A typical cells in brushing of ERCP

[Guest guest]

Two and a half months ago I had a ERCP to put in a

stent and then have it removed 1 week later. During

one of those procedures, they took brushings in my

ducts..................

.................and the doctor is JUST now getting

back to me that they found A typical cells.....

ok, let's forget that I had cancer of the

cervix...let's also forget I had colon cancer.......

does this mean I most likely have cancer of my bile

ducts??

I am right now between HFH and U of M because my

insurance wouldn't cover a transplant at HFH...now, I

may not get a transplant at all because of this.

And how in the world do I get an expedited repeat

procedure to verify that they did find these A typical

cells (ummm cancer...sorry, my genetic luck is not

good so I am not going to wish, hope or believe

anything otherwise)

I walked in from work today, on the phone to a friend

talking about her pregnancy when I saw a note for me

on the table saying, " doctor called you have A typical

cells from the brushing... " What a wonderful note to

come home to. I don't think Mike knew what he wrote

down...he doesn't know what it means, but from the

look I made when I read it and then dismissed my

friend from the phone...and then went into my bedroom

slamming the door, I think he realized it wasn't

particularly good news.

Then he wanted me to go to his ball game to 'take my

mind off it' I don't want to take my mind off it. If

I do indeed have cancer and transplant is out of the

question, and they have already wasted 2.5 months in

telling me, I have much more important things to think

about, do with, or not do with my life than watch a

stupid ball game. Everything is about him, and if you

don't go to root for him then he mopes, but I don't

care. Call me selfish, call me anything but I need to

talk about this and already he is trying to take my

mind off of it..yeah, so he can go on pretending

everything is just FINE.

OH I JUST WANT TO SCREAM!!!!!!!

I tried to call my sister, but she is at work. I

didn't want to tell my mom, not over the phone and I

won't do it to my kids either, not until I have

accepted everything myself.

Baudoux-Northrup

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

[Guest guest]

,

It is awful to get a note like that and have no one to talk to. I'm glad you vented on us - we are here for you. 5 years ago my brushings came back as atypical. The report actually said adenocarcinoma. The doctor made a point to show me but he also said he didn't believe it and had the lab run the test again. The lab did finally tell us it was infection and that cancer and infection are hard to tell apart! That is scary......... Anyway I wonder if the lab could rerun it again. When you call your doctor it would be good to find out why it took them so long to get the results to you. There is really no excuse for that.

Hang in there, . You can do this.

Blessings,

Barby

[Guest guest]

Barby &

Guess I'm in this group too. About 5 years back, I was left a telephone message stating the doctor had taken the "liberty" of scheduling me with a oncologist (3 weeks into the future) as my bone marrow test showed I "urgently" needed to see an oncologist. After 3 agonizing weeks, I was told by the oncologist that the only cancer I had was in the mind of a pathologist who didn't want to make the hard call. Seems inflammation (from UC) can also be read as leukemias. As I had lost 2 biological aunts to the disease, the referral was plausible, although flat wrong.

Sorry to hear this happens so much.

Bestjd, 45UC 1973, Jpouch 2000, Chronic Pouchitis 2001, PSC 2004, Stage 3Southern, ILkrmpotich@...

Re: A typical cells in brushing of ERCP

,

It is awful to get a note like that and have no one to talk to. I'm glad you vented on us - we are here for you. 5 years ago my brushings came back as atypical. The report actually said adenocarcinoma. The doctor made a point to show me but he also said he didn't believe it and had the lab run the test again. The lab did finally tell us it was infection and that cancer and infection are hard to tell apart! That is scary......... Anyway I wonder if the lab could rerun it again. When you call your doctor it would be good to find out why it took them so long to get the results to you. There is really no excuse for that.

Hang in there, . You can do this.

Blessings,

Barby

[Guest guest]

,

You are right to be angry! It only ever took a month to get my

results from those brushings...and that was longer than I liked. My

doctor always told me there were lots of false positives, though, so

I agree with Barby - get a second opinion on those brushings and see

what the doc wants to do next. You've made it through so much - lets

just hope that this is one of those times that the medical gurus are

wrong!

I'm really glad that you vented here. I hope you find someone close

who is willing to listen, listen, and listen some more. You DO need

to talk it out - only then will you get to a place where you can do

something " fun " to take your mind off of it. I want to tell you that

you're one of those people who I read about on this site, and then I

know that I can keep going --- because if can handle all that

she has, then I can sure handle my little bumps in the road. I

thought that before tx, and I still think it now. Even if this is

the worst, you are a survivor!

