Introduction

[Guest guest]

Thanks! You're a sweetheart! HUGS

Dawn

Re: Introduction

DAWN

THANKS FOR THE COMPLIMENT. AGE IS JUST A NUMBER. I CAN'T BELIEVE THAT I

HAVE A DAUGHTER 37 WHEN I FEEL 37. I CAN'T BELIEVE IT MYSELF.

I LOVE READING ALL YOUR POSTS. YOU WILL MAKE A BEAUTIFUL BRIDE.

TALK TO YOU SOON RAYNA

[Guest guest]

a,

Hello and welcome to the group. I'm so sorry you've had to endure an EP. I

have endured 5 pregnancy losses myself, three of them were EP's and the other

two were wither EP's that resolved themselves or miscarriages. You have

found a wonderful group of ladies here with many different experiences. Good

luck and welcome!

[Guest guest]

Welcome to the group a,

I'm sorry it's under these circumstances, though. You will find alot of

support here, I hope as much as I have. I had a ruptured ep on 12/2/99

and they removed my left tube. I can't give you much information of the

tubal reversal though. The dr. said loosing one tube would only reduce

my fertility by 10% of what it was before.

Vicki

a Quintero wrote:

>

> Hello Ladies,

> My name is a. I have been married to my

husband for 2 yrs his name is Jai. I have 2 beautiful boys 10 and 7.

I just recently suffered from an ectopic pg the 8th of Oct. I am having a very

hard time with this. I know you all know what I meen. I had a Tubal reversal in

June and ended up Pg the second time TTC. We were just jumping up and down!!!!

The thing that sucked so much is I had a ultrasound at 5.5 weeks that showed a

gestational sac in the uterus. My betas every 48 hrs were doubling like they're

supposed too. We thought we were in the clear. I had an awful pain on the right

then started spotting 4 days later. I went to the Er and sure enough there was

a 1 in by 1 1/2 in mass in the right tube. They did a lap and I was already

bleeding internally so they took my right tube. They ran dye through the left

and said I have free flow but of course I am terrified to ever try again. They

say I have an 85% chance. I don't know if I could handle this again. I am

crushed. I knew this was a risk with the reversal but you never think it will

happen to you. I am very much looking forward to meeting everyone. I figure the

only support that will help will come from ladies that have been where I am. I

am sorry we have all suffered this awful lose. There have been days that I

really don't think I'm going to make it.

> I was wondering if anyone else here has

suffered a tubal Pg due a tubal reversal?

> Well, sorry this is so long. I posted before

but I don't think it came through I had been having problems with my email.

> I will be looking forward to hearing from you

ladies. I am very happy to have found this group!!!! God Bless and prayers to

you all!!!!!

> God

Bless ~~ a

>

>

>

[Guest guest]

Vicki,

Thank you for the welcome!! My Dr. said my chances of TTC

are very good also. They can't give me a risk % because i had a tubal reversal.

One Dr. said he thinks I have an 85% chance of a normal pg. I hope you are

blessed with a normal pg soon!!! God Bless~~ a

Re: introduction

Welcome to the group a,

I'm sorry it's under these circumstances, though. You will find alot of

support here, I hope as much as I have. I had a ruptured ep on 12/2/99

and they removed my left tube. I can't give you much information of the

tubal reversal though. The dr. said loosing one tube would only reduce

my fertility by 10% of what it was before.

Vicki

a Quintero wrote:

>

> Hello Ladies,

> My name is a. I have been married to my

husband for 2 yrs his name is Jai. I have 2 beautiful boys 10 and 7.

I just recently suffered from an ectopic pg the 8th of Oct. I am having a very

hard time with this. I know you all know what I meen. I had a Tubal reversal in

June and ended up Pg the second time TTC. We were just jumping up and down!!!!

