Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 I am going to get my blood test results today and I will post them. Currently, I am absolutely clueless about all the numbers so I appreciate your help. Thanks. wrote: First of all, are they going by the TSH, and could you post the full labresults on this? Second, it is total idiocy to go by the TSH, IF that'swhat they're doing, since you positively have NO thyroid for the pituitaryto stimulate. That's the part that I don't understand about thesesupposedly intelligent doctors, as in, "What part of this disease can't youunderstand, it's so obvious!?". Common sense says that, with absolutely NOthyroid hormone production, the whole darn amt needs to be replaced, sincethere's no thyroid activity whatsoever, and that would mean at LEAST 3 fullgrains of natural thyroid or (someone help me out here, please), orapproximately 150 to 300 mcgs or more of synthetic T4. The healthy thyroidmakes anywhere from around that amt going upwards, varying some from personto person, but I don't think it EVER made hardly any less than that. Iknow, there ARE varying opinions on that, but I would LOVE to see your FreeT3 and your Free T4 values, NOT the TSH. The TSH is THE most useless test,esPECIALLY when someone has no thyroid for it to "haggle" at. New member>>> Hi All:>> I am a new member to the group and I turn to you all for some help> in understanding what is going on with my body.>> I am 40 years old and recovering from the removal of my thyroid. I> have had a goiter and hypo symptoms for the last 6 years, but in the> last six months my weight gain has increased even with exercise and> I could hardly get through the day without thinking I was going to> fall out from exhaustion. In December, my doctor began extensive> testing on my to rule out all kinds of things but it ultimately lead> back to my thyroid/goiter. In January, the surgeon who reviewed my> scans, ultrasounds, and tests from the past to the present felt the> need to remove the goiter and thyroid because it had begun to grow> and I had had cold nodules. After surgery, the path report came> back showing a small area of papillary carcinoma. The total removal> of the thyroid took care of the cancer and I was put on synthroid> (.0125) It has been eight weeks since I began the synthroid and I> still feel very sluggish and the weight problem is compounding. I> had my blood drawn on Monday and today they said I was getting too> much of the hormone and now they are lowering my dosage. I am> scared this will further lower my metoblism and cause even more> weight gain. I already have a suppressed appetite and make myself> eat once a day and I exercise 3 to 5 times a week and continue to> gain weight.>> Has anyone else experienced this problem???? HELP!! Yahoo! Messenger Show us what our next emoticon should look like. Join the fun. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2005 Report Share Posted April 10, 2005 Did you know that when we are still just little "zygotes" in our mothers' wombs, that the thyroid is sort of at the center of ongoing events, as the cell division goes on and on? It's absolutely amazing to read about that. I can't even remember where that link went, darn it! Re: New member Thanks for the support and the advice. I am going to get a copy of my labs and I will post later today. It sounds like I need to be doing some research of my own to understand this "thyroid" thing. I never realized how important the little thing really is. Thanks ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Hi , Welcome aboard! When you were diagnosed with hypothryroidism, did the doc by any chance define it more clearly? Such as Hashimoto's or Graves or ??? If there is one thing that is great about this group is that we tend to ask a ton of questions in order to get a clearer picture of what you are going through, and then offering our two bits of knowledge. Gossimer > Hi, my name is I have been struggling with hypothyroidism for almost 2 > years now, still not where I shoud be. I also had A R mastectomy right > before I started having thyroid problems. So I was misdiagnosed with > depression before anyone checked my thyroid, yada yada. Hope to get to know > you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2005 Report Share Posted May 18, 2005 Get copies of your tests.... It's possible to gain weight when hyper, but not common.... I'm wondering.... there are folks that have various issues that can cause TSH testing to be VERY inaccurate... showing false lows when the thyroid hormones themselves are very low... (TSH is a pituitary hormone, not a thyroid hormone.. ) Weight, to gain, lose or maintain as to do with metabolism. You control your food intake and exercise to work in combination with your metabolism to gain, lose or maintain. If you are exercising, and watching your calories, and not losing weight.. there is something wrong. You have inflammation, but no nodes or anything, that they've said..... so I wonder about your hormone levels. I was hyper from puberty on, finally going into storm in my early 30's.... I had trouble with weight all the way up until I went into storm. I was not fat, I was muscular, my BMI was 21 even though I weighted 277 and had held that weight through most of the time I was body building... but then went into thyroid storm and had trouble eating enough to stop losing... What I'm trying to say is that we don't all react the same way to hyper or hypo... and just because they say that your levels are 'normal' and every thing is okay... well... you seem to already know that something is wrong.. You've been working hard to maintain a