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No so quick question everyone. This year has been a really bad year for

where sleep is concerned. She has been consistently woken up by a

blocked nose and a lot of the time we have been unable to settle her and she

has been quite distressed because she is so tired and wants to sleep but too

blocked to sleep. She is not a mouth breather by nature so when asleep it

is difficult. When she is awake, we have noticed that she does mouth

breathe quite a lot and that her breathing is quite noisy, almost as though

she was snoring while awake.

Her nose has been and continues to be relentlessly more runny than it has

been in previous years, colds take infinitely longer to go etc etc.

The upshot of all this is that she is usually very tired at school and I

don't know how the poor girl learns anything. She has been quite irritable

with her therapies which is quite unlike her (anyone who saw her in the pool

would be surprised that she has been upset in hydrotherapy and horse riding

which she normally loves. I think it has all been because she too is

tired).

My question is, have I heard something on here about the part enlarged

adenoids have played in these sort of problems with children with CHARGE?

Has anyone had surgery for removal of adenoids? Why? What has been the

outcome?

I don't look kindly on surgery but her quality of life needs to improve so

we have to look at all options. The CHARGE night parties plus the

additional nose-led disturbances are a bit much. I also wonder what part

the adenoids (if that is the problem) play in the persistent glue ear.

We are seeing the respiratory specialist next week so would appreciate any

input, advise, suggestions, experiences etc as I am thinking of asking for

re-referral to ENT.

Thanks.

Flo

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