Enjoy your ride. I'll pass for sure. I wonder if it would be scarier to

> > just feel the fall or to see and feel the fall; I can feel my stomach

> drop

> > out just thinking about it.

> >

> > Kim

> >

> >

> >

> >

> >

> >

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Upside down rides are the besrt

Jeannie how old are ur other kids? heheh

Re: 2007 Conference

> ,

> I'm going to start saving so that I can take the whole family. Maybe you

> can

> take my boys on the rides with you, cause I'm certainly not doing it!!

>

> Jeanie

>

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or

> email info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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LOL Flo u guys gotta come again! im gonna learn som e sign language so i

can um TALK to ! hehehe

Re: 2007 Conference

> NO WAY!!! But if we come (which unfortunately is unlikely), you can

> borrow

> for company. Even at age 5 she is showing an unhealthy interest

> in

> challenging activities of the high adrenaline variety.

>

> Flo

>

>

>>

>

>>

>>I will be coming for sure. Its pretty cheap to go from Vancouver to LA. I

>>am assuming that's the closest airport. Anyone brave enough to go on the

>>BIG rides with me at Disney's California Adventure!?! lol

>

>

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or

> email info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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Hey , how bout we take all the kids on the big rides whose parents

are too chicken togo on :)

Re: 2007 Conference

>

>

> ,

> I'm going to start saving so that I can take the whole family. Maybe you

> can

> take my boys on the rides with you, cause I'm certainly not doing it!!

>

> Jeanie

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome

> Canada information and membership, please visit

> http://www.chargesyndrome.ca or email info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

>

>

>

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It will be so great to only have to get ONE flight :)

Re: 2007 Conference

>

>

>

> I am , and Kennedy would be too if she were tall enough for

> them....she's CRAZY about CRAZY rides...

>

>

> Nieder wrote:

> I will be coming for sure. Its pretty cheap to go from Vancouver to LA. I

> am

> assuming that's the closest airport. Anyone brave enough to go on the BIG

> rides with me at Disney's California Adventure!?! lol

>

>

>

>

>

>

>

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The only ride i really didnt like is the Zipper, felt like i was gonna fall

out and banged my head a few tiems and saw all colors in front of my eyes

yikes

Re: 2007 Conference

> My family can not understand how I can be having fun simply watching them

> have fun, but I do. Rides are not for me. Kim

>

>

>

>>

>> Kim,

>> me, too!! I am nauseous just reading 's descriptions!! I think

>> that

>> you, me, and Flo will be " holding the coats and bags " for the crazies on

>> the

>> rides!!

>>

>> pam

>>

>>

>> ,

>>

>> Enjoy your ride. I'll pass for sure. I wonder if it would be scarier to

>> just feel the fall or to see and feel the fall; I can feel my stomach

>> drop

>> out just thinking about it.

>>

>> Kim

>>

>>

>>

>>

>>

>>

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Last i went on a ride where you had to clime accross wire to get accross the

river then u put a haness on and attach it too the wire and you go flying

down, was so cool

went absailing as wel awsome

Re: 2007 Conference

> Ohhh i know exactly what is talking about, its FUN!!!!! You

> guys dont know what your missing. Ive done a smaller scale of what

> is going to be doing, but still, suspended on a wire

> zipping past the trees... OMG! now thats fun!

>

> Chantelle

>

>

>

>>

>>

>> Kim,

>> me, too!! I am nauseous just reading 's descriptions!! I

> think that you, me, and Flo will be " holding the coats and bags " for

> the crazies on the rides!!

>>

>> pam

>>

>>

>> ,

>>

>> Enjoy your ride. I'll pass for sure. I wonder if it would be

> scarier to

>> just feel the fall or to see and feel the fall; I can feel my

> stomach drop

>> out just thinking about it.

>>

>> Kim

>>

>>

>>

>>

>>

>>

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Chantelle:

It is " around " the Anaheim area. I'm hesitant to specify the hotel/city

because the contract is not yet signed. It should happen fairly soon,

though.