The thing that sucked so much is I had a ultrasound at 5.5 weeks that showed a

gestational sac in the uterus. My betas every 48 hrs were doubling like they're

supposed too. We thought we were in the clear. I had an awful pain on the right

then started spotting 4 days later. I went to the Er and sure enough there was

a 1 in by 1 1/2 in mass in the right tube. They did a lap and I was already

bleeding internally so they took my right tube. They ran dye through the left

and said I have free flow but of course I am terrified to ever try again. They

say I have an 85% chance. I don't know if I could handle this again. I am

crushed. I knew this was a risk with the reversal but you never think it will

happen to you. I am very much looking forward to meeting everyone. I figure the

only support that will help will come from ladies that have been where I am. I

am sorry we have all suffered this awful lose. There have been days that I

really don't think I'm going to make it.

> I was wondering if anyone else here has

suffered a tubal Pg due a tubal reversal?

> Well, sorry this is so long. I posted before

but I don't think it came through I had been having problems with my email.

> I will be looking forward to hearing from you

ladies. I am very happy to have found this group!!!! God Bless and prayers to

you all!!!!!

>

God Bless ~~ a

>

>

>

[Guest guest]

Re: Introduction

> Hello Jay,

> Thanks for your interest in joining our group. We have had other members

> getting Ashermans from a myomectomy so it may be comforting for you to

hear

> from them when I approve your membership.

>

> I am having some problems with yahoo at the moment which won't allow me to

> access the site. I will therefore approve your membership as soon as I am

> able to. Sorry about this.

>

> Best regards

> Poly

>

[Guest guest]

Hi ,

Thank you! The outpouring of support from the group

is so wonderful!

So I assume your first hysteroscopy was not with an

'A' list doctor. I actually have my pre-op consult

today with my RE, who before yesterday I thought would

be doing my surgery. I just scheduled a consultation

with Dr. Cohen (on the A list)in New York next week.

Based on all current indicators, my biggest fear of

course is to go through surgery and be told the same

thing you were. After hearing your story it makes me

think about going out to CA (I live in NJ) to see Dr.

Indman.

How far did you get in your pursuit of a surrogate? My

sister is 44 and has 3 girls of her own. All text

book pregnancies and easy deliveries. She has already

offered to be my SM. I'll be 37 in May. I have no

idea how long any of this takes and of course am

feeling the pressure of time for both myself and

sister depending on the course we take. I have just

started researching the surrogate thing and was also

thinking about pursuing both at the same time. What

would you recommend?

It's nice to hear a happy ending. All my best to you

and the little angel you are waiting on.

Janice

--- emartel wrote:

> Hi Janice,

> Your story is similar to mine and many others in

> this group. You are

> exactly one year behind me. I had my son in Sept.

> 1999, I had a D & C 4

> weeks later and I weaned over the summer 2000 and

> had no period return

> to speak of. I went back to my RE (fertility

> doctor) to start IVF (Sept

> 2000) for child number 2 (we had IVF for my son too)

> and he discovered

> that my uterus was closed shut. I had an operative

> hysteroscopy and

> laparoscopy and was told when I woke up that my

> uterus was too scarred

> shut with very dense and vascularized scar tissue

> and that there was no

> cavity left. They told me to find a surrogate or

> try the best doctor

> for this type of surgery in the Bay Area, Calif. I

> pursued both avenues

> at the same time. I knew I didn't have any time to

> waste because of my

> own prior fertility issues.

>

> Ok, to make a long story short. I went through

> another operative

> hysteroscopy with this new doctor (Dr. Indman) who

> restored my uterus in

> one quick surgery and three follow up office

> hysteroscopies

> (preventative measures). I had an open cavity and

> was able to go

> through IVF in 6 weeks. I got pregnant but we lost

> the child at 8 weeks

> and then I had another D & C with Dr. Indman. I did

> IVF again and got

> pregnant with a very thin endometrial lining in June

> 2001 and I am now

> 34 weeks pregnant.

>

> I had many many ups and downs throughout this

> experience. This

> pregnancy has been complicated but I am happy to say

> the immediate risk

> of losing the baby is gone and I am happily awaiting

> her arrival. My

> point is that you may have bumps yourself but you

> can beat this thing if

> you stay strong and stick it out.

>

> With that said the most important thing that you can

> do for yourself is

> to read the primer on our home page and to find

> yourself an A list

> doctor. These doctors are the kings of

> hysteroscopic surgeries. They

> are the skilled surgeons that do these surgeries all

> the time and the

> ones that can give you the best chance of regaining

> a normal uterus.

