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Re: IEP on the 22nd

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Hi Donna,

I don't know how long your son has been signing but at the age of 6, a LOT of

fine motor skills would look " choppy " . Our family (and my son's school) uses

Signed Exact English which requires even more word endings and additional words

than Signed English does. The people I know who are fluent in SEE are every bit

as graceful as those I know who use ASL. In our particular case, my 8-year-old

daughter signs in a choppy way, my son is smooth but sometimes too fast for me

and I tend to be graceful because it seems to be my style.

If I were you I would make myself very familiar with the differences between the

systems so that you can better advocate for your son. Signed English and SEE

require that a child communicate in English word order. (Ideally a young child

would RECEIVE communication in the same way that they express themselves.) ASL,

while a terrific system, has it's own syntax and therefore is almost a whole new

language. In our case, we chose SEE for ' early learning because English

is the language of our family and because we believed it would help him with

reading. (He's in kindergarten and now reading at 1st grade level.) As his

hearing loss progresses and he meets more friends who use ASL, I'm sure

will pick that it up as well. (85% of SEE signs are also ASL signs.)

Personally, I always wanted to learn ASL but never retained what I got from my

classes because I had no one to practice with. It's pretty coincidental that

when I had my son many years later, he had a hearing loss! Maybe I'll finally

get my chance. :-)

I also wonder why the teacher is worried about your son's being able to sign in

the case of additional hearing loss. It seems to me that his receptive

capability would be more important. Since you state that he is oral, he would

still have the ability to communicate.

Carol - mom to , 6.0, mod to severe/profound, EVAS and Kate, 8.4, hearing

IEP on the 22nd

Hello everyone!!

We have our son's IEP on the 22nd of May. One thing I am concerned about is

his signing ability. His Teacher said he is very choppy at signing because he

uses signed English. Signing each word is making him a choppy signer. He

already as a very large amount of English. He is oral but also is

severe/profound deaf. His Teacher is concerned about him losing the rest of his

hearing (it's inevitable) and not knowing how to sign smoothly. He has great

receptive skills because he uses an interpreter. She suggested we speak up

about this and have them (in school) sign ASL or pigeon to him. I would like to

know if I have a choice of what I want them to sign to my son. I know if

someone uses cued speech the school has to accommodate them. Is this the same

for ASL? Thank you in advance for your help.

Donna

Mother to ny 6, severe/profound

3, moderate

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We don't use BSL with Dominic but i'd say that if you want your son to

be a fluent ASL user you must ensure that his support assistant is

completely fluent in ASL so that he always has that extra bit to learn

from her. I think it would be limiting if her knowledge of ASL would be

just at your son's level or only a little bit higher.

Best wishes and good luck with the IEP.

Cristina

Mum to Dominic (2;6 prof. deaf, HA)

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If the laws in your state are like maine.they must provide what every

language mode you choose weather it be SEE pigion ASL Oral cued what

ever that child needs to access langauge.

good luck to you I know first hand how fustrating and stressful it is

to get services

DEB

MOm to courtney 5.6 n24c 1-17-01 asl/oral

rd Augood <richard@c...> wrote:

> We don't use BSL with Dominic but i'd say that if you want your son

to

> be a fluent ASL user you must ensure that his support assistant is

> completely fluent in ASL so that he always has that extra bit to

learn

> from her. I think it would be limiting if her knowledge of ASL

would be

> just at your son's level or only a little bit higher.

>

> Best wishes and good luck with the IEP.

>

> Cristina

> Mum to Dominic (2;6 prof. deaf, HA)

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Donna,

I wonder if you are considering a CI for ny? How much time and energy

you/he should put into signing seems to depend on how much he will need to use

it in the future. I think before CIs were an option, progressive loss meant

that even with aids, once it was gone, it was gone. It seems to stay oral would

be very hard (some of the resentment I've read from those who were forced to be

oral with no signing make me think this, IMHO).

I realize CI technology isn't for everyone but sure has benefited from

it.

Mom to 9, 5 (bi-lat sensiorneural profound and hearing with her CI

(n24 4/00)) and 2

IEP on the 22nd

Hello everyone!!

We have our son's IEP on the 22nd of May. One thing I am concerned about is

his signing ability. His Teacher said he is very choppy at signing because he

uses signed English. Signing each word is making him a choppy signer. He

already as a very large amount of English. He is oral but also is

severe/profound deaf. His Teacher is concerned about him losing the rest of his

hearing (it's inevitable) and not knowing how to sign smoothly. He has great

receptive skills because he uses an interpreter. She suggested we speak up

about this and have them (in school) sign ASL or pigeon to him. I would like to

know if I have a choice of what I want them to sign to my son. I know if

someone uses cued speech the school has to accommodate them. Is this the same

for ASL? Thank you in advance for your help.

Donna

Mother to ny 6, severe/profound

3, moderate

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> some of the resentment I've read from those who were

> forced to be oral with no signing make me think this

In those early years, I ran across some folks who had this same attitude -

very bitter against their parents, and so while we raised JD AV, I've always

made sure that there were books about sign language on his bookshelf and

videos on signing in the cabinet. He was never interested in them (don't

think he even looked at them once) till after he got his implant and he was

able to hear sounds again.