Friends in CHARGE,

Marilyn Ogan (L2)

Mom of (13 yrs, CHARGE+ JRA)

Mom of Ken (16 yrs, Asperger's)

Wife of Rick

oganm@...

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

peppermint_chey

Sent: Tuesday, October 25, 2005 7:16 PM

To: CHARGE

Subject: Re: 2007 Conference

So... aside from taking the time to back track on previous posts and

read the entire charge newsletter (im sick with a cold and cant be

botherd to look it up... lol) What city is the next conference going to

be in? Was it actualy IN anihime? I might try to drag some family with

me but i have to think about it.

Chantelle

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I want to do that tower of terror too! And the roller coaster there looks

awesome! I went to Disney World in 1998, but those were all special effects. Not

to say they weren't awesome! But nothing can replace the sheer adrenaline rush

of a coaster going from 0-55miles in 3 seconds!!

Re: 2007 Conference

we were just at disenyland when eriak was in california for her

rehabikitaion program.

the fastest and wilder the rides the better!

her favorite is splash mountain, she anticipates the whol thing, the music

really gets youb efore the big :jump " (and they say she is deaf!)

at california adveture they now have the tower of terror, the elevator

drops, it is really coll, another favorite of eriaks and mine!

cant wait to go back!

Cathie, mom to erika 10 CHARGEr

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Cathie,

Sounds like ka had a blast at the parks. I took this

past Spring and she loved it. Splash Mountain was closed, but she

really liked Soarin' over California, the Matterhorn and Its a Small

World. That one was one I could do wIthout, but it's nice just sitting

for a few and not doing anything. We didn't do Tower of Terror, but

did do California Screamin', it wasn't our favorite but I have a pic to

prove that we were actually brave enough to do it!!!

All the rides and parks were really accomodating to us, as well. I

had 's Convaid Medical stroller and I am convinced it's the

best invention ever!!

, friend and caregiver to , CHARGE, 25

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lol me to roler coasters ok

>

> see i'm up for roller coasters and tower of terror just not things that

> are

> suspended from a wire or rides like the freefall or the cliffhanger

> Cole

>

>

> >

> > I want to do that tower of terror too! And the roller coaster there

> looks

> > awesome! I went to Disney World in 1998, but those were all special

> effects.

> > Not to say they weren't awesome! But nothing can replace the sheer

> > adrenaline rush of a coaster going from 0-55miles in 3 seconds!!

> >

> >

> > Re: 2007 Conference

> >

> >

> > we were just at disenyland when eriak was in california for her

> > rehabikitaion program.

> > the fastest and wilder the rides the better!

> > her favorite is splash mountain, she anticipates the whol thing, the

> music

> >

> > really gets youb efore the big :jump " (and they say she is deaf!)

> > at california adveture they now have the tower of terror, the elevator

> > drops, it is really coll, another favorite of eriaks and mine!

> > cant wait to go back!

> > Cathie, mom to erika 10 CHARGEr

> >

> >

> >

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Bel,

Am trying hard to catch up with my spiralling " inbox " . Gosh, you only have

to miss a few days and the CHARGE posts get out of control!

Would really love to come to next conference but unless we win the lottery,

I think Simon will have to come without the rest of us. Still, don't give

up on that e-sign. Maybe there is a generous benefactor out there we

haven't yet met. Hmmm, I can dream!

Flo

>

>

> LOL Flo u guys gotta come again! im gonna learn som e sign language so i

>can um TALK to ! hehehe

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Is it just me or does everyone with CHARGE grow up to be crazy life-defying

adults? Oh, forgot, you all start this way so just carrying on as you

started! Keep telling us the stories. Good to get a glimpse into the

future. Working on my grounding lines already.