> RE's are very knowlegeable but these A list docs are

> the surgeons that

> practice daily and are the best in restoring the

> uterus. The RE's are

> very good at the hormones and understanding what may

> be going on with

> you. So what we suggest is to go to a surgeon to

> have your surgery.and

> either see an RE concurrently or afterward if your

> uterus is open and if

> you still have problems.

>

> Many women have mild cases of Ashermans and go on to

> conceive and carry

> afterwards. But many also have moderate to severe

> cases that have more

> problems. The worst of which is if the doctor that

> did the D & C was

> too aggressive and scraped too deep. Then the

> endometrial lining in

> your uterus may not grow back to its pre Asherman

> level. This is what

> happened to me, my pre Asherman lining was 8 to 9 mm

> thick and

> afterwards it only grew to 6 mm. But, I still got

> pregnant.so lot's

> can happen.

>

> Where do you live? The most important thing for

> you is to see an A

> list doctor. You had 2 D & C's and an

> infection..this is not good, so

> you need to see the best right away. There are

> women in this group who

> have successfully beat this thing with severe

> Ashermans and you can too,

> but I have to urge you to see an A list doc. There

> have been women who

> have traveled to another state to go to the best and

> have been thankful

> for it. In addition, many of us went to a

> non-A-list doc first and then

> regretted it later. I was lucky in that my RE sent

> me to one of the

> best before I gave up. And also, my RE didn't try

> to cut any scar

> tissue out, he knew that my uterus was out of his

> league and pulled out

> without trying to do the surgery himself. The other

> surgeon doing my

> surgery accidentally punctured my uterus, this is

> another risk with

> having less experienced surgeons doing this kind of

> surgery.

>

> I myself had to drive 6-7 hour round trips numerous

> times (probably

> dozens) in order to see the best.and having a 14

> month old at the time

> it wasn't easy. But, it was worth it and I have

> this surgeon to thank

> for my little girl whom I pregnant with right now.

>

> Ok, lets' start with where you live and go from

> there. I just want to

> say that your doctors saying that you won't have

> another child is way

> too premature. You have lots of options ahead of

> you before this

> conclusion. So, stay strong and I wish you the best

> in this fight.

>

>

> .

>

__________________________________________________

[Guest guest]

Janice,

As you are a new member to the board, you may not have read the recent email from Lee Ann who is has done surrogacy and her surrogate is expecting twins. I believe she has offered to answer any questions to anyone who wants to know about this method so if you want to direct any questions to her, I'm sure she will be more than happy to answer them.

Good luck with your meeting next week with Dr Cohen. Hope you can update us.

Poly

[Guest guest]

At the

> moment we are trying to improve her intonation, her rate of speech and her

> telephone skills. Any suggestions on any of these would be welcome!

>

I think songs and nursery rhymes, poetry, chants would help with

intonation and rate of speech. You don't mention if Petra has a cochlear

implant, in which case i don't know how much she can get out of music

yet (i think it can take a few years with some people).

I remember there was a discussion thread here a while ago about software

that can help with speech. This would have graphics or a visual display

of some kind and i don't know if this can fit in with the AV approach

you are using with Petra. Dominic was still too young at the time to

benefit from this and i didn't follow the discussion very carefully.

Does anyone else remember?

Cristina

Mum to Dominic (2y3m, prof. deaf, HA)

[Guest guest]

, all the other ladies are far more knowledgeable and better

spoken than I, but I will try to answer your questions. First, what

you have is most probably Asherman's. It is caused by over agressive

uterine procedures, like d & c's (for any reason), and certain

infections. Scars and adhesions form because the endometrium is

damaged. The brown, stringy discharge is very common, as is the

regular cramping...Your body is continuing to ovulate, and your

uterus is cramping, trying to shed it's lining, but can't because

your cervix is blocked. I had horrible cramping ever since I had my

son. As soon as I had surgery to deal with the scars and adhesions

in Nov 2000 the cramping is so much less. There is information out

there and this is the best place to start. I'm sorry you are having

to deal with this.

