Re: update on Peyton's Behaviors

[Guest guest]

Who ever thought one would say awesome news to a sinus infection, but I am

glad they found something. Kim

On 11/29/04 8:17 PM, " mcyoung@... "

wrote:

>

> Just wanted to update all of you. We FINALLY found

> something today. Peyton's pediatrition did some more x-rays

> of his sinuses and found a nasty infection. On his CT scan

> he had a couple of weeks ago, they saw " modest thickening of

> the mucosal lining " and thought it was something chronic

> but today he showed a full blown infection. Thank you Meg

> for suggesting looking at Sinuses again!!

> As to what to attribute the suddeness of the first night

> when Peyton's behavior began, I'm wondering if wearing the

> implant with something going on in his head was

> painful/caused a headache? We know that when Peyton had his

> Cochlear Implant, the ENT who did the surgery said his

> anatomy was " waco " . Might he possibly have extra pain(more

> than the rest of us)when he gets infection in there? We do

> know over the course of him having his implant(4yrs) he will

> NOT wear it when there is fluid in his ear and now we know

> sinus issues.

> Do any of you have kids who can tell you when they get

> sinus infections if they have a lot of pain?

> We are also attributing the OCD behavior as a coping

> mechanism to his frustration at his pain. We hope and pray

> our theories are correct. At least we have found SOMETHING.

> Thank you all of you for your suggestions, theories and

> personal experiences. Maybe our experience with this can

> help someone else someday.

> Ann, we are incorporating the pain chair now when we give

> him Tylenol and Ibuprofin. We definately think this is

> something he could pick up on.

> We will let you know how this all plays out. The true test

> will be to see if his behavior is gone when his infection

> gets cleared up. We'll keep you posted!

> Mike and Corrie Young

>

> _______________________________________________________________

> Get FREE email at:

> http://CatholicExchange.com

> Your Faith. Your Life. Your World.

>

>

>

[Guest guest]

What a relief to have found something that is a plausible explaination.

I hope that this is the end of the behavior issues. I know that I have

been beside myself when I've had sinus infections -- nasty, nasty stuff.

You asked about kids communicating about pain. Aubrie sometimes does.

She's got good communication skills. But-- she's got a very strange

understanding of pain. I think something is wrong with her tactile

system. When she was little-- like 2 or 3 yrs old-- she had a splinter

in her foot. It was winter so I didn't see it as she went from socks to

footy pjs. Then somehow I noticed this terrible red area. The doctor

had to surgically (in the office) remove the foreign object from her

skin. It was awful. But she hadn't told me that anything hurt. Same

thing this year with a splinter in her knee that she didn't tell me

about and wouldn't let me touch cuz she insisted it didn't hurt.

Finally, I got it out.

When she had her hip surgery in Aug, she always insisted that she was a

happy face on the pain scale. We could tell the pain meds were wearing

off when she'd get crabby, but she never would say that anything hurt.

Immediately after surgery, she insisted that all areas of her skin felt

the same when the nurse tried to tell how her epidural was doing.

Throughout the next several days, she insisted that her skin felt the

same all over. The way we knew the epidural was wearing off was when

she said she had to go potty.

Sometimes she will say her ear hurts. She can tell me when her tummy

hurts. But she definitely does not process tactile input the way the

rest of us do. She screams as if it truly hurts to have her hair

shampooed or her nails clipped.

It baffles me. I really hope you are on to something with Peyton.

Please keep us posted.

Michele W

Aubrie's mom 7 yrs

>

[Guest guest]

glad you found a solution to his behaviors. hope he feels better soon.

update on Peyton's Behaviors

>

> Just wanted to update all of you. We FINALLY found

> something today. Peyton's pediatrition did some more x-rays

> of his sinuses and found a nasty infection. On his CT scan

> he had a couple of weeks ago, they saw " modest thickening of

> the mucosal lining " and thought it was something chronic

> but today he showed a full blown infection. Thank you Meg

> for suggesting looking at Sinuses again!!

> As to what to attribute the suddeness of the first night

> when Peyton's behavior began, I'm wondering if wearing the

> implant with something going on in his head was

> painful/caused a headache? We know that when Peyton had his

> Cochlear Implant, the ENT who did the surgery said his

> anatomy was " waco " . Might he possibly have extra pain(more

> than the rest of us)when he gets infection in there? We do

> know over the course of him having his implant(4yrs) he will

> NOT wear it when there is fluid in his ear and now we know

> sinus issues.

> Do any of you have kids who can tell you when they get

> sinus infections if they have a lot of pain?

> We are also attributing the OCD behavior as a coping

> mechanism to his frustration at his pain. We hope and pray

> our theories are correct. At least we have found SOMETHING.

> Thank you all of you for your suggestions, theories and

> personal experiences. Maybe our experience with this can

> help someone else someday.

> Ann, we are incorporating the pain chair now when we give

> him Tylenol and Ibuprofin. We definately think this is

> something he could pick up on.

> We will let you know how this all plays out. The true test

> will be to see if his behavior is gone when his infection

> gets cleared up. We'll keep you posted!

> Mike and Corrie Young

>

> _______________________________________________________________

> Get FREE email at:

> http://CatholicExchange.com

> Your Faith. Your Life. Your World.

>

>

>

[Guest guest]

Wow, I am glad you figured it out. Poor guy.

Even though Patty was totally verbal she never complained of illnesses in any

area of her body. We only knew she was getting ill by her behaviors. When

she did get cranky, moody or just beligerant one way to tell if Patty has a

sinus infection is by smelling her breath. We would smell her ears for an ear

infection. You can tell the smell sometimes. And when she had a sinus

infection she also used to make this gross sucking sound. She can somehow suck

it out

of her sinus through her palate. Sounds disgusting but it works.

We just took Patty to her ENT today. Patty had said her ears were itchy and

she couldn't stand having her hearing aid mold in. Wouldn't you know she has

an infection. Patty is 20 and totally verbal and with it yet she still isn't

clear about her health. Putting the drops in her ears are another story. She

makes it seem as though I was putting fire into her ears. The infection

doesn't bother her as much as the drops.

Bonnie, mom to Kris 22, Patty CHARGE 20 and wife to

[Guest guest]

OK-- I was hoping Aubrie would outgrow this but looks like I'm stuck

with it!!! Our little (and not so little) twin crazy girls!

Michele W

Turk22082@... wrote:

> Wow, I am glad you figured it out. Poor guy.

>

> Even though Patty was totally verbal she never complained of illnesses

> in any

> area of her body. We only knew she was getting ill by her behaviors.

> When

> she did get cranky, moody or just beligerant one way to tell if Patty

> has a

> sinus infection is by smelling her breath. We would smell her ears

> for an ear

> infection. You can tell the smell sometimes. And when she had a sinus

> infection she also used to make this gross sucking sound. She can

> somehow suck it out

> of her sinus through her palate. Sounds disgusting but it works.

>

> We just took Patty to her ENT today. Patty had said her ears were

> itchy and

> she couldn't stand having her hearing aid mold in. Wouldn't you know

> she has

> an infection. Patty is 20 and totally verbal and with it yet she

> still isn't

> clear about her health. Putting the drops in her ears are another

> story. She

> makes it seem as though I was putting fire into her ears. The infection

> doesn't bother her as much as the drops.

>

> Bonnie, mom to Kris 22, Patty CHARGE 20 and wife to

>