Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 , thanks for the link w/info about milk thistle. And yes, one of the blood tests was for TPMT activity. > > Hi Nick; > > Welcome to the group, and for your remarkable obervation that " It's a > good reminder to think about what my priorities really are and try to > live each day to the fullest. " What a wonderful positive attitude! > > I wish you all the best with the Azasan therapy (for the benefit of > those who may not know this, Azasan is a name for azathioprine). I > hope that you don't mind me asking, but in the blood work they are > doing in preparation for putting you on azathioprine, are they > looking for thiopurine methyltransferase (TPMT) activity? > > Several members of the group do take milk thistle. This supplement is > discussed by the Agency for Healthcare Research and Quality (AHRQ): > > http://www.ahrq.gov/clinic/epcsums/milktsum.htm > > This group has also evaluated SAMe: > > http://www.ahrq.gov/clinic/epcsums/samesum.htm > > Let us know if you have any questions. > > Best regards, > > Dave > (father of (19); PSC 07/03; UC 08/03) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Shahina, Your post hit a "heartfelt nerve" with me (yes, I am making up terminology!) - what you mentioned in your post is often on my mind when I think about my daughter. She is 15 and was diagnosed when she was 14. Although the immediate impact on her life has been minimal, with only a few changes in her daily routines, what I think has had the most impact is at that young age thinking about death and/or a transplant. I have no idea how a child deals with this, but I can say that she is perhaps the strongest person I know. LINDA (Mom of Suzanne, 15; UC 1/04; PSC 3/04) Just wanted to let you know I was diagnosed when I was 24 too (I am 25 now) and I too think it is unfair to have to think of death or time to transplant at such a young age.Shahina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 Ellen, Before we can really help we would have to know more. I don't understand how you say these people talk to you as though you put their loved ones in the hospital. Why are they ill? Then you have to remember that everyones experiances with hospitals are different. We have the unique opportunities here to spend our lives dealing with hospitals so it is no big thing. For others who don't, hospitals can be terrifying. Understand it is OK for them to be scared. Gosh, I had friends whose children were going in for PE tubes and you would have thought they were dealing with open heart surgery. I just had to respect their fear and keep quiet. Their fears were real and they owned them. When I couldn't take it any more, I pretended to be busy with something else and walked away. If I told them they were taking it too far they would have been angry. My guess is this is something similar and you are just trying to help them. They just might not comprehend your expertise! Who knows if your reactions are due to CHARGE or being oversensitive. There are some things Patty reacts to in her CHARGE way. Some things are just the way she is, some she needs help with counceling or medication but then sometimes things she does aren't OK and she just needs to be called on them. But that doesn't mean she can't continue to try to improve on herself. Life is a learning process for everyone to continue to try to improve on themselves. Me too! When you are talking to these people try to stop thinking of yourself. All humans are self centered. They want you to talk about them. Good luck and remember we like you. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Hey I'm glad to be back too. Janie >Caitlin wrote: Whoo-hooo! Glad you back online and back with us Janie! Hope your doing well yourself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 >Janie wrote: > Hello everyone, I'm a long member, my computer crashed a few > months ago and I just now got it back up and running. hope that > everyone is okay . > Janie, Welcome back, I wonder what I would do without my computer, I was thinking about that the other day and realized how it was the way I communicate with others. Well, glad you are back and am so glad this group is here for us. Bennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 Last summer when my hard drive died, I was devastated. I knew my hubby could retrieve my " lost " data (he's a Geek), but I was nearly in tears thinking about how isolated I would feel. Thank goodness it was only a day; I can't imagine how Janie must have felt with months offline! Bennie wrote to Janie: > Welcome back, I wonder what I would do without my computer, I was > thinking about that the other day and realized how it was the way I > communicate with others. Well, glad you are back and am so glad this group is here for us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Hello everyone, I am so very sorry I am not around much, or at all, right now. I have had a major life change and am going through a lot right now. My life is very rough for me. I am still here, but I'm having a hard time. Love, Becky in SD/CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 Becky, Your e-mail has certainly expressed the same scenario many of us have been in at times. my first response is to somehow be supportive as you go through such hard times as mentioned, at least a big hug and the knowledge that someone really does care. Bob >Becky in SD/CA wrote: >I have had a major life change and am going through a lot right now. My life is very rough for me. I am still here, but I'm having a hard time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 Thanks Bob :-). Love, Becky in SD/CA Re: Hello Becky, Your e-mail has certainly expressed the same scenario many of us have been in at times. my first response is to somehow be supportive as you go through such hard times as mentioned, at least a big hug and the knowledge that someone really does care. Bob >Becky in SD/CA wrote: >I have had a major life change and am going through a lot right now. My life is very rough for me. I am still here, but I'm having a hard time. ------------------------------------ Know someone who could benefit from our list? Send our direct sign-up URL: http://www.yahoogroups.com/subscribe.cgi/chronic_pain or write us at: chronic_pain-listowner Manage your subscription with the following email addresses: chronic_pain-owner - Sends email to the list owners chronic_pain-subscribe - Subscribe to the list through email chronic_pain-unsubscribe - Unsubscribe from the list chronic_pain-normal - Switch your subscription to normal chronic_pain-digest - Switch your subscription to digest Quote Link to comment Share on other sites More sharing options...
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