[Guest guest]

,

I am new to the group as well (less than a week now) so I don't have

a lot of answers for you, but I can tell you this. I just found out

I have Asherman's SYndrome and it has been three years since my D & C

after childbirth due to retained placenta and I have not had a period

yet. My OB/GYN has continued to tell me for the past 3 years that

there is nothing to worry about due to my lack of periods and I

believed him. The facts however are only determined by proper

treatment by an excellent surgeon/physician. I have not seen anybody

yet because I don't know who to see, but I can definitely tell you

that you need to act now. Take the time and effort to get yourself

back to normal as soon as possible and get several opinions if things

are not making sense.

The scarring of the uterus can cause damage if you ever want to have

children and not all OB-GYN's are experts or even knowledgable with

AS.

Good luck in your research. I have been reading, reading, reading on

this site since I joined this past week and there is a lot of

valuable information being discussed.

nancy w.

[Guest guest]

My hubby is active duty air force and my son got a cochlear implant 3 years

ago, at the age of 12. We petitioned the air force to relocate us to a spot

that could support my son's needs, and they moved us to San . This

was 4 years ago.

> 1) an Air Force Base nearby.

Lackland AFB.

> 2) a center or hosp. that performs the CI

There are 2 centers in town, plus the military medical center here (Wilford

Hall) also has an implant program.

> a town that has a good educational or postoperative support record in

place.

Our son is in the mainstream program of Sunshine Cottage. We're very pleased

with their services. Even if you choose for your son to not attend their

program, they do offer services after school for children with CIs,

including audiological care and auditory rehabilitation.

http://www.sunshinecottage.org/

My son, and us, are VERY happy with his surgeon and the support and services

provided by his implant center. Please feel free to ask me any further

questions you may have.

Hugs,

Kay

[Guest guest]

Dear Nan,

I recognized the WHRO in your address immediately and wondered if you were

here in Virginia. I live in Norfolk and would be happy to chat with you. My

son is 19 months old. He has a profound loss and has worn hearing aids

since he was 3 months old. He goes to AV therapy with Adam at CHKD. I

am familiar with the audiologists and doctors at CHKD and the Hearing and

Balance Center at Depaul. We work with Norfolk's early intervention program

and also benefited from an outreach program through the deaf school. I've

also had some contact with TAHIC, Tidewater Association for Hearing Impaired

Children. I've been very proactive in learning about hearing loss and

seeking out resources in our area. We have been seeing Sandy Campell at

Maico for hearing tests and hearing aid maintenance. We started out with her

as our audiologist because CHKD wasn't a provider under our Optima insurance.

Insurance is whole other headache as you may be discovering. Feel free to

email me privately and I will share my phone number if you would like to talk.

Kearns

mom to , profound, 19months

[Guest guest]

Nan-

What kind of hearing aids are they -- they sound a bit expensive. Does the cost

include anything or are the aids $1500 a piece by themselves? If you are

looking for assistance, first check the Listen-up web for resources on funding

for hearing aids and CIs. They have a lot of resources there, it takes some

research but they are there. Also contact the HIKE fund at sgc@... and ask

for an application. We got a good sized grant from them for my son. Also try

agbell.org, they have a lot of resources and you can probably find something in

your area. There is also a department in the Dept. of Health and Human Services

office (in most states) called Special Medical Services, they offer financial

assistance to children, I think it is for children ages 0-21. Or medicaid if

you are eligible. Check some of these out and I am sure you will find someone

that will help you.

Take care and Good luck,

Introduction

I have just joined this list as we just had confirmed our 5 year old

son has bilateral hearing loss.

I feel I have so much to learn and this has been such a help

already joining this list.

We have 6 children ages 27,23,21,19,16 (all girls) and we had a

surprise and a blessing with a son who is now going to be 6 in

July.

Ethan was born having Interuterine Growth Retardation which in

his case meant the placenta stopped functioning properly in the

last two months and he lost weight in utero down to 4 pounds

but was 21 inches long. He was oxygen deprived for some time

and may have led to this hearing loss.

