Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 I had to laugh at this one. We are way too tiny and rural for online grocery shopping. Don't I wish!! And another laugh at the vision of little Josh at the beach! Michele W Joanne Maslin wrote: > hi Michele, > can't help on the vomming front, hope you find a solution soon. > > had to wonder if you can grocery shop online where you are though? - i > did a lot of grocery shopping like that when ds was really little and i > couldn't get out to the shops easily... it costs a little bit for the > delivery but i always found it a life saver! > > cheers, > Jo > ds Ben 5, ds Josh 2 my little CHaRGE'r who just spent a few hours at the > beach today complete with ski goggles and togs :0) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 Michele, You are like me in that I have to process all this stuff with words, Roy does not. He is great at listening, but time does not always allow for that. Roy is also very big on dealing with what is, not what might be. He also is very good at knowing that whatever is going on " this too will pass " My trouble is that I see what happens with some of the older CHARGErs and I am not convinced that it won't " pass " into something worse if we are not on top of things. (Occasionally I even admit to fear that it will pass into something else no matter what I do.) I feel the same way for my other kids too. The two of us balance each other out well, but I put a lot of weight on myself for making my kids future as " pain free " as possible. It is a good thing we have our friends on the list to help us through. Kim > > You're right, I don't think it's the GI tract. We had an xray and > everything seemed to be moving fine. Since she's doing ok now, I'm > feeling on the foolish side and thinking it'll all be better tomorrow > and it was a virus. But... when we saw the dr on Fri and had all the > tests done, she was better and I felt foolish. Then she got sick that > night, Sat night, Mon morning... weird. > > I know it's not a big thing -- not like some of the crisis we deal with > here. But it has made me feel better to have a conversation with > someone. I've been out of touch with friends thru all this and DJ just > doesn't see it as seriously as I do. Plus, he doesn't like to talk > something to death the way I do :-) > > Michele W > > Kim Lauger wrote: > >> Michele, >> >> This reminds me one time Dylan's stomach did stop emptying, he could not >> keep anything down during that phase. I don't know how we stayed out >> of the >> hospital, one of the few times I would have been glad to have had him >> admitted. I am sure all of these answers are making you even more >> nuts, it >> could be this, it could be that, but each one really is different. If she >> is eating at all and only getting into vomiting cycles occasionally >> then it >> doesn't seem like a problem of the GI track stopping. >> >> Kim > > > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 hi Cole, ds = dear son dd = dear daughter .... you get the idea :0) Jo Angelcole wrote: >wait wait wait... what does ds stand for? sorry i'm new lol.. and nosy.. >Cole > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 Michele Westmaas wrote: >I had to laugh at this one. We are way too tiny and rural for online >grocery shopping. Don't I wish!! > > > oh well, worth a try ... lucky here i guess, NZ has a great network of supermarkets/banks etc along the lenght of the country and so it is easier to set that sort of thing up i suppose... >And another laugh at the vision of little Josh at the beach! > > he was so cute, gotta love the summer weather we have at the moment... Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 oh wow... i LOVE that... maybe someday i'll have one of my own :-) not likely... but it could happen! Cole :-) On Thu, 20 Jan 2005 22:05:15 +1300, Joanne Maslin wrote: > hi Cole, > ds = dear son > dd = dear daughter > ... you get the idea :0) > > Jo > > Angelcole wrote: > > >wait wait wait... what does ds stand for? sorry i'm new lol.. and nosy.. > >Cole > > > > > > > > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > > > ________________________________ > Quote Link to comment Share on other sites More sharing options...
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