New Member

[Guest guest]

Welcome to our list Margaret!

Steph

[Guest guest]

Welcome home baby!!!!

Dawn

-----Original Message-----From: Lyssa F Sent: Wednesday, November 22, 2000 7:57 AMTo: OSSG-NewEnglandegroupsSubject: New Member

Hello,

This is an automated email message to let you know that

shanzo@... joined your OSSG-NewEngland

group.

[Guest guest]

Welcome to the group. Ask us anything, we are not shy!

Joni - 5 days pre-op

[Guest guest]

Hi ,

Welcome! I'm a woman, but I too binge. I had the surgery 8/9/99, was

always a binge eater, however now I eat to survive. My snacking choices are

MOSTLY healthy one's, and have learned a great deal in how to eat to feel

more energized!

Happy Turkey Day!

Dawn

new member

Happy Thanksgiving to everyone.

My name is , i'm a 40 yr old male who has been overweight for as

long as i can remember. I am considering the weight loss surgery.I

have alot of questions,but i'm not sure if i only want to ask men or

both men and women.I suppose the right answer is the right answer no

matter who it comes from.I'm a binge eater and am afraid that just

because i have the surgery, that the binging will not cease,this i

believe is my biggest fear. thanks for listening Hope to hear

from people with my concerns Thanks again

[Guest guest]

Welcome!!

Dawn

new member

Hello,

This is an automated email message to let you know that

pdg624@... joined your OSSG-NewEngland

group.

[Guest guest]

,

I happen to be online now so you have a women's opinion. I am preop

with my surgery scheduled for 1/2/01. I am a combination binge eater,

heredity, and medications which cause weight gain. Weight loss surgery is

supposed to be a " TOOL " for us to use and hopefully use successfully in

order

to reach the ultimate goal. I also wonder how I will deal with the cravings

after

my surgery, but I have put a lot into preparing for the surgery, and will

have

gone through a lot having the surgery and recuperating from it. I don't

want

to fail, and I think all of that will help me stay on the road to success

ultimately.

What am I doing all this for if I don't want success?. I will find other

ways to

diminish the cravings. I am determined.

I hope this helps a little, but I am sure you will get other answers,

and hopefully

some male responses.

I am glad you have joined our list of truly caring and supportive people

as well

as a wonderful resource for information. Sally

pdg624@... wrote:

> Happy Thanksgiving to everyone.

> My name is , i'm a 40 yr old male who has been overweight for as

> long as i can remember. I am considering the weight loss surgery.I

> have alot of questions,but i'm not sure if i only want to ask men or

> both men and women.I suppose the right answer is the right answer no

> matter who it comes from.I'm a binge eater and am afraid that just

> because i have the surgery, that the binging will not cease,this i

> believe is my biggest fear. thanks for listening Hope to hear

> from people with my concerns Thanks again

>

>

>

[Guest guest]

Hey

First of all, let me welcome you to the group. You won't another

group of people who are as caring, thoughtful and funny anywhere else.

Hopefully, you can tell by my name that I'm a guy. There are a few other men

at this site as well and if you want to ask question just for us, feel free

to contact me at DonDJ@.... anytime. Let us know how you are progressing.

We can help because we have all been there. Good luck.

Don

[Guest guest]

OK guys here's the big question that we all want to ask but maybe are afraid

to. What exactly are the chances that you will blow your pouch? Also how can

you tell when you've done it. Any answers? Inguiring minds want to know

Don

[Guest guest]

joni, thanks for your kind words and best of luck with

your upcoming surgery I'm sure you'll do fine

--- jdd716@... wrote:

> Welcome .. I cannot comment on the Binge eating

> as I am still pre-op..

> I'm sure as I get through the remainder of my mail

> you will have had plenty

> of responses from all the wonderful post-ops...

>

> Take care,

> Joni 2 days pre-op

>

__________________________________________________

[Guest guest]

Don,

I would think if you (we) did anything bad to the pouch, we'd be in

some serious pain. But that is just a guess from me.

Pam

On Sat, 25 Nov 2000 23:29:52 EST Dondj@... writes:

> OK guys here's the big question that we all want to ask but maybe are

> afraid

> to. What exactly are the chances that you will blow your pouch? Also

> how can

> you tell when you've done it. Any answers? Inguiring minds want to

> know

>

> Don

>

> -------------------------- eGroups Sponsor

>

>

[Guest guest]

norma thanks for responding

--- ppbird100@... wrote:

> In a message dated 11/22/00 6:49:09 PM Eastern

> Standard Time,

> pdg624@... writes:

>

> > hat the binging will not cease,this i

> > believe is my biggest fear. thanks for listening

>

> '

> I was a binge eater for years. It stopped but now I

> have to watch what I eat

> now I'm almost 1 yr out and can eat more than

> before.

