Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 and Deb, I had noticed the same thing as well with the PSC and rheumatoid arthritis. I’ve had two cholangitis attacks, and both were during my period, and my joints hurt much worse at that time as well…a double whammy. My doctor didn’t hesitate to admit that it DID have an effect on both diseases. So, should we women be hopeful that after menopause the PSC will get better? Is there anyone on this list that has had this experience? (in Texas) Re: & female question , The docs might not agree, but when I presented with symptoms, I was having cholangitis attacks - monthly just before or during my period. Therefore, I think that estrogen levels and your cycle can play a big role in this disease! I'm now on antibiotics 24/7, so it has calmed down somewhat, but I am unable to take hormonal birth control because of how it interacts with my liver. I took it for seven years before stopping near diagnosis. It took a long time for the docs to admit that my period played a role in my disease. My doctor readily admits that this is a problem now. (I often try to get my liver transplant labs done near my period because that's when I'm at my worst.) All I can say is that you're not imagining things...Wish I knew something that would definitively help other than the standard antibiotics. I hope it helps to know you're not alone. Deb in VA PSC 1998, UC 1999, Listed Ltx 2001, MELD 17 > I also have a question for the female PSCers. Apologies - this is a sensitive question.. Can ones menstrual cycle affect PSC? > > My husband noted that the 3 times I have been hospitalised in the last 8 months and the numerous times my liver function has gone crazy its always when I am menstrating. My GI Dr doesn't think its related but we are now starting to wonder??? > > Take care > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 I also think estrogen levels play a part in PSC. Some men with Cirrhosis (my son Ken being 1 of them) get Gynecomastia and it’s known that some men with liver disease have trouble with low levels of testosterone, so why shouldn’t women get an equal share of the “fun”. Let’s face it a diseased liver can make a mess out of anything and everything. L Barb in Texas - Son Ken (30) UC 91 & PSC 99 (Whose stress level just went through the roof as my hubby goes out on his first fire call). -----Original Message----- From: Deb >>I think that estrogen levels & your cycle can play a big role in this disease! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 I also think estrogen levels play a part in PSC. Some men with Cirrhosis (my son Ken being 1 of them) get Gynecomastia and it’s known that some men with liver disease have trouble with low levels of testosterone, so why shouldn’t women get an equal share of the “fun”. Let’s face it a diseased liver can make a mess out of anything and everything. L Barb in Texas - Son Ken (30) UC 91 & PSC 99 (Whose stress level just went through the roof as my hubby goes out on his first fire call). -----Original Message----- From: Deb >>I think that estrogen levels & your cycle can play a big role in this disease! Quote Link to comment Share on other sites More sharing options...
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