But, I think in those cases, at least the ones I observed, I think the

problems went a lot deeper than their parents forcing them to be oral. For

example, they had jobs that forced them to interact with the public, very

vocally denounced their parents when they saw hearing aids on JD, and went

on and on about how they were going to 'learn sign language' one day. It

seems to me if being oral was really the problem, they would already be

learning sign language (they were in their 30's), and wouldn't have jobs

that required them to be oral. I know I certainly wouldn't work at a job

that required me to be the very thing that I resented and detested.

Don't get me wrong here, I'm always happy for someone when they find a

communication option that works better for them and switch to it. I think

everyone should have the right to do that and to have their choice respected

(yes, even my son). All I'm saying is that you might want to evaluate

whether this is really the cause for their bitterness or if the problems run

deeper than that. And yes, I do champion for choices in real life (as I do

in my cyberlife).

Hugs,

Kay

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Hey guys,

I hope you don't think I am forcing ny to be oral. He has good speech

so he chooses to talk. We give him the choice to do whatever he wants. We

are involved with Deaf culture. I have a playgroup for D/HOH children.

This is where ny feels comfortable. He wants to play with Deaf children

compared to hearing children. ny is mainstreamed with an interpreter

and his teacher wants him to get together with the hearing children after

school (he needs to work on social skills) to play with them and ny

doesn't want to and I don't want to force him. He said he would rather play

with his Deaf friends. He said he can understand them. He cannot

understand his hearing classmates. I give him the choice of whatever he

wants to do. I feel he has enough stress with the hearing losses (loses his

hearing and gets some back all the time) he goes through without putting

more stress on him. I feel like he is getting teased with his hearing. He

will have some hearing and then lose it and then he will get a little back

and lose it again. I'm not sure if anyone can understand this type of

hearing loss. They think he has Autoimmune inner ear disease. We totally

give him the option to do whatever he wants. If he would like a CI, we

would get it for him. He said he doesn't want one. He said he will sign.

If he wants one later in life, we will get one. ny will be a good

candidate for a long time because he has heard speech and has great speech.

A lot of people mistake him for a hearing child because he has such good

speech. I hope you guys understand.

Thanks,

Donna

Mother to ny 6, severe/profound HA

3, moderate HA

> > some of the resentment I've read from those who were

> > forced to be oral with no signing make me think this

>

> In those early years, I ran across some folks who had this same attitude -

> very bitter against their parents, and so while we raised JD AV, I've

always

> made sure that there were books about sign language on his bookshelf and

> videos on signing in the cabinet. He was never interested in them (don't

> think he even looked at them once) till after he got his implant and he

was

> able to hear sounds again.

>

> But, I think in those cases, at least the ones I observed, I think the

> problems went a lot deeper than their parents forcing them to be oral. For

> example, they had jobs that forced them to interact with the public, very

> vocally denounced their parents when they saw hearing aids on JD, and went

> on and on about how they were going to 'learn sign language' one day. It

> seems to me if being oral was really the problem, they would already be

> learning sign language (they were in their 30's), and wouldn't have jobs

> that required them to be oral. I know I certainly wouldn't work at a job

> that required me to be the very thing that I resented and detested.

>

> Don't get me wrong here, I'm always happy for someone when they find a

> communication option that works better for them and switch to it. I think

> everyone should have the right to do that and to have their choice

respected

> (yes, even my son). All I'm saying is that you might want to evaluate

> whether this is really the cause for their bitterness or if the problems

run

> deeper than that. And yes, I do champion for choices in real life (as I do

> in my cyberlife).

>

> Hugs,

> Kay

>

>

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

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> I hope you guys understand.

Absolutely, and I didn't mean to imply that. My son is oral too. ;-)

I just didn't want folks to think that in the future, the kids always look

back and feel their parents forced them to be oral. Sometimes there are

other reasons, and of course not all kids look back and regret choices their

parents made at all. JD's thanked me about a zillion times for making the

choices I've made for him. He's happier than any other 15 year old I know,

and I'm amazed at how well he's doing in school right now. He did an

autobiography for school recently that's 30 pages long and he's one of the 2

people who got 100 on it. His teacher was so impressed that she wants to

keep it, but I told her no - she can have an electronic copy of it. They

also want to show it off at an awards banquet tomorrow night. He also passed

all areas of the TAAS - the statewide assessment they do here at the end of

the school year. It's the first time he's passed all areas. Pretty great

considering 2 of the areas were new for the state and had never been scored

before. This means he's on grade level for math, reading, writing, social

studies, and science. I couldn't have said that 3 years ago.

Anyway, I didn't mean to make you feel like I felt you were forcing your

son. Sorry if you did.

Hugs,

Kay

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Kay,

That's great for you and especially JD!! ny is also an advanced child.

He's only in Kindergarden but, he is above all of the hearing children in

his class. He reads great and I really think sign language had a lot to do

with that.

Donna

> Fantastic for JD! That is awesome!

>

>

> ~allison

>

>

>

>

>

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