He has been in speech classes for 2 years now with minimal

success. He simply plateaued and I was still concerned. I

thought perhaps there was hearing loss but everytime the

teacher did a test with him, it was okay, or he did not cooperate

well. So I took him to an audiologist and he really won't

cooperate in the booth so they did the BERA test and the results

are about 80% hearing loss in the high tones and mild loss in

the lower tones. This child never knew birds made noise!

So here we are and now we are trying to find the funding for the

hearing aids he needs. So is anyone in Virginia? this Doctor

said he will be looking into programs for us as well. Our

insurance of course will not cover any of this and the aids

(BTE)he would like to put Ethan in are $1500. a piece and

$3000. is so much to come up with.

We also need to have another IEP done as the issues have

changed and a hearing teacher will now be involved.

We have been a homeschooling family for 22 years and want to

continue as much as possible but I want Ethan to get the help he

needs as well.

Thank you for any help you could share on where I need to go for

help. What services are available and where to find them.

NAN

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

Actually, our daughters hearing aids and my hearing aids ran between 3,000

and 4,500 for both the left and right aids. Unfortunately, children need to

start out with BTEs which are more expensive. I just thought you should know

that is the going rate for digital BTEs. Sorry, I wish they were cheaper in

cost too. Sincerely,

Cathleen

Introduction

>

>

> I have just joined this list as we just had confirmed our 5 year old

> son has bilateral hearing loss.

> I feel I have so much to learn and this has been such a help

> already joining this list.

> We have 6 children ages 27,23,21,19,16 (all girls) and we had a

> surprise and a blessing with a son who is now going to be 6 in

> July.

> Ethan was born having Interuterine Growth Retardation which in

> his case meant the placenta stopped functioning properly in the

> last two months and he lost weight in utero down to 4 pounds

> but was 21 inches long. He was oxygen deprived for some time

> and may have led to this hearing loss.

> He has been in speech classes for 2 years now with minimal

> success. He simply plateaued and I was still concerned. I

> thought perhaps there was hearing loss but everytime the

> teacher did a test with him, it was okay, or he did not cooperate

> well. So I took him to an audiologist and he really won't

> cooperate in the booth so they did the BERA test and the results

> are about 80% hearing loss in the high tones and mild loss in

> the lower tones. This child never knew birds made noise!

> So here we are and now we are trying to find the funding for the

> hearing aids he needs. So is anyone in Virginia? this Doctor

> said he will be looking into programs for us as well. Our

> insurance of course will not cover any of this and the aids

> (BTE)he would like to put Ethan in are $1500. a piece and

> $3000. is so much to come up with.

> We also need to have another IEP done as the issues have

> changed and a hearing teacher will now be involved.

> We have been a homeschooling family for 22 years and want to

> continue as much as possible but I want Ethan to get the help he

> needs as well.

> Thank you for any help you could share on where I need to go for

> help. What services are available and where to find them.

>

> NAN

>

>

> All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

[Guest guest]

> Thank you for any help you could share on where I need to go for

> help. What services are available and where to find them.

You'll find a whole list on possible funding sources here:

http://www.listen-up.org/haidfund.htm

Hugs,

Kay

[Guest guest]

>> What kind of hearing aids are they -- they sound a bit expensive. Does

the cost include anything or are the aids $1500 a piece by themselves? <<

Having just paid $1700 for one hearing aid and a boot (not wireless) for JD,

I know that it can be this expensive, and more. JD's is a Widex L32

Programmable. I'm sure the digitals run even more - but JD didn't even get

sound awareness from them.

Hugs,

Kay

[Guest guest]

In a message dated 6/3/02 12:38:35 PM Central Daylight Time,

kay@... writes:

> Having just paid $1700 for one hearing aid and a boot (not wireless) for JD,

> I know that it can be this expensive, and more. JD's is a Widex L32

> Programmable. I'm sure the digitals run even more - but JD didn't even get

> sound awareness from them.

>

Yes they are! We just got a Widex Senso P38 for which was right at

around $1900. Luckily, our insurance covered 100% - yes I am still pinching

myself.

Suzette

[Guest guest]

My son's hearing aids are programmable and cost about $550 give or take $10 and

his fm system with MLX Microlink boots were $2500. So that is why I asked the

question about the price. He has Phonak Novo Fortes (BTE).

