Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 Oh, your positive post made me smile. Several years ago, and periodically since then, 's OCD included the truly gross need to spit. The psych who was then at Perkins and the entire med team met, myself included. The psych hedged in her description, and I just said, " well, it's really gross. " Apparently parents can say some things professionals are unwilling to utter. Now, my OCD kicks in as I knock on wood that doesn't return to such behavior. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 Michele: Yet again I'm forgotten where you live? Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 I'm sorry that we won't be in Watertown to see you on Friday; we have to leave right away on Tuesday morning. I'll keep a look out for your son! Martha and if you spot , please let me know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 Hey it makes the child feel nuts too LOL! I know. Kay Re: ocd > > >> There have >> been a few moments when I've literally thrown up my hands and >> exclaimed " this child is nuts. " > > > Hear, hear! And we've only just begun down this weird little path. > Have a safe trip! > > Michele > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 Michele, If you find any answers, let me know!!!! We are dealling with this as well.... Hugs, Michele Westmaas wrote: Help! I am beginning to get concerned about OCD behavior in Aubrie. I think that's the correct label for what I'm seeing. If she gets on a roll with something, there is no getting her off. Gosh, now I can't think of an example. OK- yesterday, I was cleaning up my work room. She decided she wanted to help -- but it's not something I want to do with help. So I quit doing it to avoid her constant requests to help. She could not let go of it and go do something else with me. On and on about it-- finally she got into a movie -- but I could see that she had to work very hard to let herself be redirected. She was frustrated with herself (hitting herself in the head) when she couldn't let go. She also has to do some things in the right order. Sunday mornings we get up, get the paper, read it, I shower while cinnamon rolls cook, we eat, then she dresses. Last week we were running late and I tried to get her to dress while the rolls cooked, but she couldn't deal with it cuz that's just not how it's done. Trying to watch a TV show is insane. She's constantly asking questions -- but they are off the wall. Like today Dick Van Dyke mentioned a sandwich with pickles and she wanted to know what kind of pickles. On and on with questions thru the entire thing and she can't stop. I am considering several options -- but tell me if any have been helpful in your experiences. Cranial sacral -- is this something related to being neurologically out-of-sync? Essential Fatty Acid supplements? Medical dr -- what specialty?? Do I want to try one thing at a time for a month to see the results rather than trying it all at once and not knowing which to give credit for improvements? Thank you- Michele W Aubrie's mom 7 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 omg!!! welcome to my world!!! did you also repeat things over and over and over and ....you get the idea? we will tell tim to stop doing something and he'll say I can't! I believe there are times he really can't and times he doesn't want to. some things have gotten better, so we haven't pursued meds yet. oh, we did get good news---he gets a 1:1 aide!!!! district approved, princiapal has interviewed, and their board just has to apporve the eprson now. boy I can't sspell toniught. happy new year! maria mom to timmy 9 ChARGE, keegan 6, liam4 wife to pat, who is still employed for the time being,, could be days or hours. Re: ocd > > > > > > Did you begin any meds as a child? Did the OCD begin as a child? > > > > Michele > > > > Kay Lynd wrote: > > > >> Hi , > >> > >> I take Zoloft for my OCD. It keeps it fairly well in check except when my > >> stress levels are really high, then its harder to cope. > >> > >> Kay > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 I hope Aubrie keeps a good sense of humor about things as she grows. Seems like that's what will keep us all sane through the years! Michele Kay Lynd wrote: > Nope. I'm not sure they had medicine for OCD when I was a child (back > in the > good old days) LOL! I just had to live with it and my family had to live > with me asking what time it was every 3 minutes. > > Kay > Re: ocd > > > > > > Did you begin any meds as a child? Did the OCD begin as a child? > > > > Michele > > > > Kay Lynd wrote: > > > >> Hi , > >> > >> I take Zoloft for my OCD. It keeps it fairly well in check except > when my > >> stress levels are really high, then its harder to cope. > >> > >> Kay > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 I'm so glad to hear about the aide. I can't imagine Aubrie's life without