Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 My son (also 4 yrs old) is on three different meds - clonazapam, phenobarb and dilantin as well as the keto diet. We are starting to wean the dilantin as it is the "worst" one he is on right now as side effects go. We are 4 days into a wean and so far so good - knock on wood!! With each wean I see him get better and better - altho we may yet experience some withdrawl seizures. He should be off this one in about 3 months and we will then start on the phenobarb. I do not know if there is a specific order to wean meds when a child is on more than one. Right now the neuro suspects that the clonazapam is working (altho I think it is the diet that is actually stopping the myoclonics) so that will be the last one weaned. The neuro is already talking about putting him on a different med once the pheno and dilantin are gone. I dont know yet if I will let this happen as I would really like to give the diet a chance to work meds free. I have heard more than one person say that things work better once the child is meds free and I looking back and knowing what I know now I would've really liked to start this all meds free. Hopefully you get the answers you are looking for. Jenn onegreatmum wrote: How is it the order of weaning meds decided if there are more than one being taken . In my daughters case she is on four. Diamox, Lamictal, Vigabatrin and Frisium. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 After sorting through the advice from all of you, I emailed Wyatt's neuro about beginning to wean Keppra. He appeared to me to be on his way to being toxic on it. His neuro told me that she has noticed that Keppra can sometimes bring on jack knife seizures which Wyatt was having again, so she agreed to begin weaning. We are about halfway through the weaning and I am already seeing a much more alert little boy! I am going slower on the weaning than the schedule she gave me and so far I have not seen any increase in seizures. Thank you again for your help. Rona mommy to Wyatt age 3 1/2 in Los Angeles _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Rona, Glad to hear he's responding well to the wean! -Patti weaning meds agreed to begin weaning. We are about halfway through the weaning and I am already seeing a much more alert little boy! I am going slower on the weaning than the schedule she gave me and so far I have not seen any increase in seizures.Thank you again for your help.Rona mommy to Wyatt age 3 1/2 in Los Angeles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Rona, Very pleased to hear Wyatt is getting thru' the wean okay, and that your neuro listened to you!!! Hill in NZ weaning meds > After sorting through the advice from all of you, I emailed Wyatt's neuro > about beginning to wean Keppra. He appeared to me to be on his way to being > toxic on it. His neuro told me that she has noticed that Keppra can > sometimes bring on jack knife seizures which Wyatt was having again, so she > agreed to begin weaning. We are about halfway through the weaning and I am > already seeing a much more alert little boy! I am going slower on the > weaning than the schedule she gave me and so far I have not seen any > increase in seizures. > > Thank you again for your help. > > Rona mommy to Wyatt age 3 1/2 in Los Angeles > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Congrats on starting the wean and not seeing an increase in seizures! We are currently weaning dilantin and Mike has now gone a full 48 hrs (a bit more already) without any seizures! I am still waiting for them tho - seems too good to be true. Hope things stay "smooth sailing" for you and Wyatt. Jenn Rona Compton wrote: After sorting through the advice from all of you, I emailed Wyatt's neuro about beginning to wean Keppra. He appeared to me to be on his way to being toxic on it. His neuro told me that she has noticed that Keppra can sometimes bring on jack knife seizures which Wyatt was having again, so she agreed to begin weaning. We are about halfway through the weaning and I am already seeing a much more alert little boy! I am going slower on the weaning than the schedule she gave me and so far I have not seen any increase in seizures. Thank you again for your help. Rona mommy to Wyatt age 3 1/2 in Los Angeles _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
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