Introduction

>

>

> I have just joined this list as we just had confirmed our 5 year old

> son has bilateral hearing loss.

> I feel I have so much to learn and this has been such a help

> already joining this list.

> We have 6 children ages 27,23,21,19,16 (all girls) and we had a

> surprise and a blessing with a son who is now going to be 6 in

> July.

> Ethan was born having Interuterine Growth Retardation which in

> his case meant the placenta stopped functioning properly in the

> last two months and he lost weight in utero down to 4 pounds

> but was 21 inches long. He was oxygen deprived for some time

> and may have led to this hearing loss.

> He has been in speech classes for 2 years now with minimal

> success. He simply plateaued and I was still concerned. I

> thought perhaps there was hearing loss but everytime the

> teacher did a test with him, it was okay, or he did not cooperate

> well. So I took him to an audiologist and he really won't

> cooperate in the booth so they did the BERA test and the results

> are about 80% hearing loss in the high tones and mild loss in

> the lower tones. This child never knew birds made noise!

> So here we are and now we are trying to find the funding for the

> hearing aids he needs. So is anyone in Virginia? this Doctor

> said he will be looking into programs for us as well. Our

> insurance of course will not cover any of this and the aids

> (BTE)he would like to put Ethan in are $1500. a piece and

> $3000. is so much to come up with.

> We also need to have another IEP done as the issues have

> changed and a hearing teacher will now be involved.

> We have been a homeschooling family for 22 years and want to

> continue as much as possible but I want Ethan to get the help he

> needs as well.

> Thank you for any help you could share on where I need to go for

> help. What services are available and where to find them.

>

> NAN

>

>

> All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

[Guest guest]

Suzette,

We have P38s for Jussie. They are expensive and the military refused to

cover ours at all!. We chose the digitals with the FM boots because Jussie

was REALLY deaf. But they said they couldn't cover it at all. So we had to

pay out of pocket for both aids. I had to dip into the kids college funds to

pay for them.

Cathleen

Re: Introduction

> In a message dated 6/3/02 12:38:35 PM Central Daylight Time,

> kay@... writes:

>

>

> > Having just paid $1700 for one hearing aid and a boot (not wireless) for

JD,

> > I know that it can be this expensive, and more. JD's is a Widex L32

> > Programmable. I'm sure the digitals run even more - but JD didn't even

get

> > sound awareness from them.

> >

>

> Yes they are! We just got a Widex Senso P38 for which was right at

> around $1900. Luckily, our insurance covered 100% - yes I am still

pinching

> myself.

>

> Suzette

>

>

>

[Guest guest]

Wow! That is a good price. Were they analog programmable?

Cathleen

Introduction

> >

> >

> > I have just joined this list as we just had confirmed our 5 year old

> > son has bilateral hearing loss.

> > I feel I have so much to learn and this has been such a help

> > already joining this list.

> > We have 6 children ages 27,23,21,19,16 (all girls) and we had a

> > surprise and a blessing with a son who is now going to be 6 in

> > July.

> > Ethan was born having Interuterine Growth Retardation which in

> > his case meant the placenta stopped functioning properly in the

> > last two months and he lost weight in utero down to 4 pounds

> > but was 21 inches long. He was oxygen deprived for some time

> > and may have led to this hearing loss.

> > He has been in speech classes for 2 years now with minimal

> > success. He simply plateaued and I was still concerned. I

> > thought perhaps there was hearing loss but everytime the

> > teacher did a test with him, it was okay, or he did not cooperate

> > well. So I took him to an audiologist and he really won't

> > cooperate in the booth so they did the BERA test and the results

> > are about 80% hearing loss in the high tones and mild loss in

> > the lower tones. This child never knew birds made noise!

> > So here we are and now we are trying to find the funding for the

> > hearing aids he needs. So is anyone in Virginia? this Doctor

> > said he will be looking into programs for us as well. Our

> > insurance of course will not cover any of this and the aids

> > (BTE)he would like to put Ethan in are $1500. a piece and

> > $3000. is so much to come up with.

> > We also need to have another IEP done as the issues have

> > changed and a hearing teacher will now be involved.