hers. I know there's always the danger of creating too much dependancy, but there's just too much to miss without intervention. I hope you are happy with the person they hire. Aubrie's aide is an angel. Michele Pat and Halloran wrote: > omg!!! welcome to my world!!! did you also repeat things over and > over and > over and ....you get the idea? we will tell tim to stop doing > something and > he'll say I can't! I believe there are times he really can't and times he > doesn't want to. some things have gotten better, so we haven't > pursued meds > yet. > > oh, we did get good news---he gets a 1:1 aide!!!! district approved, > princiapal has interviewed, and their board just has to apporve the eprson > now. boy I can't sspell toniught. > > happy new year! > > maria mom to timmy 9 ChARGE, keegan 6, liam4 wife to pat, who is still > employed for the time being,, could be days or hours. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 is there anything specific we can do to help that process along? getting Ethan a 1:1 aide when he starts school i mean? On Sun, 02 Jan 2005 19:21:36 -0600, Michele Westmaas wrote: > I'm so glad to hear about the aide. I can't imagine Aubrie's life > without hers. I know there's always the danger of creating too much > dependancy, but there's just too much to miss without intervention. I > hope you are happy with the person they hire. Aubrie's aide is an angel. > > Michele > > > Pat and Halloran wrote: > > > omg!!! welcome to my world!!! did you also repeat things over and > > over and > > over and ....you get the idea? we will tell tim to stop doing > > something and > > he'll say I can't! I believe there are times he really can't and times he > > doesn't want to. some things have gotten better, so we haven't > > pursued meds > > yet. > > > > oh, we did get good news---he gets a 1:1 aide!!!! district approved, > > princiapal has interviewed, and their board just has to apporve the eprson > > now. boy I can't sspell toniught. > > > > happy new year! > > > > maria mom to timmy 9 ChARGE, keegan 6, liam4 wife to pat, who is still > > employed for the time being,, could be days or hours. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Oh she will! Its essential! Kay Re: ocd >> >> >> > >> > Did you begin any meds as a child? Did the OCD begin as a child? >> > >> > Michele >> > >> > Kay Lynd wrote: >> > >> >> Hi , >> >> >> >> I take Zoloft for my OCD. It keeps it fairly well in check except >> when my >> >> stress levels are really high, then its harder to cope. >> >> >> >> Kay >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 I can't remember how we went into things to be sure she had one from the start. I'll try to remember to look back in my stuff to refresh my memory... If I don't reply again in a couple of days -- remind me! Michele W Angelcole wrote: > is there anything specific we can do to help that process along? > getting Ethan a 1:1 aide when he starts school i mean? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 I just started reading the posts about ocd and our children asking questions. These are funny and they aren't. Patty too used to ask questions like what time is it, where are we going, what are we going to have for supper, what will we do today, why, why, why... and on. I think it is because of a combination of things. Sure it is OCD stuff,. But then again I think it is also so she could make sense of what was going on in life. Consistancy was important for her so doing anything different sent her into tons of questions. But then we had this wonderful teacher who showed us to have planned inconsistancy in Patty's life. For example we would go for a ride about once every few months where there was no destination, just to enjoy the ride. Of course and I would have options in mind but we wouldn't tell the kids. We would make it fun like going on a hike, seeing the beach, going for ice cream but have no real direction or time. It was hard for Patty and for us to hear her but she ended up enjoying the fun. This teacher also had us move the furnature in our living room every once in a while. I would have Patty help by making suggestions of where she thought some things should go. That way she had to pay attention to her surroundings, because they change, but she was involved in the change. I really think things like that helped Patty with her OCD, to realize changes were ok. But then we stayed with routines as well to give her life balance. This was for things like meals, bedtimes, showers and yes even some t.v. shows. So if she asked questions about those I would ask her the question right back. That would make her mad but oh well. Yes she is on medication which helps her but I still get frusttrated with her when we are going places. The questions can drive me nuts. I especially get frustrated with her asking are we going to be late or are we lost. I guess they drive me nuts because half the time we are going to be late or we are lost. Driving around this area is crazy! I guess my point is that yes sometimes our childene have the OCD issues and need to have an answer before moving on to something but sometimes it is because they are trying to figure out this world from a different sensory perception. Then again sometimes they are just being a kid. It's hard to tell. She is now 20 and still asks some questions. I just make her answer them herself now. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 I have given this a lot of thought too. I know many of Aubrie's questions are to make sense of something when she missed part of a conversation or whatever. Some of it is about keeping routines, understanding change, etc. But some of it is just plain too much. I think medication or some kind of holistic intervention can help her to keep those things to an acceptable level. We've always tried to challenge her sensory system and her routine thing, etc by gently exposing her to things that she doesn't really like -- like the changing of furniture etc for Patty. I think that has helped a lot. It's just so interesting because Aubrie can be exceptionally flexible at most times, but then she can lose it at others. I think it has to do with fatigue and other stressors, but we still need to get these things in check before it escalates to a level that will really interfere with her social success, work, etc. As with all the issues with our kids, there are so many factors coming into play that's impossible to figure out what's truly going on. Michele W Aubrie's mom 7 yrs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 Hi all All I can say is WOW!!!!!!!!!! I receive the CHARGE listserve emails faithfully, but sadly I do not read them faithfully. Then last week I opened one as it arrived. The first post I read described my son Sullivan (turning 6 on Monday) to a T. I read on, and as I read other peoples experiences and challenges with repetitive behaviour etc I continued to feel like I was reading our story. It has been an incredibly difficult time with my son as he has also been showing aggressive behaviour to me and his dad. We have received so much comfort now knowing that we are not alone. Our pediatrician has been very unsupportive regarding the behaviours etc with Sullivan. Give him a time out he says! We have now decided to move forward with the psychiatric assessment (an urgent request will take about a month)and hopefully we will come up with a game plan that will keep us all sane. It's also tough because Sullivan is a very bright little boy and he knows exactly what to do to get us worked up and how to hurt us the most. I can't say he's acting maliciously but it certainly appears to be purposeful. I agree that research needs to be done on this part of CHARGE, it's seems to me that it is a part of many of our charger's lives and perhaps it will need to be added to the etiology one day. Thanks everyone for sharing. Tracey mom to Sullivan 6 (CHARGER) and Rose 11 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 We went in to the ped today for what turned out to be a tummy virus. I mentioned to her about looking into help for the OCD stuff. She was not very encouraging because Aubrie is always a delight when she sees her (unless she's just quiet cuz she's sick). She doesn't usually deal with psychiatric issues and I can understand her reservations about medicating or intervening with a child who isn't totally off the wall. When I explained that it wasn't so so bad yet and that she just doesn't know cuz she's not living with it, she seemed more accepting of the idea. She trusts me as a mom, but as a dr I know she doesn't quite get it. Our pediatricians don't often deal with these issues related to our kids, I guess since it's not a " medical " issue. Michele W Kim Lauger wrote: > One thing we can all vouch for is that typical time out does not work when > our kids are in these states. Neither does anger or authoritarian > mandates. > Respecting that the behavior is triggered by something internal is a big > first step, then helping the child have a safe place to cope with it is > next. Although Dylan is 8 he is still in his crib, which he likes. > When he > is throwing or hitting and not responding to a calm no and > redirection, then > I put him in his crib until he gets his " wilds " out. If I try to get him > out before he is ready, he pushes me away. When he is ready he lets > me take > him out. This is not punishment, this is a safe place for him to regain > control and to generate the intense input he needs during those times. > Again the laughter appears like they are doing these things for fun, but I > think it is a symptom of them being overstimulated or of experiencing > intense sensations somewhere. > > I hope you can find a doctor that will understand this and