Hang in there!

Deb in VA

PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005, PTC w/ drain

placement 9/15/2005

[Guest guest]

Do you know for sure that it is cancer? Has the diagnosis been made, or have

they found atypical cells, which could represent infection, inflamation, or

who knows what else. If their not sure enough to make the diagnosis neither

should you be willing to accept it.

Hang tough. I know this kind of news even preliminary can shake your very

foundation. Sending positive thoughts your way.

Best

jd, 45

UC 1973, Jpouch 2000, Chronic Pouchitis 2001, PSC 2004, Stage 3

Southern, IL

krmpotich@...

A typical cells in brushing of ERCP

> Two and a half months ago I had a ERCP to put in a

> stent and then have it removed 1 week later. During

> one of those procedures, they took brushings in my

> ducts..................

> ................and the doctor is JUST now getting

> back to me that they found A typical cells.....

>

> ok, let's forget that I had cancer of the

> cervix...let's also forget I had colon cancer.......

>

> does this mean I most likely have cancer of my bile

> ducts??

>

> I am right now between HFH and U of M because my

> insurance wouldn't cover a transplant at HFH...now, I

> may not get a transplant at all because of this.

>

> And how in the world do I get an expedited repeat

> procedure to verify that they did find these A typical

> cells (ummm cancer...sorry, my genetic luck is not

> good so I am not going to wish, hope or believe

> anything otherwise)

>

> I walked in from work today, on the phone to a friend

> talking about her pregnancy when I saw a note for me

> on the table saying, " doctor called you have A typical

> cells from the brushing... " What a wonderful note to

> come home to. I don't think Mike knew what he wrote

> down...he doesn't know what it means, but from the

> look I made when I read it and then dismissed my

> friend from the phone...and then went into my bedroom

> slamming the door, I think he realized it wasn't

> particularly good news.

>

> Then he wanted me to go to his ball game to 'take my

> mind off it' I don't want to take my mind off it. If

> I do indeed have cancer and transplant is out of the

> question, and they have already wasted 2.5 months in

> telling me, I have much more important things to think

> about, do with, or not do with my life than watch a

> stupid ball game. Everything is about him, and if you

> don't go to root for him then he mopes, but I don't

> care. Call me selfish, call me anything but I need to

> talk about this and already he is trying to take my

> mind off of it..yeah, so he can go on pretending

> everything is just FINE.

>

> OH I JUST WANT TO SCREAM!!!!!!!

>

> I tried to call my sister, but she is at work. I

> didn't want to tell my mom, not over the phone and I

> won't do it to my kids either, not until I have

> accepted everything myself.

>

>

> Baudoux-Northrup

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

>

>

>

>

[Guest guest]

I have heard

about this a lot. With all the malpractice out there, labs are choosing to find

some grey area they can safely sit in. When I had some terrible cervical

issues, my paps kept coming back with atypical squamous cells of unknown

significance. My doctor said I could have that for ever and have nothing wrong…really.

I did end up with a hysterectomy. In retrospect it was more than likely due to

my last pregnancy being placenta previa (with a twin that I lost). My cervix

had the vascular supply increased 3x (size wise). When they cut into me I bled

like a banshee. That vascular oddity was probably creating the atypical ….

Everyone is

trying to save their butt.

From: [mailto: ] On Behalf Of JD & MARLENE KRMPOTICH

Sent: Tuesday, September 27, 2005

6:54 PM

To:

Subject: Re: A

typical cells in brushing of ERCP

Barby &

Guess I'm in this group too. About 5 years back, I was left

a telephone message stating the doctor had taken the " liberty " of scheduling

me with a oncologist (3 weeks into the future) as my bone marrow test showed I

" urgently " needed to see an oncologist. After 3 agonizing weeks, I

was told by the oncologist that the only cancer I had was in the mind of a

pathologist who didn't want to make the hard call. Seems inflammation (from UC)

can also be read as leukemias. As I had lost 2 biological aunts to

the disease, the referral was plausible, although flat wrong.

Sorry to hear this happens so much.

Best

jd, 45

UC 1973, Jpouch 2000, Chronic Pouchitis 2001, PSC 2004, Stage 3

Southern, IL

krmpotich@...

Re:

A typical cells in brushing of ERCP

,

It is awful to get a note like that and have no one to

talk to. I'm glad you vented on us - we are here for

you. 5 years ago my brushings came back as

atypical. The report actually said adenocarcinoma. The doctor

made a point to show me but he also said he didn't believe it and had the lab

run the test again. The lab did finally tell us it was infection

and that cancer and infection are hard to tell apart! That is

scary......... Anyway I wonder if the lab could rerun

it again. When you call your doctor it would be good to find out

why it took them so long to get the results to you. There is really

no excuse for that.