> > We have been a homeschooling family for 22 years and want to

> > continue as much as possible but I want Ethan to get the help he

> > needs as well.

> > Thank you for any help you could share on where I need to go for

> > help. What services are available and where to find them.

> >

> > NAN

> >

> >

> > All messages posted to this list are private and confidential. Each

> post is the intellectual property of the author and therefore subject to

> copyright restrictions.

> >

> >

[Guest guest]

> We have P38s for Jussie. They are expensive and the military refused to

> cover ours at all!. We chose the digitals with the FM boots because Jussie

> was REALLY deaf. But they said they couldn't cover it at all.

Would you mind sharing some details? Was this through PFPWD (Program For

Persons With Disabilities? PFPWD approved the Widex L32, 6 boxes of

batteries for it, a new speech processor for my son, and a years worth of

batteries for it. Total cost is about $7,000 to be prorated over 7 months.

Not sure what was up with our case manager, I was ready to get them one at a

time throughout the coming year, but she thought it best to get it all at

one time. So, I don't see why they wouldn't cover the P38s. Of course, if

you didn't go through PFPWD, then I can see where they wouldn't cover them -

if you go through a clinic on base (there are a few who provide hearing

aids), I think the only thing they offer is Beltone. Tricare Prime doesn't

cover them at all.

Kay

[Guest guest]

OH! You said that word! TRICARE! One of the happiest days of my life was

when I know longer had to deal with Tricare! LOL! My husband separated from

the military in June 2000. We were in the Transition Assistance Program for

6 months after that. Jussie did not get her aids until July. We tried to

plead with them that Jussie was born deaf when she was a military dependent.

The tricare rep told me and I quote " Gee, darn shame she didn't need them 40

days ago! " Sorry, I have a real axe to grind with the military over the

incresingly shrinking benefit to the family members. Our congresswoman was

even pleading with our case. I finally said the hell with it. It took them

10 months to pay the costs of Jussie's birth - we were sent to collections

in the meantime and my hubby almost lost a stripe over it. NO, sorry, but I

have had horrible experiences with tricare. So it is tantamount to a

four-letter-word LOL! And it just saddens me to see the quality of madical

care for military members deteriorate so. It is most noticeable on the

smaller bases. Ok, enough with my soapbox.

Cathleen

Re: Introduction

> > We have P38s for Jussie. They are expensive and the military refused to

> > cover ours at all!. We chose the digitals with the FM boots because

Jussie

> > was REALLY deaf. But they said they couldn't cover it at all.

>

> Would you mind sharing some details? Was this through PFPWD (Program For

> Persons With Disabilities? PFPWD approved the Widex L32, 6 boxes of

> batteries for it, a new speech processor for my son, and a years worth of

> batteries for it. Total cost is about $7,000 to be prorated over 7 months.

> Not sure what was up with our case manager, I was ready to get them one at

a

> time throughout the coming year, but she thought it best to get it all at

> one time. So, I don't see why they wouldn't cover the P38s. Of course, if

> you didn't go through PFPWD, then I can see where they wouldn't cover

them -

> if you go through a clinic on base (there are a few who provide hearing

> aids), I think the only thing they offer is Beltone. Tricare Prime doesn't

> cover them at all.

>

> Kay

>

>

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

[Guest guest]

I'm re-sending part of a previous message because the Le Blancs want to hear

from more than just me and San . They want to hear from others out

there. Surely San can't be the only place that meets all of the

qualifications listed below. ;-)

-Kay

> The three major factors include:

> 1) an Air Force Base nearby., 2) a center or hosp. that performs the CI,

and

> a town that has a good educational or postoperative support record in

place.

> Any one out there have any ideas? Not just about areas, but doctors,

centers,

> whatever. Saturate me with info!!! Thank you all for reading and

responding.

> Direct e-mails are welcome, too. Thanks

>

> Rob and Dawn Le Blanc

> and the Boys!!

[Guest guest]

>

> Hey Johanne

Your oral surgeon may be God, but stick with this group for the real

low-down.....what to eat, what is normal, why something feels weird,

etc.