not just assume > that the child can control it if they chose to. > > Kim L > Mom to Dylan 8 CHaRGE, Kayla 14, Tyler 16 > > > > > > > > > > Hi all > > > > All I can say is WOW!!!!!!!!!! > > > > I receive the CHARGE listserve emails faithfully, but sadly I do not > > read them faithfully. Then last week I opened one as it arrived. > > The first post I read described my son Sullivan (turning 6 on Monday) > > to a T. I read on, and as I read other peoples experiences and > > challenges with repetitive behaviour etc I continued to feel like I > > was reading our story. > > > > It has been an incredibly difficult time with my son as he has also > > been showing aggressive behaviour to me and his dad. We have > > received so much comfort now knowing that we are not alone. Our > > pediatrician has been very unsupportive regarding the behaviours etc > > with Sullivan. Give him a time out he says! We have now decided to > > move forward with the psychiatric assessment (an urgent request will > > take about a month)and hopefully we will come up with a game plan > > that will keep us all sane. > > > > It's also tough because Sullivan is a very bright little boy and he > > knows exactly what to do to get us worked up and how to hurt us the > > most. I can't say he's acting maliciously but it certainly appears > > to be purposeful. > > > > I agree that research needs to be done on this part of CHARGE, it's > > seems to me that it is a part of many of our charger's lives and > > perhaps it will need to be added to the etiology one day. > > > > Thanks everyone for sharing. > > > > Tracey > > mom to Sullivan 6 (CHARGER) and Rose 11 months > > > > > > > > > > > > > > > > > > Membership of this email support groups does not constitute > membership in the > > CHARGE Syndrome Foundation. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter) > > please contact marion@... or visit > > the CHARGE Syndrome Foundation web page > > at http://www.chargesyndrome.org > > 7th International > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > > Information will be available at our website > > www.chargesyndrome.org or by calling 1-. In Canada, you may > > contact CHARGE Syndrome Canada at 1- (families), visit > > www.chargesyndrome.ca, or email info@.... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 " zones " out, too, and we've always been told not to worry about it. Do your twins do this while sitting for a meal? Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 Well, Aubrie's increase in " weird " behavior may have been due to illness. There's been lots of stuff going around since before the holiday. and DJ have both had stomach flu. Two nights in the past few days she has acted weird, thought she might throw up, but didn't. Today after school she was crying and had to leave Daisy scouts cuz she felt bad so we went to the dr to check ears and throat. Strep culture was neg, ears were great, so we decided it was viral. As soon as we got home, the vomiting started. Poor kid. We're supposed to go to Shriners for hip surgery follow-up tomorrow but I doubt that'll happen. Appt's not til afternoon so it's possible we could go if she wakes up fine. The others only had the " crud " for 24 hours or so. Good note -- no ear infection even with no PE tubes!!! They fell out last spring and we've had no troubles since... knock-on-wood! I could definitely tell something was up with her for several days, but she kept saying she felt fine, ears ok, etc. So I'd blame it on being tired. It's good to have a reason. We'll see if she is more at ease when she's better. Maybe I'll find that the " OCD " is really only when something's very wrong?? I know it's inevitable that we address it. Her issues are not as bad as some of the kids on the list, but they are enough that they would interfere with social relationships and employment as an adult. Off to bed with my sick cuddlebug... Michele W Aubrie's mom 7 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 Michele My niece has some OCD behaviors and her ped told my sister that strep throat can cause an increase in OCD. Sure enough, this week my niece was dx with strep. Her behavior had become increasingly erratic. So I definitely agree that there is some relationship to illness and behaviors. Hope everyone is well.... Ellie J Mom to Becca, 14 and Nicky, 12 (my CHARGEr) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 I did see it when sitting for a meal but it happens more when engaged in an activity. Especially for when the activity seems to be less challenging or during playtime. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 sorry to hear she isn't feeling well. hope the behaviors were because of health, know tim's are worse when not feeling well, but still there after. maria re: OCD > > Well, Aubrie's increase in " weird " behavior may have been due to > illness. There's been lots of stuff going around since before the > holiday. and DJ have both had stomach flu. Two nights in the > past few days she has acted weird, thought she might throw up, but > didn't. Today after school she was crying and had to leave Daisy scouts > cuz she felt bad so we went to the dr to check ears and throat. Strep > culture was neg, ears were great, so we decided it was viral. As soon > as we got home, the vomiting started. Poor kid. We're supposed to go > to Shriners for hip surgery follow-up tomorrow but I doubt that'll > happen. Appt's not til afternoon so it's possible we could go if she > wakes up fine. The others only had the " crud " for 24 hours or so. > Good note -- no ear infection even with no PE tubes!!! They fell out > last spring and we've had no troubles since... knock-on-wood! > > I could definitely tell something was up with her for several days, but > she kept saying she felt fine, ears ok, etc. So I'd blame it on being > tired. It's good to have a reason. We'll see if she is more at ease > when she's better. Maybe I'll find that the " OCD " is really only when > something's very wrong?? I know it's inevitable that we address it. > Her issues are not as bad as some of the kids on the list, but they are > enough that they would interfere with social relationships and > employment as an adult. > > Off to bed with my sick cuddlebug... > > Michele W > Aubrie's mom 7 yrs > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 i have charge and i havent been diagnosed with OCD and i dont think ive ever really had it maybe mildly but i am not sure I do know in the last few y ears i wash my hands too much, i have gotten rashes on the back of my hands wich a doctor put down to washing too much... im not sure how charge related that is Re: ocd > > > I just started reading the posts about ocd and our children asking > questions. > These are funny and they aren't. Patty too used to ask questions like > what > time is it, where are we going, what are we going to have for supper, what > will we do today, why, why, why... and on. I think it is because of a > combination of things. Sure it is OCD stuff,. But then again I think it > is > also so > she could make sense of what was going on in life. Consistancy was > important > for her so doing anything different sent her into tons of questions. > > But then we had this wonderful teacher who showed us to have planned > inconsistancy in Patty's life. For example we would go for a ride about > once > every few > months where there was no destination, just to enjoy the ride. Of course > and I would have options in mind but we wouldn't tell the kids. We > would > make it fun like going on a hike, seeing the beach, going for ice cream > but > have > no real direction or time. It was hard for Patty and for us to hear her > but > she ended up enjoying the fun. > > This teacher also had us move the furnature in our living room every once > in > a while. I would have Patty help by making suggestions of where she > thought > some things should go. That way she had to pay attention to her > surroundings, > because they change, but she was involved in the change. I really think > things like that helped Patty with her OCD, to realize changes were ok. > > But then we stayed with routines as well to give her life balance. This > was > for things like meals, bedtimes, showers and yes even some t.v. shows. So > if > she asked questions about those I would ask her the question right back. > That > would make her mad but oh well. > > Yes she is on medication which helps her but I still get frusttrated with > her > when we are going places. The questions can drive me nuts. I especially > get > frustrated with her asking are we going to be late or are we lost. I > guess > they drive me nuts because half the time we are going to be late or we > are > lost. Driving around this area is crazy! > > I guess my point is that yes sometimes our childene have the OCD issues > and > need to have an answer before moving on to something but sometimes it is > because they are trying to figure out this world from a different sensory > perception. Then again sometimes they are just being a kid. It's hard to > tell. > > > She is now 20 and still asks some questions. I just make her answer them > herself now. > > Bonnie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 I know i use to have aggressive behaviour problems, especialyl when i was younger, i was always kicking people in primary school...theres been times i think i have just hit someone when i get angry at them, i dont really do this anymore bu yea ocd > > > Hi all > > All I can say is WOW!!!!!!!!!! > > I receive the CHARGE listserve emails faithfully, but sadly I do not > read them faithfully. Then last week I opened one as it arrived. > The first post I read described my son Sullivan (turning 6 on Monday) > to a T. I read on, and as I read other