healthy weight and it's not working.... why? You aren't hiding in a closet at night eating bon bons while every one else is a sleep, are you???? (Please, that is meant as a joke!!! hehehehe) I think it would be a VERY wise idea to give your doc a call and ask for copies of your tests, if you're in the US it's the law that they have to give them if you request, and some of them will ask for a copy fee, so be ware.... but they have to give them to you.... I would VERY much like to see what they have been testing.. what your values are (and the lab's ranges) and see if we can spot something that they are not seeing.... I'm not saying that we are experts here... but we know a great deal about how to interpret these tests.... This could be a case, as one example, where you are hormone resistant but the labs they are taking are showing you as having an excess of hormones, not because you do, but because your body is unable to use them.... or one of several other possibilities.... Lets see if we can help you figure this out... it's not fair to have to fight so hard and have things not work as they should... and have everyone tell you that you're just fine... therefore it's not working is YOUR fault..... Topper () On Wed, 18 May 2005 18:21:05 -0000 "amyrking0914" writes: I have been a new member of this group and have quietly read all of your messages but just today have felt the need to vent. I must start off saying I dont read any of my blood test results and I will try best as I can to explain my situation.Starting September of 2002 I started gaining weight about 20 pounds concerned I went to the doctor and asked my thyroid be tested as I had read an article about hypo and I felt I had many of the symptoms tiredness, achiness, mood swings, etc.I tested and 2 weeks later still had not heard back from my doctor - I finally called and was told I was ok not hypo and blood work looked normal. So I continued to diet and struggles to lose 20 pounds only to gain back 30 pounds. Since that I have numerous urinary tract infections, kidney infections, and contats urine tests that should I should be diabetic though blood work shows the contrary.Fast forward to 50 punds heavier and these past four months. I got a new doctor due to insurance reasons and explained my previous tests, etc. She promptly ordered more blood work and called me back in 2 days! She ordered the labs on my previous tests and all four showed I was hyper! my previous doctor failed to mention that...She referred my to an endrcoronlogist who ordered more blood work...again. I t showed hyer activity...I was put on Metabol heart medication...I was sweat had serioud dandruff ( never had that before) and I have spent $1000 on a personal trainer & ate so strictly I was certain I would lose 50 lbs in six months...I have lost 10lbs.She then sent me to an RAI uptake test last week..I waited till today to get my results...from the recopnist at the office to be told no cancer or tumors...good news but still inflammation...I could have a follow up appointment in August if I would like...I lost it...Two years and counting and another 3 months! Well I got an appt. for Friday but I want another endo. ....anyone else gone through this...so frustarting! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Yes, my next visit isn't until next month. The only thing I have felt are weird pains in my legs. Maybe not pain, but the feeling like I have over worked my legs. This combo is only temporary (13 days) after that it will be Levoxyl by itself. Of course this depends on mu next lab results. I feel fine, but by the evening I crash. I am only taking half of the cytomel, one in the morning and the other half in the afternoon. I just took my 60 second pulse and it is about 70 (I almost lost count....he, he, he) > That's a huge amount of T3 (Cytomel) to start... how are you feeling with > it? The lab values you've give us are showing you were in need of > replacement hormone.. but if you've just started on it.... it's gonna > take another 6 weeks till you can have the labs done and get an accurate > picture of how your body is responding to this dose... > > Let us know if you start to feel weird with this combination.. it's an > awfully how dose of T3 to start with..... > > Not to scare you... just so that you are aware... okay? > > Have they told you that you need to take both of these on an empty > stomach? Four hours after eating and 1 hour before? > > How is your pulse rate, right now, as you are sitting at the computer? > > Topper () > > On Mon, 06 Jun 2005 22:45:35 -0000 " maljer424 " <tashaclar@a...> > writes: > Hello, > > You're right, I should have poted the ranges. > > But first, let me answer your questions.... > > When was the surgery? May 18th > > How long after the surgery were these labs done? The labs were > taken a week after the surgery > > Are you on replacement hormone yet? as of today, I just started my > meds. Cytomel 25MCG and Levoxyl .088 > > > Were you Hyper or Hypo before the surgery? Oh hypo all the way baby!!! > > The reason why my TSH was so high was to get me ready for my RAI > treatment. I took the scan this morning and it all came out > negative....thank the Good Lord!! > > Calium - 10.1 (8.5-10.4) > TSH - 4.21, it is at 20 as of Thursday (0.40-5.50) > T4 Free - 0.7 (0.8-1.8) > T4 Total - 5.0 (4.5-12.0) > T3 Uptake - 23.9 (27.8-40.7) > T4 Free Calculated - 1.20 (1.53-3.85) > T3 Total - 100 (60-181) > T3 Free - 205 (230-420) > Thyroid Peroxidase AB - <2.0 (0.0-2.0) > Thyroglobulin AB - <2.0 (<2.0) > Thyroglobulin - 5355.7 (3.5-56.0) > TBG - 24.2 (13.5-30.9) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.