Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Hi Martha.... I am finally getting to respond to you email about Humira.... Ty is set to get his first injection on thur....we have to go to the hosp and stay in the GI Suite for this...they won't let him....at least at first ...to do this at home...they are afraid that he might have a bad reaction...and we are happy that they are being so very cautious.... We haven't heard anything from the insurance company so far...so we are hoping that nothing stands in our way... the doctors feel that the insurance co. will be glad to be doing this instead of the Remicade which was way more expensive...with all his pretreatment...and having to stay in the hosp so long.... so keep us in your thoughts for thur...Ty could really use a break in all of this....it has been a tough couple of months.... Did you tell you RA doctor what the insurance company said...sometimes they will go to bat for you...I know Ty's doctors have a couple of times... our insurance has changed so many times it is hard to keep up it sometimes....who will ok what....one of the insurance companies refused to pay for any of the Remicade...Tys doctor got on the phone and talked to someone pretty high up...and told them ....Look you either pay for this treatment or he will be in the hosp with your bills being even higher...they ok 100% payment on the Remicade... so if you are really needing the treatment ...talk to your doctors...ask them to step in and help.... Just a little note about the Flagyl....that is one of the meds that is used for C-dif...yes an over growth of a bacteria that we have in our gut...everyone has it...it is good...but for those with IBD you can get this over growth and it gets very very bad.... one of the other medications used for this is Vancomycin....both of my boys have been on that....it is very expensive.... Ty still takes Flagyl...when taken off he immediately has problems...like in less than 12 hours...so they don't tend to play with it.... he has been on flagyl for yrs.... well I hope this note finds you having a good day...or even a 1/2 a day...I know that sometimes that is all you can hope for.... take care and talk soon Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 I was so glad to hear about your day and I am so happy everything went well with the injection. Hoping it helps, maybe this is the miracle drug for Ty, God must know he has been through so much. I have thought about you all day. Keep us informed as to the results of the injection and if he has any delayed reaction. I am just hoping it will soon get less expensive so I can try it for my rheumatoid arthritis. I have been having physical therapy on my neck but not helping much yet but I know it takes time. Thinking of you both Martha from Mo. Quote Link to comment Share on other sites More sharing options...
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