medication question

[Guest guest]

In a message dated 9/19/00 7:10:44 PM Pacific Daylight Time, liliwigg@...

writes:

<< I also feel that all the alcohol and pot I consumed in my 20's moved my

CMT progression onward. >>

Gretchen ...

I have heard that about alcohol and caffeine, but not about pot.

frank

[Guest guest]

In a message dated 9/19/2000 7:58:30 PM Pacific Daylight Time,

rmax@... writes:

<< Caffeine?? How does it cause progression of CMT? I know alcohol is

neurotoxic but caffeine? And if pot was used in moderation for relaxation

and not getting stoned, how would it cause progression? Just curious,

~>Becky M. >>

Caffeine is a life saver for me. With out it all this paxil would put me to

sleep.

jenny

[Guest guest]

Someone earlier today wanted to know about medications, I think, those

that had made one's CMT progress? Well, during my teens the neuros at

UCLA had me taking Ritalin for fatigue. And yes, it helped with that, so

I could get through school and enjoy dances and parties. However, my

first or second year of college (that would have been 5-6 years on

Ritalin by then) I developed tremors in my hands and arms. I abruptly

was told to stop taking Ritalin, so I did. Then, along with the tremors

came the beginning of chronic insomnia, which I still have. I don't know

for sure the damage, if any Ritalin did to my CMT, but I suspect some.

I also feel that all the alcohol and pot I consumed in my 20's moved my

CMT progression onward. Once I stopped that, at 27, it seems I have been

on a CMT plateau. (am 48 now)

I have since learned to sleep better (most nights) and now only take

Elavil which helps me live a quality life and seems to help tremors,

fatigue, sleep and balance.

Gretchen

[Guest guest]

In a message dated 9/19/00 10:41:21 PM Pacific Daylight Time, jacee17@...

writes:

<< < Caffeine?? How does it cause progression of CMT? I know alcohol is

neurotoxic but caffeine? And if pot was used in moderation for relaxation

and not getting stoned, how would it cause progression? Just curious,

~>Becky M. >> >>

Yes ... I agree, without caffeine, life is totally bleak and uninteresting. I

have to have a huge cup of coffee in the morning, or else everyone looks

really ugly all day long.

[Guest guest]

-----Original Message-----

From: oregonpapa@... <oregonpapa@...>

egroups <egroups>

Date: Tuesday, September 19, 2000 9:18 PM

Subject: Re: [] medication question

>

>In a message dated 9/19/00 7:10:44 PM Pacific Daylight Time,

liliwigg@...

>writes:

>

><< I also feel that all the alcohol and pot I consumed in my 20's moved my

> CMT progression onward. >>

>

>Gretchen ...

>

>I have heard that about alcohol and caffeine, but not about pot.

>

>frank

>

...>>>>>>Caffeine?? How does it cause progression of CMT? I know alcohol is

neurotoxic but caffeine? And if pot was used in moderation for relaxation

and not getting stoned, how would it cause progression? Just curious,

~>Becky M.

[Guest guest]

-----Original Message-----

From: oregonpapa@... <oregonpapa@...>

egroups <egroups>

Date: Wednesday, September 20, 2000 1:03 AM

Subject: Re: [] medication question

>

>In a message dated 9/19/00 10:41:21 PM Pacific Daylight Time,

jacee17@...

>writes:

>

><< < Caffeine?? How does it cause progression of CMT? I know alcohol is

> neurotoxic but caffeine? And if pot was used in moderation for

relaxation

> and not getting stoned, how would it cause progression? Just curious,

> ~>Becky M. >> >>

>Yes ... I agree, without caffeine, life is totally bleak and uninteresting.

I

>have to have a huge cup of coffee in the morning, or else everyone looks

>really ugly all day long.

>

>

>

>>>>>>For me its the opposite! I'm the ugly grouchy bear all day long

without my java! LOL, Becky M.

[Guest guest]

Hello girl , Well gotta say that that is not a good ideal for anyone with RA , maybe you should discuse this with your dr frist . johnLollipop girl <lollipop725@...> wrote: hello all. I have a question about the meds. Now I am 25 years old, and was officially diagnosed about a year or so ago ( you know how it takes years for them to get it right) but i have a confession (please dont yell at me )I do not take my meds like I should be.. I am just forgetful and down right lazy.. i know its wrong and now I'm paying the price and I'm in extreme pain (have a dr visit lined up). but here is my question.. i have two meds.. 1. lodine 400 Mg 2x a day and 2. azulfidine 500 mg 3 times a day what one is for anti-inflamatory and what one is to slow the progression of the RA? in other words what one do i HAVE to take daily and what one

can i do as needed for pain?

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[Guest guest]

I don't think an anti-inflammatory does much if anything to slow the

progress of RA. I'm not medically trained so I could be wrong. Most

medications can have an effect on the liver or kidneys or both so most of us

get regular blood work. Mine is every two months but I'm on Methotrexate

and Remicade so I have a higher chance of liver problems than the average.

If I start to have problems we want to identify it early so we can avoid any

real damage. Blood work can also show many possible problems with general

health. God bless.

-----Original Message-----

From: Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ] On Behalf Of Lollipop girl

Sent: Monday, July 17, 2006 7:25 PM

Rheumatoid Arthritis

Subject: Re: medication question

Thank you for the prompt reply I appreciate it. So I understand

that the Lodine is an anti-inflamatory, but does it also slow the

progression of the RA?