You'll be fine. I too had a lower jaw advancement, and the pain WAS

nearly non-existent. But my oral surgeon, though highly acclaimed by

all dentists and orthos in town, had, as they say, " little bedside

manner. " So I drudged along after surgery thinking I was the weirdo

with odd symptoms and experiences....till I found this group. Boy,

do they know a lot. And boy, do they care about a fellow sufferer

more than my surgeon does!

Stick around....it's a great place to hang out.

Ann

> Hi everyone!

>

> I just recently discovered your group and thought I'd join to get a

> little insight on my future orthognathic surgery.

>

> I'll be getting lower jaw surgery to correct an open bite in about

18

> months or so (my orthodontist, periodontist and prosthodontist

still

> need to torture me a little longer before the surgery) My ortho

> told me that lower jaw surgery should be a piece of cake since

> there's no pain and I'm alrady use to not being able to eat

normally,

> having my mouth swollen, drooling and so on. But surgery is

surgery.

> I've had gum surgery, but it's nothing compared to actually having

> jaw surgery (or so I've heard) After reading some of the posts

here,

> I'm realizing how lucky I am that they only need to move my lower

jaw

> a little forward. When I met the surgeon who'd be performing my

> surgery, he told me it was a simple surgery and that nothing could

go

> wrong - apart from my lower jaw staying numb for the rest of my

> life My ortho thinks he's one of the best orthognathic surgeons

> around and that I really don't have anything to worry about. Am I

> really worrying about nothing? None of my dentists seem to

understand

> why I'm even concerned in the first place because of other dental

> procedures I've been through, but jaw surgery seems pretty major to

> me.

>

> Well, I wish all of you who've recently been through surgery a

speedy

> recovery and all the luck in the world to those of you who are

having

> surgery again or for the first time.

>

> Love always,

> Johanne

[Guest guest]

Thanks !

No, dental work is hardly ever a piece of cake and

oral surgery certainly isn't. Then again, my ortho

admitted he could use jaw work himself and he's not

going through with it, so he can't talk I did tease

him about that and he does know that nothing I've been

going through has been easy, so he's been very sweet

and was just trying to be optimistic about my future

dental work when he said things would go well and that

the surgery would be a piece of cake. He knows I was

hesitant when he brought up the idea of correcting my

open bite with surgery also. He had to know if I was

going to go through with the surgery though since it

will influence what he does with my braces.

I joined the adults with braces group about a month

ago which has been nice also. It's always great to be

able to hear about what others have gone through

and/or are going through. Not many people in my life

have ever gone through anything similar to my case -

and sometimes it feels like nobody understands why I'm

putting myself though any of this. I'm even starting

to believe that some people in my life just think I'm

crazy. Then again, I was never all that sane to begin

with

Love always,

Johanne

--- nicetosmile <no_reply > wrote:

<HR>

<html><body>

<tt>

-Hello Johanne, & nbsp; welcome aboard! I am having

lower jaw advancement <BR>

also (sometime in Oct). Cammie just recently had hers

and there are <BR>

probably tons of others here to answer any questions

we may have. <BR>

Athough, I don't think anyone would refer to it as

& quot;a piece of <BR>

cake & quot; :)My surgeon acted the same way. I was

fortunate in only having <BR>

to have my braces for 6 months. Of course, that is the

game plan for <BR>

now. & nbsp; Things certainly have a way of changing

around here! This group <BR>

is super supportive- so post away.<BR>

<BR>

<BR>

<BR>

<BR>

<BR>

<BR>

-- In orthognathicsurgerysupport@y...,

& quot;Johanne3 & quot; & lt;johanne3@y... & gt; <BR>

wrote:<BR>

& gt; <BR>

& gt; <BR>

& gt; Hi everyone!<BR>

& gt; <BR>

& gt; I just recently discovered your group and thought

I'd join to get a <BR>

& gt; little insight on my future orthognathic surgery.

<BR>

& gt; <BR>

& gt; I'll be getting lower jaw surgery to correct an

open bite in about <BR>

18 <BR>

& gt; months or so (my orthodontist, periodontist and

prosthodontist <BR>

still <BR>

& gt; need to torture me a little longer before the

surgery) <BR>

<BR>

</tt>

<br>

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