Flo

>

>

>Last i went on a ride where you had to clime accross wire to get accross

>the

>river then u put a haness on and attach it too the wire and you go flying

>down, was so cool

>

>went absailing as wel awsome

>

>

> Re: 2007 Conference

>

>

> > Ohhh i know exactly what is talking about, its FUN!!!!! You

> > guys dont know what your missing. Ive done a smaller scale of what

> > is going to be doing, but still, suspended on a wire

> > zipping past the trees... OMG! now thats fun!

> >

> > Chantelle

> >

> >

> >

> >>

> >>

> >> Kim,

> >> me, too!! I am nauseous just reading 's descriptions!! I

> > think that you, me, and Flo will be " holding the coats and bags " for

> > the crazies on the rides!!

> >>

> >> pam

> >>

> >>

> >> ,

> >>

> >> Enjoy your ride. I'll pass for sure. I wonder if it would be

> > scarier to

> >> just feel the fall or to see and feel the fall; I can feel my

> > stomach drop

> >> out just thinking about it.

> >>

> >> Kim

> >>

> >>

> >>

> >>

> >>

> >>

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For the record, I'm pretty tame *whistles and taps foot* I won't go near a

roller coaster. However, get me on those raging rapids!

" How's that for gravitational pull? "

Luke and Grace, Joan of Arcadia

>

>Reply-To: CHARGE

>To: CHARGE

>Subject: Re: Re: 2007 Conference

>Date: Sat, 29 Oct 2005 22:39:06 +0000

>

>Is it just me or does everyone with CHARGE grow up to be crazy life-defying

>adults? Oh, forgot, you all start this way so just carrying on as you

>started! Keep telling us the stories. Good to get a glimpse into the

>future. Working on my grounding lines already.

>

>Flo

>

>

> >

> >

> >Last i went on a ride where you had to clime accross wire to get accross

> >the

> >river then u put a haness on and attach it too the wire and you go flying

> >down, was so cool

> >

> >went absailing as wel awsome

> >

> >

> > Re: 2007 Conference

> >

> >

> > > Ohhh i know exactly what is talking about, its FUN!!!!! You

> > > guys dont know what your missing. Ive done a smaller scale of what

> > > is going to be doing, but still, suspended on a wire

> > > zipping past the trees... OMG! now thats fun!

> > >

> > > Chantelle

> > >

> > >

> > >

> > >>

> > >>

> > >> Kim,

> > >> me, too!! I am nauseous just reading 's descriptions!! I

> > > think that you, me, and Flo will be " holding the coats and bags " for

> > > the crazies on the rides!!

> > >>

> > >> pam

> > >>

> > >>

> > >> ,

> > >>

> > >> Enjoy your ride. I'll pass for sure. I wonder if it would be

> > > scarier to

> > >> just feel the fall or to see and feel the fall; I can feel my

> > > stomach drop

> > >> out just thinking about it.

> > >>

> > >> Kim

> > >>

> > >>

> > >>

> > >>

> > >>

> > >>

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I wonder if it has something to do with actual sensory stimulation? I know tons

of blind and visually impaired people that are the same way. Theres nothing they

wont do!

Nieder

Re: 2007 Conference

>

>

> > Ohhh i know exactly what is talking about, its FUN!!!!! You

> > guys dont know what your missing. Ive done a smaller scale of what

> > is going to be doing, but still, suspended on a wire

> > zipping past the trees... OMG! now thats fun!

> >

> > Chantelle

> >

> >

> >

> >>

> >>

> >> Kim,

> >> me, too!! I am nauseous just reading 's descriptions!! I

> > think that you, me, and Flo will be " holding the coats and bags " for

> > the crazies on the rides!!

> >>

> >> pam

> >>

> >>

> >> ,

> >>

> >> Enjoy your ride. I'll pass for sure. I wonder if it would be

> > scarier to

> >> just feel the fall or to see and feel the fall; I can feel my

> > stomach drop

> >> out just thinking about it.

> >>

> >> Kim

> >>

> >>

> >>

> >>

> >>

> >>

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