> NORMA

>

__________________________________________________

[Guest guest]

Thanks Dawn, it's been a while

On Tue, 21 Nov 2000 20:25:18 -0500 " Dawn " writes:

> Welcome home baby!!!!

>

> Dawn

> New Member

>

>

> Hello,

>

> This is an automated email message to let you know that

>

> shanzo@... joined your OSSG-NewEngland

>

> group.

>

>

> eGroups Sponsor

>

>

>

[Guest guest]

How you doing baby?!?!!?!?

New Member

>

>

> Hello,

>

> This is an automated email message to let you know that

>

> shanzo@... joined your OSSG-NewEngland

>

> group.

>

>

> eGroups Sponsor

>

>

>

[Guest guest]

> I almost wonder if it is not an internal malfunction i have also

> change cords mics coil with little diffrence.

Whenever they suspect an internal malfunction, one of the first things they

do at my son's school is try a loaner processor on them and see if the

problem continues. That way they know for sure one way or the other and can

then set out tracking down where in the processor the problem is occurring

(mic, cords, etc). If she's complaining that the sound is too loud, ask the

audiologist if she'll set the C levels on the map down a few notches, then

see if that doesn't help matters. If not, then it's probably not that.

My son's personal opinion is that sound can't be too loud, so for a while

there he was setting his C levels way too high (this was a couple of years

ago, when he was 13). It got so that his maps were affecting his facial

nerve and he was having to be remapped every week or so. At one point, it

was painful for him whenever the electrode was stimulated (whenever there

was noise) so I had him leave it off till I could talk to his surgeon. He

ordered a CT to ensure the electrode hadn't migrated, and a team from

cochlear corp came down. They decided he was being way over-stimulated

(called him a power hog) and turned all his C levels way down. Within a day,

things were back to normal and in 6 months, he's only had to have 1 or 2

electrodes adjusted a tiny bit during a map check, but not much more than

that.

Are you sure the magnet isn't still too tight? It's pretty difficult to get

things just right, so it's not falling off too much but isn't too tight

(doubly so with boys whose hair length over the coil area can vary due to

haircuts. I know whenever JD gets one, I have to remember to loosen up his

magnet just a bit, and then tighten it as his hair grows. When he starts

acting like he may need a new map, a haircut usually does the trick. I've

also heard that some folks with curly hair have problems if they don't make

sure the hair under the coil isn't laying straight. In fact, I just had one

lady write me to thank me. Her map suddenly sounded really crappy and it was

a week or so till she could get in for a re-map. She went to the hints and

tips page on my website to get the phone number of someone who makes custom

cords and ran across that tip. She straightened her hair under her coil and

everything sounded great again after that.

Sometimes you feel like you have to be a detective to troubleshoot things,

but then I felt the same way when I was having to troubleshoot hearing aids

& fm systems for my son in school. Once the problem is found, it's generally

an easy fix. Of course, now it's a lot easier since he can tell me exactly

what the problem is, or at least what it sounds like to him.

Hugs,

Kay

I hope your team can figure out what the problem is.

[Guest guest]

> I'd love to hear from parents who have gone the

> CI route - successful or not. Brands, background info., research, or

> otherwise.

Our son got a CI when he was 12. It's been 3 years now, and I wouldn't trade

a minute of it. You can read his story here, though it's in serious need of

updating.

http://www.listen-up.org/ci/story/our-son.htm

My son is, to put it mildly, a social animal. EVERYONE who meets him is

treated like an instant friend. He's always been that way. His hearing loss

was slowly progressive so I watched as his frustration grew with the decline

in his hearing. The one thing our son wanted to be able to do most in the

world is hear - and bit by bit that was being taken away from him.

Just today I got a phone call from someone who had met me and my son a

couple of months ago. One of the things she said she remembered most about

my son is how self confident he seemed, and how he made her feel welcome

from the moment she entered the room. At how happy and contented he seemed

to be. For a 15 year old, that's saying a lot - and that's just the way he

is. JD, at 15 and being able to hear is nothing like he was at 11, full of

frustration because he could barely hear. I'd much sooner deal with him at

15 - hormones and all, than have to deal with him at 11 again.

If you have any further questions, please feel free to ask.

