Re: propulsid

[Guest guest]

In a message dated 3/31/2000 11:58:02 AM Eastern Standard Time,

djssekis@... writes:

<< I'll see

what else i can find out for you. >>

Debbie,

Thanks for the info. I wonder why my doctor put me on this stuff! I am

discontinuing immediately my taking this drug and will notify my doctor to

this effect. If he needs to prescribe me anything else, he will have to let

me know at this time. I just hope it doesn't take him too long since I

really depend on this medication to allow me to eat my meals. Without it, I

am unable to eat anything.

Thanks again for the heads up.

Andre'

[Guest guest]

In a message dated 3/31/00 11:04:39 AM Central Standard Time,

acastenell@... writes:

<<

Thanks for the info. I wonder why my doctor put me on this stuff! I am

discontinuing immediately my taking this drug and will notify my doctor to

this effect. >>

same reason mine did - they thought the benefits would outweigh the risks i

guess. my family md i could tell was real upset though when he found out the

gi put me on it. since that time they have given me zantac - which is not

working. i have been waiting for a call from my gi drs. office for two weeks

now! maybe he is on vacation and they haven't told me! ha. i have called

the office five times and noone has called me back - they are usually not

like that. i don't have an emergency situation or anything, but would like to

talk to someone! oh, well - sorry for complaining. that is a very small

things to worry about compare to others problems.

i hope you are havig a good day! debbie

[Guest guest]

In a message dated 3/31/2000 12:11:30 PM Eastern Standard Time,

djssekis@... writes:

<< oh, well - sorry for complaining. that is a very small

things to worry about compare to others problems. >>

Debbie,

Sounds as if you have hit the nail on the head on this one. He is the type

of doctor who would weigh out the benefits and risks of taking a particular

drug before prescribing it to me. The thing I don't understand is, he

usually explains all of this to me when he writes his prescriptions. He will

tell me that he is switching my meds and the reasons for the switch. This is

really out of character for him, unless he was unaware of this recall at the

time of my last visit. He writes me prescriptions that allows me to get

multiple refills off of them (5-6 per script). Perhaps he forgot I am taking

this medication since it has been a long time since I had him write me a

script for this medication. Whatever his reasons for putting me on this

drug, I am officially off of them as of this moment. I may suffer at first

but I really fear heart attacks and, since my family has a history of these

things (most recently my mother died of an irregular heartbeat at the age of

55 yrs) and I am approaching that magical number (50 yrs old) in 2 years

(yech)

I have been doing fairly well since I have returned to work last week. My

energy level is way off and I find I need more naps than previously. I was

also informed by my employer that I was going to lose my position due to my

illness. They are supposed to give me something less demanding and stressful

to do. I get bored quickly and would rather do nothing than do " busy work "

so I am considering taking permanent disability and staying home. Why fight

this illness? Maybe this was meant to be all along?

Andre'

[Guest guest]

In a message dated 3/31/00 11:22:00 AM Central Standard Time,

acastenell@... writes:

<< I have been doing fairly well since I have returned to work last week. My

energy level is way off and I find I need more naps than previously. I was

also informed by my employer that I was going to lose my position due to my

illness. >>

I have had two attacks and been hospitalized during the past two months.

after the first attack my work sent me a letter telling me they were putting

me on family medical leave (without pay but with continued ins benefits etc;)

At first i was kind of upset, but then i realized they had to do that for my

short term disability insurance to " kick in " . on the family medical leave

they will save my position for me for 12 weeks. i can request another 14

weeks of leave (which they can or don't have to agree to give). After that i

guess i have to apply for long term disability (which my office pays for).

After these family medical leaves are used up they do not have to save my

particular position, but can offer me any job that is open.

I have been gone for 7 weeks this time and the time has gone by very quickly,

because i haven't really " done " anything. And haven't felt well. I do feel

better in not having the pressure of " having " to go to work and worry about

getting sick, feeling bad, coming home and going to bed etc;. So it has been

a blessing for me in many ways. Maybe it will aid in my recovery to enable

me to eventually go back to work, but i am not worrying about it. it helps

though, that i write articles for our local newspaper - i still feel like i

am accomplishing something. if i did not have that - i'm sure i would feel a

lot differently.

debbie

[Guest guest]

this is to andre or anyone else currently taking propulsid. i was on an

erythromycin elixir before i started propulsid. i was having an acute attack

with pseudocysts and when i would take the erythromycin i felt during the

attack i became sicker so my dr switched me over to propulsid. they both are

motilty agents and move everything along. i hope this gives some relief

knowing there are more drugs out there. when i talked with my pancreatic

specialist this week i got the impression there was not many more drugs that

act like these two. talk with your doctors and i hope this helps. jim s

[Guest guest]

Jim,

Thanks for the information on alternatives to Propulsid. I have a call into

my doctor's office currently and will request to be placed on this other drug.

Andre'

[Guest guest]

In a message dated 5/5/00 11:20:00 AM Central Daylight Time, flahair2@...

writes:

<< On the Propusid topic.. Jerry was placed on for a time, . when we finally

got him to Shands, the doc there took that away and put him on Erythromycin

therapy ... yep, the antibiotic.. they use it for the side effect it causes

in most people.. cramping.. using it in a smaller dose, Jerry takes one

teaspoon in its liquid form,

before eating anything..it starts contracting the stomach and intestines so

that when he eats it helps to propel the food thru... >>

Hi Celeste and Jerry, all,

It continues to fascinate me how medication use is changing from its primary

purpose to a purpose created by a desired side effect. I have never heard of

this one. Does Jerry have gastrophoresis? It sounds like it may help that. Is

there any web site that talks about this? I would like to add it to the list

of links on the home page.

Karyn

[Guest guest]

In a message dated 6/20/00 1:42:17 PM Central Daylight Time,

dhollis062@... writes:

<< Just wanted to share with you some new info I got on

Propulsid. I got a new pamphlet with my refill of my

Propulsid I thought you might be interested in. >>

you are not supposed to drink grapefruit juice while taking, also

the mfg has quit making it - i am surprised that you got a refill on it.

debbie