Hang in there, . You can do this.

Blessings,

Barby

[Guest guest]

Dear ,

I am thinking about you and sending you all good vibes. Call the docs and tell him how you feel for sure. And demand that something be done PDQ to retest those brushings. Good luck with the straw thing- it used to work with patients I gave really nasty tasting meds to.

Ali

[Guest guest]

: Sorry to hear about the findings, I would demand that the

brushings be sent to another lab for retesting.

Two and 1/2 yrs ago when I had my annual colonoscopy the lab found

pre-cancerous cells. When my GI doc called me in I was nervous

because he never calls me to come in. I just have my regular 3mth

checks, that day he told me about the pathology of the biopsies and

also that I would also need a liver transplant. I had other tests

done around that time. I already new I had PSC but was told it would

be 10 yrs or more to transplant if I ever needed one. Lone behold 1

1/2 yrs after diagnoses , he's telling me I need transplant and that

I probably have colon cancer.

He said he would send the biopsies to another hospital for testing

and they came back negative for cancer. I was retested 6mths later

and no cancer.

So hang in there and ask for a second test of the brushings at a

different lab.

Debbi

UC 1987,PSC 2001, Ltx 2005

> Two and a half months ago I had a ERCP to put in a

> stent and then have it removed 1 week later. During

> one of those procedures, they took brushings in my

> ducts..................

> ................and the doctor is JUST now getting

> back to me that they found A typical cells.....

>> Baudoux-Northrup

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

[Guest guest]

,

I am sorry to hear of your latest problems. But, I know from all these years of

sharing with you that you will soon make this another outrageous episode in the

-saga. (I am not making light of your anxiety.) I know how strong

(unbelievably so) you are. Your passion will soon direct itself at those

hospitals, doctors, and labs to get themselves back in line. It is inexcusable

how slow and cavalier they have been regarding the results of the brushings. You

will do what you need to do because it is the way you live. I would guess that

you will never change your basic self. You are independent, creative,

delightful, with a sharp wit. You will always stand by your family regardless of

how they treat you. I know that you will handle this, drama and all (I myself

and very dramatic and worry like crazy). I'll hlep you brainstorm for

appropriate things to say to the " people who know someone who. . . " at Mike's

work. And oh yeah, I am so-o-o-o sorry about the itching coming back--mine

too. Bloody sheets again, bloody clothes, scabby body. I remember when I first

joined the group in the sring of '01, you were the first person to give me

advice on dealing with the diabolical itch. You are a source of strength, humor,

and endurance to us. My prayers are with you. May your soul find some peace to

replace the anxiety and go ahead and tell us all about it. If the only thing I

can do today to help someone is read about their struggles than I am glad I can

do at least that much. Take care, Cheryl in Id 47, PSC/AIH, UC, etc.

A typical cells in brushing of ERCP

> Two and a half months ago > ................and the doctor is JUST now getting

> back to me > OH I JUST WANT TO SCREAM!!!!!!!

>

> I tried to call my sister, but she is at work. I

> didn't want to tell my mom, not over the phone and I

> won't do it to my kids either, not until I have

> accepted everything myself.

>

>

> Baudoux-Northrup

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

>

>

[Guest guest]

Yes it can be treacherous out there. Without the context of the relationship, and even then so, doctors are increasingly ordering things out of liability management and not patient management. I've had the opportunity to assist in training Family Practitioner residents in my practice, and it is eye opening to hear how well versed they are even before full independent practice on matters of malpractice.

My wife had placenta previa "complete" with our son. She did the hospital bed rest thing for about 6 weeks.

Bestjd, 45UC 1973, Jpouch 2000, Chronic Pouchitis 2001, PSC 2004, Stage 3Southern, ILkrmpotich@...

Re: A typical cells in brushing of ERCP

,

It is awful to get a note like that and have no one to talk to. I'm glad you vented on us - we are here for you. 5 years ago my brushings came back as atypical. The report actually said adenocarcinoma. The doctor made a point to show me but he also said he didn't believe it and had the lab run the test again. The lab did finally tell us it was infection and that cancer and infection are hard to tell apart! That is scary......... Anyway I wonder if the lab could rerun it again. When you call your doctor it would be good to find out why it took them so long to get the results to you. There is really no excuse for that.

Hang in there, . You can do this.

Blessings,

Barby