Hugs,

Kay

[Guest guest]

I just bought 1000 tablets of this product (Thyroid-S) but have not

used it yet, as I have a bottle or two of Armour to use up first.

Maybe I should take some for a while to find out how good it is. The

pills are small and look just like US generic Armour. I tend to get

along well with many brands. I dissolve mine under my tongue.

Tish

[Guest guest]

Does it say anywhere on the bottle what the T3 and T4 content is?lkwetter wrote:

I just bought 1000 tablets of this product (Thyroid-S) but have not used it yet, as I have a bottle or two of Armour to use up first. Maybe I should take some for a while to find out how good it is. The pills are small and look just like US generic Armour. I tend to get along well with many brands. I dissolve mine under my tongue.Tish__________________________________________________

[Guest guest]

I have heard reports that the Sandoz generic levothyroxine, in particular, can be super potent by about 12%. If you want to stay on the generic, you may need a lower dose. Any time you switch thyroid med brands, you need to be retested after 6 weeks and have your dose adjusted accordingly. Cullins wrote:

Hi Everyone,I am new to the group. I discovered I was hypothyroid March of 2003. At the time my TSH was 102. I had been taking synthroids. Recently, my pharmacist changed me from synthroid 125 to Levothyroxine 125. Does anyone have any experience with Levothyroxine? It is cheaper, but it seems to me that my thyroid is too low now. I was having heart palpations, muscle weakness and tiredness all over again. And I would be up most of the night. There is a list of problems I was having, including chest pain. I thought I was about to have a heart attack. I stop taking the pills for a couple of days and felt better. I am also taking effexor 150mg, which I am having a hard time getting off. I have recently read that I shouldn't be taking antidepressants with my condition. Is this true? I feel like an emotional wreck. and NO one understands. Also does memory

problems have anything to do with this?__________________________________________________

[Guest guest]

Jan N wrote:

> I have heard reports that the Sandoz generic levothyroxine, in

> particular, can be super potent by about 12%. If you want to stay on

> the generic, you may need a lower dose. Any time you switch thyroid

> med brands, you need to be retested after 6 weeks and have your dose

> adjusted accordingly.

>

> */ Cullins /* wrote:

>

> Hi Everyone,

>

> I am new to the group. I discovered I was hypothyroid March of

> 2003. At the time my TSH was 102. I had been taking synthroids.

> Recently, my pharmacist changed me from synthroid 125 to

> Levothyroxine 125. Does anyone have any experience with

> Levothyroxine? It is cheaper, but it seems to me that my thyroid

> is too low now. I was having heart palpations, muscle weakness and

> tiredness all over again. And I would be up most of the night.

> There is a list of problems I was having, including chest pain. I

> thought I was about to have a heart attack. I stop taking the

> pills for a couple of days and felt better. I am also taking

> effexor 150mg, which I am having a hard time getting off. I have

> recently read that I shouldn't be taking antidepressants with my

> condition. Is this true? I feel like an emotional wreck. and NO

> one understands. Also does memory problems have anything to do

> with this?

>

>

>

> __________________________________________________

>

[Guest guest]

Jadee

If you chose the email option, then you should be receiving emails from the

group. I'm reading yours right now, so you will be able to read mine also.

If you're talking about going directly onto the site to read, then you will

have to choose the option at the top of the home page, " Sign In " , with your

Yahoo ID and password. Then the links will be open on that same page for

you to go into. You have a Yahoo ID and psswd, or you wouldn't be able to

join, right? There's a lot of good reading on the site. What is your full

diagnosis? Do you have Grave's Disease, and give us some history.

new member

>

>

> My name is Jadee and I just joined today. I am not able to access

> anything on this site for some reason. I am looking for others who

> have hyperthyroid problems and I was hoping to see if you are or have

> experienced the same things as I have. Can anyone tell me how this

> site works as I am unable to access any of the e-mails or information.

[Guest guest]

,

You kinda have me way freaked out about what you wrote here...that

I am in a emergency. I go from 5-6 pounds a day back and forth in a

week..I just keep loosing every day that I get on the scale. I think

back a couple of years ago they checked my antibodies and they

didn't say that I have Grave's disease. I don't have a bigger neck

by my thyroid...I honestly don't think the doctor's even know what

is going on with me. You wrote that Topper should be on this one

quickly...what did that mean?