Also, why does my dr do blood work every 3 months? what is that

supposed to do?-

[Guest guest]

Hi Lollipop girl, I won't lecture you about your meds. I'm 28. When I was dx'd at 22 (after 13 doctors & 4 months of symptoms) I sincerely doubted that I really had arthritis. Actually I think, in a way, I took the meds exactly as they were prescribed in the in order to prove the doctor wrong. So, I understand when, at your (our) age, not taking meds a little. I wouldn't think it was laziness, just an honest doubt that arthritis is the culprit. Were you dx'd by a rheumy. I hasn't convinced after my first visit to the rheumy. However, when he sent me home after the 1st visit with a bag full of literature about arthritis, every symptom sounded like my problems. If you are prescribed 2 meds you should like both of them, in by biased opinion. Afterall, what good is controlling the pain if you are not slowing down the progression? (or trying) Take care, Steph in

VALollipop girl <lollipop725@...> wrote: hello all. I have a question about the meds. Now I am 25 years old, and was officially diagnosed about a year or so ago ( you know how it takes years for them to get it right) but i have a confession (please dont yell at me )I do not take my meds like I should be.. I am just forgetful and down right lazy.. i know its wrong and now I'm paying the price and I'm in extreme pain (have a dr visit lined up). but here is my question.. i have two

meds.. 1. lodine 400 Mg 2x a day and 2. azulfidine 500 mg 3 times a day what one is for anti-inflamatory and what one is to slow the progression of the RA? in other words what one do i HAVE to take daily and what one can i do as needed for pain?

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Never underestimate the power of a small, dedicated group of people to change the world -- indeed, it's the only thing that ever has." (Margaret Mead)

AmeriCorps Alums -- We're Still Getting Things Done

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

well the thing is too that my stomach is SOOOOOOOOO sensitive.. i

have IBS too.. so (not to sound graphic) everything causes me cramps

and diarea... thats another reason I hate taking ANY medicines. I

know its the RA.. I mean all my symtpoms are on point.. butI just

hate feeling like a 60 year old in a 25 year old body ... I want to

be able to live like a normal 25 year old, and not worry about flare

ups.. ugghh i hate that..

let me ask this.. is cracking your neck/joints really bad? i heard

that is just a myth

-- In Rheumatoid Arthritis , DeNicola-

<stephdenicola@...> wrote:

>

> Hi Lollipop girl,

> I won't lecture you about your meds. I'm 28. When I was dx'd

at 22 (after 13 doctors & 4 months of symptoms) I sincerely doubted

that I really had arthritis. Actually I think, in a way, I took the

meds exactly as they were prescribed in the in order to prove the

doctor wrong. So, I understand when, at your (our) age, not taking

meds a little. I wouldn't think it was laziness, just an honest

doubt that arthritis is the culprit.

> Were you dx'd by a rheumy. I hasn't convinced after my first

visit to the rheumy. However, when he sent me home after the 1st

visit with a bag full of literature about arthritis, every symptom

sounded like my problems.

> If you are prescribed 2 meds you should like both of them,

in by biased opinion. Afterall, what good is controlling the pain if

you are not slowing down the progression? (or trying)

>

> Take care,

> Steph in VA

>

> Lollipop girl <lollipop725@...>

wrote: hello all. I

have a question about the meds. Now I am 25 years old, and

> was officially diagnosed about a year or so ago ( you know how it

takes

> years for them to get it right)

>

> but i have a confession (please dont yell at me )I do not

take my

> meds like I should be.. I am just forgetful and down right lazy..

i

> know its wrong and now I'm paying the price and I'm in extreme

pain

> (have a dr visit lined up).

>

> but here is my question.. i have two meds.. 1. lodine 400 Mg 2x a

day

> and 2. azulfidine 500 mg 3 times a day

>

> what one is for anti-inflamatory and what one is to slow the

> progression of the RA?

>

> in other words what one do i HAVE to take daily and what one can

i do

> as needed for pain?

>

>

>

> __.

>

>

> .

>

>

>

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> " Never underestimate the power of a small, dedicated group of

people to change the world -- indeed, it's the only thing that ever

has. " (Margaret Mead)

>

> AmeriCorps Alums -- We're Still Getting Things Done

>

>

>

>

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls.

Great rates starting at 1¢/min.

>

[Guest guest]

If you don’t want to take meds you

might try an elimination diet to see if at least part of your problems are

related to food sensitivity. However, joint damage can occur quite

rapidly and for most people it takes many months to find out if an elimination diet

will help. You should be under the care of a rheumatologist to guard

against joint damage while looking for alternative treatments. I can’t

help with the cracking joints. I have heard that some of it is harmless

but I don’t know if all joint cracking is harmless. God bless.

http://www.drcranton.com/elimination_diet.htm

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Lollipop girl

Sent: Sunday, July 23, 2006 6:05

PM

Rheumatoid Arthritis

Subject:

Re: medication question

well the thing is too that my stomach is SOOOOOOOOO sensitive.. i

have IBS too.. so (not to sound graphic) everything causes me cramps

and diarea... thats another reason I hate taking ANY medicines. I

know its the RA.. I mean all my symtpoms are on point.. butI just

hate feeling like a 60 year old in a 25 year old body ... I want to

be able to live like a normal 25 year old, and not worry about flare

ups.. ugghh i hate that..

let me ask this.. is cracking your neck/joints really bad? i heard

that is just a myth

_