Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 Great! Michele W Goodwin wrote: > > -- > We are planning on going either the Wed or Thur before the > conference. My has a aunt in West Palm and we must see her > prior to coming home so that may mean Disney on Wed. We are also > leaving the conference Sunday morning so that I might be back to work > Monday evening. Lets us know and we will try to connect while we are > there. > > Randy,Garlands Poppy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 Michele, we haven't discussed it for awhile--I think we are just hoping to m,ake it to the conference. Depends on the job situation--so far he's still working and I will have an interview next week for kindergarten maternity leave that MAY go to the end of the year. I go back and forth on weather I want to do it or not, but if Pat loses his job..... hope you find the answers you need for Aubrie and that she is feeling bettter. we just have colds here, but liam's is really lingering a long time. thinking we may forego disney intil the fall--not so hot----none of us do heat too well, epsecially me---am I being selfish? we'll see.... have a good night, the big boys are cub scouting--keegan is boy 3 in the flag presentaion, reads a paragraph about technology---is so easy for him, makes it hard knowing timmy is almost 3 years older and there is no way he could do it. hoping I can talk liam into staying home, so at least one of them isn't grumpy in the a.m. maria mom to timmy 9, ChARGE, keegan 7 in march, liam 4 wife to pat disney again > > I know we've talked about this before, but we're making real plans now. > DJ's mom is going to help us go to Disney this year and we decided it > makes the most sense to combine it with the conference trip. So... our > plan will be to do Disney a few days before, get to Miami on the 21st to > relax for a day, then do the conference. Anyone else doing Disney??? > > Michele W > mom to Aubrie 7 yrs and 13 yrs > > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2005 Report Share Posted January 19, 2005 Thanks for the info. I just read about the disability services on the website. What I have a problem with in general is getting preferential seating for visual performances. Anyone have tips for that? It seems that you just have to order very early to get good seats or arrive very early for a general admission show. I wish there was a better answer, but I really don't know that there is. When we make our final plans at Disney, I'll contact them about preferential seating for shows and see what they can do. Michele W Pat and Halloran wrote: > Michele, when I was there with tim in may we got a wheel chair from > them...of course it was an organization who ordered a certain amount > and we > went to handicapped entrances. I know if you go to town hall at > disney you > can get a handicapped pass, and all who are with you too!! > > maria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2005 Report Share Posted January 19, 2005 There are handicap lines for the shows too, if I recall, so I think she could still go to the front, and be escorted right on down to the front row. If your son is going on a ride that Aubrey is not he does not get to use the pass, but if they are both riding he does. Kim > > Thanks for the info. I just read about the disability services on the > website. What I have a problem with in general is getting preferential > seating for visual performances. Anyone have tips for that? It seems > that you just have to order very early to get good seats or arrive very > early for a general admission show. I wish there was a better answer, > but I really don't know that there is. When we make our final plans at > Disney, I'll contact them about preferential seating for shows and see > what they can do. > > Michele W > > Pat and Halloran wrote: > >> Michele, when I was there with tim in may we got a wheel chair from >> them...of course it was an organization who ordered a certain amount >> and we >> went to handicapped entrances. I know if you go to town hall at >> disney you >> can get a handicapped pass, and all who are with you too!! >> >> maria > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2005 Report Share Posted January 19, 2005 I have a feeling we'll spend quite a bit of time apart since the kids' interests are so different. will want to ride thrill rides and Aubrie will want to do shows and mild kiddie rides. Should be interesting! I am really looking forward to it but I'm already a bit overwhelmed trying to decide what to see in our limited time. Michele W Kim Lauger wrote: > There are handicap lines for the shows too, if I recall, so I think she > could still go to the front, and be escorted right on down to the > front row. > If your son is going on a ride that Aubrey is not he does not get to > use the > pass, but if they are both riding he does. Kim > > > > > > > > Thanks for the info. I just read about the disability services on the > > website. What I have a problem with in general is getting preferential > > seating for visual performances. Anyone have tips for that? It seems > > that you just have to order very early to get good seats or arrive very > > early for a general admission show. I wish there was a better answer, > > but I really don't know that there is. When we make our final plans at > > Disney, I'll contact them about preferential seating for shows and see > > what they can do. > > > > Michele W > > > > Pat and Halloran wrote: > > > >> Michele, when I was there with tim in may we got a wheel chair from > >> them...of course it was an organization who ordered a certain amount > >> and we > >> went to handicapped entrances. I know if you go to town hall at > >> disney you > >> can get a handicapped pass, and all who are with you too!! > >> > >> maria > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 , We weren't sure how would do with the flying, either, with her ear issues, and it seemed like a big expense for a possibly terrible experience! Let me know if you find any hotel/Disney deals in Orlando. We'll be looking, too. , mom to (3) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 How frustrating is that Michele. It seems to be a generalised problems as even all the way here in London I was booking theatre seats for the girls and asked about front row seats in view of 's vision and was told they are not allocating seats but if we arrive half an hour early we MAY get front row. Obviously they have not encountered the restlessness that comes with CHARGE and other disabilities. Hopefully, Disney is aware enough to be better than this but who knows? I would not like to get there early and wait for a shoe on a hot summer's day with a child who even under the best circumstances finds it difficult to stay still. Hope you find a way......... Flo > >Reply-To: CHARGE >To: CHARGE >Subject: Re: Re: disney again >Date: Wed, 19 Jan 2005 12:55:10 -0600 > >Thanks for the info. I just read about the disability services on the >website. What I have a problem with in general is getting preferential >seating for visual performances. Anyone have tips for that? It seems >that you just have to order very early to get good seats or arrive very >early for a general admission show. I wish there was a better answer, >but I really don't know that there is. When we make our final plans at >Disney, I'll contact them about preferential seating for shows and see >what they can do. > >Michele W > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 Flo- As I think about this, it gets more frustrating. It seems to me that allowing preferential seating assignment for a visually impaired person is a reasonable accomodation. They usually tell us that the only thing available is the handicapped seating area but that's not usually close enough. The thing about it is that if the seats aren't good enough, we might as well not go cuz there's not point. For totally blind people, they have auditory accomodations, but there really isn't a good way to meet the needs of kids like ours. I can see that they don't have a policy in place because it's not very common, but I think it's reasonable to expect some special treatment. Now, for a show with all reserved seating, if the best seats are already sold, there really isn't a reasonable solution. There's just no way around having to order early and pay a lot. Michele W Florence Njeru wrote: > How frustrating is that Michele. It seems to be a generalised > problems as > even all the way here in London I was booking theatre seats for the girls > and asked about front row seats in view of 's vision and was told > they are not allocating seats but if we arrive half an hour early we > MAY get > front row. Obviously they have not encountered the restlessness that > comes > with CHARGE and other disabilities. Hopefully, Disney is aware enough > to be > better than this but who knows? I would not like to get there early and > wait for a shoe on a hot summer's day with a child who even under the > best > circumstances finds it difficult to stay still. Hope you find a > way......... > > Flo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 I foudn that there IS a bus that goes from Disney, and goes right down teh road the hotel where the confernce is going is. Re: Re: disney again > > , > > We weren't sure how would do with the flying, either, with her ear > issues, and it seemed like a big expense for a possibly terrible > experience! > > Let me know if you find any hotel/Disney deals in Orlando. We'll be > looking, too. > > , mom to (3) > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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