Jadee

> Jadee

>

> Is that a typo or am I having a nightmare or what?! Do you

actually mean

> you're losing 5 to 6 lbs a DAY, or that much in a week?! Either

way sounds

> more like Grave's Disease to me, from what you're saying. Has the

doc run

> the antibodies for that one???? You are in a very dangerous

situation, and

> I don't don't much doubt that they are going to put you on a med

to block

> your thyroid hormone or maybe even RAI to kill the thyroid. Have

they tried

> blocking with a med yet. PTU is used for this, as well as some

other meds.

> You are now an emergency. Topper should be in on this very

quickly.

>

>

>

> Re: new member

>

>

> >

> >

> > Donna,

> >

> > Thanks for the response. I was diagnosed almost three years ago

> > with being just slightly Hypo and prescribed Synthroid which I

never

> > took and then 6 months later I was severly Hyper and I have been

> > fighting with being slightly Hyper for two years now and

recently I

> > have got alot worse. I have lost like 40+ pounds in the past two

> > years and in the past two months I just keep loosing. I am not

> > really complaining about the weight lose though...it is nice to

be

> > able to eat whatever you want and still lose 5-6 pounds a day.

The

> > doctor told me that I have Hashimoto's, but I am not really sure

what

> > that means. I have been seeing an Endocrinologist on and off

for the

> > past year and I recently gave blood and they called to tell me

that I

> > had to get in right away this coming Thursday and I am really

nervous

> > about what they are going to do with me.

> >

> > I have tried to live like this without any medications or tests,

> > except blood work as I am scared to death to do the iodine

uptake and

> > scan thing....have you ever had that done? I am one who doesn't

even

> > like to take aspirin if I am hurting. Some days I feel like I am

> > dying or that I am not quite sure what is going on inside of

me. I

> > know that I am not well as I am still loosing weight and I am

having

> > trouble concentrating and my heart races so bad at times that I

get

> > freaked out about it and I shake alot and don't sleep

much....did or

> > do you ever wonder what is wrong with you?? I guess the best

way for

> > me to describe it is that I feel outside my body at times and

kinda

> > weird..like a zombie and I get really anxious and panic alot for

no

> > reason. I have just been trying to live with it but it is

effecting

> > my job and other areas of my life. I am a Chef and I usually

put in

> > 60-70 hours a week and I have been so tired and achy and my

muscles

> > seem so weak that my local doctor took me off work for a couple

of

> > days until I can get back into the specialist on Thursday. Does

any

> > of this sound familiar?? I am not sure what age group Thyroid

> > problems occur either...I am 32 and also have not been able to

have

> > kids yet and have been trying for 7 years.

> >

> > Sorry for being so long winded...I never knew there was such a

thing

> > as support groups for this type of thing and I just want to know

if I

> > am going crazy or if I can make it thru all of this stuff.

Thanks

> > again for your response.

[Guest guest]

Jadee

Topper is one of the site owners and was in thyroid storm (extremely hyper)

I think for over a yr, without any of the idiots catching it, until she went

to see one doctor, who finally diagnosed her. I'll let her tell her story,

but I think that the site is having technical difficulties today, so her

attention is probably turned that way right now. Hang in there, she will

reply, as she has been through this radically, so to speak. I wish you had

the antibody results and which antibodies, along with the ranges for them to

post here. Antithyroglobulin antibodies and Antithyroidperoxidase

(Antimicrosomal is the other name for this one, I think) antibodies are the

ones for Hashimoto's Disease, but Grave's generally carries the TSI antibody

(?) I believe it's called and can also carry the Antithyroglobulin AND the

other one too, so some authorities think that they may be sort of extensions

of different situations with the same disease. Still called by two

different names though. My Hashi's presented with hyper, probably for about

2 to 3 yrs or so. I could eat anything I wanted to and could never sit

still or think straight, high anxiety, weight loss from nothing, then in

about 1990, I began to slowly gain weight, and this is probably when I went

into a hypo state, with Hashi's, unbeknownest to me. I ran my own

antibodies testing a yr ago this March and was extremely high in both of

them. I'm sorry, didn't mean to scare you, but you need to know the

possibilities of this disease, especially with the high weight loss you're

having now. Do take your pulse and body tem, along with blood pressure

checks right now, frequently. If you're running a high pulse, then you need

something to block the thyroid hormones, IF they are running high, and I'm

sure they are, with that kind of weight loss from no dieting. Are you

craving a lot of carbs?

Re: new member

>

>

> ,

>

> You kinda have me way freaked out about what you wrote here...that

> I am in a emergency. I go from 5-6 pounds a day back and forth in a

> week..I just keep loosing every day that I get on the scale. I think

> back a couple of years ago they checked my antibodies and they

> didn't say that I have Grave's disease. I don't have a bigger neck

> by my thyroid...I honestly don't think the doctor's even know what

> is going on with me. You wrote that Topper should be on this one

> quickly...what did that mean?

