Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 I was diagnosed with ulcerative colitis in 1994 and PSC in 1998. Until today I didn't know there was any group that I could join. Suddenly I don't feel so alone. I have been lucky...they tell me. Normal liver functions...occasional pain but all in all lucky. But I can't help feel like there is a bomb ticking inside of me. My first hospitalization was after an ERCP...pancreatitis. As I lay there wondering what life had in store for me, the news of Walter Payton's death came across the news. I have been scared ever since...I function but inside i am afraid. Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Bobbi, I would feel like you too if I was not proactive in my care. Learn about your body and how diet, stress management, positive attitude, supplements and exercise play a BIG role in your continued well being. Gema Hello everyone I was diagnosed with ulcerative colitis in 1994 and PSC in 1998. Until today I didn't know there was any group that I could join. Suddenly I don't feel so alone.I have been lucky...they tell me. Normal liver functions...occasional pain but all in all lucky. But I can't help feel like there is a bomb ticking inside of me.My first hospitalization was after an ERCP...pancreatitis. As I lay there wondering what life had in store for me, the news of Walter Payton's death came across the news. I have been scared ever since...I function but inside i am afraid. Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Bobbi, I live in Michigan and am treated at U of M Hospital by Dr. ! Gema Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Dr. Elta is my doc here. I think we are both in very good hands. Small world isn't it? > Bobbi, > > I live in Michigan and am treated at U of M Hospital by Dr. ! > > Gema Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Yeap... I'll be at the VA on Monday for a you know what procedure ... trying to rule out UC. Gema Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Hi Bobbi, I'll pipe in here and say ,hi, and welcome to the group. I live in Grand Blanc and my DR at U of M is Fontana. Dr Rudich did my tx last Aug. Tim Long Tim Long UC / PSC 25+ yrs TX 8/2/02 married 36 yrs, 2 daughters & 2 grandkids Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Hi Alice, Welcome. Glad that you found us, sorry that you have PSC. You probably are the youngest member. There are some parental caretakers of kids and a few that joined while in high school, but the years add on and most are no longer the young kids that first joined. I'm sure that they will still have insights on your situation that some of us oldsters may not. I agree with that changing when you take your ursodiol may help with the sick feeling. Another thing to consider is to gradually increase the dose over several weeks so your body has time to adjust to the change. Since you aren't feeling well after taking ursodiol you should talk to your doctor about makeing some changes. Let us know how it goes. Tim R ltx 4/4/98 @ 51 yo; recurrance 2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Hello, Alice! Welcome to the group. Even though we may a bit older than you, don't let that stop you from chatting with us any time you feel the need. You will probably experience things we have, at one time or another, experienced, so feel free to let us know how you feel. :-)) Janet from New Jersey Janet E. Saiber Schlesinger Satz & Goldstein, LLC One Gateway Center, 13th Floor Newark, New Jersey 07102 , Ext. 4892 **************************************************************** This e-mail and any documents accompanying this e-mail contain information which is confidential and/or legally privileged. The information is intended only for the use of the individual or entity named on this e-mail. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or the taking of any action in reliance on the contents of this e-mail information, is strictly prohibited and that the documents should be returned to Saiber Schlesinger Satz & Goldstein, LLC immediately. In this regard, if you have received this e-mail in error, please notify us by return e-mail or telephone () immediately, delete the e-mail and all attachments and destroy all hard copies of same. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Hi Alice- Welcome to the group. I'm sorry to hear about your recent diagnosis, but you came to the right place for answers and support to any of your questions. Feel free to ask anything. I am fairly young also I am 19 now but I was diagnosed with PSC when I was 18. Once again, welcome to the group, Brett (Doing well, 19 years old, dx. UC 3/01, dx. PSC 6/03) > Hello everyone, > > I'm new to this group, and it looks like I am probably the only kid here. I was diagnosed with Sclerosing Cholangitis about a year ago. I had UC when I was young so they found out I had liver problems when I had the regular blood tests. Then I had 2 ultrasounds, and an MRI. I didn't have an ERCP because my doctor though it would be too risky for me. I have had 3 colonoscopies in my life and it looks like I will have to have one once every 3 years. I've been on Ursodeoxycholic acid for a week now. I take the tablets 3 times a day. They are OK, I feel less tired now, but I keep feeling like I'm going to be sick all the time. My friends react funnily to me having this disease, as if it's some sort of disability. But they are only teenagers I suppose. I'm glad there's a support group for PSC, and that I have people to talk to when I need to. > > Love from Alice > > > --------------------------------- > Want to chat instantly with your online friends? Get the FREE Yahoo! Messenger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi Becky Just saw your note sorry you are having such bad headaches. Are you having any problems with your vision. re: double vision; blurred or losing vision in either eye.Did they do a vision test? Did you hit your head a while back and forgot? How is your blood pressure been and what was it like when you went to the ER? Any ringing in your ears? Did they check to see if you could walk without falling (with your eyes closed)? Did they check to see if you had a sinus infection? I guess that is all I can think of for now. Write me back please get well soon. Toni - --- , " Becky " wrote: > > I have had an 8 day strong pounding headache. It apparantly has made > friends with my body and doesn't want to leave. I have blacked out a > total of 4 times now and almost blacked out a couple more. It's > killing me and I've tried everything I know. Quote Link to comment Share on other sites More sharing options...
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