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CAN IT GET ANY WORSE?

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End of April Ken’s GI doctor says it’s

time to go back to Baylor for another evaluation – ok, we start

process. Insurance finally comes

through and gives ok. We wait…and

wait…finally Baylor says we want you to see this doctor first - before we

ok evaluation. We wait…finally

it’s here the appointment is tomorrow. Today the Doctor’s office calls

and says insurance won’t pay for this doctor. Ok, we wait word from Baylor. Baylor finally calls this afternoon and

says Ken’s not ready yet. 5

months we’ve been waiting….and looking forward to talking to a good

doctor. Now we’re back to

square 1.

And just to make sure Ken is totally down –

his house was broken into again today.

They took his bow and some other stuff. Made a wreck of his place and threw stuff

all over. All he has in his life is

the 2 dogs and bow hunting. He’s

been leaving corn for months – and now this. Police dusted for finger prints –

but they say it’s useless and forget about ever getting his stuff back. To make matters worse – his Bilirubin

must be higher then the 3.4 it was - because he looks awful yellow. It’s enough to make a person give

up and I can’t help much because I’m about in the same place as he

is. Can you ever catch a break? At least they didn’t hurt the

dogs or I think he wouldn’t have called us but just given up completely.

Sorry for the vent – had to get it off my

chest.

Barb

in Texas - Son Ken (29) UC 91 PSC 99

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Barb,

How awful for Ken and all of your family! Having all this happen at one time is nearly too much. Did Baylor not even give you an option for Ken to see the doctor? If they haven't seen him for a while how do they know he is not ready? Can his local doctor or hep step up to the plate for him?

I'm sorry about his house being broken into. It is such a violating feeling and very frustrating when you are told that there is nothing that can be done and your stuff probably won't be recovered. Been there, done that too many times to count.

We all know you are strong for Ken-hang in there with him. Things just have to go better for him soon. That bright light at the end of the tunnel is still there. :)

Blessings,

Barby

UC - age 11, ileostomy - age 17 (1972), continent ostomy - 1994

PSC - 1995

married 23 years, 5 sons ages 11-22

KS - tornado (1983) and house fire (2002) survivor :)

Alias - loopy bubblenose

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