>

> Jadee

[Guest guest]

It depends a lot on your bone structure. I'm 5'10 and big boned. At 180 my bones are sticking out and I'm sickly. When I was hyper I had held 277 for over three years with a body fat of 21%, when the storm hit I dropped forty pounds in thirty days... by the time they nuked me and I started going hypo.. I bottomed out at 220 but it was not a healthy 220. I had lost a lot of muscle, the fat had been burned up quickly then my system went to the meat and organs. I have no idea where I'd have been had I not had access to all the junk from work. I was having a LOT of trouble affording to feed myself, I did a lot of all you can eat stuff. I had a circuit that I did, trying not to hit the same place more than twice a week, some of the managers just cringed when I walked in the door.

Godfathers lunch buffet was one of them.... three large pizzas, plus two dessert pizzas, plus drinks.... all taken at two slices at a time...

.... sigh... brings back the scary times... eating non stop and feeling like I was starving to death.....

Anyway, be aware of your nutrition. Lots of nutrient rich foods, PLENTY of protein, while this gets sorted out.

Topper ()

On Tue, 22 Feb 2005 18:02:05 -0800 (PST) Jadee Krueger writes:

I am not as skinny as I want to be...but, what woman is?? I don't think I am a heavier person..but, maybe I am...I am 5'11 and I am going between 145-147 at this point in time. Everyone around me that has known me for years keeps commenting on how much weight I am loosing. My husband told me today when I was laying on the bed and he could see my ribs that I need to do something as I keep loosing weight.

Jadee

[Guest guest]

> >

> > Hi my name is and I just joined this group today. I am

> > really interested in talking to someone about their experiences

> with

> > hypothyroidism. I was diagnosed almost three years ago and I

still

> > don't feel like myself. I am being regulated with synthroid and

my

> > TSH and T3 and T4 levels are stable but my memory is still

> horribly

> > bad to the point i can't remember what someone said to me an hour

> > after it was said constantly cold hands and feet among other

> > problems. I would appreciate anyone talking to me. Thank you.

[Guest guest]

First of all, are they going by the TSH, and could you post the full lab

results on this? Second, it is total idiocy to go by the TSH, IF that's

what they're doing, since you positively have NO thyroid for the pituitary

to stimulate. That's the part that I don't understand about these

supposedly intelligent doctors, as in, " What part of this disease can't you

understand, it's so obvious!? " . Common sense says that, with absolutely NO

thyroid hormone production, the whole darn amt needs to be replaced, since

there's no thyroid activity whatsoever, and that would mean at LEAST 3 full

grains of natural thyroid or (someone help me out here, please), or

approximately 150 to 300 mcgs or more of synthetic T4. The healthy thyroid

makes anywhere from around that amt going upwards, varying some from person

to person, but I don't think it EVER made hardly any less than that. I

know, there ARE varying opinions on that, but I would LOVE to see your Free

T3 and your Free T4 values, NOT the TSH. The TSH is THE most useless test,

esPECIALLY when someone has no thyroid for it to " haggle " at.

New member

>

>

> Hi All:

>

> I am a new member to the group and I turn to you all for some help

> in understanding what is going on with my body.

>

> I am 40 years old and recovering from the removal of my thyroid. I

> have had a goiter and hypo symptoms for the last 6 years, but in the

> last six months my weight gain has increased even with exercise and

> I could hardly get through the day without thinking I was going to

> fall out from exhaustion. In December, my doctor began extensive

> testing on my to rule out all kinds of things but it ultimately lead

> back to my thyroid/goiter. In January, the surgeon who reviewed my

> scans, ultrasounds, and tests from the past to the present felt the

> need to remove the goiter and thyroid because it had begun to grow

> and I had had cold nodules. After surgery, the path report came

> back showing a small area of papillary carcinoma. The total removal

> of the thyroid took care of the cancer and I was put on synthroid

> (.0125) It has been eight weeks since I began the synthroid and I

> still feel very sluggish and the weight problem is compounding. I

> had my blood drawn on Monday and today they said I was getting too

> much of the hormone and now they are lowering my dosage. I am

> scared this will further lower my metoblism and cause even more

> weight gain. I already have a suppressed appetite and make myself

> eat once a day and I exercise 3 to 5 times a week and continue to

> gain weight.

>

> Has anyone else experienced this problem???? HELP!!