peoples experiences and > challenges with repetitive behaviour etc I continued to feel like I > was reading our story. > > It has been an incredibly difficult time with my son as he has also > been showing aggressive behaviour to me and his dad. We have > received so much comfort now knowing that we are not alone. Our > pediatrician has been very unsupportive regarding the behaviours etc > with Sullivan. Give him a time out he says! We have now decided to > move forward with the psychiatric assessment (an urgent request will > take about a month)and hopefully we will come up with a game plan > that will keep us all sane. > > It's also tough because Sullivan is a very bright little boy and he > knows exactly what to do to get us worked up and how to hurt us the > most. I can't say he's acting maliciously but it certainly appears > to be purposeful. > > I agree that research needs to be done on this part of CHARGE, it's > seems to me that it is a part of many of our charger's lives and > perhaps it will need to be added to the etiology one day. > > Thanks everyone for sharing. > > Tracey > mom to Sullivan 6 (CHARGER) and Rose 11 months > > > > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 With all this talk I just wanted to share that last night we picked up our older daughter and brought her home. We were discussing something (all of us- Patty too) and our discussion changed further. Patty who was very cranky stayed on topic asking question after question. As I was sitting there I heard my husband ask Patty if she had her Risperdal yet, she answered yes. She continued on the old topic and continued to be cranky. Then a asked her if she had her orthotrycyclene. I kind of felt sad for Patty realizing our topic here on this computer. OCD and her perseveration is hard for her. And then it is hard for us first thing in the morning and last thing at night. I guess we need more patience sometimes. Life goes on though. Bonnie, mom to a 22, Patty CHARGE 20, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 I'm so glad he gets a 1 on 1 aid. Yeah! That will really help. No I don't think I repeated too many things over and over but things go through my mind over and over. Its maddening! LOL Kay Re: ocd >> >> >> > >> > Did you begin any meds as a child? Did the OCD begin as a child? >> > >> > Michele >> > >> > Kay Lynd wrote: >> > >> >> Hi , >> >> >> >> I take Zoloft for my OCD. It keeps it fairly well in check except when > my >> >> stress levels are really high, then its harder to cope. >> >> >> >> Kay >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Go zoloft! LOL Kay Re: ocd > > > Gosh, I don't want to be missunderstood. I guess I was making light about > something serious. First of all I think it is more than important for me > to > say > that Patty couldn't and shouldn't survive without her medications. Her > Risperdal is for her tourettes which works for her incredibly well yet it > also > works on her being able to handle her OCD. Then she is on orthotrycyclene > as a > hormone replacement. When she misses that pill she is horrible to live > with. > Without both medications Patty couldn't live within her own body and we > sure > as > heck woud go crazy dealing with her. Yes there is wiring differences, > chemical imballances....... > > But along with that her experiancing the world is different than others > do. > She has to have experiences, true experiances to make life work. > > And when I say I make Patty answer her own questions it is because she can > now. It used to be harder. I tell her my answer hasn't changed in the > last > five minutes so what did I say before. I than make her repeat it. Having > her do > that helps her. > > She can get stuck easily on things, and people too. She can tell when she > is > having trouble perseverating on something. She'll even point it out and > ask > for help. > > Along with meds we also learned relaxation techniques. This slows her > heart > rate down, calms her mind and centers her body. When she was little I > used > to > hold her close to me to let her feel my body calm and my breathing slow. > Now > she does it herself better than I ever saw anyone. That is if she is > medicated normally. This all is from a life learned. It used to be > harder > when she > was young. It isn't really any more. Now when she is being a yuck the > first > thing we do is ask her if she had her meds (remember she's 20 and takes > them > independantly.) If she missed them she gets spoken to. If she hasn't > then > we > tell her she has the control. But then there are those moments when even > the > meds don't work. That's where the psych comes in. > > Sorry I made it seem funny when it shouldn't have. > > Bonnie, mom to Kris 22, Patty CHARGE 20, and wife to > > > Quote Link to comment Share on other sites More sharing options...
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