Re: Cholangitis attacks - Barb

[Guest guest]

Bobby had tons of cholangitis attacks pre transplant and has had 5

cholangitis attacks since his transplant 2-4-04...YUK, YUK, YUK!!!

Cholangitis attacks - Barb

Barb,

Didn't see a reply to your question so I'll give my uneducated opinion.

First, I assume you meant to say after transplant and not " before " . I

would think that if PSC were to return, you would run the risk, probably

lower, of having a cholangitis attack. Steve, Tim or even (research)

Dave

can probably give you a better answer.

Darin

P.s. Is Ken going to be listed?

Does everyone get Cholangitis attacks before transplant?

Or is it like some of the other symptoms - some do and some don't?

Barb in Texas - Son Ken (30) UC 91 & PSC 99

P.S. Called the Hep at Baylor and spoke to his nurse about Ken...waiting

to hear back.

[Guest guest]

Hello, I was reading your post about your husband having cholangitis attacks

post transplant. Why is he still having these attacks? Has PSC returned?

Also, My husband is being seen at UC and was wondering who his doctor was

there? His is Dr. Fred Weber. THanks Tina

Cholangitis attacks - Barb

>

>

>

> Barb,

> Didn't see a reply to your question so I'll give my uneducated opinion.

> First, I assume you meant to say after transplant and not " before " . I

> would think that if PSC were to return, you would run the risk, probably

> lower, of having a cholangitis attack. Steve, Tim or even (research)

> Dave

> can probably give you a better answer.

>

> Darin

>

> P.s. Is Ken going to be listed?

>

>

>

> Does everyone get Cholangitis attacks before transplant?

>

> Or is it like some of the other symptoms - some do and some don't?

>

> Barb in Texas - Son Ken (30) UC 91 & PSC 99

> P.S. Called the Hep at Baylor and spoke to his nurse about Ken...waiting

> to hear back.

>

>

>

>

>

>

>

>

[Guest guest]

Tina, yes, his PSC was rediagnosed on 10-04...Dr. Weber was his doc

pre-transplant, now it's the whole liver transplant team...we were VERY

happy with all of them...hope it is the same for you all!!

Re: Cholangitis attacks - Barb

Hello, I was reading your post about your husband having cholangitis

attacks

post transplant. Why is he still having these attacks? Has PSC returned?

Also, My husband is being seen at UC and was wondering who his doctor

was

there? His is Dr. Fred Weber. THanks Tina

Cholangitis attacks - Barb

>

>

>

> Barb,

> Didn't see a reply to your question so I'll give my uneducated

opinion.

> First, I assume you meant to say after transplant and not " before " .

I

> would think that if PSC were to return, you would run the risk,

probably

> lower, of having a cholangitis attack. Steve, Tim or even (research)

> Dave

> can probably give you a better answer.

>

> Darin

>

> P.s. Is Ken going to be listed?

>

>

>

> Does everyone get Cholangitis attacks before transplant?

>

> Or is it like some of the other symptoms - some do and some don't?

>

> Barb in Texas - Son Ken (30) UC 91 & PSC 99

> P.S. Called the Hep at Baylor and spoke to his nurse about

Ken...waiting

> to hear back.

>

>

>

>

>

>

>

>

[Guest guest]

HI!! Its Tina again, What are the chances of PSC coming back after

transplant? That is very upsetting to know that it came back about 6 months

later. Thanks Tina

Cholangitis attacks - Barb

> >

> >

> >

> > Barb,

> > Didn't see a reply to your question so I'll give my uneducated

> opinion.

> > First, I assume you meant to say after transplant and not " before " .

> I

> > would think that if PSC were to return, you would run the risk,

> probably

> > lower, of having a cholangitis attack. Steve, Tim or even (research)

> > Dave

> > can probably give you a better answer.

> >

> > Darin

> >

> > P.s. Is Ken going to be listed?

> >

> >

> >

> > Does everyone get Cholangitis attacks before transplant?

> >

> > Or is it like some of the other symptoms - some do and some don't?

> >

> > Barb in Texas - Son Ken (30) UC 91 & PSC 99

> > P.S. Called the Hep at Baylor and spoke to his nurse about

> Ken...waiting

> > to hear back.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

We were told there was a GOOD chance it would NOT come back...I think

there was a big discussion that the 30% chance of recurrence is actually

a little higher...but hey, look at Klug, the snowboarder...he is

still PSC free after his transplant...it doesn't happen to everyone!!!

Re: Cholangitis attacks - Barb

HI!! Its Tina again, What are the chances of PSC coming back after

transplant? That is very upsetting to know that it came back about 6

months

later. Thanks Tina

Cholangitis attacks - Barb

> >

> >

> >

> > Barb,

> > Didn't see a reply to your question so I'll give my uneducated

> opinion.

> > First, I assume you meant to say after transplant and not " before " .

> I

> > would think that if PSC were to return, you would run the risk,

> probably

> > lower, of having a cholangitis attack. Steve, Tim or even

(research)

> > Dave

> > can probably give you a better answer.

> >

> > Darin

> >

> > P.s. Is Ken going to be listed?

> >

> >

> >

> > Does everyone get Cholangitis attacks before transplant?

> >

> > Or is it like some of the other symptoms - some do and some don't?

> >

> > Barb in Texas - Son Ken (30) UC 91 & PSC 99

> > P.S. Called the Hep at Baylor and spoke to his nurse about

> Ken...waiting

> > to hear back.

> >

> >

> >

> >

> >

> >

> >

> >